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UC Remission?

  • 28-12-2010 5:26pm
    #1
    lynda67
    Registered Users, Registered Users 2 Posts: 22 ✭


    My UC has been in remission for several months now. I'm taking Purinethol and Asacolon. I have been able to eat pretty much anything which is great as I really missed some foods. I never thought I'd drool over a salad and brown bread.

    I was wondering if anyone suffers any other symptoms though. While the disease is in remission. Without a trigger that I can think of I start to feel really unwell. Headache, weakness, fatique and I'm like that for the entire day and night, sleepless, restless. It's awful. The next day I feel like I've been hit by a bus, slow and lethargic. It takes till the next day to feel myself again. I have no other symptoms that might suggest a bug or a flu of some sort. It begins and ends the same way. I have three children and I'm finding it very difficult to cope with, getting them too and from school, being dependent on another mum to drop them home. This might happen twice a month or twice in one week and nothing for two months. I dread it now. This time it started christmas evening, by the next morning I was in such a bad way. Today I feel grand.
    As I said I can not find any link to each attack...the only way I can describe it.
    Anyone else suffering this?


Comments

  • #2
    razor8
    Registered Users, Registered Users 2 Posts: 2,332 ✭✭✭razor8


    I'm exactly the same, in remission nearly 12 months now since I started taking asacolon tablets. I was always very tired and getting it very hard to concentrate at work so my doctor done a more elaborate blood test and discovered I was low in vitamin D which is common in uc patients. After a week of desunin I was a new man but the past 2 weeks the chronic tiredness is back, falling asleep driving home and to work and headaches, just so frustrating

    Anyone any tips or ideas to counter this???


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