Question

Girl Confused

Hi There everyone,
This is my first posting and I am justing wonerding out of all the posters out there has anyone everyheard of the Mitrofanoff Procedure. I am thinking about getting this done in the Autumn( If the Doctor Agrees) I know that there is upsides and bad . But I just wondering does any know of anoyone that has had this operation.
Your advise would be great

Beruthiel

Girl Confused
whatever advice you are given here should be taken with a pinch of salt, the only way you are going to get proper advice is from a doctor. Even if people give their own experiences, it should not influence anything a doctor says to you.
This is not a medical board.
anna

Girl Confused

I am advise that this is not a medial Board, I was asking for people opinions. I have spoken with my doctor for hours at length. I was jsut wondering if anyone else had of knew someone that had the operation

Beruthiel

cool
no worries, just wanted to make sure
anna

hedgetrimmer

Never heard of it tbh. Can u supply some inforamtion on it?

Girl Confused

I currently have a urostomy(false bladder outside the skin) the operation reverts the bladder inside and you would use a cather every 4 hours to empty there are a lot of pros and cons really.
What i have at the moment leaks quite a lot and I am an asst. Manager in a big company and one when I was a meeting with all management it leaked. They did not notice because ~I am always in black easy to hide ~

hedgetrimmer

Well, I'd be led by my doctor's advice as to whether it improves your standard of living any. But I would not limit myself to one opinion. For such a major life-changing thing, I think a good doctor would advise you to seek several opinions, but in any case that is what I would do.

The more information, the more professional opinions you have, the more of an infomred choice you can make.

Think that's about as far my advise can go

Unpossible

maybe the doctor can help find someone who went through it to talk to you, or he might at least be able to put you in contact with some kind of support group or something

banquo

here's some links i found that might help:



[URL=http://www.google.ie/search?q=cache:OqLzWpmIdDgJ:www.asbah.org/Downloads/Mitrofanoff_procedure.pdf+Mitrofanoff+Procedure&hl=en]link 1[/URL]

link 2 (a case report)

link 2 - how it works on children ( i dont know how old you are, so just in case)


hope these help. good luck.

Girl Confused

Thank you so much for you help, You are so nice thank you again