post chemo side effects

Tombones

Hi all,
Just finished chemo a few weeks ago for colon cancer. Been on medication called xeloda.
I have a strange lingering side effect whereby if i nod my head forward my feet give a pulse or throb. Nothing serious, oncologist hasn't heard of it and it doesnt actually ache. Its just unnerving.

Has anyone whos used xeloda had this side effect before and provide some personal insight?

Tombones

Update a year later.

That weird nodding affect has gone away. I also had numbness on the soles of my feet and tips of my fingers for a long time which seem to be regressing too. These drugs mess with your nervous system among many other things.

~Good luck to all on the journey.

noble00

Hi I also have the numbness at the end of my fingers and what feels like pins and needles in my face I'm finished all chemo two years now and still have this , hope it goes, it's not painful just annoying ðŸ™

CathyMoran

I am a longer survivor (I had chemo then the surgery for esophageal cancer in 2006) but the effects of the chemo did go, I am still living with the effects of the surgery but I am living and that is the main thing.

mark_jmc

Hi,
I'm 2 years post chemo- I had peripheral neuropathy for a while after the chemo but that's gone now. A longer lasting side effect I seem to have is intermittent minor tinnitus - I think this is a result of Cisplatin

noble00

HI yes I also still have tinnitus it's good to know that everything does eventually go back to normal at the moment I feel like crap tired all the time thanks for the reply