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sarwidosis

  • 10-11-2008 5:02pm
    #1
    alexjk
    Registered Users, Registered Users 2 Posts: 226 ✭✭


    I recently got diagnosed with this. I know it's an inflammation of the lung that caused me to go blind in one eye. Been taking a concoction of tablets and drips to restore vision to some degree but my main problem right now is that I got diagnosed in France where I am currently living. The doctors don't have strong enough English to properly explain the disease and I don't have strong enough French to properly understand medical language so does anyone have any experience with it? Google is surprisingly not giving many answers.


Comments

  • #2
    CathyMoran
    Registered Users, Registered Users 2 Posts: 7,458 ✭✭✭CathyMoran


    i think that you are talking about sarcoidosis _ i have it< they found it when i was getting a scan for something else! i have not had any problems yet< but then again i was just diagnosed!


  • #3
    [Deleted User]
    Posts: 0 ✭ [Deleted User]


    http://www.isarc.ie/

    Most of my family have this, and they have had one outbreak leading to diagnosis and never had a problem again. Touch wood.


  • #4
    sb01
    Registered Users, Registered Users 2 Posts: 8 ✭sb01


    Moonbaby wrote: »
    http://www.isarc.ie/

    Most of my family have this, and they have had one outbreak leading to diagnosis and never had a problem again. Touch wood.

    They do not know how lucky they are. I have been diagnosed 18 yrs and had a lotta problems.


  • #5
    alexjk
    Registered Users, Registered Users 2 Posts: 226 ✭✭alexjk


    Yeah, I did mean sarcoidosis. The doctors handwriting was hard to make out! I must say I am absolutely exhausted by the treatment, I'm bizarrely suffering from fatigue and insomnia. I actually flat out fell asleep in a class 2 weeks ago which was embarrassing. I have got a good deal of vision back in my eye, I seem an awful lot more enthusiastic about it than my doctors do. They seem to be annoyed that it isn't 100% back but I suppose that is their job.


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