Psoriasis

I was wondering if overcooking nightshade vegetables could reduce the potential negative effects. e.g. I would get regular ketchup or make my own, and pressure cook it for an hour or so which could degrade whatever it is that is said to effect people.

Found this page

http://www.diagnosisdiet.com/nightshades/

Potato processing 101

The vast majority of glycoalkaloid is in the potato skin, so peeling will remove virtually all of it. Glycoalkaloid levels can be dangerously high in unripe and sprouting potatoes; any greenish areas or “eyes” should be removed or avoided.

Glycoalkaloids survive most types of cooking and processing. In fact, deep frying will increase levels if the oil isn’t changed frequently, so fried products such as potato skins and french fries can contain relatively high amounts:

“Mechanical damage to potato tissue increases the concentration of glycoalkaloids available for consumption. In addition, frying potatoes at high temperatures does not inactivate but instead serves to preserve and concentrate glycoalkaloids within the potato, leaving them available for ingestion and delivery to the intestine…” [Patel 2002]

Boiling—reduces glycoalkaloids by a few percentage points
Microwaving—reduces glycoalkaloids by 15%
Deep frying at 150C (300F)—no effect (McDonald’s uses 340F degree oil)
Deep frying at 210C (410F)—reduces glycoalkaloid content by 40%
Glycoalkaloid levels of a few prepared potato products are available [Milner 2006]:

Potato chips, 1 oz bag: 0.36 to 0.88 mg chaconine and 0.29 to 1.4 mg solanine. Total glycoalkaloid concentration ranges from 2.7 to 12.4 mg per bag.
Fried potato skins, 4 oz: 4.4 to 13.6 mg chaconine and 2.0 to 9.5 mg solanine. Total glycoalkaloid concentration ranges from 6.4 to 23.1 mg per 4 oz serving.

I was really looking for a ketchup substitue. Tesco Finest brown sauce has no tomatoes in it, the only brown sauce I ever saw without it. Almost every "burger sauce" "BBQ sauce" or similar on the market has tomato in it.

There is a brand called "nomato", dunno if its in any health shops here.

Hi all. I have recently started to use bio oil. And for me its like a miricle . I have both excema and psoraisis and loads of allergies. I have been on most steroids creams plus all the emollients known to man!! From using all the prescribed meds my skin has become very thin and a little discoloured like its losing pigment. I am as described by a doctor "an itchy patient". After one application of bio oil my skin is flexible, the redness has calmed and the flakiness has gone. I am thrilled. I wanted to ask has anyone else used the bio oil and how they have found. I find as im getting older the time between flare ups has shortened and they are getting worse. Hopefully this will continue to improve things.

I'm at work now Wonga, can't remember make of mine, but I'll post it later. Look at how easy it is to clean, otherwise you won't stick to it, and that it can take a whole fruit in the shoot.
(I got a Tesco one ages ago, and never used it because it was awkward to clean, and had to chop all fruit into little bits every time !)

I have this Phillips juicer, it is very good, and easy to clean (all the bits come apart, pulp mostly falls into the black box.
http://n2.sdlcdn.com/imgs/a/i/p/Philips-HR1861-Aluminium-Juicer-1186045-1-837a3.jpg

rubadub wrote: »

Does anybody know the cheapest place to get this?

I see it is reduced on amazon
http://www.amazon.co.uk/Bio-Oil-Specialist-Skincare-Oil-200/dp/B00129XP8M/ref=sr_1_1?m=A3P5ROKL5A1OLE&s=drugstore&ie=UTF8&qid=1411655837&sr=1-1&keywords=bio+oil

£13.26 (approx €17) for 200ml with irish vat at checkout. Buying 2 will get you over the £25 limit so you get free delivery.

In boots here 200ml is €25.99

Boots do a good own brand version and Aldi occasionally have their version available at an excellent price.

I'm seeing some definite signs of improvement. I've been using Silcock's Base, E45 on my face for moisturiser before make-up, and have recently started using Bio-Oil.

My chest and neck area, where it first flared up, has lost all the iching, inflamation, flaking and blotchiness. The pigment of the skin is a little weird but that's improving every day too.

The itching on my legs is nearly gone (more fading too) and my arms are starting to fade in some places too (again, it's in first in, first out mode). My stomach is a bit slower in improving, the itching is still a little nasty but it's not keeping me up at night anymore

stefanovich wrote: »

Anyone used Dermalex cream? Any feedback?

Never heard of it but I just looked it up online. To be honest I don't have a lot of belief in those sort of things. In my experience they cost a fortune and re not always effective. Having said that Dermalex might work as a means of keeping it at bay when its good.
Im still to be convinced that theres a way of treating Psoriasis without some use of steroid or immune suppressant drug. It can be minimal usage but I think you can never eliminate it

Hey folks. Been clear for 7 years and 2 weeks ago boom. Total breakout. Been getting worse daily. Torso. Feet. Arms. Legs. Head hands and face :-(.

Going to go to my gp tomorrow but from previous years the only thing that worked was diprosalic ointment and scalp lotion. Had it from. Age 7 to 28 and tried everything you can imagine.
I hear that diprosalic is cheaper in Spain and Portugal. Anyone have any experience of getting it from there or the UK. It's mentally priced here and the worrying about the cost of it doesn't help!
Acupuncture cleared it for me the last time and have an appointment next Sunday to start that again.
Fingers crossed


Cheers

Red dalmatian

Hi Mountainsandh

I started getting it as a favour to a friend of a friend who needed someone to practice on. It almost immediately cleared me up and also cleared my asthma. I took it on and off for 2 years to keep myself topped up. Incidently my wife also tried it for her migraines. They also cleared up.

Not a huge believer in alternative therapies but it worked for me so I don't question it!

I don't think k any of them specialise in it.. They cover all elements.

I used sinead in this list

http://prtcm.org/practitioners.html

No, I wish...
I do have a job where you're exposed to everything going though... But no, psoriasis does not have that positive effect on me.

brightkane wrote: »

I went to gp today. He looked at flare up and immediately asked if I had a throat infection prior to flare up. I advised I did. He said it's a very common trigger. It will go with diprosalic help in 2 weeks. He seemed very confident. Oh and he told. Me not to worry! Ha

Did he mention giving you floucloxicillin antibiotics?

Dermatologist tomorrow.
Been waiting for this for a while but I'm looking forward to hopefully getting a long term plan in place. Im actually reasonably under control at the minute though.

Wel Prof Kirby made some big changes to my regime.
He's taken me off Dovobet and Dovonex and put me on coal tar for 6 weeks.
Then he's sending me for PUVA therapy. BUT doing that means a 200 mile round trip twice a week for 6 weeks and I'm not sure that I can do that.

Call Me Jimmy wrote: »

jeeaauuyssus ryan? that's mad.

Whats mad?:)

Call Me Jimmy wrote: »

The round trip for some treatment! Nuts amount of travel. Worth it if it gave near 100% relief for a significant time but I would have thought there MUST be somewhere closer (I understand there isn't)

I know, I'm not sure if its going to work out to be honest. Theres no Dermatologist in Waterford where I live so I saw this guy in Vincents. I might see if there is a way of getting it den somewhere closer but not convinced there is.
At the moment my thoughts are to do it once and if its too much then go talk to him about plan B.

Mountainsandh wrote: »

Is the unit in Ardkeen closed ? I had PUVA therapy there... 2 years ago I think. There was a young woman dermatologist on the spot, only occasionally, I was sent there by Dr Buckley (I think) clinic in Clonmel. (I think the clinic is only on once in a blue moon)
Puva is a pain for the sunglasses, too. So not only will you be driving the distance, but you'll have to wear sunglasses for it whatever the weather (and indoors too). My job is somewhat public, and I looked like a fool with my sunglasses indoors to carry out my duties
It really works with me, but mine comes back right quick after, and the round trip was 140 km, plus Ardkeen car park ... It turned out expensive after a while.

I will find out about it in Ardkeen but I don't know if its possible to have it in a different hospital from where your consultant is based..
That woman you mention is on maternity leave for the year and Dr Buckley is soon retiring and is not taking new cases. I live half a mile from Ardkeen though!

How dod your job accommodate you doing it? And did you have to wear sunglasses after the treatment was over?

Mountainsandh wrote: »

edit : to be honest, the on spot lady dermatologist didn't do much except review my situation after the few weeks treatment, the nurses were great, and they were the ones giving all the advice, and dealing with me every time. They're the ones running the place really, but I suppose officially if they don't have the dermatologist they might have to close down regardless. They have just the 2 cabins there I think.

How might I find this out?
I don't know how realistic doing this in Vincents is going to be. I got the feeling that I would see him each time but again will clarify that.

Been doing some research on PUVA and it seems to be quite challenging compared to UVB therapy. Im currently job hunting but I get the feeling that holding down a Job while doing this may not be realistic

The skin's the largest organ in the body but psoriasis isn't just a skin thing , it's a full-blown auto-immune condition that can play merry hell with your overall health. Pumping oxygenated blood to all the red patches overworks the heart, fueling the higher skin cell turnover can over-stress other systems. Surfaces other than the skin can be involved - cartilage in PA and the gut in IBS. The psychological impact can be enormous.

I had light treatment in Vincents and the nurses did all the day to day checking and administration of treatment. The doctors saw me as required to monitor and decide on how long a course I'd probably need each time. It's a pity the Waterford nurses can't do the same and just send you to Dublin once every few weeks to see a doctor.

I'd be inclined to give the PUVA a go, if only to get permission to move onto the subsequent treatment protocols. I found that nothing was of benefit until I started on a biologic but perhaps you'll find your personal solution with light treatment or drug therapy.

hi, i being using Elave conditioner for last while and notice my scalp is not flaking any more. Its like it moisturize my scalp. You can buy it in the chemist for 6euros. My scalp feels smooth and not tight anymore since i started using it.

Yes, in Waterford too, you don't see the dermatologist, only to assess progress after a certain amount of sessions. The nurses are well able to run it all imo, they're well used to different people's rate of progress, and monitor you for burns, since it could happen that you get a bit "sun" burnt if the length of exposure was a tad too long.

I can't remember 100%, but I think the pills were prescribed by Dr Buckley, and I was told about the sunglasses etc... after that I was reminded of the risks etc... by the nurses regularly. It's simple really with the tablets, just take them in the morning within whatever time to treatment they tell you, and because their effect lasts so many hours (they'll remind you) you just make sure to have the sunglasses, and protect your skin for the required length of time after treatment too. Mine was in winter too, so that's not so bad, at least you're likely to be wearing long sleeves and covering clothing.

Dubl07, yes we know that psoriasis affects more than just the skin, but to people who hardly know what it is (and there are many) it can really appear as just a skin thing.

When I'm all inflamed I just feel so run down.

My hands are still pretty clear, even though I haven't juiced in about 2 weeks ! I feel it's borderline, but I'm starting the juicing again tomorrow so hopefully that will help clear and stall things again, knees are also much better than they were !!!

It seems to clear the toughest, thickest, and largest patches first, but I do still have lots of little drops everywhere. Easy peasy little drops as far as I'm concerned
Inflammation is really down.
I'm always very sceptical about diet changes, but in this case I think it is something to do with reducing inflammation with something that I'm obviously missing in my diet, and that needs to be absorbed "live" or fresh. I've tried vitamin supplements and fish oil capsules and other bottles before, but never with the same effect.

For the scalp I got Yes to Carrots conditioner for myself and my daughter on the advice of a pharmacist, I was very dubious of course, but it's actually very good, and pleasant to use, plus you don't smell of tar. Then again we never have real thick patches on the scalp, just little drops again spread out, nothing huge.

I don't know !

Don't you get Vitamin A with supplements though ?
I tried supplementing with Vit D specifically at one stage, other times with all vitamins supplements without success, so I don't know. I think maybe it's anti-oxidants or radicals or such trending jibberish :rolleyes:

The juicing (just fresh fruit, nothing fancy) is the first improvement I have had in years, and as far as my hands are concerned, it's spectacular. Maybe it's coincidental, and my body just happened to switch into clearing mode at the same time, I don't know, but the juicing is good anyway, so I'll keep it up.

My wrists (they were pretty much covered too) and forearms have improved so much that the pigmentation is very patchy. Since I'm naturally dark skinned (French born), it's a mixture of nearly white, pink where there's still flaking bits, and dark brown, so much so a colleague of mine once exclaimed "what's that ? have you stains on your arms or something ?" She thought the dark patches were the wrong bits when they're really my normal bits
But hey, that's a good sign, normally the flaking bits are so unmistakable that you don't notice the brown bits at all, now it's the reverse !

I think I do, but it's undiagnosed as of yet. I just did a blood test about a week ago, and I'm due to get results soon, but of course the PSA doesn't show so it's a process of elimination. My GP wants that cleared first and then he'll refer me to a rheumatologist.
I'm obviously way less inflamed now so paradoxically I hope that I'll be bad enough to be diagnosed, it would be a shame to turn up there in a remission phase, and then be bad again 6 months later. One of my hands is always a bit stiff so I think that's there to stay, and my feet (again, one in particular, on same side) are always a bit sore. They're the worst bits, but over the years I have had a phase of very bad pain in the heel, then knees were bad a different year, and I've always had lower back problems which might also be related.

In the hand the finger joints are affected, but also the knuckles, and I've had these little balls of liquid you can get at the base of the knuckles, that are often linked to arthritis I think the GP explained. Whether that's psoriasis related or not, I don't know. My nails get affected at different times, not all at the same time, and usually not too bad. One is kind of funny atm with a V shape mark right in the middle under the nail bed.

Over the years, I've never bothered to do anything about all these, I just kind of let it run, sometimes I mentioned the problems to various GPs, who simply said to take paracetamol. I mentioned them more to have them on my file for later rather than expecting treatment tbh.
Only now I'm past 40, and I think if there is arthritis, I would like it treated for immediate relief, but also so that my hands and feet won't be deformed and damaged by the time I reach 55 !