Lack of ANY Medicalhelp

Unresolved Pain

have been the victim of a medical 'cover-up' for nearly 20 years.I am so very, very ill. Everywhere I go and explain what happened to me,( damaged by an epidural steroid injection) and, how I am still suffering with 'nerve -pain' all over my body,plus many other symptoms widespread spasms which affect my breathing,kidneys & abdominal wall etc; I'm met with deliberate obtuseness by doctors when all I want is an honest discussion of my condition & prognosis,they all refer me back to the original pain specialist who says there is NOTHING wrong with me.( I spent 6 months with a headache and vomiting.. which I had to get over on my own ( with the help of my children only) the rest of the resulting injuries are still untreated and I'm left with indescribable pain 24/07
If there is ANY doctor out there willing to help me,PLEASE let me know.
P.s as I said ALL I want is an honest discussion of my condition & prognosis,you can only imagine the fear I feel at not knowing the full extent of my injury,or,having no medical person to discuss this with.

Stheno

It's against the rules to give any medical advice the most anyone here can suggest is that you find a doctor who will listen to your issues

amdublin

Unresolved Pain wrote: »

have been the victim of a medical 'cover-up' for nearly 20 years.I am so very, very ill. Everywhere I go and explain what happened to me,( damaged by an epidural steroid injection) and, how I am still suffering with 'nerve -pain' all over my body,plus many other symptoms widespread spasms which affect my breathing,kidneys & abdominal wall etc; I'm met with deliberate obtuseness by doctors when all I want is an honest discussion of my condition & prognosis,they all refer me back to the original pain specialist who says there is NOTHING wrong with me.( I spent 6 months with a headache and vomiting.. which I had to get over on my own ( with the help of my children only) the rest of the resulting injuries are still untreated and I'm left with indescribable pain 24/07
If there is ANY doctor out there willing to help me,PLEASE let me know.
P.s as I said ALL I want is an honest discussion of my condition & prognosis,you can only imagine the fear I feel at not knowing the full extent of my injury,or,having no medical person to discuss this with.[/QUOTE]

Yes I can only imagine.


Would you consider, in conjunction with looking for a doctor for the physical pain, that you go speak with a counseller about it all?

Unresolved Pain

amdublin wrote: »

Unresolved Pain wrote: »

have been the victim of a medical 'cover-up' for nearly 20 years.I am so very, very ill. Everywhere I go and explain what happened to me,( damaged by an epidural steroid injection) and, how I am still suffering with 'nerve -pain' all over my body,plus many other symptoms widespread spasms which affect my breathing,kidneys & abdominal wall etc; I'm met with deliberate obtuseness by doctors when all I want is an honest discussion of my condition & prognosis,they all refer me back to the original pain specialist who says there is NOTHING wrong with me.( I spent 6 months with a headache and vomiting.. which I had to get over on my own ( with the help of my children only) the rest of the resulting injuries are still untreated and I'm left with indescribable pain 24/07
If there is ANY doctor out there willing to help me,PLEASE let me know.
P.s as I said ALL I want is an honest discussion of my condition & prognosis,you can only imagine the fear I feel at not knowing the full extent of my injury,or,having no medical person to discuss this with.[/QUOTE]

Yes I can only imagine.


Would you consider, in conjunction with looking for a doctor for the physical pain, that you go speak with a counseller about it all?

I have spoken to a Counselor about it, the problem is that I NEED a dr.to help me,but none of them will,I have tried most of Ireland looking for help, only to have the door closed in my face to cover for their colleague (seems this is par for the course)and after 19 years my faith along with my family has suffered greatly by the original doctors callous lack of compassion or responsibility for my spinal fluid leak& and follow upinfection

Unresolved Pain

amdublin wrote: »

Unresolved Pain wrote: »

have been the victim of a medical 'cover-up' for nearly 20 years.I am so very, very ill. Everywhere I go and explain what happened to me,( damaged by an epidural steroid injection) and, how I am still suffering with 'nerve -pain' all over my body,plus many other symptoms widespread spasms which affect my breathing,kidneys & abdominal wall etc; I'm met with deliberate obtuseness by doctors when all I want is an honest discussion of my condition & prognosis,they all refer me back to the original pain specialist who says there is NOTHING wrong with me.( I spent 6 months with a headache and vomiting.. which I had to get over on my own ( with the help of my children only) the rest of the resulting injuries are still untreated and I'm left with indescribable pain 24/07
If there is ANY doctor out there willing to help me,PLEASE let me know.
P.s as I said ALL I want is an honest discussion of my condition & prognosis,you can only imagine the fear I feel at not knowing the full extent of my injury,or,having no medical person to discuss this with.[/QUOTE]

Yes I can only imagine.


Would you consider, in conjunction with looking for a doctor for the physical pain, that you go speak with a counseller about it all?

I have seen a councilor, but I really NEED a doctor, and after traveling the length & breath of Ireland looking for one (but as I said)they all refer me back to the original pain specialist who says there is NOTHING wrong with me. At his stage(after nearly 20 years) of trying to get help,my faith & family are worn out, it is just unbelievable that one un-compassionate doctor, who has done soo much damage,is the one being backed by colleagues, while my poor little family have had tonurse someone with a spinal fluid leak& infection,on their own

amdublin

Unresolved Pain wrote: »

amdublin wrote: »

I have spoken to a Counselor about it, the problem is that I NEED a dr.to help me,but none of them will,I have tried most of Ireland looking for help, only to have the door closed in my face to cover for their colleague (seems this is par for the course)and after 19 years my faith along with my family has suffered greatly by the original doctors callous lack of compassion or responsibility for my spinal fluid leak& and follow upinfection

How did you get on with the counsellor? Did it help at all?


I am not a medical person, nor can medical advice be given on boards unfortunately.


Were you diagnosed with spinal fluid leaks? I don't know what this is, it doesn't sound good If you were diagnosed with it is this not taking responsibility for the treatment of it?

Unresolved Pain

amdublin wrote: »

Unresolved Pain wrote: »

How did you get on with the counsellor? Did it help at all?


I am not a medical person, nor can medical advice be given on boards unfortunately.


Were you diagnosed with spinal fluid leaks? I don't know what this is, it doesn't sound good If you were diagnosed with it is this not taking responsibility for the treatment of it?

I was diagnosed with spinal fluid leak headache plus arachnoiditis in the U.K. .. unfortunately,the doctor here would not accept the diagnosis and asked for the scan,I had the scan sent to him & he said he lost it ,when I tried to re-contact the dr.in the u.k....he would not take my calls after he sent on the scan:(

amdublin

I'm sorry to hear this

At this point do you think you will get any further with any new doctor?

What about concentrating on pain management only and keeping yourself as pain free as possible from now going forward.

Unresolved Pain

amdublin wrote: »

I'm sorry to hear this

At this point do you think you will get any further with any new doctor?

What about concentrating on pain management only and keeping yourself as pain free as possible from now going forward.

'fraid NO pain relief has been forth coming,told to "walk 2miles" a in order to get pain relief doctors must admit you have pain in the first place, (due to the 'cover-up')my pain goes unacknowledged:( The injustice makes you want to scream & not just the pain!

Roselm

This might not be your thing at all but would you try contacting the media?! If your story is out there you might be more likely to get discussion going which may lead to new avenues re treatment. It might mean your doctor is put under pressure too if you think he is avoiding the issue...

Unresolved Pain

Roselm wrote: »

This might not be your thing at all but would you try contacting the media?! If your story is out there you might be more likely to get discussion going which may lead to new avenues re treatment. It might mean your doctor is put under pressure too if you think he is avoiding the issue...

I did this some years ago,and,they did run the story,but,due to the fact that the paper couldn't name the doc.or hospital...nothing came of it

fineso.mom

Have you ever discussed this with a solicitor ? Surely you would have a case against the hospital ? Or at least be able to get your medicso records ?

nikkibikki

Did you ever try contacting some radio show or tv show doctor? Like the doctor that does a weekly slot on the Anton Savage show every week?

You've been so strong to have coped this long with these issues along with the uncertainty. I've come to realize over the last few months that medicine isn't an investigative science but rather an eliminating one. Doctors tend to rule things out instead of actually trying to find out the cause of things.

amdublin

Unresolved Pain wrote: »

'fraid NO pain relief has been forth coming,told to "walk 2miles" a in order to get pain relief doctors must admit you have pain in the first place, (due to the 'cover-up')my pain goes unacknowledged:( The injustice makes you want to scream & not just the pain!

I always thought that sometimes there can be no explanation for pain and they just treat that? But obviously not.

Are they saying that when you say you are in pain, that they say you are not so no treatment? Or they cannot find a cause of the pain so no treatment?? It seems strange.

Do you do the 2 miles walking everyday? How does that work out/does it help?

Unresolved Pain

fineso.mom wrote: »

Have you ever discussed this with a solicitor ? Surely you would have a case against the hospital ? Or at least be able to get your medicso records ?

I have neither the health or the resources to take this on

Unresolved Pain

nikkibikki wrote: »

Did you ever try contacting some radio show or tv show doctor? Like the doctor that does a weekly slot on the Anton Savage show every week?

You've been so strong to have coped this long with these issues along with the uncertainty. I've come to realize over the last few months that medicine isn't an investigative science but rather an eliminating one. Doctors tend to rule things out instead of actually trying to find out the cause of things.

My old dr.was sooo busy 'covering up that he left my kidney disease undiagnosed for years, Ichanged my name,went to a non-irish dr.who told me that I had kidney disease

Roselm

fineso.mom wrote: »

Have you ever discussed this with a solicitor ? Surely you would have a case against the hospital ? Or at least be able to get your medicso records ?

You can access your medical files anyway. You have to send a request officially. I think there's an official form the HSE have. There is a small admin fee of like Eu20 or so as far as I remember.

Unresolved Pain

amdublin wrote: »

I always thought that sometimes there can be no explanation for pain and they just treat that? But obviously not.

Are they saying that when you say you are in pain, that they say you are not so no treatment? Or they cannot find a cause of the pain so no treatment?? It seems strange.

Do you do the 2 miles walking everyday? How does that work out/does it help?

My pain is treated as 'just' back/muscle pain,when in fact my pain comes from the central nervous system itself,(like exposed dental nerves all over the body) which does not respond to 'normal' pain meds. ( this is why I'm soooo desperate

Unresolved Pain

Roselm wrote: »

You can access your medical files anyway. You have to send a request officially. I think there's an official form the HSE have. There is a small admin fee of like Eu20 or so as far as I remember.

I got those earlier & they had been changed They said nothing out of the ordinary happened @the time,but,something did)...my bed had to have my feet raised after I nearly passed out..plus the dr.made several attempts before he got the needle in & I felt alt of 'warm' liquid on my back & the dr.started swearing!

Stheno

Unresolved Pain wrote: »

I got those earlier & they had been changed

Sounds like a conspiracy theory to me tbh.

So you've seen multiple medical professionals over a course of 20 years, all of whom have told you there is nothing wrong with you, believe that your records have been changed, have had the original doctor refuse to continue talking to you, and don't see any common factor here?

Like yourself?

You do realise that back pain includes spinal pain which is a core part of your central nervous system? Perhaps you need new meds?

Unresolved Pain

Stheno wrote: »

Sounds like a conspiracy theory to me tbh.

So you've seen multiple medical professionals over a course of 20 years, all of whom have told you there is nothing wrong with you, believe that your records have been changed, have had the original doctor refuse to continue talking to you, and don't see any common factor here?

Like yourself?

You do realise that back pain includes spinal pain which is a core part of your central nervous system? Perhaps you need new meds?

1)So you've seen multiple medical professionals over a course of 20 years, all of whom have told you there is nothing wrong with you,
Answer: I HAVE seen multipliable med.practitioners over the years.. all have NOT told me there is nothing wrong, instead, they say I must be treated by the doc.who caused the prob.in the first place, that they can't/won't treat another doctors 'patient'.


2)you, believe that your records have been changed,
Answer: My son & was at the hospital and witnessed the things which happened after the epidural..yet..my records say it was 'un-eventful'

There is NO need for you to be so mean & rub salt n the wounds so to speak,I'm on here to try to get some real help, I find it very difficult to type with the pain & don'tneed someone who calls my honesty & integrity into question

Unresolved Pain

Stheno wrote: »

Sounds like a conspiracy theory to me tbh.

So you've seen multiple medical professionals over a course of 20 years, all of whom have told you there is nothing wrong with you, believe that your records have been changed, have had the original doctor refuse to continue talking to you, and don't see any common factor here?

Like yourself?

You do realise that back pain includes spinal pain which is a core part of your central nervous system? Perhaps you need new meds?

I suffer from 'central pain' look it up

Stheno

Unresolved Pain wrote: »

1)So you've seen multiple medical professionals over a course of 20 years, all of whom have told you there is nothing wrong with you,
Answer: I HAVE seen multipliable med.practitioners over the years.. all have NOT told me there is nothing wrong, instead, they say I must be treated by the doc.who caused the prob.in the first place, that they can't/won't treat another doctors 'patient'.


2)you, believe that your records have been changed,
Answer: My son & was at the hospital and witnessed the things which happened after the epidural..yet..my records say it was 'eventful'

There is NO need for you to be so mean & rub salt n the wounds so to speak,I'm on here to try to get some real help, I find it very difficult to type with the pain & don'tneed someone who calls my honesty & integrity into question

So why don't you go back to the original doctor then?

Unresolved Pain

Stheno wrote: »

So why don't you go back to the original doctor then?

I did,he said that there was no such thing as an' epidural headache' when in fact there is & I found out since that he is an alcoholic who has damaged at least one other person, & still the docs.cover for him.

Stheno

Unresolved Pain wrote: »

I did,he said that there was no such thing as an' epidural headache' when in fact there is & I found out since that he is an alcoholic who has damaged at least one other person, & still the docs.cover for him.

Well no one here can help you with your problem tbh, so you really just need to find a medical professional that will assist you.

Posting random claims about your doctors being alcoholics etc is not of any use.

Unresolved Pain

Stheno wrote: »

Well no one here can help you with your problem tbh, so you really just need to find a medical professional that will assist you.

Posting random claims about your doctors being alcoholics etc is not of any use.

Its Not random, he has since joined AA I was told it was because he was 'made' to do so! ( strongly advised ) was the term used

And you don't know who will help me yet:) ....Or,who,in fact,I may help

Stheno

Unresolved Pain wrote: »

Its Not random, he has since joined AA I was told it was because he was 'made' to do so! ( strongly advised ) was the term used

And you don't know who will help me yet:)

But no one here does know who can help you, which is why we can't help you.

I know I've had to change doctors multiple times over my adult life as a result of moving where I lived, and I've never had an issue getting treatment despite other professionals being involved.

I've also had accidents abroad and been successfully treated here despite the original treatment being abroad, it hasn't been an issue.

I think you need to find a new GP, and see how you get on with them.
It could of course be that over the course of 20 years, you yourself have caused yourself to become known as someone whom those in the medical profession would prefer not to deal with, and that's now your issue.

Unresolved Pain

Stheno wrote: »

But no one here does know who can help you, which is why we can't help you.

I know I've had to change doctors multiple times over my adult life as a result of moving where I lived, and I've never had an issue getting treatment despite other professionals being involved.

I've also had accidents abroad and been successfully treated here despite the original treatment being abroad, it hasn't been an issue.

I think you need to find a new GP, and see how you get on with them.
It could of course be that over the course of 20 years, you yourself have caused yourself to become known as someone whom those in the medical profession would prefer not to deal with, and that's now your issue.

Are you trying to deliberately misunderstand? Please come back to me when your ORIGINAL injury is caused by a DOCTOR,you can NOT compare 'regular' illness with an injury CAUSED ORIGINALLY by a doctor!!!!!!!!

So,yes,I'm still hopeful of getting help..even after ALL those years of NEGLECT .. and who are YOU to try to take my hope away?

amdublin

I think your best bet is tackling it via pain management.


You have been prescribed a 2 mile walk every day. How did you get on with that?


If I was you I would be doing that and one of two things would happen (imo)
1. The prescription works - happy days keep it up
2. The prescription does not work, you can go back to your doctor and say that didn't work I need medication.


Are you on any medication for anything at all? For 20 years??

Stheno

Unresolved Pain wrote: »

Are you trying to deliberately misunderstand? Please come back to me when your ORIGINAL injury is caused by a DOCTOR,you can NOT compare 'regular' illness with an injury CAUSED ORIGINALLY by a doctor!!!!!!!!

So,yes,I'm still hopeful of getting help..even after ALL those years of NEGLECT .. and who are YOU to try to take my hope away?

I'm not trying to take your hope away, I'm simply saying that after twenty years of you questioning medical professionals, and going from one to another and not getting the help you think you need, that you may need to rethink it.

Find a GP who will support you and take it from there.

I've had injuries compounded by medical professionals making mistakes, it was one of the examples I was giving, I was misdiagnosed, and due to that made the injury worse as a result, but eventually (within two months) got the right diagnosis, and treatment followed.

Unresolved Pain

amdublin wrote: »

I think your best bet is tackling it via pain management.


You have been prescribed a 2 mile walk every day. How did you get on with that?


If I was you I would be doing that and one of two things would happen (imo)
1. The prescription works - happy days keep it up
2. The prescription does not work, you can go back to your doctor and say that didn't work I need medication.


Are you on any medication for anything at all? For 20 years??

I do try to walk,but,even sitting still my feet feel like I am constantly walking on rocks & the 'electric shock' sensation is awful,my bedclothes feel too heavy& I have all over muscle spasm& the sensation of very tight bands around my body especially my chest,which,makes breathing difficult,I have just been put on Baclofen.

amdublin

Unresolved Pain wrote: »

I do try to walk,but,even sitting still my feet feel like I am constantly walking on rocks & the 'electric shock' sensation is awful,my bedclothes feel too heavy& I have all over muscle spasm& the sensation of very tight bands around my body especially my chest,which,makes breathing difficult,I have just been put on Baclofen.

Do you walk the prescribed 2 miles every day?

Unresolved Pain

amdublin wrote: »

Do you walk the prescribed 2 miles every day?

As i said,it hurts to even breath!!
NO doctor, has discussed why I'm on Baclofen,nobody has discussed why I vomited for over six months & had a headache for the same length of time, nobody will tell me why a long hair is growing out of the center of the injection site, etc,etc doesn't any doctor care about the fact that someone would be NATURALLY worried about these things. Well for now, I can only try to find answers for myself, but, hopefully someone who can really help reads this,you never know, think of the GOOD Doctor in Tallagh hospital..... maybe he's not he only one with a conscience or a backbone;)

greep

Not sure if there is a magic cure/pill to help your condition, but I would recommend the following.
None of them is easy & each requires strong will, belief & persistence, but they don't really cost much or nothing at all.

1. Alternative medicine / naturotherapy practice.
2. Visit dietitian & change your diet - food intolerance test etc... (in general, low carbs & high in fat (but good fat) - google can help here.
3. Change your mind - hardest of all, but all evidence shows it works.
It's best if you type "JOE DISPENZA" in google or youtube & watch some videos. Really recommend it!
4. Buy Electrostimulator for the muscle problems

Stheno

Unresolved Pain wrote: »

As i said,it hurts to even breath!!
NO doctor, has discussed why I'm on Baclofen,nobody has discussed why I vomited for over six months & had a headache for the same length of time, nobody will tell me why a long hair is growing out of the center of the injection site, etc,etc doesn't any doctor care about the fact that someone would be NATURALLY worried about these things. Well for now, I can only try to find answers for myself, but, hopefully someone who can really help reads this,you never know, think of the GOOD Doctor in Tallagh hospital..... maybe he's not he only one with a conscience or a backbone;)

So you are not doing the exercise recommended?

And why don't you ask those questions of your doctor/s? Are you claiming they are all ignoring you when you ask these questions?

I've never had a doctor put me on meds of any sort without their being willing to answer any questions I've had about them tbh.

Unresolved Pain

greep wrote: »

Not sure if there is a magic cure/pill to help your condition, but I would recommend the following.
None of them is easy & each requires strong will, belief & persistence, but they don't really cost much or nothing at all.

1. Alternative medicine / naturotherapy practice.
2. Visit dietitian & change your diet - food intolerance test etc... (in general, low carbs & high in fat (but good fat) - google can help here.
3. Change your mind - hardest of all, but all evidence shows it works.
It's best if you type "JOE DISPENZA" in google or youtube & watch some videos. Really recommend it!
4. Buy Electrostimulator for the muscle problems

Thank you soo much,I really appreciate your help,Mary

Unresolved Pain

Stheno wrote: »

So you are not doing the exercise recommended?

And why don't you ask those questions of your doctor/s? Are you claiming they are all ignoring you when you ask these questions?

I've never had a doctor put me on meds of any sort without their being willing to answer any questions I've had about them tbh.

Again.. I ask... when was the last time YOU were injured by A DOCTOR??????

Stheno

Unresolved Pain wrote: »

Again.. I ask... when was the last time YOU were injured by A DOCTOR??????

2012 when a misdiagnosis caused me to end up with lifelong damage to my knee ion the form of a chronic injury that has caused me to change aspects of my lifestyle?

Again, I'll ask, are you doing the prescribed exercise for your condition that you've been advised to do?

amdublin

I really don't know....


Did your counsellor help you at all??

Unresolved Pain

Got to lie down for now,thanks everyone for feed-back. Hopefully someone might be able to help someday ( some Dr. like Dr James Grey,can only live in hope for now)
'night all:)

P.s.careful of the Epidurals/Spinals in the meantime

ElleEm

When you say you have seen doctors, what are their specialities? If this is nerve pain, then you need to see a neurologist. They can prescribe special medication that should address your nerve issues. I suffer with neuropathic pain myself and had a trapped nerve during a lumber puncture so I know how debilitating it can be. You may have to pay to go privately but at least you could get better management of it.
Have you sent in formal complaints to the relevant bodies about this?

Unresolved Pain

amdublin wrote: »

I really don't know....


Did your counsellor help you at all??

Sorry, yes,my counsellar said that the courts were full of people who had been injured just like me... but, as I already said,I'm far too ill for that, I still have unannounced 'bouts of vomiting for example among lots & lots of other stuff
'Nite for now,Mary

SillyBeans

Regarding the 2 miles walking... have you tried it at all or are you assuming it won't help or will be too painful? It might be painful initially but get easier as you get used to it? If the problem is with your spine, the doctors intention may be to strengthen the muscles around it by walking so if I were in your position, that would be the first thing I would try. Unfortunately, sometimes rehab/treatment can make you feel worse before you feel better. Doctors will be unlikely to try anything else until you've done what they've advised you to do in the first place. If you had high blood pressure and were given tablets but didn't take them, would you blame the doctor then when your blood pressure was still high?

Arachnoiditis, as far as I'm aware, doesn't have a cure, it's managed with pain relief and I think physio and maybe help from an occupational therapist if you have issues with specific tasks. Has the original doctor said something like that to you and you're taking it to mean he's not addressing it? This is just what a quick Google has told me and I'm not sure it's correct but not everything can be cured. I'm not saying that to take away your hope as you put it, but if you've had this many years of doctors being unable (perhaps unwilling) to help, maybe that's something you need to discuss with a councillor as suggested above?

When you had the epidural injections, did you give your consent? Did the doctor run through the risks with you? You're far from the first person to have negative side effects from a spinal injections so it may not have been doctor error that caused it. On the other hand it may be doctor error, but I wouldn't jump to conclusions on that.

You've mentioned he's an alcoholic. Do you have proof of that or is it just hear say? Only reason I ask is that if you start shouting about that and it turns out you're mistaken, it removes all of your credibility. Also, just because he's an alcoholic now doesn't mean he was then and even if he did have some drinking issues, it may never have affected his work. I've known many alcoholics who held down responsible jobs and were never drunk or hungover on the job. Just food for thought.

I find it very hard to believe that doctors are refusing to help and sending you back to that doctor. Have you explained you don't want to see him? Have you asked your GP to send you to a different doctor with the same speciality? You might have answered this but why we're you having injections in the first place? Were you giving birth or having a procedure or were you already in pain for some reason?

Finally, please dont jump down my throat here, but you come across as quite confrontational. I appreciate having been in pain for this long is a horrible thing to experience, but if you're as confrontational in person as you are in some of the posts on this thread, it may make doctors less willing to go the extra mile for you. They'll do what they are required to do, but if it were me I wouldn't be bending over backwards...

Best of luck with getting it resolved but I'd leave the media out of it, consult a solicitor by all means but again going to the media without proof won't do you any good if it does go to court.

amdublin

OP, SillyBeans has managed to say everything I was trying to say very diplomatically and helpfully - I am going to wish you the best and bow out, please consider everything SillyBeans has said. Good luck.

Stheno

amdublin wrote: »

OP, SillyBeans has managed to say everything I was trying to say very diplomatically and helpfully - I am going to wish you the best and bow out, please consider everything SillyBeans has said. Good luck.

Same here, in the case of my chronic knee condition, exercise and physio are crucial to actually getting it to a point where it is bearable, but doing the exercise takes effort and can hurt, but pays off in the long run.

SillyBeans

PS, yes I have had an injury as a result of a doctor and nurses mistake which required surgery, many many many hours of rehab, pain relief that nearly ripped my stomach apart as they were so strong, A&E admissions, scans etc etc etc. The problem is still on going and only an hour ago I was in tears due to a sudden bout of pain. I hope you feel that qualifies me to answer you posts.

Of course I came up against a few brick walls as it's human nature to try to defend people in your own profession as they had no concrete proof that a mistake was definitely made so why would they tell me that my pain was a result of Dr X which could give me ammo in a court case. It was however acknowledged that a mistake was made when I consulted a solicitor and my medical bills were reimbursed. I never bad mouthed the people in question though and I never went to a new doctor blaming the previous, right or wrong it paints a very poor impression of a person if they open by slandering someone else.

Again, I hope you have this issue resolved soon. I'd also perhaps change councillors as they aren't helping you much by feeding your thoughts about how many people have had the same issue, that isn't really their role. I'd expect that type of info to be coming from a solicitor not a councillor.

nikkibikki

nikkibikki wrote:

Did you ever try contacting some radio show or tv show doctor? Like the doctor that does a weekly slot on the Anton Savage show every week?

To follow up on this question OP, I think you need a medical professional to look at the whole picture with fresh eyes and an open mind. A GP is probably best placed to do this.

Alternative medicine might be worth a shot. Accupunture or Kinesiology maybe? Some people on this forum ridicule these types of suggestions and people who say it helps them but I say it's worth a try and if it helps in any way, it's gotta be better than putting more and more drugs into your body than necessary.

lulu1

I cannot believe how any doctor can fail to help you if you are in so much pain surly they can see it when you walk into their surgery.

Have you a family member or friend who can go with you to the doc and explain that you are not making it up

Graces7

Feeling for you mightily. I have ongoing damage due to misdiagnosis and inappropriate and damaging treatment over 30 years. I went through much of what you are enduring and finally left the UK when I got the diagnosis. I got no help from drs; they recommended exercise too which was the wrong thing for my illness. I manage the illness myself and challenge any treatement I know would harm. One thought occurs; google support groups here online for your condition. Fellow sufferers are the real experts and may be able to guide you to actual medical help. The internet got me through some terrible times. But now I am old and have no dependents so it is easier for me.. please update?