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thyroid misery

12357…49

Comments

  • #202
    Wyldwood
    Registered Users, Registered Users 2 Posts: 1,162 ✭✭✭Wyldwood


    Happy New Year fellow sufferers.

    My New Year is off to a bad start. Had to go back on the Eltroxin last November because my TSH was gone to 10, started on 25mg and after a few weeks went up to 50. After only 2 weeks on 50 I'm back with lots of hyper symptoms again, palps, racing heart, lightheaded etc. Doc has reduced med to 25 again for the moment but I know that's going to send me hypo again.
    Looks like I've become intolerant of the Eltroxin for some unknown reason. Have to go to Endo & have tests on the tiny remaining piece of thyroid that I have to see whats going on.
    I'm in a vicious circle at the moment swinging from hypo to hyper & so sick of it.


  • #203
    cltt97
    Registered Users, Registered Users 2 Posts: 737 ✭✭✭cltt97


    That sounds soo familiar Wyldwood! I went through the exact same. I had to stay on an ultra low dose for ages and increase by tiny amounts and stay on each dose for something like 3 months at a time. it took me over a year to get up to a half decent dose and I'm still not even quite in the lower range of normal, but I'm feeling ok-ish, hoping I'll get there eventually. I found, like you, that after the overdosing incidence or whatever it was I developed a high sensitivity, even intolerance at first and it's taken me ages to adjust to thyroid meds again. I'm now taking dessicated thyroid, so something different from Eltroxin, which also gave me some trouble, but at least I've managed to get up to a dose that is somewhere equivalent to around 90 mcg Eltroxin.


  • #204
    LimerickBishop
    Registered Users Posts: 80 ✭✭LimerickBishop


    Chessguy,

    I'm gonna limit the brazil nuts to two a day from now on for a period of time. I wouldn't take 5 nuts everyday, somedays I'd take none.

    I'm also gonna start taking eltroxin at night before I go to bed and see if I notice a difference. I feel fine, so I'm not sure if it is wise to make these changes, but I'm open to try new things.

    The coffee link didn't make any mention of decaf coffee, so I presume that study was carried out using caffinated coffee, which is something I don't usually take.


  • #205
    chessguy
    Registered Users Posts: 163 ✭✭chessguy


    Limerick bishop re: Brazilnuts
    they cotain on average 780 times the daily recommended value of Selenium,
    So good idea to go easy,

    http://ods.od.nih.gov/factsheets/selenium

    Also you can check easily if taking the Eltroxin at night benefits ,

    Take your temp with an old fashioned mercury Thermometer they are very accurate ,Modern digital ones have" Humour swings"

    Take Temp,at Nght, and first thing in Morning ,and in the afternoon.
    for say 1 week.

    Then take eltroxin at night and do the same tests ,
    check the results,

    If they are both the same which would be a surprise ,,
    If you are not happy with the results temps getting a bit too low.
    Also talk to yur Endo about T3,
    could be you are not converting T4 (which is a storage hormone) optimally to the active T3,hormone.

    it is very common the conversion does not work well , refer to my link below marked Important ,
    (then T3 supplementaion is required.)

    You may do what I do (after consulting an Endo.)

    I take half at night before bed, and half in the morning , 1 hour before meals ,
    This gives me a better average temp

    goodluck
    chessguy.



    Also check this too MY earlier post. the post marked important as other minerals like magnsium are extremely inportant.
    they all work in Tandem ,

    good idea to get Organic Brazil Nuts and store in Glass jar in the Dark.

    http://www.boards.ie/vbulletin/showt...215078&page=12

    Also a spoon or 2 of virgin coconut oil must be cold pressed and Organic. , would be beneficial ,
    for very low temp cooking or jst eaten as is ,
    feks BIona virgin cold pressed cooking oil, or Nutiva is good too
    Both may be available in good Irish Health stores ,
    some of the benefits in the link below,

    http://articles.mercola.com/sites/articles/archive/2011/06/22/magical-fat-that-increases-good-cholesterol-and-lowers-abdominal-obesity-in-women.aspx


    Goodluck

    Chessguy


  • #206
    Johnc71
    Closed Accounts Posts: 1 ✭Johnc71


    Just wondering about my critical illness cover, is thyroid cancer covered? Thanks


  • #207
    XenaLady
    Registered Users Posts: 68 ✭✭XenaLady


    Its a daily nightmare, you never know what the mood is when you wake up, never know wether its going to be a day when youre not able to do anything because of the tiredness. Muscle aches at nights, hyper days when everything seems possible and you cant sleep for the next three nights at all, impatient days when everything someone says or does is just feckin annoying... Low lipido days when you just cant understand why all your friends are so keen on dating guys lol
    Ive had it for nearly 10 years, Eltroxin helps a bit but I can clearly see the difference between on tablet day or two ( got them alternately)


  • #208
    robinph
    Moderators, Science, Health & Environment Moderators, Sports Moderators Posts: 24,118 Mod ✭✭✭✭robinph


    I'm only a n00b with thyroid issues, but am curious about people talking about the meds needing to be changed so often for some of you. Is it that some people's thyroid is still working partially? I got the impression that mine was totally defunct and it should just need them to figure out the right level for me and shouldn't change much after that. Also that I started on 100mg seemed higher than the starting dose for some others.


  • #209
    RentDayBlues
    Registered Users, Registered Users 2 Posts: 2,131 ✭✭✭RentDayBlues


    There's is no such thing as a perfect level Robinph - it changes like everything else in your body.

    you do sometimes reach a status quo when the same level of meds work fine for a while and then you drop/increase again.

    For me, I get tested every 6 months and sometimes its fine and other times it needs to be changed.

    At the moment, I am getting tested every 3 weeks (after 7 years diagnosed) as my levels are all over the place and my antibodies are on the increase. But give me another couple of months and I could feel fine with levels stablising


  • #210
    rOBeRt frETt
    Registered Users Posts: 159 ✭✭rOBeRt frETt


    Usually bovine dessicated thyroid are for dietary supplementation so your mother may have to take quite a few depending on her TSH and free t3 and t4 levels. I take armour thyroid which is a listed drug in the American pharmacopoeia and is porcine
    Hypothyroidism is usually handled very poorly by the mainstream medical establishment and you'd do much better with a naturopath and a holistic approach.

    If your mother still has any of these get another blood test done and it's also worth getting an adrenal gland test ( saliva not blood)

    Feeling cold when others are not
    Low basal body temp
    Constipation
    Hair loss
    Bone numbing fatigue
    Muscle and joint pain
    Fibromyalgia
    Hair loss
    Depression or anxiety
    Brain fog
    Weight gain or difficulty loosing weight
    Shortness of breath
    Swollen face or eyes



    I wish her all the best in her recovery


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  • #211
    El.duderino
    Registered Users, Registered Users 2 Posts: 388 ✭✭El.duderino


    How many of you fellow hypo suffers from muscle pain?

    My neck,shoulders and now hips are now joining myself as long term sufferers and moaners:).


  • #212
    cltt97
    Registered Users, Registered Users 2 Posts: 737 ✭✭✭cltt97


    Yep, one of my main problems, never suffered too badly with brainfog or coldness, for me it's all digestion and muskuloskeletal system...


  • #213
    rOBeRt frETt
    Registered Users Posts: 159 ✭✭rOBeRt frETt


    cltt97 wrote: »
    Yep, one of my main problems, never suffered too badly with brainfog or coldness, for me it's all digestion and muskuloskeletal system...

    Snap- I was diagnosed ' fibromyalgia' a crock of sh1t syndrome which I know is solely the cause of hypothyroidism

    Check out dr Lowe for muscle and joint pain related to thyroid disorders I think it's thyroidinfo.org or some such


  • #214
    chessguy
    Registered Users Posts: 163 ✭✭chessguy


    Hmmm Fibromyalgia now ,

    well lets see , if you check my previous posts, especially regarding supplements ,I mention the importance of Magnesium .


    well for fibromyalgia Magnesium is a Good one,for sure,
    digestion well lets see surprise Magnesium again
    http://www.livestrong.com/article/480704-magnesium-digestion/

    also see

    http://www.ncbi.nlm.nih.gov/pubmed/7786692


    And surprise muscle pain relates to magnesium deficiency,
    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2146789/




    if you have hypothyroidism you can and will have multiple issues ,
    to avoid many of these read my previos posts in this thread the minerals and vitamins are of paramount importance,check with your endo if you doubt me, or do your own research,
    we are like a working battery, these minerals and vits need a balance,
    if we do not balance these especially if we have Diabetes, or thyroid issues ,
    things will get worse no doubt of that,
    It is all part of the complex Endocrine system,

    goodluck
    chessguy.


  • #215
    rOBeRt frETt
    Registered Users Posts: 159 ✭✭rOBeRt frETt


    I do take supplements but I really don't know why as I never needed them before to feel 'normal' I have read about magnesium and selenium being of great help for muscle and joint pain but the never helped me even in crazy doses. I'm checking out cortisol treatment now to support the adrenal glands and reckon I'll have to come off Armour first. pain the in arse :(


  • #216
    cltt97
    Registered Users, Registered Users 2 Posts: 737 ✭✭✭cltt97


    I take Erfa (kinda same as Armour) and I've taken cortisol for adrenal support, but it has made very little difference and I'm just weaning myself off the cortisol, but other people swear by it, so hopefully it'll work for you. Try and incorporate fatty fish or fish oils into your diet, as these are essential in inflammatory conditions...


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  • #217
    chessguy
    Registered Users Posts: 163 ✭✭chessguy


    rOBeRt frETt wrote: »
    I do take supplements but I really don't know why as I never needed them before to feel 'normal' I have read about magnesium and selenium being of great help for muscle and joint pain but the never helped me even in crazy doses. I'm checking out cortisol treatment now to support the adrenal glands and reckon I'll have to come off Armour first. pain the in arse :(



    @ rOBeRt frETt
    without the minerals being in >> Balance as in my earlier posts in this thread , no Thyroid medication can work optimally,
    ensure the Magnesium is chelated , preferably Albion patented,(should be written on the back)
    you can get the brand Solgar in Ireland,

    Taking too many minerals does not help maintain a healthy balance,
    good idea to get bloodchecks on these minerals,

    Also monitor your temperature , in the morning day and night before bed,
    this will give your Endo good clues,
    good idea to get RT3 tested too as mentioned in my earlier posts,

    goodluck
    chessguy


  • #218
    XenaLady
    Registered Users Posts: 68 ✭✭XenaLady


    I just read about thyroid diets and didnt know that nuts would be a defenate no-no :O
    Unfortunately they are my only secret sin so I guess I have no one but me to blame for the brain fog and pains.


  • #219
    rOBeRt frETt
    Registered Users Posts: 159 ✭✭rOBeRt frETt


    Just got my blood test results this morning and after a year of thyroid hormone replacement and absolutely no results (initial TSH was 27), my Doc tells me I am deficient in Vit D- which he thinks may point to hypoparathyroidism
    Vitamin D came out at 20 and it should be 60, anyway got more bloodwork done but won't get the results for a week- anyone have any experience with the parathyroid?? would love to hear from ye


  • #220
    Redpunto
    Registered Users, Registered Users 2 Posts: 2,024 ✭✭✭Redpunto


    Just wondering, I have hyper, and normally only get my T4 and TSH levels done a few times a year. SHould my doc but doing more comprehensive bllod tests?

    Cheers


  • #221
    cltt97
    Registered Users, Registered Users 2 Posts: 737 ✭✭✭cltt97


    Did you get calcium and phosphorus tested also? I don't think Vitamin D deficiency tells you much with regard to the parathyroid gland. Vitamin D deficiency is common in Ireland, due to lack of sunshine. Vitamin D deficiency can defo contribute to joint/muslce pain, so this might be one of the reasons why you experience same.


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  • #222
    rOBeRt frETt
    Registered Users Posts: 159 ✭✭rOBeRt frETt


    thanks cltt97 he has done a full test and everything was in acceptable range except for Vit D- now running the tests for parathyroid and ceoliac disease - apparently much more common in hashimotos - but then so is a vitamin D deficiency :) hopefully that's the missing link

    Redpunto - yes!


  • #223
    cltt97
    Registered Users, Registered Users 2 Posts: 737 ✭✭✭cltt97


    Yep, there is a strong link between coeliac and thyroid disease, I had a blood test done which came back below level indicative of disease, but I am going for endoscopy now just to be sure, as went on gluten free diet (for almost two years) but felt no different really, so now I want to know for sure!


  • #224
    El.duderino
    Registered Users, Registered Users 2 Posts: 388 ✭✭El.duderino


    I know people have asked about a support group. What really is needed for such a group? Apart from a few million quid, a group of overpaid consultants and lunch bill that would make bertie blush!
    I mean how hard is it to arrange a pub crawl? Surely tis the same:rolleyes:



    What is the consensus? Would people be willing to form a group whom met say once or twice a year. A voluntary group which could hopefully seek support from a GP/endo whom was willing to help por gratis. We could also learn from other people experiences firsthand with the condition.


    I know its easy for me to sprout all this on the forum. It would not be an easy task. In reality it would be need to be properly organized and structured to avoid confusion and mayhem!



    So who wants to do it! (I mean all the structuring and content) I can organize people. I used to play Hurley.


  • #225
    rOBeRt frETt
    Registered Users Posts: 159 ✭✭rOBeRt frETt


    I think it's worth putting out there El.duderino I'd do my best to attend, what's more 3 members of my immediate family are hypothyroid and it would be great to get information straight from the horses mouth so to speak. the medical establishment in the main don't give Two flying ****es, your hypothyroid? - easy! take these - all fixed. Why is it some people are completely restored to health when they start taking synthyroid and others don't respond well at all? and we could explore the links between hypothyroid and other illnesses maybe take some preventative measures etc

    cltt97 isn't there an antibody test for coeliac disease? or what do they look for in the serum?


  • #226
    cyning
    Registered Users, Registered Users 2 Posts: 3,251 ✭✭✭cyning


    Redpunto wrote: »
    Just wondering, I have hyper, and normally only get my T4 and TSH levels done a few times a year. SHould my doc but doing more comprehensive bllod tests?

    Cheers

    How do you feel? I had desperate problems with my thyroid for ages: I started a new tablet now I'm fine (except I'm pregnant and my dose has to be upped slightly :rolleyes:). If you don't feel fine yes then they should be checking other things. If you do then T4 and TSH a couple of times a year is fine... in my opinion anyway. Having a problem with your thyroid can be a nightmare, but it isn't for everyone... so many of my family have it and I'm the only one who ever had issues in regulating it!

    There is an antibody test available for coeliac but its not 100% accurate.

    Has anyone been pregnant with an underactive thyroid? How was baby afterwards? Did they need any treatment straight after birth?


  • #227
    chessguy
    Registered Users Posts: 163 ✭✭chessguy


    Both links mention Minerals vit D Magnesium etc , these minerals are paramount to all Endocrine issues .Good idea to get vit D vit b12 ,MAGNESIUM , pOTASSIUM CALCIUM checked,

    http://www.ncbi.nlm.nih.gov/pubmed/9037127



    http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001422/

    best source of vit d D is he sun at midday, till one goes very slightly red/pink without sun tan oils on ,this form of vit d from the sun helps the cholesterol function in the body too,

    See my prev posts in this link for a more comprehensive links.

    goodluck
    chessguy


  • #228
    chessguy
    Registered Users Posts: 163 ✭✭chessguy


    LimerickBishop wrote: »
    hi cltt97,

    No, I don't have any of those symptoms, so I reckon I haven't crossed over to the dark side. I had a blood test done on Tuesday, so I'll update my results here when I get them. My weightloss has been a little bit of a false dawn, I'm back up to 85KG again, but I do feel good and I'm sleeping much better - very little insomnia.

    I'm going mad with hunger in the evenings, I eat some fruit but I'm hungry again in about 20 mins. I eat a full dinner around 6:30pm, so I think my brain is receiving false hunger messages from my stomach, it would be great if there was a pill I could take to eliminate false hunger.

    I've also discovered pistachio nuts are high in calories so I'm cutting them out now. I'd love to hear suggestions of successful ways people deal with false hunger sensations.


    Hunger sensations ,, chia seeds ,soaked in water for say 25 mins.good soluble fiber,

    but make sure to drink plenty of water , say a tablespoon of seeds in a large glass,

    false hunger pains are assosiated with leptin restisance,

    this is the low down

    the basic cure is to eat a large protein breakfast and go 5 hours between meals and sleep well,

    this neurosurgeon, is fantastic,

    check out his site
    http://jackkruse.com/my-leptin-prescription/
    he also has a list of top 10 suplements


    http://jackkruse.com/what-are-the-top-ten-paleo-supplements/






    http://www.marksdailyapple.com/forum/thread32367-7.html



    goodluck

    chessguy


  • #229
    rOBeRt frETt
    Registered Users Posts: 159 ✭✭rOBeRt frETt


    cyning wrote: »
    Has anyone been pregnant with an underactive thyroid? How was baby afterwards? Did they need any treatment straight after birth?

    My sister is hypo and has 3 children none required thyroid supplementation, a TSH test is included in the heel prick test so don't stress it, you should have had your dose increased while pregnant so you have enough for you and baby.


  • #230
    rOBeRt frETt
    Registered Users Posts: 159 ✭✭rOBeRt frETt


    chessguy wrote: »
    Both links mention Minerals vit D Magnesium etc , these minerals are paramount to all Endocrine issues .Good idea to get vit D vit b12 ,MAGNESIUM , pOTASSIUM CALCIUM checked,

    http://www.ncbi.nlm.nih.gov/pubmed/9037127



    http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001422/

    best source of vit d D is he sun at midday, till one goes very slightly red/pink without sun tan oils on ,this form of vit d from the sun helps the cholesterol function in the body too,

    See my prev posts in this link for a more comprehensive links.

    goodluck
    chessguy

    The what at midday? - sun!
    I've gotta work through midday and besides would only have my face and hands exposed


  • #231
    Redpunto
    Registered Users, Registered Users 2 Posts: 2,024 ✭✭✭Redpunto


    rOBeRt frETt wrote: »
    My sister is hypo and has 3 children none required thyroid supplementation, a TSH test is included in the heel prick test so don't stress it, you should have had your dose increased while pregnant so you have enough for you and baby.


    With my hyperthrodism, they had to do an extra blood test on babes at about 5 days to check babys levels. With all my kids they were fine even though i was on meds during the pregnancy.


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  • #232
    Redpunto
    Registered Users, Registered Users 2 Posts: 2,024 ✭✭✭Redpunto


    cyning wrote: »
    How do you feel? I had desperate problems with my thyroid for ages: I started a new tablet now I'm fine (except I'm pregnant and my dose has to be upped slightly :rolleyes:). If you don't feel fine yes then they should be checking other things. If you do then T4 and TSH a couple of times a year is fine... in my opinion anyway. ?

    Thanks, its well regulated now just my consultant can be a blase about things and Ive had it for so long now I never question the procedures.


  • #233
    dollydishmop
    Registered Users, Registered Users 2 Posts: 561 ✭✭✭dollydishmop


    El.duderino wrote: »
    I know people have asked about a support group. What really is needed for such a group? Apart from a few million quid, a group of overpaid consultants and lunch bill that would make bertie blush!
    I mean how hard is it to arrange a pub crawl? Surely tis the same:rolleyes:

    What is the consensus? Would people be willing to form a group whom met say once or twice a year. A voluntary group which could hopefully seek support from a GP/endo whom was willing to help por gratis. We could also learn from other people experiences firsthand with the condition.

    I definitely think this is a great idea!
    Whilst the internet is great, we can all meet up 'virtually' on here....when I was at my lowest, or most confused/worried what I needed was real people to reach out to and ask questions / compare scars etc. And this is something I strongly feel would benefit all of us.

    I'd suggest starting informally and seeing how/where we can go from there.

    A friend of mine was diagnosed with MS last year, which is horrific, scary & utterly devastating...but it is awful to say I have been quietly envious of all the support that was almost instantly available to him, support groups who have helped him immensely, and the MS conferences & seminars he has attended...I know its really helped him to come to terms with things, and helped him adjust and improve his quality of life in countless ways. The chance to meet with other MS sufferers and discuss all their different situations has been invaluable.

    I also think we need a lobby group...to try and get thyroid meds on the Long Term Illness Scheme, even if its just assessed on a case by case basis.
    But that's another rant for another day!


  • #234
    cltt97
    Registered Users, Registered Users 2 Posts: 737 ✭✭✭cltt97


    rOBeRt frETt wrote: »
    cltt97 isn't there an antibody test for coeliac disease? or what do they look for in the serum?

    There is (t-TG test), but it can be both false positive or false negative, usually when they find it they then go on and do the endoscopy to see if there is damage to your villi in the intestine - this is the only way to really be able to tell if you're coeliac or not.

    I'm also all for a support group, and if it's just down the pub to begin with!


  • #235
    Grayfox
    Registered Users Posts: 92 ✭✭Grayfox


    Is anyone here on Natural Dessicated Thyroid of any type or brand? I'm hoping to get switched over soon (No gland after cancer) but i'm wondering is it still available or banned? There was a massive scare in 2009 caused by the FDA and i can't find any information regarding the issue being resolved or not?


  • #236
    chessguy
    Registered Users Posts: 163 ✭✭chessguy


    @rOBeRt frETt vit D you mention Vit D level was as low as 20, ,

    if this is correct , I would take a sunny holiday soon for at least 2 weeks ,

    this is very low but extremely low for people with Endocrine issues,

    a little insight ,

    http://chriskresser.com/the-role-of-vitamin-d-deficiency-in-thyroid-disorders

    @ KAdens PM , best to keep such questions in the open forum , so others can contribute , and benefit too.

    regarding Magnesium chelates basic info...

    Magnesium comes in two types:
    - soluble forms/organic (aspartate, malate, glycinate, citrate and succinate etc.)
    - insoluble forms/inorganic salts (chloride, carbonate, oxide).

    Overall, the chelated magnesium and magnesium glycinate are often referred to as being very absorbable.

    http://www.krispin.com/magnes.html#How

    @kadens you enquired about a good site worth looking at
    the site of DR. WILLIAM DAVIS is fantastic.

    http://www.trackyourplaque.com/blog/

    And from Andreas Eenfeldt causing a revolution in Sweden and now the whole of scandanavia

    see the video the food revolution.

    The Food Revolution

    http://www.dietdoctor.com/about



    regards
    chessguy


  • #237
    henrysgirl
    Registered Users Posts: 3 ✭henrysgirl


    was wondering if any of you can help me i have been ttc for 8 years now and no luck n now the docs have found out i have a underactive thyroid and started me on 50mcg of eltroxin, i have been taking it for 23 days now and just dont see any difference but i am getting really sore boobs and lower back ache for the last 2 weeks, guess what im wanting to know is can eltroxin really mess with my hormoans to the point that it effects my ovulation or my menstrual cycle sorry for all the questions i just feel so alone and docs dont give much advice they just sent me away with the meds n said get bloods done in 3 months.x


  • #238
    rOBeRt frETt
    Registered Users Posts: 159 ✭✭rOBeRt frETt


    Hi Henrysgirls, post your lab results if you have them (TSH, Free T3, Free T4)

    Firstly, Eltorixin takes about 6 weeks to work and you may actually feel worse in that time. sore muscles are a very common complaint with hypothyroidism.

    Eltroxin is completely inert, it's converted in your body to T3 the active thyroid hormone, when you first start on it you should have your blood drawn again 6 weeks later (not 3 months).
    It's also worth mentioning that you should have your doctor check ALL hormones
    and vitamin and minerals.

    If you are not experiencing good results on Eltroxin ask you doctor about natural thyroid hormone alternatives such as Armour or Thyrolar- many patients feel they do better on these products because they also contain the active thyroid hormone T3.

    There is some great information here
    http://thyroid.about.com/


  • #239
    rOBeRt frETt
    Registered Users Posts: 159 ✭✭rOBeRt frETt


    Grayfox wrote: »
    Is anyone here on Natural Dessicated Thyroid of any type or brand? I'm hoping to get switched over soon (No gland after cancer) but i'm wondering is it still available or banned? There was a massive scare in 2009 caused by the FDA and i can't find any information regarding the issue being resolved or not?

    Yes is is still available in at least a few brand names and has been successfully treating hypothyroid patients for over 100 years- no chance the FDA can do much about that- it's sold as ULM (unlicensed Medicine)

    I take Armour Thyroid, but others on this thread take natural dessicated products by a different name, they are usually porcine or bovine derived and don't let you doctor tell you there is anything wrong with prescribing them, most people do much better on REAL thyroid hormone not just T4

    read on.
    http://thyroid.about.com/
    www.sttm.com (Stop the Thyroid Madness )


  • #240
    cltt97
    Registered Users, Registered Users 2 Posts: 737 ✭✭✭cltt97


    Henrysgirl,

    Treating a thyroid disorder is like going on a mad rollercoaster ride! For most of us on this forum anyway... (the lucky ones that just take the Eltroxin and have no problems usually don't go looking on the net for answers :-)). I've had all your symptoms as well at some stage, they will go, it just takes a while (as in weeks). 50mcg is also only a starting dose, and most adults are on around 100 +/- 25 mcg. And everyone is different, some people feel immediate improvement that tends to ebb off, others don't feel anything, it is totally person to person specific. So all I can really tell you at this stage is, be patient and keep monitoring your bloods. Usually it is 6 weeks in an adjustment phase, 3 months is unnecessary long. So any kind of reaction of your body to the replacement hormone usually also takes weeks.


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  • #241
    henrysgirl
    Registered Users Posts: 3 ✭henrysgirl


    thank you for your replys i called my doctor today and asked him about the symtoms im having and he has advised me to get my bloods done every 6 weeks untill the right dose of eltroxin fits with my body, its extreamly important for me as me and my partner are trying for a baby, any tips of thinga i should or shouldt eat or just general info would be appreciated xxx

    thanks again x


  • #242
    chessguy
    Registered Users Posts: 163 ✭✭chessguy


    henrysgirl wrote: »
    thank you for your replys i called my doctor today and asked him about the symtoms im having and he has advised me to get my bloods done every 6 weeks untill the right dose of eltroxin fits with my body, its extreamly important for me as me and my partner are trying for a baby, any tips of thinga i should or shouldt eat or just general info would be appreciated xxx

    thanks again x

    This link may be useful,
    so basically long as the thyroid is looked after , conception is not an issue.

    see my prev posts in this thread regarding Minerals and vits.may come in handy :)

    Your body temp can be low if hypothyroid , the medication should remedy this ,
    also Virgin coconut oil cold pressed organic (not the cheap stuff) ( good examples Biona , Nutiva. Brands available in ireland) will raise the bodys basal Temp (morning temp, the normal is 2 table spoons a day but starting with 1 tablespoon ,softly melted or eaten on warm/ cold food,


    ask /check at your local health store.

    http://www.storknet.com/cubbies/preconception/bbt.htm

    http://www.ncbi.nlm.nih.gov/pubmed/11838732

    goodluck
    chessguy


  • #243
    henrysgirl
    Registered Users Posts: 3 ✭henrysgirl


    Thank you chessguy I will take a look at that xxxx


  • #244
    Wyldwood
    Registered Users, Registered Users 2 Posts: 1,162 ✭✭✭Wyldwood


    there appears to be no end to the vicious cycle I'm in. I can't tolerate any amount of Eltroxin. On 25mcg for the last three weeks and feeling hyper again now. Have lost a stone over the last year and losing again at the moment. When I came off for three months in Sept. I ended up in hospital in Nov. with a bowel obstruction (not nice at all) which may have been related to the fact that I was then underactive with TSH 10. Went back on 50mcg but had to come down to 25 after three weeks & then come off again after another few weeks due to hyper symptoms. Back on 25 in early Jan & feeling rotten again now. Oddly when I get bloods done while I feel hyper the results are always in the normal range but go totally high when I come off.
    I'm still waiting for an appointment with the Endo but need to put a push on that now as I can't go on like this.


  • #245
    cltt97
    Registered Users, Registered Users 2 Posts: 737 ✭✭✭cltt97


    Wyldwood, I feel so sorry for you, this is horrible and it sounds so familiar. Maybe you should go to my endo - he'll probably think oh no, not another one of these :-) I was wondering though, was you cortisol ever tested or did you ever have an ACTH test?


  • #246
    chessguy
    Registered Users Posts: 163 ✭✭chessguy


    Wyldwood wrote: »
    there appears to be no end to the vicious cycle I'm in. I can't tolerate any amount of Eltroxin. On 25mcg for the last three weeks and feeling hyper again now. Have lost a stone over the last year and losing again at the moment. When I came off for three months in Sept. I ended up in hospital in Nov. with a bowel obstruction (not nice at all) which may have been related to the fact that I was then underactive with TSH 10. Went back on 50mcg but had to come down to 25 after three weeks & then come off again after another few weeks due to hyper symptoms. Back on 25 in early Jan & feeling rotten again now. Oddly when I get bloods done while I feel hyper the results are always in the normal range but go totally high when I come off.
    I'm still waiting for an appointment with the Endo but need to put a push on that now as I can't go on like this.


    HI if I may suggest you visit an Endo and get the panel of blood tests done in my previous posts in this thread I mention minerals and vitamins and if they are not in place >> no amount of medication can work corrrectly ,Period.

    Example vitamin D actually a hormone ,is usually lacking in about 80% of people with thyroid issues,

    Then start learning from this site
    http://www.stopthethyroidmadness.com/
    Also when taking the medicine did you take coffe etc with it , did you let it digest circa 30 mins before food,was it taken it at regular times.Approximately.

    was it taken with juice as thiis is a big no no,,,

    are you eating proucts containg soya check ? your breads and chocoate,
    and also avoid goitrogenic foood till 4 hours after medication. like spinach brocolli etc.

    gluten is a big no no

    http://chriskresser.com/the-gluten-thyroid-connection

    goodluck
    chessguy


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  • #247
    Wyldwood
    Registered Users, Registered Users 2 Posts: 1,162 ✭✭✭Wyldwood


    cltt97, I don't think I have ever had either of those tests, must ask doc about these.

    chessguy, I regularly have full panel bloods done and never have a problem. I take the tablet first thing in the morning with a glass of water & wait 30 mins before eating. I don't take caffeine (drink decaf tea, no coffee/fizzy drinks). I'm very careful about soya products. I believe my problem is due to an intolerance of the synthetic hormone.

    Really need to get an appointment with an endo in the hospital where I had my subtotal thyroidectomy many years ago when I was only 19. Unfortunately, the surgeon who did the op is long gone:( I've been told the delay is due to trying to locate my history in the hospital archives but I'm going to push ahead with an appointment with or without those records now.

    Thanks for all the support, it makes a difference when you can talk to people who understand. My family are very concerned but can't empathise.


  • #248
    Grayfox
    Registered Users Posts: 92 ✭✭Grayfox


    Can anyone make sense of these, are they normal?

    Free T4: 21.8 pmol/L
    Free T3: 6.9 pmol/L
    TSH: 0.03

    I take 200/micrograms of Eltroxin a day, and i still do have symptoms! The last visit to the Endocrinologist was very dissapointing, they wouldn't listen and told me to go elsewhere if i had a problem.


  • #249
    rOBeRt frETt
    Registered Users Posts: 159 ✭✭rOBeRt frETt


    Grayfox wrote: »
    Can anyone make sense of these, are they normal?

    Free T4: 21.8 pmol/L
    Free T3: 6.9 pmol/L
    TSH: 0.03

    I take 200/micrograms of Eltroxin a day, and i still do have symptoms! The last visit to the Endocrinologist was very dissapointing, they wouldn't listen and told me to go elsewhere if i had a problem.

    Hi Grayfox,

    It's no wonder the Endo told you to go else where because your blood is telling him that you are absolutely fine - and since they are not really concerned with what you, say you shouldn't be surprised.

    Your Free t4 is at the top end of the scale- meaning you have a good supply of T4 unbound ready to be converted to T3 - active hormone

    you free T3 - unbound active hormone ready to be delivered to tissues is better than good also.

    you TSH the stimulating hormone secreted by the pituitary is almost suppressed at 0.03

    so as far as an Endocrinologist is concerned 'you're fixed' - hooray!

    Unfortunately for a huge swathe of hypothyroid suffers this is not the case
    we continue to feel exhausted, have chronic pain, cold, and feel physically about 20 years older than you should- in these cases, when you've been diagnosed and treated (with Eltoxin mostly) the most unhelpful person you could care to meet would be an endocrinologist- as you have just experienced.

    I wish I could tell you what the problem is or why some of us don't bounce back after starting thyroid meds and some do - and often feel better than ever, but the difference alludes me in my own case.

    Here are a few treatment approaches apart from the almighty TSH test that you may want to consider.
    1. Try switching to a Natural thyroid product that contains both T3 & T4, T2, T1.
    2- Adrenal fatigue - if you adrenal glands have been working over time while you thyroid issue went untreated- there are some who think thyroid meds will have no efficacy while this is left untreated (the catch- medical science does not conform to this hypothesis, so you will need to contact a naturopath who will do a 24 hour saliva test.

    3. Have all your vitamins and minerals levels checked as the Thyroid hormone works in tandem with some and the thyroid gland needs a good supply of some also.
    the top supplements are
    Zinc
    Selenium
    Iodine
    Vitamin B12
    Vatamin D


    check out this websites

    www.sttm.com
    www.thyroid.about.com


  • #250
    cltt97
    Registered Users, Registered Users 2 Posts: 737 ✭✭✭cltt97


    Grayfox, what are your symptoms, out of interest. have you ever had Cortisol tested? Like Rob says, adrenal fatigue can play a role - and a good indicator is the saliva test which is done 4 times a day to establish your rhythm, but a morning Cortisol test can give at least some indication as this is when it should be highest. A lot of thyroid sufferers report that they feel better on a gluten free diet, or also lactose free diet.


  • #251
    Grayfox
    Registered Users Posts: 92 ✭✭Grayfox


    Thanks for the Replies guys. I haven't had my Cortisol tested yet and wasn't sure where i could get that done, but i will give a naturopath a try.

    I'm not sure if im hyper or hypo at the moment, I have had problems sleeping for the last 3 months now...It has been all over the place.

    Paranoia, Anxiety, Bi-Polar/Mood swings, Depression have been there too, and the constant brain fog. Some of this comes and goes along with other small things.


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