Diabetes Support groups: Details and Announcements thread

graflynn · 30-03-2015 11:54am

Clare Type 1 Diabetes Support.

The next meeting of the Clare Type 1 Diabetes Support group takes place on Tuesday 14th April at 8pm in the OLD GROUND Hotel, Ennis.

We have invited international rugby union referee and person with type 1 diabetes, George Clancy as our guest speaker. George will share his type 1 diabetes story with us and how he tries to balance an international rugby career, travel, work and family life.

This meeting is an informal group of adults with type 1 diabetes and parents of children with diabetes. The Clare Type 1 Diabetes Support Group can be contacted on telephone number 087 641 5747 or email: clarebranchdfi@gmail.com

graflynn · 02-04-2015 5:50pm

We have found our venue for Thrive-abetes; the Thrive with Type 1 Diabetes conference for Adults living with T1 and for Parents of Children with T1.

http://thrive-abetes.blogspot.ie/2015/04/our-venue-is-booked.html

This conference is happening on Saturday, 3rd October 2015. More to follow.:D

Grainne.

graflynn · 01-05-2015 2:12pm

Type 1 Diabetes Interactive Patient Evening
May 12 @ 6:30 pm - 9:00 pm

http://www.diabetes.ie/event/17521/

graflynn · 01-05-2015 2:13pm

Cork: TYPE 1 Diabetes Research Developments
May 14 @ 7:30 pm - 9:00 pm
Diabetes Ireland Research Alliance (DIRA) and Juvenile Diabetes Research Foundation (JDRF), are holding an information evening on TYPE 1 Diabetes Research Developments. The meeting will be held on Thursday, May 14th, 2015 at 7.30pm in the Imperial Hotel, Cork.

Click here for more info, agenda and speakers.

graflynn · 15-05-2015 6:23pm

The Clare Branch of Diabetes Ireland are holding an information evening on ‘understanding food labels’ in the Temple Gate Hotel, Ennis on Tuesday 19th May at 8pm.

We hope that by attending this session people will learn to more easily interpret nutritional information and food labels, and ultimately better the dietary management of their diabetes” says Pauline Dunne, dietitian with Diabetes Ireland.

Self-care is an essential part of good diabetes care! To do this well continuously over a long period of time is not easy and reinforcing of good diabetes management tips and advice is needed regularly.

At first glance food labels are not always easy to understand. There is often confusion between the terms ‘carbohydrates’ and ‘sugars’ with most people only considering sugars to be important. However, both sugars and the amount of total carbohydrate need to be considered by people with diabetes when making food choices.

This meeting is free to attend. The Clare Diabetes Support Groups can be contacted on telephone number 087 641 5747 or clarebranchdfi@gmail.com.

graflynn · 03-06-2015 11:09am

Clare Type 1 Diabetes Support.

The next meeting of the Clare Type 1 Diabetes Support group takes place on Tuesday 16th June at 8pm in The Temple Gate Hotel, Ennis.

This meeting is an informal group of adults with type 1 diabetes and parents of children with diabetes. We share information about living with Type 1 diabetes and our life experiences to learn from each other over a cuppa.

The Clare Type 1 Diabetes Support Group can be contacted on telephone number 087 641 5747 or email: clarebranchdfi@gmail.com

graflynn · 09-06-2015 10:53am

The next meeting of the Clare Type 1 Diabetes Support group takes place on Tuesday 16th June at 8pm in The Temple Gate Hotel, Ennis.

We have invited international rugby union referee, person with type 1 diabetes, and Limerick native, George Clancy as our guest speaker. George will share his type 1 diabetes story with us and how he tries to balance an international rugby career, travel, work and family life.

This meeting is an informal group of adults with type 1 diabetes and parents of children with diabetes. We share information about living with Type 1 diabetes and our life experiences to learn from each other. The Clare Type 1 Diabetes Support Group can be contacted on telephone number 087 641 5747 or email: clarebranchdfi@gmail.com

graflynn · 12-06-2015 4:06pm

It is with great pleasure that we announce confirmation of another great speaker at the Thrive-abetes; Thrive with Type 1 Diabetes conference.

Dr. Clare McVicker is the Director of Research Advocacy, at the type 1 diabetes research charity, JDRF in the United Kingdom. JDRF is the world’s leading charitable funder of type 1 diabetes research and its vision is a world without type 1 diabetes.

What is Thrive-abetes?

Thrive-abetes is a one day conference for adults living with type 1 diabetes and parents of children with diabetes, taking place on Saturday, the 3rd October 2015 in The Glenroyal Hotel, Maynooth, Co. Kildare.

"Thrive-abetes" is a first-of-it's-kind event in Ireland - a conference organised by people with type 1 diabetes for people with type 1 diabetes!

This Type 1 Diabetes conference is going to focus on the psychological impact of living with a chronic, lifelong illness. We aim to provide “Inspiration, Motivation and Information” to people living with type 1 diabetes, both parents of children with diabetes and adults at our conference.

The speakers are internationally renowned in the diabetes community and we have 12 exhibitors from the diabetes pharmaceutical industry.

Find out more here.

graflynn · 19-06-2015 6:07pm

Finally!! Registration for Thrive-abetes is open. Register here.

Thrive-abetes is a one day conference for parents of children with type 1 diabetes and adults living with type 1 diabetes.

It takes place on Saturday, October 3rd 2015 in Maynooth, Co. Kildare.

"Thrive-abetes" is a first-of-it's-kind event in Ireland - a conference organised by people with type 1 diabetes for people with type 1 diabetes!

The speakers will include people who are internationally renowned in the diabetes community, including Joe Solowiejczyk who is a certified Diabetes Nurse, a Family Therapist, and has lived with Type 1 diabetes for over 50 years. He is also the author of A Type 1 Diabetes Guide to the Universe.

Kate Fakakerly is mother to Isobel who was diagnosed when she was two years old. Isobel is now 24 and hopes to present with Kate at “Thrive-abetes”. Kate is also Chair of the Families with Diabetes National Network UK, a network of all regional parent representatives in England who represent the views of families.

Helena Farrell, is founder of Diabetes Insight, and specialises in diabetes education, support and nutrition. Helena will give delegates some pointers on how to avoid diabetes burnout; a state of disillusionment and depression, in which all of the effort required of people with diabetes can sometimes lead to.

Dr. Kevin Moore, consultant endocrinologist in Tallaght Hospital and Naas General Hospital. Dr. Moore has worked tirelessly throughout his career to improve the lives of patients with diabetes.

And finally, Dr. Clare McVicker, head of advocacy at JDRF UK will update all of the delegates on the clinical trials of the closed loop artificial pancreas, beta cell encapsulation and other new developments in the treatment of type 1 diabetes.

We hope you can join us,
Grainne, Christine & Rebecca.

Dozo · 12-07-2015 12:09pm

T1 Advocacy Ireland has been established to represent the needs of people in Ireland with ‪Type1 Diabetes‬:

We intend to do this by:
• Creating awareness about Type 1 diabetes
• Being a single voice for all Type 1 diabetes adults and children
• Working to achieve better healthcare and support for Type 1 diabetes adults and children
• Providing hope

Please visit us on facebook: T1 Advocacy Ireland

graflynn · 05-10-2015 6:13pm

The next meeting of the Clare Type 1 Diabetes Support group takes place on Tuesday 20th October at 8pm in The Temple Gate Hotel, Ennis.

This meeting is an informal group of adults with type 1 diabetes and parents of children with diabetes. We share information about living with Type 1 diabetes and our life experiences to learn from each other.

The Clare Type 1 Diabetes Support Group can be contacted on telephone number 087 641 5747 or email: clarebranchdfi@gmail.com

graflynn · 12-10-2015 11:25am

The next meeting of the Clare Type 1 Diabetes Support group takes place on Tuesday 20th October at 8pm in The Temple Gate Hotel, Ennis.

This meeting is an informal group of adults with type 1 diabetes and parents of children with type 1 diabetes. We share information about living with Type 1 diabetes and our life experiences to learn from each other. The Clare Type 1 Diabetes Support Group can be contacted on telephone number 087 641 5747 or email: clarebranchdfi@gmail.com

graflynn · 17-11-2015 6:46pm

Over the past 12 months I have gathered information that I have come across for diabetes support groups all over the country. Most of them have face to face meetings.

We have lots of online support groups these day (thank god) but sometimes nothing beats a good old fashioned cuppa & chat. So here it is;
List of Diabetes Support Groups

If you attend a diabetes support group that I do not have on this list, please send me an email with who I should contact to get details of that group and I will include them also.

graflynn · 07-12-2015 12:08pm

Clare Type 1 Diabetes Support.

The next meeting of the Clare Type 1 Diabetes Support group takes place on Tuesday 15th December at 8pm in The Temple Gate Hotel, Ennis.

This meeting is an informal group of adults with type 1 diabetes and parents of children with diabetes. We share information about living with Type 1 diabetes and our life experiences to learn from each other. Our topic in December will be discussing Type 1 Diabetes through the decades, inspired by Gary scheiner's book Think like a Pancreas. Some of our group have been thriving with T1D for 50+ years and have a experienced a lot of the changes in diabetes treatment.

Anyone who would like to learn about type 1 diabetes or who uses intensive insulin therapy are welcome. The Clare Type 1 Diabetes Support Group can be contacted on telephone number 087 654 8320 or email: clarebranchdfi@gmail.com

graflynn · 01-02-2016 11:51am

Clare Type 1 Diabetes Meetup.

The next meeting of the Clare Type 1 Diabetes Support group takes place on Tuesday 16th February at 8pm in The Temple Gate Hotel, Ennis.

This meeting is an informal group of adults with type 1 diabetes and parents of children with diabetes. We share information about living with Type 1 diabetes and our life experiences to learn from each other.

The Clare Type 1 Diabetes Support Group can be contacted by email: clarebranchdfi@gmail.com

graflynn · 06-02-2016 4:03pm

My Animas rep called me this week to let me know that my Dexcom sensors are finally available as a Special Product on the LTI scheme. The only became approved on the Special Product list at the end of January so things might be a bit slow to start.

Also, someone in one of the facebook groups that VHI has a Medical Appliance claim form and that Blood Glucose meters were covered on it, technically CGM's are BG monitors so it might be worth a shot for anyone on a VHI plan to test out if you can get one this way?

philten · 06-02-2016 10:32pm

thats good news - So if i can get the Dexcom privately or otherwise, the sensors would be covered on the LTI?

cocker5 · 09-02-2016 3:38pm

graflynn wrote: »

My Animas rep called me this week to let me know that my Dexcom sensors are finally available as a Special Product on the LTI scheme. The only became approved on the Special Product list at the end of January so things might be a bit slow to start.

Also, someone in one of the facebook groups that VHI has a Medical Appliance claim form and that Blood Glucose meters were covered on it, technically CGM's are BG monitors so it might be worth a shot for anyone on a VHI plan to test out if you can get one this way?

wow thats is excellent news!! my other half has been using the Dexcom for over 2 years now and wouldn't be without it... now just to try and get them to add to his prescription.... hmmmm that's a challenge

cocker5 · 09-02-2016 3:59pm

philten wrote: »

thats good news - So if i can get the Dexcom privately or otherwise, the sensors would be covered on the LTI?

ONLY if you can get them to agree to pay for them... they are not seen as a necessity :mad:

graflynn · 04-04-2016 10:15am

Our next meeting takes place on Tuesday 19th April at 8pm in The Temple Gate Hotel, Ennis. The topic of this meeting is "Type 1 Diabetes & Living with Complications".

Our guest speaker is AineMae O'Mahony who has lived with type 1 diabetes for 25 years, and lost her sight at the age of 26. She is the manager of community radio station, Radio Corca Baiscinn, in Loop Head, Co Clare, managing 25 members of staff and volunteers. She appeared on The Late Late Show last November to promote the work she does with Fighting Blindness and is truly an inspirational person.

IMPORTANT: This meeting will focus on how the complications of type 1 diabetes are not a sign of failure. That by talking about the the complications of diabetes make them less threatening and pretending they don't exist doesn't help any of us. I found this really interesting story on Scot's Diabetes Blog from two very different perspectives.

Here are some articles that I found about AineMae;
https://vispaireland.wordpress.com/2011/10/10/personal-story-of-aine-mae-o-mahony-from-lahinch-co-clare/
http://www.fightingblindness.ie/retina-2015-speaker-aine-mae-omahony/
http://www.independent.ie/life/health-wellbeing/health-features/i-noticed-the-speck-in-my-right-eye-in-2006-and-within-a-year-i-was-blind-34155559.html

This meeting is an informal group of adults with type 1 diabetes and parents of children with diabetes. We share information about living with Type 1 diabetes and our life experiences to learn from each other. The Clare Type 1 Diabetes Support Group can be contacted on telephone number 087 6548320 or email: clarebranchdfi@gmail.com

I really hope that you can join us!

graflynn · 11-05-2016 11:50am

World famous author, Gary Scheiner, who wrote “Think Like A Pancreas” is the keynote speaker at Thriveabetes, a type 1 diabetes conference which takes place on Saturday, 1st October 2016 in Naas, Co. Kildare.

Gary is a Certified Diabetes Educator, Clinical Director of Integrated Diabetes Services in Pennsylvania, and person with type 1 diabetes for over 30 years.

“Think Like a Pancreas” covers essentially anything and everything you'd need to know about living with diabetes — if you use insulin such as the essentials on understanding why blood sugar fluctuates, and then moves right into the foundation of any good insulin program.

Gary's professional practice, Integrated Diabetes Services, is located in the Philadelphia area. But don't think that just because you live in another state, it would be impossible to work with Gary as your diabetes educator! Gary runs a remote consulting program and works with patients all over the world.

“Thriveabetes” is a one day conference for people living with type 1 diabetes, taking place on Saturday, October 1st 2016 in The Killashee House Hotel, Naas, Co. Kildare. This Type 1 Diabetes conference focuses on the psychological impact of living with a lifelong, chronic illness. It aims to provide “Inspiration, Motivation and Information” to people living with type 1 diabetes, to both parents of children with diabetes and adults living with and to children with type 1 diabetes.

“It’s the second Thriveabetes event. In 2015, we had 190 delegates, this year, we have developed a programme for children and teens with diabetes, and we are expecting 300 delegates.” says Gráinne Flynn, co-founder and event organiser, who has been living with diabetes herself for 23 years. The conference is being organised completely by volunteers from the diabetes community, and with the support of the national charity for diabetes; Diabetes Ireland.

Additional speakers are internationally and nationally renowned in the diabetes community, include;
- Joe Solowiejczyk, Certified Diabetes Educator, Clinical Family and Adult Therapist and Person with type 1 diabetes for over 50 years.
- Gavin Griffiths, The DiAthlete, Ultramarathon runner, International Diabetes Federation Young Leader and person with type 1 diabetes.
- Anna Clarke, Health Promotion and Research Manager at Diabetes Ireland
- Penny Robinson, Mum of a teenager with type 1 diabetes and parent representative on the Families with Diabetes Network in the UK.

Registration for the conference will cost €35 per adult, €60 for two adult tickets. Children are €15 each or a Family Ticket for €100. Advance registration is required. Register for Thriveabetes through the Thriveabetes website; Thriveabetes.ie

graflynn · 15-06-2016 10:13am

Galway Parents Support Group; for families and children living with type 1 diabetes are having their monthly meeting on Thursday in the reception area of The Maldron Hotel, Oranmore at 8:30pm. Ask for Ger Fahy. Contact details: fahygerardine@hotmail.com Mobile 087 908 6491

Clare Adults with Type 1 diabetes; meet on Tuesday 21st June at 8pm in The Temple Gate Hotel, Ennis. This meeting is an informal group of adults with type 1 diabetes and parents of children with diabetes. We share information about living with Type 1 diabetes and our life experiences to learn from each other. The Clare Type 1 Diabetes Support Group can be contacted on telephone number 087 6548320 or email:clarebranchdfi@gmail.com

This is going to be a very relaxed meeting with lots of tea and coffee:-)

Galway Strength in Numbers conference & Hackathon; for young adults with type 1 diabetes on Thursday 23rd June from 10am - 4pm. Bringing stakeholders in young adult type 1 diabetes management together to share and develop key strategies for improving the health of this group.
This innovative, multidisciplinary one-day conference will be of interest to health services providers, researchers, young adults with type 1 diabetes (a couple of older adults-I've signed up for this one;-D and policy-makers. Register through this link.

graflynn · 30-08-2016 3:45pm

Thriveabetes is a type 1 diabetes conference, supported by Diabetes Ireland, taking place on Saturday 1st October in Naas, Co. Kildare. There are speakers from all over the world as well as from home. The schedule has been published on their website this morning.

It’s the second Thriveabetes to take place. In 2015, 190 people attended from all over Ireland. This year, they have developed a programme for children over 5 years and teens with diabetes, and are expecting 240 delegates.

The speakers come from the US, UK and Ireland, including the world renowned authors, Gary Scheiner, who wrote “Think Like A Pancreas” and Joe Solowiejczyk, author of “The Type 1 Diabetes Guide to the Universe”, both gentlemen and healthcare professionals have lived with type 1 diabetes for over 30 and 50 years respectively.

As well as;

Anna Clarke, Ireland, Head of Research & Advocacy, Diabetes Ireland
Gavin Griffiths, UK, The DiAthlete, Ultramarathon runner, International Diabetes Federation Young Leader and person with type 1 diabetes.
Dr. Kevin Moore, Ireland, consultant endocrinologist in Tallaght Hospital and Naas General Hospital. Dr. Moore has worked tirelessly throughout his career to improve the lives of patients with diabetes.
Penny Robinson, UK, Mum of a teenager with type 1 diabetes and parent representative on the Families with Diabetes Network in the UK.

Advance registration is required to attend Thriveabetes and people can register through the Thriveabetes website; Thriveabetes.ie or email Gráinne for more information at Grainne@Thriveabetes.ie

graflynn · 24-01-2017 5:00pm

NEW New Type 1 Adult Support in Galway

Feb 1st - 7:30pm in The Maldron Hotel Oranmore

Get to see the technology and hear from some great speakers on technology, especially the new Freestyle Libre flash glucose monitor.

All details here on this link https://www.diabetes.ie/event/21002/

in association with Diabetes Ireland and Abbott diabetes Ireland

graflynn · 09-03-2017 6:43pm

Type 1 Diabetes Goes Sugar Surfing
with Dr. Stephen Ponder. Endocrinologist & PWD

*** Registration Now Open ***
The registration fee is €20 per person.

The Thriveabetes Sugar Surfing Workshop takes place on Saturday, May 13th from 10am until 2pm in The Carlton Dublin Airport Hotel, Cloghran, Co. Dublin.

Find out more about Sugar Surfing here;
http://bit.ly/2mdmqA6

Diabetes Support groups: Details and Announcements thread

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