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Frightened and lonely with MS.

  • 16-03-2011 2:20pm
    #1
    Flopsy
    Closed Accounts Posts: 5 ✭


    I'm 31 and was diagnosed October 2010. I feel so isolated and scared by it. I feel so bombarded and it's all so much of a shock...I have great days and then the fatigue ( I hate that word) hits and I feel like somebody pulled my plug out. Today was a really bad day, I'm so tired and have felt like I want to run away and hibernate all day. Hard to do when you have 2 little people and a house to look after!
    I sleep when our baby goes for his nap but some days it's not enough and want to stay there all day! I'm constantly thinking of all the things I should be doing and getting frustrated because I'm just too tired to budge! I mourn for my life!! A bit melodramatic I know but I had huge plans and now I won't realise most of them!
    I had such a terrible time at diagnosis - it was horrendous! There is no easy way to learn you have Multiple Sclerosis (I hate those words too..lol) I started on Copaxone which was horrific. Mood swings, awful pain at injection sites...I didn't stick it for long! Back to my Neuro and he's giving me a bit of time off and starting Avonex in May. Dreading the muscular injections and fluey symptoms but feel I really need to take back some control!
    My Husband is absolutely amazing and so supportive which only makes me feel guilty because like today, when I'm having a bad day - even I can't make sense of me!!
    Sorry this is so long. I haven't told anybody outside of close family and find it all really hard, I know I'm ranting! redface.gif
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