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MUSCULAR DYSTROPHY DUCHENNE EXON 51 SKIPPING

VColmey · 2017-03-04 22:20:19

My name is Vivien, mother to a 6 year old boy who has recently been diagnosed with the horrific DMD,Duchenne Muscular Dystrophy genetic muscle wasting disease.Im very eager to get in touch with the other families in Ireland who are also suffering with a loved ones diagnosis, Im looking to track down the other families whos…

04-03-2017 10:20pm

#1

VColmey

Registered Users, Registered Users 2 Posts: 1 ✭

Join Date: March 2017

Posts: 0

My name is Vivien, mother to a 6 year old boy who has recently been diagnosed with the horrific DMD,Duchenne Muscular Dystrophy genetic muscle wasting disease.Im very eager to get in touch with the other families in Ireland who are also suffering with a loved ones diagnosis, Im looking to track down the other families whos boys are eligible for the treatment of exon 51 skipping.Please Please get in touch with me as I would love to discuss treatment coming to Ireland in the near future.

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