Meauldsegosha wrote: » On the diabetes in Ireland facebook page, there are plenty who have got texts to attend for their vaccine. Not all have a Hba1c of over 58. Hospitals seems to be randomly picking people.
ddarcy wrote: » I saw my doctor in the last week and was told that they are looking at longevity as well with diabetes aside from the HBA1C. So if you’ve had it for 20+ years they could be adding you to the list to get done. Although not sure how widespread that is or if it is just Dublin hospitals doing it etc.
Johann. wrote: » Hi Guys, Waiting on a call back from clinic, missed the call today. However somebody could potentially shed some light or had similar experience. At night I match my fast acting to my carbs using 1:10 ratio - and then take my 14 units of long acting as set by the hospital in November. I am rarely below 7.5 in the mornings, having gone to bed between 5-9. Sometimes I would have a snack and wake up fine - within range. Some mornings I would wake up over 9, having had nothing since 7pm the night before - and having not eaten much carbs. I have read of the dawn phenomenon etc, but I just think perhaps long acting isn't doing the job it's supposed to be doing - or perhaps not enough, but hesitant to vary too far. It's worth noting that throughout the day then my bloods are between 4-7 - but naturally a worried/hard on myself if it's not - i know i've a lot of learning to do & probably a little less worrying
Taeholic wrote: » Hi Johann, I'm a bit confused by both your readings and your post which genuinely could just be me. So for clarity can I ask why are you taking fast acting insulin at night? Are you taking it before a late night snack? Or just before your main meals? Also what time are you injecting your long acting insulin? I don't understand how you could go to bed with reading of between 7 and 9 having taken 14 units of insulin and have a fasting reading of above 7.5. That's a mystery to me but then again at times so is diabetes. I found keeping a diary very useful when I first started on insulin and saw patterns that I could then call my clinic with to discuss. I certainly wouldn't do anything without them signing off on it but definitely no harm asking for advice.
Johann. wrote: » Sorry, let me clarify - would take fast acting with my dinner - then long acting before bed. So yeah, I would do bloods and reading would be between 7-9, only to wake up and could be 8-9.5, in some cases higher. It is then corrected during the day. This seems to be the case whether I'd have a snack before bed or not, seems to be no rhyme nor reason to it.
CramCycle wrote: » If you have anyway of getting either a CGM or getting someone to do overnight BG tests, it might be a good starting point. Thanks to my CGM my levels settle 3 hours after I last eat and stay the same (once aslepp) all night through.
Johann. wrote: » Thanks - are CGM's available for free in Ireland? J
Taeholic wrote: » My last appointment in the clinic the diabetes nurse told me if readings were steady 70% of the time she would be very happy. I was shocked by this because I like to hit good numbers, I think we're alike that way. But she is the professional she deals with this everyday. Eg I took 8 units of long acting insulin 3 hours before bed (it suits my schedule best) I tested before bed 9.8 and my fasting reading was 4.8 this morning which is on the low side for me. Usually in the 5s or 6's. Genuinely I can't understand even taking Dawn phenomenon into account how yours are so high. It does take time for the body to get used to the insulin and even out or at least that was my personal experience but I started on long acting for a year before fast acting. Sorry I can't help but the best advice I can give is to call your clinic again tomorrow, ask for appointment whether it's video chat or in person. Sleep hugely effects my readings, the only thing I can think of is are you getting enough quality sleep?
calfmuscle wrote: » Definitely push for a cgm but it seams obvious you're rising over night. I was exactly the same on lantus and levemire. I got a cgm and went on tresiba and this problem went away. Talk to your team and get them to add redress the issue. 70 percent is great but why not have 80 to 90 percent with longer acting insulin and a cgm.
Johann. wrote: » Sorry, didn't see this. Yeah, i'm hard on myself for sure, but spoke to the team today and they said they were happy enough with numbesrs .During the day they said was perfect, and waking up 1 or 1.5 above where i was when i went asleep doesn't bother them too much. e.g. if I was 7.5 going to bed and woke up 8.7 - they're ok with that, for now at least. They did suggest to up my long acting by 1 unit for a few days to see does this have an even better balance.
CramCycle wrote: » To be fair, most people would be fine with that and some non diabetics probably have similar fluctuations. If anything, the only improvement you could make is go to bed a bit lower. The only concern I would have is that your not gradually raising to that level, I used to go low and rebound every night but only realised this when we started doing overnight testing. Other people go high and come back down with whatever insulin they are using. TLDR they are right, its a minor difference but I would like to know what goes on in between. Are you a heavy sleeper and if you are, could you get someone to do tests every 2 or 3 hours overnight?
Taeholic wrote: » I totally understand where you're coming from about your Fasting sugars. I like to hit the target numbers too but we have to be careful not to drive ourselves mad either. In fairness your readings are brilliant so well done on that. I'm glad you got to talk to your clinic, if they're happy then you doing great. The extra unit should get you to where you want to be
Johann. wrote: » Thanks. Tbh I had gotten on with it since diagnosis and didn't get too frustrated by it all - took it in my stride, but past week had been tough, or more so i was tough on myself. Plus an article online about a poor fella my age in the Naul who is going blind having not attended his screenings, put the ****s up me despite registering a few weeks ago.
banjobongo wrote: » hi guys quick question, my bucket to store my collected needles is now full. I just called the usual medical centre I use to get rid of the needles and collect a new bucket, Southhill Medical centre in Limerick, to check if they are open as usual, but the phone keeps running out, anybody know if they are open and if not, what to do to dispose of used needles/sharps?
banie01 wrote: » No clue if they are open or not, but perhaps give HSE live a try? Their webchat is always fairly good for stuff like that.
banjobongo wrote: » thanks, but Im afraid I tried them adn they were not any good, she know nothing about either the centre or about what diabetes patients should do with their used sharps. Anybody else have this problem (ie getting rid of their used sharps)?
gerrybbadd wrote: » Just back after receiving the AstraZeneca vaccine there in Sligo. Fantastic service, very well handled by all there. Jab itself is pretty painless, the flu jab was worse!
banie01 wrote: » If you are stuck for a bucket, I'm in Limerick city and have one that is seeing near zero use since I stopped my insulin and went onto libre. It's probably a 3rd full, but if you are stuck it's yours.
robinph wrote: » I'm now two weeks in after the first dose of Astra Zeneca. Other than the first night where I has all over body aches and chills I didn't have any symptoms after that, well not that any normal people would notice. I did have erratic blood sugars for a few days though with wild fluctuations from hyper to hypo and back again. Wonder what symptoms a "normal" person would get in that situation if their pancreas is just dealing with it without their knowledge?
gerrybbadd wrote: » I'm into day 2 now here. Was in bits yesterday, like a flu coming on, headache like I was dehydrated, and as you say, erratic blood sugars. Today, bloods are still high, (had a hypo yesterday after very high sugars a couple hours before), but other than that, feel relatively normal. Arms still a little tender mind. It got very sore the night of the injection, all down the left side.
banie01 wrote: » No joy with getting the Libre on LTI. Endo has said the prescribing is still very restricted and subject to pcrs review rather than a nod and a wink. He did review my libre data to date and was happy to use the glimp estimated Hba1c as this visit's number! Spent a bit of time going over the graphs, he has recommended going with a food diary in conjunction with the libre for the next month or so. Identify what spikes me and then use that info to manage spikes better. My recovery from highs is fairly quick, and of I can better manage those I can ditch the libre rather than keep self funding. So it would seem barring the narrow range of T1's currently eligible, other type 1's and other types of diabetes will likely not be added to the eligible cohorts for the foreseeable.
