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[Diabetes] General Chat and Support Thread

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  • Registered Users Posts: 2,654 ✭✭✭Royal Legend


    7 weeks gone now on the Newcastle diet. Average BG about 5.1/5.2, and that's the average first thing in the morning as well. Lost 15kg in weight as well.
    Will decide next week whether to keep going after week 8. Still taking the Glucophage, tried off them for 2 weeks but found some of the bloods went up over the 8 mark and got a bit down about it so went back on them for the last couple of weeks.
    Overall, the first couple of weeks is hard, but you get used to it after that.


  • Registered Users Posts: 1,160 ✭✭✭Eurovisionmad


    Got accepted for a pump, I'm delighted really! I should be on it before the end of the Summer, I'm looking forward to starting off, only for the fact that there'll be a load of outpatient appointments which I'm not really looking forward to!


  • Registered Users Posts: 5,141 ✭✭✭Yakuza


    My daughter will hopefully be getting a pump in September, we were in Temple St. last week and the doctors are happy with our control, HbA1c is down from 88 (at diagnosis) to 72 the other day (3 months later) - not in the ideal zone yet but moving in the right direction. We're looking forward to being able to be a bit more flexible in our routine and not having to use her bum as a pincushion 5-6 times a day :rolleyes:


  • Closed Accounts Posts: 15,914 ✭✭✭✭tbh


    Yakuza wrote: »
    My daughter will hopefully be getting a pump in September, we were in Temple St. last week and the doctors are happy with our control, HbA1c is down from 88 (at diagnosis) to 72 the other day (3 months later) - not in the ideal zone yet but moving in the right direction. We're looking forward to being able to be a bit more flexible in our routine and not having to use her bum as a pincushion 5-6 times a day :rolleyes:

    you know what's mad - I've taken, on average, 3 injections a day for the last 18 years and been paranoid about missing them, even for a couple of minutes past schedule. When I went on the pump (43 days ago!) I was convinced that I'd find it hard to not inject, if you know what I mean. I thought that every time I ate I'd be thinking "have to take a jab now" but the weird thing is, from the second I plugged in the pump, I haven't given it a second thought. Never once went to get my pen after a meal. Instead it now feels like I'm changing sets every five minutes!


  • Registered Users Posts: 9,605 ✭✭✭gctest50




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  • Registered Users Posts: 16,475 ✭✭✭✭banie01


    Hiya Folks.
    Been a while since I posted here in this thread, but I'm just recently after starting on Victoza, and I'm wondering how people here on it are coping with the side effects?
    Do they lessen? I'm still only on the ''ramping'' phase currently at 0.6mg and moving to 1.2mg with my next dose, and onto a target of 1.8mg for long term.
    It has taken me a few days to get used to the nausea and headache and for it to lessen.
    I'm assuming that I will readjust again after a few days at the higher dose?
    I'm just wondering if any others here have any experience they'd like to share on if/when the side effects diminish at normal doses?

    Just to flesh out my current status, my HbA1c is steady at @6.7% and my control is very consistent(On Janumet) with height at 6'5'' and weight @17st with all other bloodwork excellent aside from the damn type 2.
    My Endo, has put me on Victoza in the hope of getting more improved control long term and staving any likely complications off for as long as possible.
    I'm happy with this strategy, and even though I've only been on Victoza a week I am already seen a great improvement in my morning readings.
    Prior to Victoza, I would average @12.5-13.5 in the morning even with a sub 7 reading before bed, these readings are now down to @ a 8.5avg and thats whilst still on only 0.6mg of Victoza.

    Oh and 1 more question, When are people taking their shot?
    The Literature says build the shot into a routine and stick to it, same time every day.
    My nurse specialist recommended taking the shot 30mins before my main meal, so I currently take the shot @5pm and suffer the consequences later with the side effects.
    My own instinct is to either take it early in the .am or last thing at night?
    I will of course discuss it with the specialist nurse but if anyone here has any experience I'd appreciate it.


  • Moderators, Society & Culture Moderators Posts: 19,219 Mod ✭✭✭✭Bannasidhe


    banie01 wrote: »
    Hiya Folks.
    Been a while since I posted here in this thread, but I'm just recently after starting on Victoza, and I'm wondering how people here on it are coping with the side effects?
    Do they lessen? I'm still only on the ''ramping'' phase currently at 0.6mg and moving to 1.2mg with my next dose, and onto a target of 1.8mg for long term.
    It has taken me a few days to get used to the nausea and headache and for it to lessen.
    I'm assuming that I will readjust again after a few days at the higher dose?
    I'm just wondering if any others here have any experience they'd like to share on if/when the side effects diminish at normal doses?

    Just to flesh out my current status, my HbA1c is steady at @6.7% and my control is very consistent(On Janumet) with height at 6'5'' and weight @17st with all other bloodwork excellent aside from the damn type 2.
    My Endo, has put me on Victoza in the hope of getting more improved control long term and staving any likely complications off for as long as possible.
    I'm happy with this strategy, and even though I've only been on Victoza a week I am already seen a great improvement in my morning readings.
    Prior to Victoza, I would average @12.5-13.5 in the morning even with a sub 7 reading before bed, these readings are now down to @ a 8.5avg and thats whilst still on only 0.6mg of Victoza.

    Oh and 1 more question, When are people taking their shot?
    The Literature says build the shot into a routine and stick to it, same time every day.
    My nurse specialist recommended taking the shot 30mins before my main meal, so I currently take the shot @5pm and suffer the consequences later with the side effects.
    My own instinct is to either take it early in the .am or last thing at night?
    I will of course discuss it with the specialist nurse but if anyone here has any experience I'd appreciate it.

    I have been on Victoza two years now - 1.2 mg for over a year.

    Since the beginning I have taken it at night around 9:30 at least an hour after I have eaten dinner and if there are any side effects I usually sleep through them - bed by 11:30. ;)

    Both the endo and nurse specialist were happy for me to continue to take it at night and my dose of diamicron in the morning before breakfast. TBH I find the diamicron has worse side effects than the victoza (blurry vision, slurred speech and general mental wobblyness).


  • Registered Users Posts: 2,654 ✭✭✭Royal Legend


    7 weeks gone now on the Newcastle diet. Average BG about 5.1/5.2, and that's the average first thing in the morning as well. Lost 15kg in weight as well.
    Will decide next week whether to keep going after week 8. Still taking the Glucophage, tried off them for 2 weeks but found some of the bloods went up over the 8 mark and got a bit down about it so went back on them for the last couple of weeks.
    Overall, the first couple of weeks is hard, but you get used to it after that.

    Just finished the 8th Week of the Newcastle diet. As I said a few weeks ago, I modified it slightly to add in chicken or fish instead of one of the shakes per day. So two shakes and a meal in between. I did not stick totally to the rule of no dairy as I used milk in tea/coffee and I used low fat salad dressing for the salads and stir frys. But overall, for the most part I kept away from the bad stuff, like chocolate, crisps, cake, biscuits etc
    Overall, I lost 16kg, which was badly needed. My bloods are still fairly good, I don't think that I will get to stop taking the tablets based on where I am at present as when I eat normal food the bloods go up. To celebrate, I went out on Sunday with the wife and had a few drinks ;)
    I am going to keep going on the diet for another while, as to get to my recommended weight I need to lose another 12/13 kg.
    I have noticed that my exercising has been getting easier and faster over the last few weeks, so yesterday, I put 10kg of weight into a rucksack and brought it for a walk, straight away I could feel the strain on the legs and ankles, and that was only 2/3rds of the weight I had lost :eek:
    Anyway, I would recommend the diet to anyone who thinks they can stick it out. I am due my 6 month checkup in the next few weeks, so it will be interesting to see what those results deliver.


  • Registered Users Posts: 499 ✭✭graflynn


    http://www.irishtimes.com/news/ireland/irish-news/hse-drops-aid-for-pregnant-diabetics-1.1485574#.UgEsVwqTZis.twitter

    Only those of us who have diabetes for life will realise how detrimental this will be to the health of the mothers with gestational diabetes and to their babies. We need a voice to speak for us and try to prevent this from happening.:mad: I want to do something but I don't know what.


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  • Moderators, Society & Culture Moderators Posts: 32,278 Mod ✭✭✭✭The_Conductor


    graflynn wrote: »
    http://www.irishtimes.com/news/ireland/irish-news/hse-drops-aid-for-pregnant-diabetics-1.1485574#.UgEsVwqTZis.twitter

    Only those of us who have diabetes for life will realise how detrimental this will be to the health of the mothers with gestational diabetes and to their babies. We need a voice to speak for us and try to prevent this from happening.:mad: I want to do something but I don't know what.

    They're withdrawing the LTI scheme from gestational diabetics. Plans seem to be afoot to expand the clinics for gestational diabetics (such as Mary Coffey's wonderful clinic in Holles Street). Given- it may not be convenient for many people to attend the clinic in Holles Street (and elsewhere)- but surely if it means there is additional person to person monitoring by a diabetic nurse (and normally an endocrinologist consultant) this isn't necessarily the end of the world. I imagine they'll still be handing out the test kits and strips in clinics?

    Is it the end of the world?

    Will the HSE even save any money by doing this?

    Just to reiterate- its only the LTI scheme thats being withdrawn from gestational diabetics- not the specialist diabetic clinics that are in Holles Street and the other maternity hospitals (which those with gestational diabetes should be visiting regularly for close monitoring anyway!)


  • Registered Users Posts: 9,605 ✭✭✭gctest50




  • Moderators, Society & Culture Moderators Posts: 32,278 Mod ✭✭✭✭The_Conductor


    gctest50 wrote: »

    +1

    We're quite good at picking up on these things in Ireland- and have far better track records than in the UK or Germany!

    Those babies! Eeek!


  • Registered Users Posts: 106 ✭✭central


    Bit late in the day I know but just a reminder about the Type 1 Dublin Support Group Meetings. Over 18's only and take place in the Royal College of Surgeons, Stephen's Green first Wednesday of every month at 6.30pm - All welcome.


  • Registered Users Posts: 235 ✭✭everyday taxi


    Just finished the 8th Week of the Newcastle diet. As I said a few weeks ago, I modified it slightly to add in chicken or fish instead of one of the shakes per day. So two shakes and a meal in between. I did not stick totally to the rule of no dairy as I used milk in tea/coffee and I used low fat salad dressing for the salads and stir frys. But overall, for the most part I kept away from the bad stuff, like chocolate, crisps, cake, biscuits etc
    Overall, I lost 16kg, which was badly needed. My bloods are still fairly good, I don't think that I will get to stop taking the tablets based on where I am at present as when I eat normal food the bloods go up. To celebrate, I went out on Sunday with the wife and had a few drinks ;)
    I am going to keep going on the diet for another while, as to get to my recommended weight I need to lose another 12/13 kg.
    I have noticed that my exercising has been getting easier and faster over the last few weeks, so yesterday, I put 10kg of weight into a rucksack and brought it for a walk, straight away I could feel the strain on the legs and ankles, and that was only 2/3rds of the weight I had lost :eek:
    Anyway, I would recommend the diet to anyone who thinks they can stick it out. I am due my 6 month checkup in the next few weeks, so it will be interesting to see what those results deliver.

    Hi, thanks for the updates! Im startin this diet in the coming days. Goin to my G.P in the morning. Did you discuss it with your G.P, and what was the response (if you did)? Apologies if you already said (i've just read the last page or two).

    Also may i ask, what were your BG's before startin the diet? Mine are high, between 8 and 18 frequently (mainly due to poor diet control and very little exercise). Im also on nearly maximum oral dosage. I was diagnosed with type 2 about 7 yrs ago. My BMI is about 28. I have noticed if i diet and exercise my sugars come down fairly significantly. So im gonna try this diet too.


  • Registered Users Posts: 1,160 ✭✭✭Eurovisionmad


    I dunno if anyone saw this, it seems to have been snuck in without much notice, HSE drops aid for pregnant diabetics
    , technically it's that they drop aid for people with gestational diabetes, the doctor in the article is very strongly of the opinion that this is a very short sighted and poor decision! While obviously this won't directly effect me I do hope the HSE isn't trying to set a precedent! :-/

    Also Accu-Chek has offered me a free upgrade to the Accu-Chek Mobile meter, which I happily took as it's quite the upgrade from the Accu-Chek Nano meter I current;y have but did somebody mention on here that the HSE won't cover the 50 test strip cassette that it uses?


  • Registered Users Posts: 2,654 ✭✭✭Royal Legend


    Hi, thanks for the updates! Im startin this diet in the coming days. Goin to my G.P in the morning. Did you discuss it with your G.P, and what was the response (if you did)? Apologies if you already said (i've just read the last page or two).

    Also may i ask, what were your BG's before startin the diet? Mine are high, between 8 and 18 frequently (mainly due to poor diet control and very little exercise). Im also on nearly maximum oral dosage. I was diagnosed with type 2 about 7 yrs ago. My BMI is about 28. I have noticed if i diet and exercise my sugars come down fairly significantly. So im gonna try this diet too.

    Its tough going. My bloods were not as high as yours, I would be careful as I don't get affected by hypos, sometimes my bloods would be mid 4's and it has no affect on me, so be careful...

    I did not talk to my GP before I started, I am due in for a 6 monthly shortly, so it will be interesting to see what they say. I bought the slimfast when it was on special offer, so that was the catalyst :) The first couple of weeks are pretty hard as you feel hungry and tired, but you get over it and it gets a lot easier, the temptation is the hardest part.

    I also changed it slightly after a few weeks, as I added chicken salad or chicken stir fry as one of the meals, instead of one of the shakes, this made it a lot easier. I did not follow the diet to the absolute letter of the law. I am still kind of on it, I try to get in exercise on most days, I have lost over three stone, my BMI would have been in the mid 30's, now its is late 20's. My % body fat is down from 40 to 30, waist down by about 6" and now below the recommended 37", so on the right track but still a bit to do.

    Like I said above, be careful, I monitor my bloods 5 times per day, my starting morning bloods were between 6 and 7, I got them down to on average 5, my average bloods were 6.5 and I got them down to between 5 and 5.5. I have changed my protein drink to a standard whey protein, my bloods are a bit all over at present, but at the same time I am not as fussy with the diet as I am on holidays, so it could be that as well.

    If you want to lose weight, it definitely works, I have thrown out a load of clothes that don't fit anymore and I have no intention of going back anywhere near my old weight ever again. Whether it cures diabetes, from my end I doubt it, but I will wait another couple of weeks, get the weight down a bit further and then visit my GP for my check-up and see what they say.

    Another hard part is that the exercise is hard at the beginning, but as you lose weight it gets easier, so to get the benefit you have to increase the intensity.

    Very best of luck, let us know how you get on.


  • Registered Users Posts: 235 ✭✭everyday taxi


    Its tough going. My bloods were not as high as yours, I would be careful as I don't get affected by hypos, sometimes my bloods would be mid 4's and it has no affect on me, so be careful...

    I did not talk to my GP before I started, I am due in for a 6 monthly shortly, so it will be interesting to see what they say. I bought the slimfast when it was on special offer, so that was the catalyst :) The first couple of weeks are pretty hard as you feel hungry and tired, but you get over it and it gets a lot easier, the temptation is the hardest part.

    I also changed it slightly after a few weeks, as I added chicken salad or chicken stir fry as one of the meals, instead of one of the shakes, this made it a lot easier. I did not follow the diet to the absolute letter of the law. I am still kind of on it, I try to get in exercise on most days, I have lost over three stone, my BMI would have been in the mid 30's, now its is late 20's. My % body fat is down from 40 to 30, waist down by about 6" and now below the recommended 37", so on the right track but still a bit to do.

    Like I said above, be careful, I monitor my bloods 5 times per day, my starting morning bloods were between 6 and 7, I got them down to on average 5, my average bloods were 6.5 and I got them down to between 5 and 5.5. I have changed my protein drink to a standard whey protein, my bloods are a bit all over at present, but at the same time I am not as fussy with the diet as I am on holidays, so it could be that as well.

    If you want to lose weight, it definitely works, I have thrown out a load of clothes that don't fit anymore and I have no intention of going back anywhere near my old weight ever again. Whether it cures diabetes, from my end I doubt it, but I will wait another couple of weeks, get the weight down a bit further and then visit my GP for my check-up and see what they say.

    Another hard part is that the exercise is hard at the beginning, but as you lose weight it gets easier, so to get the benefit you have to increase the intensity.

    Very best of luck, let us know how you get on.

    Thanks. I will do. I am concerned i may not be able to complete it, as i intend to stick religiously to the Newcastle diet. Thinking of going with NUPO diet supplements as it seems almost impossible to get hold of Optifast. Will consume approx 600 kal of NUPO, and approx 200 kal of mixed veg (non starchy) daily. Plan to do the eight weeks, with no break in the pattern. I could only realistically afford to loose about 2 stone max, so will monitor my weight. My G.P doesnt sit til tomorrow, so Monday could end up been my start date.

    Saw G.P earlier (today Fri 9th Aug '13). Got the nod from her, so Monday will be my start date. Monday morning she will take blood to see my Hb1ac colesterol etc just before i commence as a reference point to how i am gettin on. Already feelin pressure/fear of failing! I know how difficult this will be.


  • Registered Users Posts: 235 ✭✭everyday taxi


    Day 3. Lost about 3lb already. Its tough, but do-able. BS is still averaging 13. But considering this is without medication, i'll persist. Upon waking this morning it was 8. This makes me think reversal may not be for me, but im still fully aware its VERY early days.


  • Registered Users Posts: 2,654 ✭✭✭Royal Legend


    Day 3. Lost about 3lb already. Its tough, but do-able. BS is still averaging 13. But considering this is without medication, i'll persist. Upon waking this morning it was 8. This makes me think reversal may not be for me, but im still fully aware its VERY early days.


    Well done, sounds like you are getting there. I waited about 5 weeks before I came of the meds, went back on them a couple of weeks later.

    Keep us posted as to how you are doing. :D


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  • Registered Users Posts: 235 ✭✭everyday taxi


    Well done, sounds like you are getting there. I waited about 5 weeks before I came of the meds, went back on them a couple of weeks later.

    Keep us posted as to how you are doing. :D

    Encouragement this mornin with a BS of 6.7. Considering i was on nearly the full allowance of oral meds, im very happy with this. :)


  • Moderators, Society & Culture Moderators Posts: 7,458 Mod ✭✭✭✭CathyMoran


    That is not bad, mine was 5.8 (I am a type 1 and have been advised to keep mine higher that I used to due to severe night time lows).


  • Registered Users Posts: 235 ✭✭everyday taxi


    CathyMoran wrote: »
    That is not bad, mine was 5.8 (I am a type 1 and have been advised to keep mine higher that I used to due to severe night time lows).


    Yeah, mine was nearly 12 only last week in the morning time, and that was on full (oral)meds. 6.7 this morning on no meds after only four days on this Newcastle diet. I refuse to get ahead of myself, but im happy with current progress.


  • Registered Users Posts: 235 ✭✭everyday taxi


    One full week on. Lost about 8lb. BS continues to improve. The first reading of the day being the best. Started off last Monday (first readings)......11.3 tues 10.2 wed 9.4 thurs 6.9 fri 6.4 sat 5.9 sund 5.0 and today 4.8.
    I aslo took an average daily reading, these were.....Mond 12.6 tues 13.4?? wed 11.95 thurs 9.3 fri 9.0 sat 8.4 sun 7.1 today ???????

    The diet doesnt get any easier. Unlike when i gave up smoking, that became easier by the day....................this does not! It gets harder. But the BS are enough motivation to continue. :)


  • Closed Accounts Posts: 732 ✭✭✭scarymoon1


    So my Hba1c is around the 7 mark... Seeing consultant tomorrow. Am I in trouble??!


  • Registered Users Posts: 1,160 ✭✭✭Eurovisionmad


    scarymoon1 wrote: »
    So my Hba1c is around the 7 mark... Seeing consultant tomorrow. Am I in trouble??!

    I'd say that's quite good, but I suppose everything is dependent on ones circumstances!


  • Moderators, Sports Moderators Posts: 24,446 Mod ✭✭✭✭CramCycle


    scarymoon1 wrote: »
    So my Hba1c is around the 7 mark... Seeing consultant tomorrow. Am I in trouble??!

    Your in trouble is you are uncomfortable with a medical professional waltzing you around the waiting room asking why no one else is as good as you :D


  • Registered Users Posts: 235 ✭✭everyday taxi


    scarymoon1 wrote: »
    So my Hba1c is around the 7 mark... Seeing consultant tomorrow. Am I in trouble??!

    Thats after fasting i assume? If so, it would be of concern, that your blood sugars are higher after eating.


  • Moderators, Society & Culture Moderators Posts: 32,278 Mod ✭✭✭✭The_Conductor


    Thats after fasting i assume? If so, it would be of concern, that your blood sugars are higher after eating.

    His is a Hba1c- not a blood glucose level (aka the glycated haemoglobin level- not the spot glucose level). This measures glucose levels over a (roughly) 3 month period.

    A non-diabetic would have a hba1c in the 4-6% range. It could be elevated for any of a number of reasons which might be unique to the person (for example I'm not diabetic but I had one of 7.2 (55 on the new scale) because I was on long term cortisonse use- when I managed to wean myself off the cortisone it returned to below 4.8%

    For a diabetic- a 'normal' range might be somewhere in the 6.5 to 7.5 range (with a non-diabetic range of perhaps 4 to 6

    These are all going to vary from person to person- and someone coming along and saying- my Hba1c is 7- is that good- unfortunately is meaningless- as there are a wealth of individual factors that are behind this figure- that the individual would need to discuss with their consultant. It could be a very good figure. It could be a very worrying figure. It could be highlighting a trend. It could be masking a range of other issues (hypoglycaemia for example). Its impossible to tell. The poster would need to discuss it with their consultant.


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  • Closed Accounts Posts: 732 ✭✭✭scarymoon1


    Thanks for the replies. My Hba1c was always 5-6 but the last 2 have been 7 and my doctor was saying its quiet high! Then I was reading online that 7 is normal so I'm annoyed my doctor was/is putting me under pressure to get it so perfect! Anyways in the clinic now and they mixed up my app so they said be prepared to wait a few hours. I hate this diabetes :(


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