Can’t really say. My mouth was always sore (prob grinding in sleep) so I wasn’t getting good sleep.
In terms of cost, god I can’t remember, think it was it €700 including the appointment
He/she might have figured out you were a Derry City fan, hence the sleepless nights 😎
@NIMAN why did the specalist say you don't need a cpap, was the cpap not working. Just wondering as there's a few things it could be, is your blood oxygen dipping at night but cpap not helping?
Did you find it helped when you were using it?
Can I ask how quickly you seen results, if any?
Also, what sort of cost is involved in getting one made and fitted? (Pm me if you don't want to talk money publicly).
There is one in fairview who makes them.
https://www.crescentclinic.ie
Dr John O Brien
I stopped using it after couple of months as my mouth was always sore but sleep has been awful last few months so may need to go back or have another sleep study.
It might be worth contacting one of the Shields brothers, they have all the equipment to build what you're looking for, whether they'll stand over it for sleep apnea is another question, I'd be interested to know though,
https://www.shieldsdentalclinic.ie/our-story/
ANyone on here ever have any success with a mandibular advancement device?
As I said previously, my specialist said I didn't need a cpap, and suggest I try to get a MAD. I checked with local dentists and orthodontists, but none make these.
Ahh yeah.. there is that.. handy to have spares.
Those heated tubes are feckers for failing.
And its handy to be able to leave washed bits drying overnight and use spares.
Was just coming to post the same. I presumed that the tubing and humidifier was going to have to go back. Would have saved me a bit if I'd known, but at least now I have a bit of redundancy.
Ohh just another thing that might save you money if you are buying the same machine as you had from ResMed PEI.
When I sent back the Airsense they told me to only send the machine and the power supply.
And to keep everything else.. including:
So, all I had to buy was the machine.. I already had the water tank/ humidifier. and the climate line heated tube.. which is about €160 currently off the cpapstore website. And the pillow mask is another €85 saved…
bit of news there…
Apple Watch now FDA approved for sleep apnoea detection…
Watch Series 9 or Watch Ultra 2 owners can use it starting today
https://www.theverge.com/2024/9/16/24246150/apple-watch-sleep-apnea-detection-fda-approval
When you ring accounts they make you wait for a callback from a nurse and then you have to wait for an postpaid envelope.. send the machine back.. and THEN its a month from there…
There's a lot of variables, interesting to note..
"While more studies would examine the long-term benefits, any side-effects and whether there are specific types of patients that would benefit more from treatment, it was “vitally important we don’t forget that sleep apnoea is, in the majority of cases, linked to obesity and addressing this should be the priority”, she said"
I'm not convinced it's just BMI related but I'll persevere in getting to a healthy one regardless then I'll worry about plan B if it's not that.
The consultant doesn't know anything about your readings either. Without a constant blood oxygen monitor how could they know, your oxygen levels at night. It's not possible as none of these cpap machines actually monitor oxygen levels.
If android get a Samsung watch 5 pro or the new ultra. Apple should have it this month. These gadgets are essential in my opinion if you really want to get a handle on it.
the rep came to service the machine and I told him about the condensation (and loud noise) especially during cold weather. and he said the temp. was to high (1-5) and set it to 3. Such a simple fix.
the other thing is I do have to shake the tube etc. on some nights; sometimes I put it under the duvet to keep it warm.!
I don't know anything about my readings, as the consultant only saw me twice and said no follow up appointment, so have no clue on my readings. I think I must follow up on this.
All I know is I sleep deeply, hardly any sleep paralysis, can sleep on my back to relieve my back pain (I know not ideal but sometimes the pain is too much) and it is doing me good.
Drug shows promise
I think that's meant to happen at the elbow, I'm assuming it's some kind of pressure relief maybe for when you're breathing out, if you look there's tiny little vents on it.
It shouldn't be leaking at the nose though, the packet it came with has 3 size pillows in it, I'm using the middle size one, you might be just using the wrong size one, there shouldn't be any air blowing on your face. The filters are the same size on all 3, don't forget to take it out before washing.
When I started using it 1st, it was sore on the nose so a tiny bit of vaseline will help there until your nose toughens up a bit.
I called them yesterday as noticed my oxygen levels were down a bit and I was feeling sleepy during the day again so they turned off the comfort settings to give me more constant pressure and it made a difference last night, it was nailed up around 95% and didn't dip into apnea territory. Was hovering around 91% the night before and slipping below 90%. Feel a lot fresher this morning.
That is interesting (and now obvious) about lowering temperature to prevent condensation @the14thwarrior so thanks for that.
I tried the 'pillows' mask last night for the first time. Although mostly awake, I managed over four hours wearing it which is way better than the one hour or so I managed with the nasal and full face masks over the last 3 months. Thanks to the advice here, I asked to try another mask. (I'm the type that would say 'all is fine' when it's not) In fairness the ResMed company called me to say they noticed I wasn't lasting more than an hour or so a night.
The pillows mask seems to have alot of air leakage at the elbow. I sealed it with my hand and then that air leaked out the nasal cap. A bit of Googling said that this air leak is norrmal. I live alone during the week so am afraid of suffocating. Can I ask if other 'pillows' mask wearers notice alot of leakage at the elbow joint on top of their heads on the upper mask strap?
I've enjoyed reading the posts. after a number of operations including a full thryoidectomy, I was diagnosed with SA. I got a machine and took panic attacks using it, full of anxiety. After a number of months and a consultant visit in Beaumont, he told me he would discharge me as I was not compliant. I asked for another shot. I was afraid I would be suffocated. Work was a nightmare, stress off the charts. I've always, always had issues with sleeping and was always, always tired.
So he said to try it that night what was the worst that could happen as my readings were so bad and my stress levels so high that it could do no harm. I did what he said and kept it on that night. My next visit after three months showed instead of 25 wake episodes with heart rate etc. and no breathing, i was down to about 9. I'm not technically but he said it was excellent.
In true form and like other posters, I did get used to it, and I use it to make sure my heart is ok. Before I used it I used to wake up all the time with a massive pain in the heart but not anymore.
I rent my machine from air liquide, and the expensive is tough but doable; I claim my expenses from HSE anything after 80 euro I get back. I got a letter and even went to USA with it in the bag and it worked fine.
I'm not going to lie and say i wake up refreshed and ready to go. Never been nor likely ever will be but I am sleeping 8-9 hours a night, sometimes without even waking up to go to the bathroom. I have more energy, I'm told I look healthier. I've had over five operations in as many years, and I can honestly say I missed my machine when I could not use it (for a brief time because of the operations).
I guess I just wanted to say that the doctor in Beaumont probably added years to my life, and in end saved my eye pressure from causing me blindness it was that high! I use a full face mask, it works best for me. I lowered the temperature down to 3 and it stopped the condensation.
thanks for reading…. or scrolling through……..
I have a bed head with bars on it and a crossbar at the top, so it comes over from the back to the front and is loosely tied with an ignorant piece of string. I am full of good intentions to do something more elegant but the string is about 3 years old at this stage!
The 6 is humidity, just had a look there and I think I need to go the other way and take it to 7 should make the air more moist. Hopefully don't get the noises.
I made a make shift hook with a clothes hanger the other night, what do you use?
My tube isn't temperature controlled. I have the tube hooked up high on the bedhead before it gets to me, the only time I get water in the tube (creating those unholy noises in the middle of the night!) is when the weather is very cold. Only happens the odd time.
Mine is on 29 temp and 6, I don't know what the 6 represents, there is a water drop beside it, how is that different to the temperature?
What have people with the resmed 10 the humidity and tube temperatures set at, I had it 28° tube and 6°, changed it to 27° and 5° last night, would like to get the air cooler without the water building up in the tube.
Regarding cancelling the subscription - does anyone know what the notice period is for PEI? It is a month, or can you hand back the machine immediately? Can't find it in any of my documentation.
I don't think it's a con as I can see the benefits, daytime sleepiness is gone that was the killer for me, I'll put up with the discomfort for that alone, I'm a different person when using it.
@Hontou I'd agree with looksee you definitely need to reach out and get help to make it work for you, you're paying for a team of nurses with your subscription, make use of them.
I'd be a bit sceptical that cpap is going to be the only solution ever but there's little research on anything else. There's drugs out there they're researching but you're into side effect of them then. There's also surgery options and implants. One of the implants looks good but it's not in Europe yet only the USA. I'd take it over cpap if it works though
https://www.inspiresleep.com/en-us/
UCD were involved in trial of KairosPAP™ while you'll still need the machine it looks like it might make it more comfortable by reducing the constant pressure and only giving the air pressure when needed. It's not approved yet either though.
https://sleeplay.com/blogs/news/what-is-kairospap-a-new-sleep-apnea-treatment?srsltid=AfmBOorAzlRIZt2drIykJFs7B4mJ3X-hDA527tRvi9OV6DXXcvsbp3Cu
I'm not a sceptic about the machines because I have an oxymeter and seen how low my blood oxygen goes when I am not using the machine. It spends most of the night near or under 90, and at intervals goes as low as 70. This is very bad for the heart (and I have the evidence of that from the years when I was diagnosed but didn't use the machine (due to lack of support and information mostly), I have had several cardiac procedures and am on strong anti arrhythmia drugs and blood 'thinners'.)
I absolutely agree about sleeping being a hassle, to the point of being depressing, but the alternative is much more than hassle.
You may well need more support and help with the machine, but it can take a while to settle into it.
Hmmmm. All this makes me think we are being had by the subscription companies. Is it all a con? How long are these machines around and is there absolute proof they work? I feel no better after 3 months. In fact my throat hurts since I got it and going to bed has become hassle. I travel for work to add to the hassle. Any other sceptics out there? I also have no medical card so the cost hurts.
Yea they've over 42 million cloud connected machines and 7.8 million are weekly/monthly subscribers, a bit of room for growth left in the subscription model. Probably hoping the people buying from the cpap store will join up with the low prices.
My insurance isn't covering any of it besides the consultant and I don't have a medical card that makes it free.
It definitely is. The letter with the quote also included a large table which outlined what you don't get if you buy the machine outright. Some of it is dubious (no 'data downloads' despite the fact that the machine saves all its data to an SD card which you already have; no 'patient space' app which is technically true but you can access the Resmed app, etc.)
They seem to be adopting an Americanised system of overcharging on the basis that most peoples' insurance and/or DPS will cover it.
Still, I would have thought that some money was better than none, combined with the hassle of taking back the machine and cleaning it.
Yah PEI are making a killing.. and with our tax money, I'd say, cos anyone I know that has a machine from them is getting it free through the medical card.
