reflex sympathetic dystrophy

Graces7

just been diagnosed with this a month after a wrist fracture and wondered if anyone has experience.

it was comp icated as an error was made inserting k wires which slipped.

full cast on for another while.

thanks

Gremlinertia

Yeah, had it for bout twelve years now. Took six years to diagnose, also referred to as complex regional pain syndrome.. Not sure how it'll play out, it's been getting slowly worse the last couple of years. I am currently being referred back to the pain clinic in the hospital, tried to avoid drugs for quite a while.

Graces7

Gremlinertia wrote: »

Yeah, had it for bout twelve years now. Took six years to diagnose, also referred to as complex regional pain syndrome.. Not sure how it'll play out, it's been getting slowly worse the last couple of years. I am currently being referred back to the pain clinic in the hospital, tried to avoid drugs for quite a while.

so sorry to hear that. what caused it for you? i am hoping this will be short lived as the cause was the fracture that is healing well. i have m.e and reading the symptoms there seem to be correlations.

he prescribed large doses of vitamin c and amytriptilene for the pain. binned those after 2 nights as i was a zombie each day. only had a weeks supplry anyway. already take tylex for the joint and muscle pain of the m.e.

am due back to opd in two weeks so we shall see.

thanks...hoping it improves for you

Gremlinertia

Yeah most of the meds prescribed for me had me terribly doped up, but scarily aware of being doped up so i decided to stay on over counter pain medication as long as i can handle the pain.. I haven't read up much on it in a while though, but hospital have mentioned a spinal cord stimulator, but i don't want to go there just yet.

tritriagain

My wife has this in her foot/leg/back. She was getting illness benefit which was stopped and she applied for invalidity 4 months ago but hasnt heard anything yet. She is obviously unable to work and things are getting tight now. Just wondering has anyone any experience of such a claim with this complaint.

Graces7

tritriagain wrote: »

My wife has this in her foot/leg/back. She was getting illness benefit which was stopped and she applied for invalidity 4 months ago but hasnt heard anything yet. She is obviously unable to work and things are getting tight now. Just wondering has anyone any experience of such a claim with this complaint.

so sorry to hear that.

i am a pensioner so no claim to be made.

hope you have success with the claim

tritriagain

Thanks . It really is a horrible thing. Peoople look at you as if your gamming on . I wish anyone with this luck .it really can put your life on hold.

Gremlinertia

I was out for about a year, used sick certs from doc all along. I was brought in front of social welfare medical referee, but no joy there, i wasn't diagnosed at the time so maybe that had much to do with it.. That whole process will have to happen again sometime in the future as my condition is slowly worsening over time.. Perhaps try this topic on the social welfare forum?

username123

I know two people who have had this who got spinal cord stimulators and in both cases the rsd/crps went into remission a few years later, whether because of the spinal cord stimulator or not I don't know.

Gremlinertia

Spinal cord stimulator seems like a good job, but price means it's not done on public currently, it was up to a few years ago. By the time i need it i hope it'll be available again. Though it finishes me driving.

Graces7

tritriagain wrote: »

Thanks . It really is a horrible thing. Peoople look at you as if your gamming on . I wish anyone with this luck .it really can put your life on hold.

i had the battle re m.e for decades and thankfully am secure pensionwise now.

heaved a great sigh of relief when reached pension age. no more medicals or qualifying; been ill since 1970 so you can imagine..

i only read up on it after the consultant told me that this is the reason for greatly increased pain after broken wrist. i know the deterioration was caused by the k wires that slipped as before that there was little pain. hoping it will ease and heal. i am a professional hand knitter. feels somewhat better but a month o.n from the injury should not have been this bad

Graces7

the most recent research supports large doses of vitamin c. i am on 1500 mg a day. has anyone else tried this? it was prescribed by the consultant but i had to buy it.

Gremlinertia

Graces7 wrote: »

the most recent research supports large doses of vitamin c. i am on 1500 mg a day. has anyone else tried this? it was prescribed by the consultant but i had to buy it.

I've seen that myself - also meant to say that calcium is very important as reports have noted bones becoming less dense.

Graces7

Gremlinertia wrote: »

I've seen that myself - also meant to say that calcium is very important as reports have noted bones becoming less dense.

worth trying. 6 days supply from lidl is just over a euro. will stay on i think

something is helping anyways as have managed some craft work today for the first time for a month....getting the use of the hand back. thankfully. still aching but we shall see