Meniere's disease....

Suzannegary

Hi all...
I've been suffering terribly with menieres for the past, 18 months.. I work with children and its become a huge problem.. Dizzy. Nausea. Tinnitus etc etc.. I'm up and down all the time, the constant head and body movement is taking its toll.. I'm on Mycostatin and Stemitel for symptoms but still suffering... Im so stressed out as I don't know when an attack may happen, I don't drop Thank God but I do need to lie down and 9 out of, 10 times I'd sleep for hours after...
Does anyone know or is any one on disability allowance with this disease I really can't cope anymore...

Graces7

Hoping you get the support you need; someone close to me suffers greatly. Finds white noise reduces the tinnitus. Have had minor skirmishes myself and it is indeed disabling.

Please can you contact a specialist online support group also as so many go through this? And know the ways to get help?

OUTDOORLASS

Hi Suzanne. A friend of my husband, who used to be a long distance truck driver, suffers badly from the disease. Reading between the lines, I.d say he is on disability. He has.nt worked for about 3/4 years with the disease. Best wishes.

LegacyUser

Hi Suzanne

Just to let you know that I have meniere's disease and an underachieve thyroid. I have found that whenever my thyroid levels are disrupted by missing a pill or by being on too much eltroxin (the thyroid medication), it causes flare ups of meniere's. So, first off I would suggest having bloods done for your thyroid if you haven't already.

Secondly, I have charted my vertigo attacks (I usually drop) and they have categorically occurred either just before or about the time of my menstrual cycle. I find that the two weeks after a cycle I have the least deafness etc than at any other time of the month. The vertigo attacks increased in frequency when I was taking a hormone pill that was oestrogen based and so I switched to the mirena coil and the attacks are less frequent and less severe. So, my advice would be to record everything in a diary, types of attacks, scale of severity etc and see if a pattern shows itself. If it does, you can go from there.

Just remember that Meniere's disease is a name for symptoms, and symptoms have a cause so you can try to find what is causing yours. I had no symptoms at all for over 3 years when my thyroid was controlled really well and I was on the mirena coil.

Iggy Pop

I understand you mean well but the quote "Regimen Not Recognized by Standard Medicine" and the fact that it's a laid out plan of what to do contravene our charter for medical advice