Irishchick wrote: » Does anyone here have psoratic arthritis? My gp thinks I may have it but rheumatologist is still undecided. I dont have psoriasis ( had one or 2 patches when I was younger) but my mother and brother have it
mocha please! wrote: » Are you still on the sunbeds ibc? How are they working out for you?
Omarscoming wrote: » Has anybody had P around their eyes or eyelids? What moisturiser did you use that did not sting your eyes?
Calmcookie84 wrote: » I use Hydrocortisyl which my GP prescribed to me. I use it for my eyelids and my ears. It's clearing it up fairly well but it's not some I would use long term.
Call Me Jimmy wrote: » Would that be a medicine or just a vitamin supplement, do you know?
Zombienosh wrote: » When you use Protopic you have to stay out of the sun and wear sun cream all the time is what I was told when I used it, I've stopped using for side effect reasons.
esp93 wrote: » I can use it for a week for now, but it'll be impossible to avoid sunlight when in Spain? I don't know how a dermatologist could fail to mention this! I know the sun will help it anyways, I would just like it eased a bit before having to wear shorts & tshirts when I'm there. It's a cycle of needing sun to clear it but not wanting to expose my skin in public.
esp93 wrote: » What side effects did you have if you don't mind me asking?
According to Eli Lilly's statement, 78-90 percent of the patients taking ixekizumab experienced at least a 75 percent improvement in their psoriasis after twelve weeks, as measured by the Psoriasis Area and Severity Index (PASI 75). Of these patients, 31-41 percent achieved 100 percent improvement (PASI 100) after twelve weeks, which is clear skin. In comparison, only 5-7 percent of patients taking Enbrel achieved PASI 100, the statement reports.UNCOVER, the study testing ixekizumab against a placebo only, kept patients on the drug for 60 weeks. Throughout the entire study period, patients maintained "high levels of response," according to the press release. The most common side effects for ixekizumab were colds and infections around the site of the injection, and in the trials comparing ixekizumab with Enbrel, the frequency and severity of side effects were similar for the two drugs, according to the release.
Mountainsandh wrote: » I think I have some too, but it's self diagnosed as of yet. I was supposed to be referred to a rheumatologist, but never received letter, and I haven't pushed it with GP, as this year has actually been hugely better than last year. No good being seen when there is no inflammation :rolleyes: Top joints of the middle and index fingers, left hand mostly but the right hand has popped up too on occasion. Knuckles, mostly little finger one, sometimes all. I had one of them little balls of fluid that happen after inflammation beside the index knuckle in the palm of hand for a while too. Interestingly, I realize as I type that it's mostly the left hand that causes trouble. Pains are mostly dull persistent pain, and I don't really swell a lot, except waking up with sausage fingers. Sometimes searing pain as if a needle is inserted in the joint, have had that at base of thumb, that was terrible. I remember a year when my heels on both sides were excruciatingly painful, but I never copped on it could be related to PA so I changed footwear, and self treated in lots of different over the counter ways, and made it through. That year one knee was also sore. Now thankfully it's just knuckles, and apart from left hand that's more bothersome, it's all mild. Don't ever want to get heel pains again. I'm used to the dull persistent pain. If it was searing pains on a regular basis I'd really have to do something about it.
PsA is a serious autoimmune disease. Don't mess with it. While you're trying to wait for diet and supplements to work there are changes going on in your body that you can't see now, but may come to haunt you a few years down the road. That's known as "comorbidities". Ps is not just skin deep. I urge you to check out these links so you are well informed:https://www.inspire.com/AnnaPsA/journal/psoriasis-not-just-skin-deep/ ‼️ Do not delay treatment. Joint damage can happen in the blink of an eye.‼️ Because treatment was so different 3 decades ago, I am left with multiple damaged joints in both hands and feet. That happened during my FIRST year with the disease.