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Motor Neuron Disease

  • 20-11-2016 11:37pm
    #1
    Registered Users, Subscribers, Registered Users 2 Posts: 13,641 ✭✭✭✭


    My father in law died today. Was diagnosed with MND a few months ago. He has lived with myself and my wife the last 14 years.

    Really don't know what to do. What to say. Need to be strong for my wife, but **** me, this is ****ty


Comments

  • Registered Users, Registered Users 2 Posts: 3,606 ✭✭✭Ginger83


    antodeco wrote: »
    My father in law died today. Was diagnosed with MND a few months ago. He has lived with myself and my wife the last 14 years.

    Really don't know what to do. What to say. Need to be strong for my wife, but **** me, this is ****ty

    I am truly sorry for your loss. I understand all too well about MND as I'm living with the cruel bast**d of a thing.

    Just be there for her, thats all you can do, my thoughts are with you.


  • Registered Users, Subscribers, Registered Users 2 Posts: 13,641 ✭✭✭✭antodeco


    Ginger83 wrote: »
    I am truly sorry for your loss. I understand all too well about MND as I'm living with the cruel bast**d of a thing.

    Just be there for her, thats all you can do, my thoughts are with you.

    He was never a big man, but seeing how quickly it can destroy someone is so scary


  • Registered Users, Registered Users 2 Posts: 3,606 ✭✭✭Ginger83


    antodeco wrote: »
    He was never a big man, but seeing how quickly it can destroy someone is so scary

    Just when you think it might have a remission it strikes again leaving you grieving the loss you another action or ability you will never be able to use again. There is no mercy.


  • Registered Users, Registered Users 2 Posts: 3,606 ✭✭✭Ginger83


    antodeco wrote: »
    He was never a big man, but seeing how quickly it can destroy someone is so scary

    How did his journey with MND go?


  • Registered Users, Subscribers, Registered Users 2 Posts: 13,641 ✭✭✭✭antodeco


    Ginger83 wrote: »
    How did his journey with MND go?

    He hasn't been well the last 2 years. They only diagnosed about 6 months ago at most. The hospital on Thursday said he was fine and didn't need to be in the hospice!


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  • Registered Users, Registered Users 2 Posts: 3,606 ✭✭✭Ginger83


    antodeco wrote: »
    He hasn't been well the last 2 years. They only diagnosed about 6 months ago at most. The hospital on Thursday said he was fine and didn't need to be in the hospice!

    Was it limb onset or bulbar?I may have bumped into him/you at the clinic in Beaumount.

    This condition is so unpredictable, I met a lady last Jan in relatively good shape. I had hoped to meet her again but found out she passed 5 weeks later.

    With me, I'm 33 with limb onset, diagnosed almost 2 yrs but symptoms over 3 yrs.


  • Registered Users, Subscribers, Registered Users 2 Posts: 13,641 ✭✭✭✭antodeco


    I'm not sure being honest. He had COPD and MND, the only full case of it Ireland I believe. He wasn't able to talk properly and was provided with a feeding tube, as he wasn't able to eat properly. Unfortunately that tube failed, which meant he wasn't eating at all. He was only around 25kgs in weight


  • Registered Users, Registered Users 2 Posts: 17,430 ✭✭✭✭banie01


    antodeco wrote: »
    My father in law died today. Was diagnosed with MND a few months ago. He has lived with myself and my wife the last 14 years.

    Really don't know what to do. What to say. Need to be strong for my wife, but **** me, this is ****ty

    I'm sorry for your loss and for the nature of it.
    I've had experience of MND and the havoc it wreaks.

    Dont feel that you need to "Stay strong" and bottle up your own feelings.
    Yes your wife has lost her Dad, but you have had a loss too.
    It points to a strong bond when a F.I.L has lived with you for 14 years.

    Be mindful of each other and remember to be each others support through the grief. Love is helping each other cope in the dark, may the light shine on you both soon enough.


  • Registered Users, Registered Users 2 Posts: 798 ✭✭✭Bicycle


    I'm sorry for your loss.

    My own Dad died from MND many years ago. I still find it difficult to read about the condition.

    After my Dad died I felt guilt. A complex guilt. Because I found it hard to come to terms with the fact that on one level I was upset my wonderful Dad had gone and would not see his grandchildren / grandchildren growing up. But on the other hand I was glad he had passed away because he was no longer struggling with it.

    All you can do is be there. And be supportive in the days afterwards when everyone has left and both of you are on your own having to cope with the grief.


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