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thyroid misery

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Comments

  • #602
    chessguy
    Registered Users Posts: 163 ✭✭chessguy


    Theresa66 wrote: »
    I forgot to say that I was diagnosed with Hashimoto's thyroiditis about twenty years ago, when I lived in the US. They told me I had antibodies and explained what that meant. They explained that they could tell that my thyroid was actually working because it was producing hormones, the problem was they were being attacked by my immune system! That was a big surprise to me after 20 years on thyroxine, and thinking my thyroid gland didn't work, and all the while having my blood levels monitored regularly by James's endocrinology dept!

    So I was able to tell them in James's what was wrong with me when I moved back to Ireland, rather than the other way round!

    Some might say what difference does it make at the end of the day if the treatment is the same for hashimoto's as for a non-functioning or non-existent thyroid gland, and if the end result of treatment is the same = normal thyroid levels?

    I think it makes a world of difference because the immune system comes into play in a big way with hashimotos, and there are lots of things that can be done to help the immune system and prevent inflammation, through diet, supplements, exercise, etc. All this can help.

    Also, hormones have a knock-on effect on other body systems. Why isn't this addressed?

    What I don't understand is why the endos don't sit down and take a thorough case history of each patient, taking into account

    1. hormone levels: oestrogen, progesterone, testosterone, insulin, adrenals (these are all affected by the thyroid and can have a huge effect on fertility, well-being, etc.)
    2. allergies: gluten, dairy (because the proteins in gluten and casein are very similar to those in thyroid hormones and if the body produces antibodies to gluten and/or casein, these antibodies can then mistakenly attack the body - so if the allergen is eliminated the attack might be eliminated)
    3. dietary deficiencies such as iron, b vitamins, selenium, copper, zinc (all needed for healthy thyroid functioning)
    4. family history (leaning towards graves, hashis, non-Hodgkins lymphoma etc - my mother has autoimmune myelitis and my aunt has non-Hodgkins lymphoma - there is a gene that predisposes people to autoimmune disease) - not in the interests of a cure necessarily but in the interests of science, and also it is known that one autoimmune disease can lead to another - they need to explore this link.
    5. mental state - is the patient anxious, depressed - and explain that this can be related to hormone disruption, and test for neurotransmitters such as serotonin, dopamine, gaba, etc. and compensate accordingly. Apparently the growth hormone is closely related to the production of the neurotransmitter responsible for the feel-good Gaba levels.

    No, they test your T4, your TSH, tell you you're normal and off you go. Not only that, the medicine they give you has only one of the 4 thyroid hormones (the natural dessicated thyroid from pig's glands has T4, T3, T2, T1). They tell you that's alright because T4 is converted into T3 by the body (but there is evidence that some people have great difficult with this conversion). They don't bother to tell you selenium helps a great deal with this. And they don't really know what T2 and T1 do, so better not to have them. Although I'm sure there's a reason why pigs have them.

    It just makes me so angry.

    @Theresa66

    you mention"
    "What I don't understand is why the Rndos don't sit down and take a thorough case history of each patient, taking into account "
    Many of them never open a book after taking their respective jobs , they do not read new Published articles,and follow progress,

    So their methods are primitive,

    Once I mentioned something to a doc , he said how do you know this , I said the internet , his reply one should not trust the web,

    my response it was a Published medical article ,proven by crossed methodology by several research labs.

    he went quiet,,

    I asked him what the last published medical article he read was about, regarding the thyroid

    you could hear a pin drop he looked embarrassed.

    This guy has been a Doc for over 40 years....

    They should have mandatory periodic refresher courses, tests.

    I have such tests and I only work on Mission critical systems, (they are not humans.)

    ##
    your are correct ,not to change medication until you have the results from Tallaght,

    I would not recommend Armour unless you have a regular thyroid panel done , and are under the eye of a good endo.

    FT3 FT4 and the antibody tests need to be done,so see where you are today,
    knowing you have hashimotos , makes a big difference ,


    A good idea to have the minerals and especially vit b12 and vit d tested too.
    These need to be in place for effective treatment,

    good idea to read from Chris


    http://chriskresser.com/selenium-the-missing-link-for-treating-hypothyroidism

    see point 10

    Additionally, supplementing selenium in the context of low iodine status may actually aggravate hypothyroidism. Mario Renato Iwakura discusses this particular topic extensively on Paul Jaminet’s Perfect Health Diet blog.

    side note
    chris mentioned previously iodine is like putting gasoline on fire , but has now changed his opinion, and agrees it needs to be stepped up with selenium..

    http://chriskresser.com/the-gluten-thyroid-connection
    the gluten connection I mentioned in a previous post all related to Dwarf wheat,highlighted by Dr Davis.

    my prev post
    http://www.boards.ie/vbulletin/showthread.php?p=79337275

    And an excellent article on supplements by chris


    http://chriskresser.com/9-steps-to-perfect-health-4-supplement-wisely


    goodluck
    chessguy


  • #603
    Theresa66
    Registered Users Posts: 8 ✭Theresa66


    Thanks Chessguy, I had a look at those links, very useful info. It shouldn't have to be this way, patients having to diagnose themselves. It's unbelievable that doctors don't have to be tested for knowing up to date medical advances. The other thing is they don't talk to each other enough - the endos need to get together with the nutritionists and psychiatrists and neurologists to join the dots. I think vets are much better as they're more all-rounders and can see the big picture. Maybe I should go to a vet. Mind you, my dog eats a lot healthier than I do, mostly meat and veg leftovers, water, and a very occasional bit of a biscuit. I should probably try that for a while.


  • #604
    marymarcy
    Registered Users Posts: 32 ✭marymarcy


    Hi

    Got B12 result, 554 and Folate 5.6. Should I still be supplementing at those levels? My Vitamin D is still rising with supplementation, 76 in recent test.

    I need some help understanding the antibodies test. I have been told by some of ye on this thread to have tpoab, tgab and trab done.
    All I see under the Antibodies headings on tests I've had are

    January 2010
    Anti Tissue Transglutaminase AB, which seems fine - 0.3, less than 1.9 being negative

    Anti Nuclear Ab (IgC): Positive (weak) Homogeneous ANA pattern, Nucleolar ANA pattern

    Anti Mitochondrial Ab, Anti Smooth Muscle Ab, Anti Liver/Kidney Microsom Ab, Anti Parietal Cell Ab, Anti Thyroid Microsomal Ab, all negative

    Anti Thyroglobulin Ab: Positive (titre 1:1000)

    Jan and April 2011
    Anti Tissue Transglutaminase wasn't done, all the others are negative except Anti Nuclear Ab (IgC) which is positive plus 1 Homogeneous ANA pattern, and with tests last week the Anti Nuclear is positive plus 1 again.

    Are these the tests i needed?

    Thanks!


  • #605
    chessguy
    Registered Users Posts: 163 ✭✭chessguy


    marymarcy wrote: »
    Hi

    Got B12 result, 554 and Folate 5.6. Should I still be supplementing at those levels? My Vitamin D is still rising with supplementation, 76 in recent test.

    I need some help understanding the antibodies test. I have been told by some of ye on this thread to have tpoab, tgab and trab done.
    All I see under the Antibodies headings on tests I've had are

    January 2010
    Anti Tissue Transglutaminase AB, which seems fine - 0.3, less than 1.9 being negative

    Anti Nuclear Ab (IgC): Positive (weak) Homogeneous ANA pattern, Nucleolar ANA pattern

    Anti Mitochondrial Ab, Anti Smooth Muscle Ab, Anti Liver/Kidney Microsom Ab, Anti Parietal Cell Ab, Anti Thyroid Microsomal Ab, all negative

    Anti Thyroglobulin Ab: Positive (titre 1:1000)

    Jan and April 2011
    Anti Tissue Transglutaminase wasn't done, all the others are negative except Anti Nuclear Ab (IgC) which is positive plus 1 Homogeneous ANA pattern, and with tests last week the Anti Nuclear is positive plus 1 again.

    Are these the tests i needed?

    Thanks!


    @marymarcy

    hope you find this useful,




    Normal vitamin B-12 levels are 200 to 900 pg/mL. yours is 554

    The normal range for folate is 2.7 to 17.0 ng/m yours 5.6

    so looks like they both still need a little more work,,

    you mention vit D is 76 you do not mention the lab range or what 76 actually is it could be nmol/L or ng/L diff types of measurement..


    hmmm .....Lets have a look...

    50 ng/mL (125 nmol/L) this is the desired range quoted by the Vit D council


    so YOUR 76 if it is >> nmol/L could actually be 30.4 ng/ml

    So looks like vit D needs more work too


    To convert nmol/L to ng/L divide by factor of 2.5.

    In Ireland it appears many labs seem to use nmol /L for this.


    =======================
    Did they say what they suspect or are looking for ?

    Anti Tissue Transglutaminase AB often done in part to determine to coeliac disease auto immune diseases etc.

    Other test in part to check for

    systemic

    lupus erythematosus, Sjögren's syndrome and rheumatoid arthritis .Amongst >> many others.



    But these sets of test above can outline a picture for other things too,


    what are they actually looking for in relation to these tests ??

    These tests should be interpreted by the endo who has requested them , as only he knows the context they are to be viewed in,

    (so basically only he knows what he is ruling in or out and appears to be doing that by various tests)
    Has he /she mentioned what they are actully ruling out /in.

    Good idea to ask the Endo. ..

    Regarding the

    Anti Thyroglobulin Ab test

    A positive test means antithyroglobulin antibodies are found in your blood. This may be due to:

    indicates thyroid issue , Hashimotos issues too. Amongst other things..


    recall from prev post ;
    Reckon you had the following checked T3, FT3 and t4, FT4, TSh as you are seeing an endo
    cortisol.


    tpoab
    tgab
    TRAb

    do they know what kind of hypothyroidism you have ??
    hashiomotos or T4 t3 conversion issue , or receptor uptake issue.??

    Looks like the Endo is working systamatically to rule in / out , things , I reckon it may be a good idea to talk with him/her,to see where this is going..

    of now now Spain calls,

    Goodluck
    chessguy


  • #606
    treecreeper
    Registered Users, Registered Users 2 Posts: 193 ✭✭treecreeper


    three types of hypothryoidism!!!! i didnt KNOW that!
    twin and i both with hypothryoidism and feel ghastly all the time.


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  • #607
    chessguy
    Registered Users Posts: 163 ✭✭chessguy


    treecreeper wrote: »
    three types of hypothryoidism!!!! i didnt KNOW that!
    twin and i both with hypothyroidism and feel ghastly all the time.

    @treekeeper, above hashimotos was type of hypothyroidism the other 2 were some of the causes of hypothyroidism,#


    below types of hypothyroidism,
    worth reading



    http://www.progressivehealth.com/hypothyroidism-types.asp


    last post

    before holidays

    goodluck
    chessguy


  • #608
    dubbo
    Registered Users Posts: 55 ✭✭dubbo


    Hi all,looking for a little more advice! I'm getting bloods done at the end of the week and have to fast for them(checking me for diabetes and Addisons as well as monitoring my underactive thyroid).my question is should I take my levothyroxine the morning of bloods as usual or will that mess up my results? Thanks,hope everyone is well:)


  • #609
    Wyldwood
    Registered Users, Registered Users 2 Posts: 1,162 ✭✭✭Wyldwood


    This thread has gone very quiet, everyone must be feeling great!

    Dubbo, don't take your thyroid meds until after your blood test, it would distort your results.


  • #610
    dubbo
    Registered Users Posts: 55 ✭✭dubbo


    Just back from consultant,my tsh has gone from 9 to 7,so they're increasing my dose from 25 everyday,to 25 one day and 50 the other. Feeling so much better,thanks again to everyone on here who encouraged me to ignore my gp and go to an endocrinologist! Only thing is my antibodies are negative,which means it isn't auto immune which I don't really understand but feeling so much better regardless :)thanks again hope everyone is well:)


  • #611
    RubyGirl
    Registered Users, Registered Users 2 Posts: 1,275 ✭✭✭RubyGirl


    dubbo wrote: »
    Just back from consultant,my tsh has gone from 9 to 7,so they're increasing my dose from 25 everyday,to 25 one day and 50 the other. Feeling so much better,thanks again to everyone on here who encouraged me to ignore my gp and go to an endocrinologist! Only thing is my antibodies are negative,which means it isn't auto immune which I don't really understand but feeling so much better regardless :)thanks again hope everyone is well:)

    Did you not have to go thru the doctor to see an endocrinologist? Great to hear your feeling better.


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  • #612
    dubbo
    Registered Users Posts: 55 ✭✭dubbo


    I did yeah but she wasn't supportive and thought I was a hypochondriac, I think she basically wrote the letter to get rid of me,but I got treatment in the end so happy out :)


  • #613
    robinph
    Moderators, Science, Health & Environment Moderators, Sports Moderators Posts: 24,118 Mod ✭✭✭✭robinph


    So I'm away from home for a couple of days, just opened my bag to find my pills to pop for this morning and realised I forgot them. Luckily the insulin pump being attached to me makes it hard to forget and I can cope with a bit of hay fever from forgetting my anti histamines.

    I've not been on the levothyroxine long enough to have forgotten doses before though. Is this likely to make me feel rubbish later today, or will it be a couple of days? I expect there is no exact answer that applies to all but wondering if staying away from my supplies for two days is a good idea.

    It's a bank holiday weekend over here so not sure I can get spare drugs from a helpful pharmacy so I might be better off going back home early this evening so that I only miss the one day.


  • #614
    Wyldwood
    Registered Users, Registered Users 2 Posts: 1,162 ✭✭✭Wyldwood


    I don't think missing 2 days will make a huge difference unless your TSH is very high. Just make sure to get straight back on them when you come back. There's always a 24 hour pharmacy to try but they may not give them to you without prescription


  • #615
    Staplor
    Registered Users, Registered Users 2 Posts: 1,123 ✭✭✭Staplor


    Could someone PM me the name of any pharmacists stocking Armour? My GP has decided to prescribe it, just looking for a stockist now. I'm living in Maynooth, anywhere around Dublin? I also head to Limerick a bit too so anywhere along the N7 would work too.

    Thanks.


  • #616
    cltt97
    Registered Users, Registered Users 2 Posts: 737 ✭✭✭cltt97


    I am not aware of any pharmacy actually stocking it, as it is unlicensed. They will order it in for you though. I have ordered it in in two different pharmacies (one was a Boots and the other was a Carrolls) without any problem. They can usually source it reasonably quickly, too.


  • #617
    ima_goldfish!
    Registered Users Posts: 71 ✭✭ima_goldfish!


    Hi all,
    basically I just went to my gp about 3 months ago because i was constantly tired feinted once or twice and felt sick all the time.Stomach cramps and nausea
    constantly. The nurse took my bloods and the gp said I had a slightly underactive thyroid, which I wasnt surprised about to be honest with the tiredness etc. He said as it was only slightly underactive to leave it alone for awhile and see if it stabilizes itself....seemed like odd advice, but I carried on anyway. Its not been 3 months and Ive heard nothing about getting more bloods done? Should I just go in myself? I think its gotten worse and Im quite scared ive read some horrific stories and I just feel defeated already. Im only 19 due to start a new college course next week,,,I just want to feel normal again. It seems Im dying with my stomach all the time and wrecked tired always,im in terrible form the whole time and its not me. I was diagnosed with depression when i was 17 and my gp stuck me on anti depressants which i now think was actually down to my thyroid. I went through hell to get off them yokes and recently read that they can actually cause thyroid underactivity. I dont even know if I should bother with my gp anymore if thats the case? I dont know lads any bit of advice is appreciated cant go to college and start a new life feeling this s**t all the time. Ill never be able to cope
    sorry for the long post


  • #618
    Staplor
    Registered Users, Registered Users 2 Posts: 1,123 ✭✭✭Staplor


    Get another test done if you still have symptoms. Compare to your last test. Get medication. Feel better. :)


  • #619
    ima_goldfish!
    Registered Users Posts: 71 ✭✭ima_goldfish!


    Is a feeling of intense hunger a symptom? As in you feel weak as a kitten and your stomach aches as if you have not eaten for days? So hungry you feel sick but even when you eat the feeling doesnt go? Just wondering if this could be down to thyroid too?


  • #620
    Staplor
    Registered Users, Registered Users 2 Posts: 1,123 ✭✭✭Staplor


    Pretty much everything is a symptom

    http://stopthethyroidmadness.com/long-and-pathetic/


  • #621
    dubbo
    Registered Users Posts: 55 ✭✭dubbo


    ima_goldfish! wrote: »
    Is a feeling of intense hunger a symptom? As in you feel weak as a kitten and your stomach aches as if you have not eaten for days? So hungry you feel sick but even when you eat the feeling doesnt go? Just wondering if this could be down to thyroid too?

    You poor thing,your experience sounds very similar to mine,my thyroid was slightly underactive from the age of 17 and my gp wanted to wait and see. I really started feeling even worse this year after Xmas,I'm 26 now,and again my gp wouldn't do anything even thought I was exhausted,depressed,put on weight and was freezing all the time. Eventually I insisted on a referal to an endocrinologist who put me straight on tablets,and I feel amazing now! So please don't give up,ask for more bloods and if your gp isn't helping ask for a ref to an endocrinologist. You shouldn't have to feel this way. Best of luck with your new college course too :)


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  • #622
    ima_goldfish!
    Registered Users Posts: 71 ✭✭ima_goldfish!


    Im sorry to be negative but this is all slightly terrifying...lol


  • #623
    ima_goldfish!
    Registered Users Posts: 71 ✭✭ima_goldfish!


    Also thanks for the replies and also that link to the stop the thyroid madness site, it seems really good


  • #624
    [Deleted User]
    Posts: 6,025 ✭✭✭ [Deleted User]


    I have to have tests done for Hypo Thyroidism.

    My main problem with it, is Constant hunger. any one else suffer from this constant hunger.

    I find i have to supplement what i eat with a drink called ensure .
    Was out for dinner on sat, and I ate soup, large steak, with veg and a plate of pasta, three slices of pizza, and two slices of crostini. Soon as I left the restaurant I was starving again. Weird thing is, the more I eat, it seems the hungrier i get.

    its horrible. Im hoping if they put me on medication the hunger will stop.
    Has anyone else had this constant hunger form Hyper thyroidism?


  • #625
    ima_goldfish!
    Registered Users Posts: 71 ✭✭ima_goldfish!


    Preaching to the choir! Yeah I think its a common thing


  • #626
    Mysterylady
    Registered Users Posts: 15 ✭Mysterylady


    I was diagnosed with an underactive thyroid about 4 years ago and have been on Eltroxin ever since, the level of eltroxin varies depending on my blood results which I get done regularly. I have also been on the contraceptive pill for approximately the same length of time on and off. I used to take my eltroxin in the morning and my pill in the evening. This month I decided to try and take both tablets in the morning to make life easier for myself but now I'm getting breakthrough bleeding and I'm wondering if it is because I am taking the tablets at the same time. It sounds logical to me that as they are both hormone based my body probably can't handle the two at the same time and isn't able to absorb the two properly, hence the bleeding but I'm not a doctor. Anyone got any words of wisdom on this?


  • #627
    edellc
    Closed Accounts Posts: 1,787 ✭✭✭edellc


    I am on the yasmin and eltroxin, I take the two in the morning together and have been doing this for over a year now. During this time I have never had breakthrough bleeding, and tbh it actually never occurred to me to take them at different time :o I am however knackered all the time :(

    Op you have two options, either change your pill back to the evening and see if the bleeding continues, or go back to the doctor and ask if the bleeding is down to you taking the two together...It could also be that you may need a combined pill if your not on one as the mini one can cause breakthrough bleeding


    ***
    OP I tell a lie, now I remember I was on a mini pill (cant remember the name of it) when I was breastfeeding, and continued to be on this one well after breastfeeding, I was then diagnosed with an under active thyroid after I stopped breast feeding and put on eltroxin and after a while I did have bleeding so went back to doctor and was eventually put on yasmin


  • #628
    Mysterylady
    Registered Users Posts: 15 ✭Mysterylady


    Thanks for your reply. I am on a combined pill and although I have had breakthrough bleeding before it usually symptomed as my period starting early if you know what I mean as opposed to now which is in the middle of my cycle. I was thinking it was maybe because I wasn't taking my pill at exactly the same time everyday, varies slightly at the weekend, but this has never been an issue before and according to the pill packet as long as I take it within 12 hours it shouldn't be an issue. I might do some further digging on the effects one tablet has on another and maybe change back to the evening taking of the pill and see if it has any effect.


  • #629
    RubyGirl
    Registered Users, Registered Users 2 Posts: 1,275 ✭✭✭RubyGirl


    Mysterylady wrote: »
    I was diagnosed with an underactive thyroid about 4 years ago and have been on Eltroxin ever since, the level of eltroxin varies depending on my blood results which I get done regularly. I have also been on the contraceptive pill for approximately the same length of time on and off. I used to take my eltroxin in the morning and my pill in the evening. This month I decided to try and take both tablets in the morning to make life easier for myself but now I'm getting breakthrough bleeding and I'm wondering if it is because I am taking the tablets at the same time. It sounds logical to me that as they are both hormone based my body probably can't handle the two at the same time and isn't able to absorb the two properly, hence the bleeding but I'm not a doctor. Anyone got any words of wisdom on this?

    Having the same problem and I'm on yasmin aswell. I take both pill's in the evening. Hoping to get an appointment with the doctor in the morning so I'll ask. Bet she'll say to take one in the morning and the other in the evening?


  • #630
    marymarcy
    Registered Users Posts: 32 ✭marymarcy


    I was diagnosed hypothyroid 3 years ago, but may have had concurrent post viral fatigue. On varying levels of eltroxin since then, but still felt horrendous, very fatigued and ill. Amongst other alternative therapies, I decided to come off the pill, Yasmin, back in June ( I had been on it for 6 years). I dont know what has worked but I feel great now, have even been able to reduce eltroxin dosage. I have read that taking the pill can inhibit eltroxin absorption, however GPs don't seem to agree. I don't know but just said i'd throw in my tuppence worth in case it helps! I never had issues with breakthrough bleeding so can't help there.


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  • #631
    frenchmartini
    Registered Users Posts: 198 ✭✭frenchmartini


    the thyroid peroxidase AB level came back this morning as 10.
    my doctor said 'no further action, normal range."

    i am very upset. i was hoping that this test would provide clues to my chronic symptoms.

    no-one is listening, i cannot continue for the rest of my life feeling like this.


  • #632
    ugsparky
    Registered Users Posts: 366 ✭✭ugsparky


    Ok - I have no idea who you are but please just read these words and consider your situation. Firstly my wife is going through this also so I know something of what you are going through. She too felt at one stage that no one was listening or cared or even gave a f*** (her words) - that the doctor/his team/hospital people where just going through motions. So we started again.

    I strongly advise you to go to your GP and ask him/her to refer you to a specialist - a private specialist who will discuss your symptoms and treat you as an individual on an indvidual basis. My wife attends the private Beaumont Clinic under Prof. Chris Thompson - he did more for her in 6 months than the staff in the hospital did in 2 and a half years - there is light at the end of the tunnel - he has been very informative and has a definitive course of action. We are very hopeful that by January my wife will have recovered fully. So you see you should not give up. There are always alternatives. I know private consultation cost's money but unfortunately it appears to me that this is the only efective way to treat this. Expertise requires an expert. I wish you well and hope you find answers and cure.


  • #633
    RubyGirl
    Registered Users, Registered Users 2 Posts: 1,275 ✭✭✭RubyGirl


    RubyGirl wrote: »
    Having the same problem and I'm on yasmin aswell. I take both pill's in the evening. Hoping to get an appointment with the doctor in the morning so I'll ask. Bet she'll say to take one in the morning and the other in the evening?

    Doctor said taking both together should'nt be a problem. If I have the same problem next month she will put me on a stronger pill.


  • #634
    TheJinMu
    Registered Users Posts: 154 ✭✭TheJinMu


    Hi, I havent visited here in quite a while. I'm on 50mg a day and just recently started the mini pill I think it is? Its called Cerazette... But anyway, I take both at the same time every morning (times vary but always between 10.30am and 11.30am) I never heard up til now that they may affect (effect?) each other. Is there any sort of proof in this? I'd be interested in knowing! I've been on iron tablets for the last 2 or 3 months too as my Thyroid levels are nice and even but still feeling tired. These have helped a bit but I'm still tired a lot. I've been getting more headaches recently too.

    I think a lot of it may be down to my lack of exercise, I need to get motivated and start going for walks or something. I think this may be one factor in a lot of symptoms with people here. I realise how hard it is to go walking when you feel like s***, but exercise helps a lot of things and the fresh air could really help too. Personally I think this could really help.

    I also think that reading symptoms on these lists online is slightly counter-productive. I think once you've read something it can sometimes make you think you'll have all these symptoms too and therefore cause them. This is just my opinion now, nothing against people doing this-I read a lot myself too when I was told I have hypo-thyroidism, but I've since stopped :P I think too, that when we dwell on these feelings-the tiredness etc, we make ourselves worse. (Also guilty of this myself.) :P

    I'm just trying to give my two cents and trying to explain that I think some here need to take a step back and look at things. (I realise this may not be the way this is coming across, I dont have a way with words) :P

    Best of luck to everyone too! I do hope noone takes this up the wrong way and I havent offended anyway - I'm in the same boat too, just trying to give a different perspective.
    (And now I'm babbling.) :D

    (EDIT: Post above me, did you mean taking both together SHOULDN'T be a problem?)


  • #635
    happydays5
    Registered Users Posts: 75 ✭✭happydays5


    Hi all - great thread .... i was diagnosed with underactive thyroid 5/6 years ago and was put on eltroxin varying between 100mg and 200mg after various blood tests. my problem is my ferritin levels are at 6 and have been like that for past 3 years - my hgb is always around 10 or 11 - i am completely exhausted - now my ankles have started to swell and i feel a little breathless for simple things .... has anyone else had any of these symptoms? is it an endocrinologist i need to see? i would love some reccomendations for one and i have private insurance so if anyone could pm me it would be great! my gp is very laid back about this but im really suffering and have 3 young children .....


  • #636
    cltt97
    Registered Users, Registered Users 2 Posts: 737 ✭✭✭cltt97


    I've had some episodes with swollen feet, very uncomfortable. For me, this is definitely thyroid related and has to do with kidney function (impaired due to lack of thyroid hormone). Seems like most thyroid sufferers have low ferritin etc. Have you ever had a full blood count done? Are you taking any supplements?


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  • #637
    sam34
    Closed Accounts Posts: 8,073 ✭✭✭sam34


    happydays5 wrote: »
    now my ankles have started to swell and i feel a little breathless for simple things..

    hi there

    please don't assume these new symptoms are due to the thyroid. there are a number of possible causes so you need to get checked out. if you feel your gp isn't taking you seriously, find another gp.


  • #638
    robinph
    Moderators, Science, Health & Environment Moderators, Sports Moderators Posts: 24,118 Mod ✭✭✭✭robinph


    Does anyone have any experience with having changed your levels of activity and that then having a bearing on the dosage of thyroxine needed?


  • #639
    El.duderino
    Registered Users, Registered Users 2 Posts: 388 ✭✭El.duderino


    robinph wrote: »
    Does anyone have any experience with having changed your levels of activity and that then having a bearing on the dosage of thyroxine needed?


    I have experienced this a few times. I have told various Endo consultants I,ve seen and never got the answer I wanted! Going back nearly 10 years ago I first joined a gym. I started to notice the more I trained the more my dose increased, as I went further underactive. Max around 200. I,ve noticed it again this year after a period of intensive training. I,m always under now on my bloods. Fingers crossed I have very little symptoms anymore. But i,m always borderline hypo or in need of increasing my dose. I prefer to be here than overactive and feeling like i,m going to explode.

    But definitely intensive exercise does effect your metabolism and your bodys need for thyroxine. When I talk about exercise I mean many hours of anaerobic/threshold training a month. Not walking around a park.


  • #640
    El.duderino
    Registered Users, Registered Users 2 Posts: 388 ✭✭El.duderino


    Forgot to add*

    While I had a knee injury some years ago I went hyper. Training stopped while on a higher than present dose. Dose was reduced at following test. This supports my theory I hope.


    Is anyone else here attending St James? They are trying to stop people attending the Clinic. My appointments are usually 6-12 months apart. The next appointment is a phonecall from the clinic! Waiting to get my phonecall this friday. Just go for bloods then you get a call to tell you results. I,ll report how it works out. At least you dont have to Q. Whether anyone ever rings me is another thing! :pac:


  • #641
    robinph
    Moderators, Science, Health & Environment Moderators, Sports Moderators Posts: 24,118 Mod ✭✭✭✭robinph


    El.duderino wrote: »
    I have experienced this a few times. I have told various Endo consultants I,ve seen and never got the answer I wanted! Going back nearly 10 years ago I first joined a gym. I started to notice the more I trained the more my dose increased, as I went further underactive. Max around 200. I,ve noticed it again this year after a period of intensive training. I,m always under now on my bloods. Fingers crossed I have very little symptoms anymore. But i,m always borderline hypo or in need of increasing my dose. I prefer to be here than overactive and feeling like i,m going to explode.

    But definitely intensive exercise does effect your metabolism and your bodys need for thyroxine. When I talk about exercise I mean many hours of anaerobic/threshold training a month. Not walking around a park.

    That's great info, thanks.

    I've been upping the mileage I'm running at the moment in the last couple of weeks since I've been able to have time to run more often again, and there is Dublin marathon coming up at the end of next month. The change in training has effected my insulin dosage, but I understand what is going on there and it's easy to get an instant blood test result to show me what is going on. Whilst the thyroid seems to be just based on what it feels like, except the GP is convinced it's all OK as the blood tests are within their expected range.

    Should hopefully get a call back from the hospital tomorrow and have a chat with them, but your response at least helps me convince myself that I'm not going completely mad with my theory about the training levels messing things around.


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  • #642
    Orla K
    Registered Users, Registered Users 2 Posts: 2,462 ✭✭✭Orla K


    El.duderino wrote: »
    But definitely intensive exercise does effect your metabolism and your bodys need for thyroxine. When I talk about exercise I mean many hours of anaerobic/threshold training a month. Not walking around a park.

    What would your training involve?

    There might be lots of reasons you would need more thyroxine, I'm not an expert so I don't know but one reason could be your adrenals are getting stressed and this has an affect on the thyroid hormones.


    I've a question for everyone here. What do you think of treatment your getting for thyroid conditions?


  • #643
    El.duderino
    Registered Users, Registered Users 2 Posts: 388 ✭✭El.duderino


    I cycle uphill mostly. I only said anaerobic to guage what I meant by intensive exercise. Exercise has a broad meaning.

    This study supports higher instance of thyroxine in strenuous activity. It directly increases in proportion to intensity.

    http://www.nel.edu/26-2005_6_pdf/NEL260605A14_Ciloglu.pdf


  • #644
    robinph
    Moderators, Science, Health & Environment Moderators, Sports Moderators Posts: 24,118 Mod ✭✭✭✭robinph


    Spoke with the doc at the hospital yesterday and I'm not sure they were convinced about the theory of increased activity levels effecting the required thyroxine dose needed. They did send me to get another TSH and T4 bloods done so have to see what they say in a couple of days. They also asked for kidney function and "CK" as well, can't quite remember her reasoning for wanting those tests as well, or what the "CK" is, seemed to make sense to the nurse taking the bloods though.


  • #645
    cltt97
    Registered Users, Registered Users 2 Posts: 737 ✭✭✭cltt97


    CK - Creatine Kinase


  • #646
    TheJinMu
    Registered Users Posts: 154 ✭✭TheJinMu


    If the idea that "increased activity levels effecting the required thyroxine dose needed" came from me, that wasnt my point, I dont think it would affect the dose needed at all, but I think it would help in the lingering tiredness that a lot of us still feel.


  • #647
    Wyldwood
    Registered Users, Registered Users 2 Posts: 1,162 ✭✭✭Wyldwood


    TheJinMu I have to agree with you, I don't believe dosage needs a lot of adjusting with exercise. I have noticed that if I push myself to get out for a good long walk on the days when I feel like crawling back into bed because of low energy I feel so much better afterwards. I think it just increases my sluggish metabolism to a point where I can keep going. Exercise is very important for hypo people.


  • #648
    robinph
    Moderators, Science, Health & Environment Moderators, Sports Moderators Posts: 24,118 Mod ✭✭✭✭robinph


    Nope, I think I had the idea independently. Unless you got me by some subliminal messaging method. :D

    Trying to figure out why I've been back to feeling crappy the last couple of weeks and the main change is the level of training I've been doing. I've been doing a fair bit of Googleing though and there is not much out there to support the idea, but a few endurance sports related message boards do have the occasional person who had to up their dose based on training levels. Nothing really conclusive though so more investigation needed yet.



    I did discover that Galen Rupp is hypothyroid on my travels around the internet. He got 2nd place in the London Olympic 10km to his training partner Mo Farah. Here's me and Mo when I was in the "elite" start for a 10km race earlier this year.


  • #649
    Sunny78
    Registered Users Posts: 1 ✭Sunny78


    LimerickBishop wrote: »
    Yes, excellent post there cltt97. So, if anyone new arrives to this blog and wants to inform themselves about the thyroid function, could you please read the entries on the blogs first, and then ask your questions, as many of the answers you may be looking for are already there.

    I've just noticed in the last few days I'm getting a twitching sensation on my forehead, usually lasts for about 20 seconds, then goes, and I get it maybe 5 times a day. Its unnerving when it happens. I googled it, seems like there's a link between this and drinking coffee. Now, I usually enjoy only one cup of coffee a day, and its always decaf, so I'm a little bit perplexed, is this another little everyday common treat I'm gonna have to give up? I'll be living like a mormon in no time. Anyone else have this before?

    Also, had a little setback with swimming, got an ear infection, which results from swimming a lot and air travel (which I've done a lot lately and noticed my ears aching a lot when descending to land). Now my weight is starting to go higher again. I can't really do much land exercise as I went over on my ankle 3 weeks ago, so I have to be careful with that.
    Thanks for all the useful info cltt97.

    I have been diagnosed with hashimoto disease about 8 years ago. At first the medicine help me a bit, but I feel like the symptoms are never really gone. Now I im on 50 gm Eltroxin. Although I have been suffering with tiredness, my nails break all the time, fine hair, depression, I go to the doctor , do my exams and all seems fine, hormones are in a ok level, and all the gp says if I relate my symptoms is advising me to take an antidepressant. They dont want to increase the dosage as the blood test seems fine. And to be honest Im not sure if that in itself would help, as from what I have read. My family doesn't really know much about the subject and sometimes they say I complain a lot, but I think is all related to the hormone imbalance that I suffer, but people seem not being able to realize that, of course is not their fault. What really upsets me is that some people think I'm slow, they tell me im so caaaalm, or tell me to wake up, like Im some kind of stupid, they start treating me like a stupid and I start really feeling stupid, not being able to concentrate, Im easy distracted and my memory doesn't work so well. recently I started a new job and a Master degree and Im all worried if Im going to be able to manage all that. My plan is to start a new diet, based in advice I got from here, and start exercising. Im hoping this can help me. Do you know how long does it take until I can feel a little better? Also, Im living in Dublin, would you have a good endocrinologist to recommend me?

    Thank you so much. S


  • #650
    Galbin
    Registered Users Posts: 363 ✭✭Galbin


    Sunny

    I have a great endo who doses by the free T4 and Free T3 levels and not by the TSH. He has also done a lot of research on the matter.

    Pm me if you want his details.


  • #651
    dubbo
    Registered Users Posts: 55 ✭✭dubbo


    Just came on here to have a bit of a moan really!I have been feeling so well for ages,starting to think that the meds were working and I was basically 100% again. I had a busy weekend last weekend,involving far too little sleep,and I still feel absolutely awful even 4 days later! It's very frustrating :( hope everyone is well :)


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