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Asperger's in adults

  • 18-12-2006 10:56pm
    #1
    Registered Users, Registered Users 2 Posts: 2,686 ✭✭✭


    How likely is it that someone with (possible) Asperger's Syndrome could go into their twenties undiagnosed?

    If in retrospect some signs were present in childhood (but not acted upon or attributed to something else) how would a person go about seeking treatment, I assume a GP is the first point of contact but what happens after that to determine whether or not the person has this condition?


Comments

  • Registered Users, Registered Users 2 Posts: 345 ✭✭Gibs


    GDM wrote:
    How likely is it that someone with (possible) Asperger's Syndrome could go into their twenties undiagnosed?

    If in retrospect some signs were present in childhood (but not acted upon or attributed to something else) how would a person go about seeking treatment, I assume a GP is the first point of contact but what happens after that to determine whether or not the person has this condition?

    It is quite possible. I've come across several people in that situation. Several options for diagnosis: GP can be a good starting point in order to source an appropriate referral route. After that, a typical route is to attend a psychiatrist or a clinical psychologist in order to determine whether or not any diagnosis applies. In ideal circumstances it could be a multi-disciplinary team but that's difficult to find :rolleyes:

    A typical diagnostic process will usually involve the use of one or more psychometric tools (standardised questionnaires usually - the GADS [Gilliam Asperger's Disorder Scale] is a typical example), a detailed clinical interview with both the person and, ideally, with someone who knows them well. Someone who obtains a diagnosis of Asperger's should have a presentation that satisfies the criteria outlined in either DSM-IV-TR or ICD-10 (google them for more info).

    Try to find someone who has a lot of experience with diagnosing Asperger's and who uses a comprehensive evaluation procedure. There are some individuals working in the field who have been known to hand out diagnoses of Asperger's very easily, without necessarily going through a detailed, standardised assessment process. Personally I would suggest a clinical psychologist, as they tend to use standardised tools, but then I'm probably biased ;)

    Not sure what you mean by treatment. Many people who are diagnosed live very independent lives and have homes, jobs, relationships etc. The old cliche is that the halls of Oxford and cambridge are full of those with Asperger's. There is a school of thought that says that Asgerger's should not be seen as something to 'treat'. Social and communication difficulties are common however, and it is possible to improve skills in these areas if required. Good info available from here and a list of professionals in Ireland who do this kind of work can be found here


  • Moderators, Category Moderators, Entertainment Moderators, Science, Health & Environment Moderators, Regional East Moderators Posts: 18,800 CMod ✭✭✭✭The Black Oil


    It is definitely possible and does happen, particularly given that there was no NEPS in existence when said adults were young. Sometimes people aren't picked up until they reach college level and contact the counselling service or something like that. Sadly, there are very very few specific resources for adults with AS in this country. TCD is running the AS Project (no website) again this year geared at adults, not sure if you have to be a student though you probably need a diagnosis. I agree with Gibs' comment re: 'trreatment'.

    I suppose the GP is one route although it's not a medical condition, you'd need to contact a psychiatrist or clinical psychologist as Gibs has said. Asssessment can take about 1.5 - 2 hours, background history would be needed from parents re: language development and childhood information. There's a few things, the Autistic Spectrum Quotient and Autistic Diagnostic Inventory Revised that may be used in the interview.

    It is possible to have a few traits but not actually have the condition, I think it or any condition may only be really diagnosed if it affects the person negatively though I could have that arseways.


  • Registered Users, Registered Users 2 Posts: 2,686 ✭✭✭EdgarAllenPoo


    I'm aware that there is no treatment for Asperger's but that there are certain things that can be done to help a person with the condition eg. helping them cope with their daily life and improve their social skills.

    One thing I would query is how negatively a diagnosis of asperger's would affect a person's chances of employment given that some people may have a mental illness stigma in relation to the condition.


  • Registered Users, Registered Users 2 Posts: 345 ✭✭Gibs


    ... particularly given that there was no NEPS in existence when said adults were young. .

    As far as I know, NEPS (National Educational Psychology Service) still won't diagnose anything that looks remotely like it might be an ASD, though I am open to correction on that...;)


  • Moderators, Category Moderators, Entertainment Moderators, Science, Health & Environment Moderators, Regional East Moderators Posts: 18,800 CMod ✭✭✭✭The Black Oil


    Yeah, social skills interventions and daily living skills can be taught.

    I think I've seen it quoted in National Autistic Society (UK) literature that only about 12% of people with the condition find full time permanent jobs but to some extent you have to say to hell with the statistics. I'm not sure it's something you'd be obliged to disclose, maybe it would be better in the long run. For some it's quite 'hidden', they may just be seen as shy or quiet whereas in others it may be more overt.

    If someone gets a diagnosis they could ask their psychologist to write a letter that might be suitable for an employer - outlining the condition and some supports that may be useful.

    Edit: Gibs, you're probably right, probably a multidisciplinary approach is needed for such a diagnosis, from NEPS' standpoint anyway.


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  • Registered Users, Registered Users 2 Posts: 122 ✭✭taztastic


    I think this is something that to get checked out if you're concerned about it. Even if someone does get a diagnosis they dont need to disclose it to anyone they don't want to. The assessment might well rule out Aspergers or show up another condition with similar behavioural effects.
    I would be a bit cautious about relying on your GP since they might not be fully aware of diagnositic criteria or the behavioural and environmental implications of the condition.
    As far as I'm aware NEPS don't touch ASD with a barge pole. But I have met some Ed Psych's who work in the area. I know in the North where I'm training that Ed Psych's are hugely involved in autism and that there are services that diagnose adolescents or adults.


  • Closed Accounts Posts: 2,980 ✭✭✭Kevster


    I'm 23 and have been diagnosed with Asperger's. My childhood was miserable partly due to the fact that this went undiagnosed until a few months ago. I started going to a counsellor in college first, then my GP, then a psychiatrist, and then a therapist. The GP was the one that referred me to the psychiatrist - That was the biggest step. Before going to see him/her ensure that you have clear mental notes of your symptoms. I maintain a file on my computer that is a manifest of my symptoms. ALL of these symptoms are related to Asperger's - The syndrome defines me perfectly.


    Having Asperger's makes life very tough but it can be good also. Academically I excel in everything because I am studying something that is of interest to me. It also helps in work situations because I become completely focused to the task at hand and aim to complete everything to perfection. The downside is, of course, the social aspect - I find it extremely difficult.


    Getting the diagnosis was a big help. I would research the syndrome more however in order to be sure that it describes you. Oh, and be completely open and honest about your symptoms. I purposefully failed to tell my psychiatrist many things about me because I honestly thought that he would think I was insane. Once I discovered Asperger's Syndrome I became more open about who I was.


    Take care my friend,
    Kevin.


  • Closed Accounts Posts: 2,980 ✭✭✭Kevster


    GDM wrote:
    I'm aware that there is no treatment for Asperger's but that there are certain things that can be done to help a person with the condition eg. helping them cope with their daily life and improve their social skills.

    One thing I would query is how negatively a diagnosis of asperger's would affect a person's chances of employment given that some people may have a mental illness stigma in relation to the condition.


    True, there is no defined treatment. I am however taking anti-depressants and have regular visits to a Cognitive Behavioural Therapist. These help but only to a point. Life is very difficult. It doesn't help when I also have Ulcerative Collitis and Raynaud's Syndrome :(

    ...each day I feel like crying.


  • Registered Users, Registered Users 2 Posts: 122 ✭✭taztastic


    The downside is, of course, the social aspect - I find it extremely difficult.

    That must be tough Kevster. Can your college offer you some support in this respect?


  • Closed Accounts Posts: 2,980 ✭✭✭Kevster


    Thanks for asking.

    The college only has a general counselling service which is good enough I suppose. However, I don't avail of that considering I have a Therapist, Psychiatrist, and GP with whom I have good relations with outside of college. At the start of each academic year I inform my year-head of what is going on with me though - He/she usually tells the other lecturers.

    I hope you're getting on okay yourself.

    Take care,
    Kevin.


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  • Registered Users, Registered Users 2 Posts: 4,382 ✭✭✭snorlax


    [The Black Oil]It is definitely possible and does happen, particularly given that there was no NEPS in existence when said adults were young. Sometimes people aren't picked up until they reach college level and contact the counselling service or something like that. Sadly, there are very very few specific resources for adults with AS in this country. TCD is running the AS Project (no website) again this year geared at adults, not sure if you have to be a student though you probably need a diagnosis.

    i was involved in this as it's one of the projects of the peer support network in tcd, and yes you do need to be a student, and PSN volunteers have to be trained etc (30hours of training and lecture) before they are paired up with a student with aspergers who help teach them social skills cues. sometimes the student gets two volunteers. im not involved with it this year so im not sure it's going ahead but i can give you a contact.


  • Closed Accounts Posts: 2,980 ✭✭✭Kevster


    Hi,

    I just thought this might interest ye (The story hits home and has shaken me a bit):

    The daughter of songwriter Burt Bacharach and actress Angie Dickinson has committed suicide. She was an Aspie like you and I and was 40 years old. Her interests were kittens, earthquakes, meteor showers, blue skies, sunsets, and Tahiti amongst other things.

    I don't really know what else to say.


    Kevin.


  • Closed Accounts Posts: 2,980 ✭✭✭Kevster


    All I wanted this Christmas was some time alone but I haven't got that. I am now majorly pissed-off and highly stressed going into college tomorrow. It appears that I will have-to live alone in the future but with that comes intense loneliness and depression. There is no easy way out of this and I perfectly understand why that woman killed herself. It is something that (I'm sure) many Aspies have thought about in the past, including myself.


    Kevin.


  • Moderators, Category Moderators, Entertainment Moderators, Science, Health & Environment Moderators, Regional East Moderators Posts: 18,800 CMod ✭✭✭✭The Black Oil


    Read about her on BBC Online.:( RIP. As far as I know levels of depression and anxiety tend to be higher amongst those with AS/ASDs than other members of the population so I wouldn't be surprised if they had suicidal thoughts. The isolation and social difficulties probably feed into it too.


  • Closed Accounts Posts: 2,980 ✭✭✭Kevster


    You're correct: I'm an Aspie and I have suicidal thoughts throughout every day - Literally. We (Aspies) tend to use our English words correctly too so when I say literally I mean LITERALLY. I am a moderator on a psychological help forum and the Asperger's section is full of posts by depressed individuals including myself.

    :(

    Take care,
    Kevin.


  • Moderators, Category Moderators, Entertainment Moderators, Science, Health & Environment Moderators, Regional East Moderators Posts: 18,800 CMod ✭✭✭✭The Black Oil


    I would imagine it's tricky enough finding support from professionals who have experience working with people who have the condition, professionals who understand depression, anxiety and AS rolled into one I mean.


  • Registered Users, Registered Users 2 Posts: 122 ✭✭taztastic


    All I wanted this Christmas was some time alone but I haven't got that.
    Thats a really interesting point. I never thought of all the Christmas chaos being a stressor for someone who finds social interactions difficult. Seems obvious now I write it. It must be incredibly difficult to balance having company to prevent lonliness but having space to be by yourself.
    Just a thought but does family therapy have a role to play here?


  • Closed Accounts Posts: 2,980 ✭✭✭Kevster


    I am unsure what you mean exactly by family therapy. My family are fully aware of what is 'wrong' with me and they try to help me. However, they don't fully understand the way I think so their attempts to help are usually in vain. I am returning to my CB Therapist on Friday so she will help me I'm sure.


    Take care,
    Kevin.


  • Registered Users, Registered Users 2 Posts: 2,269 ✭✭✭cathy01


    Dear Kevin
    I have just read your post.
    We have been told that a family member has AS.
    I can not believe you are liveing your life like that.

    I hope the folowing will be of help for you.

    The North Fingal
    Autism and Aspergers Support Group


    A new support group for family affected by Autism and Aspergers syndrome will meet on

    DATE: Wednesday 31 January

    TIME: 7 O' clock

    VENUE: Bracken Court Hotel Balbriggan Co. Dublin

    It’s hoped that people can get together and discuss their concerns around the condition and share experiences and learn from each other. Feel free to just come along on the night.

    For more information please contact
    Tina Collins or Fiona Halligan
    At FADE CIL, phone 8417685.


    *This event is kindly sponsored by The Bracken Court Hotel.

    maybe see you there .
    Believe me, honestly , what you have posted has mnade a difference.

    cathy


  • Closed Accounts Posts: 2,980 ✭✭✭Kevster


    cathy01 wrote:
    Believe me, honestly , what you have posted has mnade a difference.


    That's very touching - Thank you. I will consider the meeting.

    Kevin.


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  • Moderators, Category Moderators, Entertainment Moderators, Science, Health & Environment Moderators, Regional East Moderators Posts: 18,800 CMod ✭✭✭✭The Black Oil


    http://www.tcd.ie/disability/information/for_staff/supporting_students_with_aspergers.php TCD has some useful info on supporting students wth AS in the pdf on that page.

    That meeting sounds good.


  • Closed Accounts Posts: 2,980 ✭✭✭Kevster


    I remember reading that PDF about half-a-year ago (My mam printed it off for me). TCD is the only college I have encountered that appears to be aware of Asperger's Syndrome as a real threat to a student's well-being.


    ...Top Marks to you, TCD :)


  • Posts: 0 [Deleted User]


    I know this topic is over a month old at this stage but I wanted to get my bit into it.

    I suspect myself that I have AS, and therefore went on the route to see a clinical psychologist. However he's point blank refusing to assess me since he doesn't want to put a label on me. In my opinion a lot of the signs are there, some are very blatantly obvious, I'd just like to get some closure on the argument.


  • Moderators, Category Moderators, Entertainment Moderators, Science, Health & Environment Moderators, Regional East Moderators Posts: 18,800 CMod ✭✭✭✭The Black Oil


    Do you want to say what it is about you that you think 'fits' in terms of AS? Have you looked at Aspire's site, they have some details on diagnosis.


  • Posts: 0 [Deleted User]


    Do you want to say what it is about you that you think 'fits' in terms of AS?
    Yeah sure,

    At school I was considered a "gifted child" and went to a club in Marino College for a few months regarding it. So I was considered to be top of the class for many years. I was bullied all through my schooling.

    My motor skills are very poor, often lose my balance for no logical reason. I can't catch a ball, or anything else thrown at me for that matter. I feel very clumsy at playing sports and have no interest in them either.
    While on the subject of interests, mine are very narrow, mainly in the electronics area. Computers, mobile phones and television/radio (the transmitter networks and sites, frequency tables, satellites... rather than the programming) are the main ones. I also find myself examining train timetables and the specifications of the Iarnród Éireann locomotives and rolling stock. It's my ambition to become a train driver in future but I am wondering if I do have AS if it would affect that ambition.

    Socially, I get on much better with people older than me. I never maintain eye contact when talking to someone, I feel scared to do it. I can't see the funny side in jokes and often take them very personally. I often can't think of anything to say to people my own age because I don't feel they like the same things I do. But I do sometimes bore people by excessively talking about my interests. Finally, I spend a lot of time alone effectively talking to myself - in my head, not out loud.

    I have no desire to work except in what I want to do. That is one thing where I believe my psychologist is putting the cart before the horse. He wants me to get some work before we start a cognitive therapy process (which in itself I wouldn't mind doing) but I suspect that my current mentality is actually preventing me from working. I had a job up to last week but left because the boss was mean to me... I lasted 2½ weeks. He kept telling me to look at him when he was talking to me, but as I said above, I can't.

    That's about all I can think of at the moment.


  • Registered Users, Registered Users 2 Posts: 3,550 ✭✭✭Myksyk


    Karsini wrote:
    ... my psychologist is putting the cart before the horse. He wants me to get some work before we start a cognitive therapy process


    What was his rationale for this?


  • Posts: 0 [Deleted User]


    Myksyk wrote:
    What was his rationale for this?
    I think he feels I'm in a comfort zone and I should break out of it to improve my mood (though that's partially the reason why I'm seeing him in the first place).


  • Registered Users, Registered Users 2 Posts: 3,550 ✭✭✭Myksyk


    Ok .. not unreasonable ... the emotional, behavioural and cognitive 'systems' are so intertwined. However, I would explore with him the possibility of work on your cognitive life right now on the basis that it is demonstrably interfering with your ability source/hold down a job. More specifically he could address the social anxiety aspects of your problems by looking at something like your difficulty in maintaining eye contact which has had a recent and very real effect on your maintaining a job. This would be a specific arena within which you could explore habitual cognitive patterns and their behavioural and emotional effects. It would act as an example of how to address broader issues and would start the ball rolling in terms of the cognitive therapy part of the work.

    However, your psychologist has a lot more information than us so I'd take his opinion more seriously than any of our tuppence-ha'penny worths!

    Good luck with it.


  • Moderators, Category Moderators, Entertainment Moderators, Science, Health & Environment Moderators, Regional East Moderators Posts: 18,800 CMod ✭✭✭✭The Black Oil


    I would hope that if someone had AS it wouldn't negatively impact on their ambition and chances of becoming a train driver or whatever career they were interested in though I understand there are certain careers they might not be at all suitable for.
    Socially, I get on much better with people older than me. I often can't think of anything to say to people my own age because I don't feel they like the same things I do.
    Different wavelength?
    But I do sometimes bore people by excessively talking about my interests.
    Well if you can take a positive from that it's that you perhaps recognise when people have stopped listening properly and you've gone on too much. Can you read body language and other signs that may indicate what you've mentioned?

    If you go for a proper assessment you'll probably need information about your childhood from your parents. Late diagnosis is not uncommon by the way.

    Good luck.


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  • Posts: 0 [Deleted User]


    Can you read body language and other signs that may indicate what you've mentioned?
    Body language never really meant anything to me, that's about the only way I could explain it.


  • Registered Users, Registered Users 2 Posts: 345 ✭✭Gibs


    While I don't want to be disrepectful of people's desire to get info and advice, perhaps we should all be mindful of the charter for this forum and its very sensible prohibition on discussing personal psychological issues and specific individual's cases/diagnoses/therapeutic interventions.

    Mods, perhaps you need to do your thing?......


  • Closed Accounts Posts: 2,980 ✭✭✭Kevster


    Gibs is correct but that shouldn't stop us in trying to point you in the right direction. I am going to direct you to the website of which I am a moderator. On it I have listed my personal symptoms of Asperger's and the general symptoms as listed in the DSM (Diagnostic & Statistical Manual of Mental Disorders). Both of these threads are set as 'Sticky' threads.

    The link:

    http://www.psychforums.com/viewforum.php?f=145&sid=3124ecfd5b886396f095642c45a5a3a3


    My username is Chucky on it. Oh, I have Asperger's by the way: I'm 23 (24 next Tuesday).


    Kevin.


  • Registered Users, Registered Users 2 Posts: 17,213 ✭✭✭✭therecklessone




  • Registered Users, Registered Users 2 Posts: 4,382 ✭✭✭snorlax


    please do not give adivce anyone or i will have to start banning people. reading the charter is a good start if your unsure what is isn't okay to post. i think the offending post has been delteted anyone thanks for your vigilence Gibs. also i want nobody trying to diagnose anyone else here.


  • Registered Users, Registered Users 2 Posts: 2,269 ✭✭✭cathy01


    Dr Fennell sees both children and adults .He has a clinic in Balbriggan once a month.He can also see you in Gory.
    http://www.thechildrensclinic.ie/
    HTH,
    Cathy, mum to the most beautiful Aspie in the world, no really she is.:o


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  • Registered Users, Registered Users 2 Posts: 1,318 ✭✭✭The Chessplayer


    Asperger's syndrome is a load of cobblers. It's just another label for used to excuse a type of behaviour. Homespun hokum!


  • Closed Accounts Posts: 2,736 ✭✭✭tech77


    Asperger's syndrome is a load of cobblers. It's just another label for used to excuse a type of behaviour. Homespun hokum!

    Eh no.
    A syndrome is a collection of symptoms and signs.
    Just like pretty much any other psychological disorder Asperger's Syndrome has to rely primarily on subjective symptoms (and behavioural signs to a degree) for diagnosis.

    Just because there is no objective test (blood levels etc) that tells you if you have it or not does not mean these specific symptoms and signs don't exist.

    Now believe it or not funnily enough there are a collection of people who experience a bunch of these very specific symptoms and exhibit a bunch of these very specific behavioural signs that prevent them from socialising and working as optimally as they would like.
    Very curious.
    Therefore we have to call this circumscribed collection of symptoms and signs something.
    So it's called Aspergers after the guy who first recognised it.


  • Registered Users, Registered Users 2 Posts: 1,318 ✭✭✭The Chessplayer


    tech77 wrote: »
    Eh no.
    A syndrome is a collection of symptoms and signs.
    Just like pretty much any other psychological disorder Asperger's Syndrome has to rely primarily on subjective symptoms (and behavioural signs to a degree) for diagnosis.

    Just because there is no objective test (blood levels etc) that tells you if you have it or not does not mean these specific symptoms and signs don't exist.

    Now believe it or not funnily enough there are a collection of people who experience a bunch of these very specific symptoms and exhibit a bunch of these very specific behavioural signs that prevent them from socialising and working as optimally as they would like.
    Very curious.
    Therefore we have to call this circumscribed collection of symptoms and signs something.
    So it's called Aspergers after the guy who first recognised it.

    I would strongly refute the statement that there are very specific symptoms. On the contrary, the behavioural symptoms appear to me to be far too random - hence my "load of old cobblers" theory. Profound social ineptness is undoubtedly classifiable, but I would say that far too many people are being clumsily diagnosed with Asbergers, or at least assumed to have it. There is an undeniable culture of rushing to assign people with various syndromes. Many of those who might be considered to exhibit aspects of Asberger's, are simply eccentric and colourful characters.


  • Closed Accounts Posts: 2,736 ✭✭✭tech77


    I would strongly refute the statement that there are very specific symptoms. On the contrary, the behavioural symptoms appear to me to be far too random - hence my "load of old cobblers" theory. Profound social ineptness is undoubtedly classifiable, but I would say that far too many people are being clumsily diagnosed with Asbergers, or at least assumed to have it. There is an undeniable culture of rushing to assign people with various syndromes. Many of those who might be considered to exhibit aspects of Asberger's, are simply eccentric and colourful characters.

    Clumsy/misdiagnosis is a whole other matter to non-existence of a disorder.

    I completely agree it's probably misdiagnosed a lot...
    ie psychiatrists who see a bit of social ineptitude and lazily labelling someone with Asperger's.

    However that doesn't mean there isn't a disorder with a set of fairly specific symtoms and signs called
    Asperger's.

    Incidentally i'd say the UNDER-recognition/under-diagnosis of Asperger's is a problem as (if not more) important than misdiagnosis TBH.


  • Closed Accounts Posts: 950 ✭✭✭EamonnKeane


    "The Chessplayer " was probably thinking of ADHD: there's a large number of psychologists who think it's basically invented. See:http://en.wikipedia.org/wiki/Controversy_about_ADHD


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  • Posts: 0 [Deleted User]


    "The Chessplayer " was probably thinking of ADHD: there's a large number of psychologists who think it's basically invented. See:http://en.wikipedia.org/wiki/Controversy_about_ADHD
    I was going to read it but I'm sick of those [citation needed] tags. Too many of them in there, makes the article unreadable. That's not a stab at you btw.


  • Registered Users, Registered Users 2 Posts: 345 ✭✭Gibs


    Whether or not to diagnose is probably always going to be controversial. There is a whole series of thought-provoking articles on the subject to be found here


  • Registered Users, Registered Users 2 Posts: 10,846 ✭✭✭✭eth0_


    I don't think AHDH is "invented" but (in my non-expert opinion) I think it's both socially constructed and a result of the appalling diet that unfortunately most children have these days. I never remembered a child with ADHD symptoms when I was a kid!

    I'm only 26 and I notice a shocking lack of discipline in children compared to when I was a kid, not to mention the crap they eat - i've seen babies drinking cola from their bottle in Dublin! The most widely used psychoactive substance in the world, and people give it to babies and children, who then develop a caffeine addiction. It's funny how people wouldn't dream of giving a child a coffee but they'll happily buy them a coke which contains more caffeine and a huge amount of sugar.

    There have been many studies done showing how diet changes can show improvement in most cases of ADHD.


  • Registered Users, Registered Users 2 Posts: 345 ✭✭Gibs


    eth0_ wrote: »
    I don't think AHDH is "invented" but (in my non-expert opinion) I think it's both socially constructed and a result of the appalling diet that unfortunately most children have these days. I never remembered a child with ADHD symptoms when I was a kid!


    There have been many studies done showing how diet changes can show improvement in most cases of ADHD.

    I´m generally in favour of balance in any argument but, with respect, the jury is not still out when it comes to determining whether or not ADHD is a 'real' condition. There is overwhelming, excellent quality evidence in support of ADHD as a legitimate diagnostic category that represents a valid, neurologically predicated syndrome. To state that it´s mostly as a result of poor or inappropriate diet is simply wrong. Improvements in diet can in some cases lead to improvements in behaviour in children but there is pretty clear, unambiguous evidence in the research literature that the symptoms of ADHD are neither caused by nor impacted upon by diet.

    This myth is one of many that abound about ADHD along with many others that question the authenticity or legitimacy of ADHD as a condition. This continual undermining of ADHD as a diagnosis has caused so much dismay among the top researchers in the field, many of whom have gathered huge quantities of extremely convincing evidence, that they produced an unprecedented consensus statement 5 years ago in an attempt to once and for all put to bed the endless stream of 'alternative' explanations for ADHD that purport to have as much legitimacy as the views held by all mainstream health agencies, psychiatric and psychological organisations and bodies. Wikipedia might appear to be presenting the issue as if there is a huge level of controversy among scientists, but that is simply not the case.

    You have no reason to take my word for it, so instead have a look at the consensus statement for yourself. You can read it here.


  • Registered Users, Registered Users 2 Posts: 1,355 ✭✭✭Belfast


    GDM wrote: »
    How likely is it that someone with (possible) Asperger's Syndrome could go into their twenties undiagnosed?

    If in retrospect some signs were present in childhood (but not acted upon or attributed to something else) how would a person go about seeking treatment, I assume a GP is the first point of contact but what happens after that to determine whether or not the person has this condition?

    I know a lot of people with Asperger syndrome who were not diagnose until after their twenties.

    As far as I know it was only in the 1980 they started to diagnose people with Asperger syndrome

    Diagnosis of Asperger syndrome
    http://en.wikipedia.org/wiki/Diagnosis_of_Asperger_syndrome

    People can have other conditions as well as Asperger syndrome.

    Hope your GP knows more about the condition than mine.

    My GP told me she did not have time to read about the latest developments in medicine.


  • Registered Users, Registered Users 2 Posts: 1,355 ✭✭✭Belfast


    GDM wrote: »
    I'm aware that there is no treatment for Asperger's but that there are certain things that can be done to help a person with the condition eg. helping them cope with their daily life and improve their social skills.

    One thing I would query is how negatively a diagnosis of asperger's would affect a person's chances of employment given that some people may have a mental illness stigma in relation to the condition.

    As far as I know Asperger is not considered to be a mental illnesses. it is a Specific developmental disorder.
    http://en.wikipedia.org/wiki/Specific_developmental_disorder

    It depends on the job.
    In some technical jobs it can be an advantage.
    In jobs where there are a lot of people skill are needed it is a disadvantage.
    It also depends on where on the autistic spectrum the person is.
    The condition varies a lot for person to person.


  • Closed Accounts Posts: 180 ✭✭raemie21


    On a scale of 100, say to reach a diagnosis of Asperger's Syndrome, you would have about 80 of the symptoms, if you like. But most of us would have about 20 anyway - like I certainly have some sensory preferences, can be pedantic at times, like to keep my clothes in a certain order, occasionally dislike being in big social groups etc.

    There are lots of people who have Asperger's Syndrome who are well into their 30s/40s and never diagnosed. They're managing fine, although usually the kind of person referred to as being 'a bit quirky' or 'odd at times.' Heck I've met one or two people in the public eye who are most definitely not far off the 80 mark!

    Asperger's Syndrome or any Autistic Spectrum Disorder are not mental illnesses per se, but often they present as such or can be associated with it e.g. even in young kids/teenagers, lack of services or understanding can lead to significant behaviour difficulties, negative feedback from others, further social exclusion and so on....enough to have negative affect on one's mental state. And there are certainly higher co-morbidity rates with Asperger's Syndrome and psychiatry - anxiety, depression, conduct disorder.

    One of the biggest advantages of having a diagnosis for a kid is the understanding for family & appropriate expectations, and also extra support and resources at school. I'm not as sure the advantages as an adult - it might be a relief to some to know if they have it, although there seems to be an increasingly number of people reading about Asperger's on the net and self-diagnosing - they can resonate with the symptoms and maybe it's easier to think you have AS rather than face some other difficulties with relationships etc. Meh, I don't know, I should probably stop now.

    I do remember reading a comment that stuck with me before - someone was describing Autistic Spectrum/Asperger's as 'just another way of looking at the world' - thought it was well put.


  • Registered Users, Registered Users 2 Posts: 1,098 ✭✭✭ilkhanid


    Belfast wrote: »
    I know a lot of people with Asperger syndrome who were not diagnose until after their twenties.

    Twenties? I wasn;t diagnosed until I was in my fifties!


  • Registered Users, Registered Users 2 Posts: 136 ✭✭Acara


    Belfast wrote: »
    I know a lot of people with Asperger syndrome who were not diagnose until after their twenties.

    As far as I know it was only in the 1980 they started to diagnose people with Asperger syndrome

    Diagnosis of Asperger syndrome
    http://en.wikipedia.org/wiki/Diagnosis_of_Asperger_syndrome

    People can have other conditions as well as Asperger syndrome.

    Hope your GP knows more about the condition than mine.

    My GP told me she did not have time to read about the latest developments in medicine.
    Change your GP?


  • Registered Users, Registered Users 2 Posts: 1,098 ✭✭✭ilkhanid


    Acara wrote: »
    Change your GP?

    No. Diagnosed myself and then went to GP to get the appointment with the psychologist to have it confirmed.


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