Si Joint dysfunction

whats this for?

Anyone here have this and get anywhere with treatment?

clinton40

Did you find any solution as Im told I have the same

cltt97

Have a look at this thread, might be useful http://www.boards.ie/vbulletin/showthread.php?t=2055331568

username123

Im currently being treated for it - its a nightmare, its going on 2 years and Ive been thrown from Billy to Jack by physios, consultants etc with no diagnosis til earlier this year. I really dont know if its curable, but I really hope so as my quality of life is greatly affected.

Hal Emmerich

People are wasting their time with Physios, stretching won't cure the problem, bit of relief maybe and that's it. A good Chiropractor, one that can read X-rays, MRI's and that is recommended can be worth a shot.

Prolotherapy may be worth looking into, it's available in Ireland now.

User = Kingofthehills read his posts, it's a different but similar complaint.

clinton40

username123 wrote: »

Im currently being treated for it - its a nightmare, its going on 2 years and Ive been thrown from Billy to Jack by physios, consultants etc with no diagnosis til earlier this year. I really dont know if its curable, but I really hope so as my quality of life is greatly affected.

Hey

What treatment are you getting - Does it work ?

Im in same situation as you and spend so much money but still the same

C

username123

Hi,
This year Ive tried a chiropractor and now a physio. The chiropractor did give some relief, but it was very shortlived and very expensive. He also had me doing a lot of stretching etc..

I felt it worked to a point, but not enough so I went to a physio who specialises in pelvic pain. Ive only seen him twice so far. Basically he says and does the same as the chiropractor, adjustments and as well as that he has me working on core exercises. His take on it is that the chiropractor was doing the right things, but that I also needed to be building strength.

So far I havent had any relief from seeing him, except for the day immediately after I see him I do feel better but it just slowly creeps back to the same pain. Im willing to give it a shot with the core exercises etc for 6/8 weeks anyway, he says he also has some ideas for if the current treatment doesnt work.

The nature of this pain/injury/dysfunction has changed for me over the past 2 years, some things that used to happen no longer happen, some things that never happened happen now etc... Its hard to get my head around, its much less acute than it was but its much more chronic. I used to get periods where it didnt really bother me, but not anymore. I also used to be able to exercise myself into relief, but not anymore.

What are you getting done for it? I never even met anyone else with this problem so its a bit of a relief to even know other people suffer with it too.

Hal Emmerich

In reply to a PM

No, I haven't had to have Prolotherapy myself (yet) it's available in two places that I can find.

I threw it up here as an option for people as it's a relatively new treatment in Europe (nobody has heard of it and that includes Docs and chiropractors) less invasive than surgery and seems to work great for some people but alas not so well on others.

If physio and Chiros haven't worked then it could be worth a try. Read up on it.

sparkling sea

Hi, I have Ankylosing Spondylitis and have had alot of pain from my S1 joint - into my butt cheek, down my leg and into my foot, I have iliotibal band problems, plantar fascitis and achilles tendontis becasue of of the problems with this joint.

For the past few years I have had a Caudal Epidural every 10 weeks or so specifically for the S1 joint problem and it is working really well now.

When I first started these epidurals once the anesthetic wore off, the pain was actually worse for about 7 to 10 days but after the 4th epidural, things got alot better in the S1 region. Now I only need to take painkillers and anti inflammatories on a constant basis and am off all my other meds.

I also think once you start to get te pain under control, you do have to make sure to stretch every day, slowly practice exercise like the plank to strenghten your stomach muscles, and get in a twenty minute walk - I know it hurts but you have to strenghten the muscles to help manage the pain longterm.

Finally if your really tired and sore make sure to take your meds and rest.

Hal Emmerich

Anyone try the prolotherapy or get anywhere with other treatment?

username123

Im getting somewhere finally. Its gradual but its working - no doubt about that.

Hal Emmerich

username123 wrote: »

Im getting somewhere finally. Its gradual but its working - no doubt about that.

With the Prolotherapy?

username123

Hal Emmerich wrote: »

With the Prolotherapy?

Sorry Hal, should have been clearer. No, not Prolotherapy, with the physio Im now seeing. I only see him every 4 weeks or so at the moment (I think Ive only seen him 4 times actually).

When I see him he does some physical manouvers to release the pelvis (similar to a chiropractor) - he actually showed my husband these techniques so that I can just 'self treat' as necessary and not have to pay him every time I need to be released. On top of that Im doing daily core strengthening exercises.

My own issue stems from 25 years of knee problems on one knee, between repeated dislocations and 2 different surgeries, I have spent many years not using one leg correctly and compensating with the other, leading to uneven stress through the pelvis, one side is a lot weaker, and my gait is still compensatory - so I work on that too. The physio feels I reached a point of weakness that my body began to suffer repeated reinjury in the area of the SI joint. He thinks that continuing to 'release' the pelvis when it overtightens is key to recovery as otherwise Im only strengthening the muscles while the pelvis is in the wrong position. But he has a time frame on it and if Im not reporting close to 90% relief by xmas he will be sending me for further investigations - saying that, I have close to that amount of relief already so hopefully Im on the right road.

My case is pretty clear cut with the history of knee issues, for other people there may be different answers.

Nollipop

If you have SI pain, please have a serious talk to the doctor about it possibly being Ankylosing Spondylitis (AS).

I went through years of being told I had sports injury related pain, or had pulled a muscle and so on.

It took a third health professional (one sports physio, then a chiropractor, then another Physio) to suggest that it could be AS. I had Ulcerative Colitis anyway, so lots of pain was attributed to that.

If you have stiffness in the morning that eases with exercise, night sweats, muscle spasms and (but not always) pain in your SI joint (Feels like a needle is being shoved into the centre of a buttock) or shoulder or chest, get it seen and don't be fobbed off.

I am on Humira now but had to have oral steriods, steroid injections and a load of different painkillers before I got this far.

Not enough health professionals flag it up because it only affects a reasonably small number of people (and mainly men!)