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Psoriasis

Sykk

Hey all,

So I have been to around 4 different doctors over a skin condition I've had for around a year. 2 didn't know and 2 said I have psoriasis. It's very annoying, looks bad, and has a chance of spreading...

I have it on some parts of my head and the doctor told me there is no cure for it, it's only containable.

I have done some looking up on the web about cures, and some people say it's not cureable, some say it is. I have yet to go to a dermatolisist (I've one booked) or a chinese herbalist.

Does anyone else have this skin problem? If so what are you taking for it? And does anyone know if it's actually cureable or not.

Thanks in advance.

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rubadub

I was wondering if overcooking nightshade vegetables could reduce the potential negative effects. e.g. I would get regular ketchup or make my own, and pressure cook it for an hour or so which could degrade whatever it is that is said to effect people.

Found this page

http://www.diagnosisdiet.com/nightshades/

Potato processing 101

The vast majority of glycoalkaloid is in the potato skin, so peeling will remove virtually all of it. Glycoalkaloid levels can be dangerously high in unripe and sprouting potatoes; any greenish areas or “eyes” should be removed or avoided.

Glycoalkaloids survive most types of cooking and processing. In fact, deep frying will increase levels if the oil isn’t changed frequently, so fried products such as potato skins and french fries can contain relatively high amounts:

“Mechanical damage to potato tissue increases the concentration of glycoalkaloids available for consumption. In addition, frying potatoes at high temperatures does not inactivate but instead serves to preserve and concentrate glycoalkaloids within the potato, leaving them available for ingestion and delivery to the intestine…” [Patel 2002]

Boiling—reduces glycoalkaloids by a few percentage points
Microwaving—reduces glycoalkaloids by 15%
Deep frying at 150C (300F)—no effect (McDonald’s uses 340F degree oil)
Deep frying at 210C (410F)—reduces glycoalkaloid content by 40%
Glycoalkaloid levels of a few prepared potato products are available [Milner 2006]:

Potato chips, 1 oz bag: 0.36 to 0.88 mg chaconine and 0.29 to 1.4 mg solanine. Total glycoalkaloid concentration ranges from 2.7 to 12.4 mg per bag.
Fried potato skins, 4 oz: 4.4 to 13.6 mg chaconine and 2.0 to 9.5 mg solanine. Total glycoalkaloid concentration ranges from 6.4 to 23.1 mg per 4 oz serving.

I was really looking for a ketchup substitue. Tesco Finest brown sauce has no tomatoes in it, the only brown sauce I ever saw without it. Almost every "burger sauce" "BBQ sauce" or similar on the market has tomato in it.

There is a brand called "nomato", dunno if its in any health shops here.

Mountainsandh

Great article, thanks for the link, the comments are a great read too.

Some day I might try cutting out nightshades, just to see...
Bit hard when you're cooking spuds dinners for the family, or tomato based sauces, not sure I'd have the will power to stay off them while cooking them for others.

I love sweet potato, but the rest of the family doesn't.

I'm continuing with my juicing, every day, or every second day, I juice simple fruit like pineapple, oranges, mango, apples, pears, nectarines... with some berries in the mix.
My hands are something like 60% clear, that's amazing. And the patches on my arms down to wrist are clearing a bit too. Of course it still looks bad as the pigmentation is completely messed up, but to feel soft skin on my hands is nearly emotional to me at this stage.

I don't know what causes that, I'm guessing it's the juice, but it mustn't be the vitamins, since I've taken multiple vitamins supplements for months on end before, without such an effect.

Or maybe it's the fact the vitamins are fresh.

I still feel pain in my (arthritic) hand and feet joints, but they feel a lot less inflamed than they normally would be.

It's so simple, I highly recommend it.

alie

Hi all. I have recently started to use bio oil. And for me its like a miricle . I have both excema and psoraisis and loads of allergies. I have been on most steroids creams plus all the emollients known to man!! From using all the prescribed meds my skin has become very thin and a little discoloured like its losing pigment. I am as described by a doctor "an itchy patient". After one application of bio oil my skin is flexible, the redness has calmed and the flakiness has gone. I am thrilled. I wanted to ask has anyone else used the bio oil and how they have found. I find as im getting older the time between flare ups has shortened and they are getting worse. Hopefully this will continue to improve things.

wonga77

What is a good make of juicer to get? Im going to give it a go

Mountainsandh

I'm at work now Wonga, can't remember make of mine, but I'll post it later. Look at how easy it is to clean, otherwise you won't stick to it, and that it can take a whole fruit in the shoot.
(I got a Tesco one ages ago, and never used it because it was awkward to clean, and had to chop all fruit into little bits every time !)

rubadub

alie wrote: »

Hi all. I have recently started to use bio oil. And for me its like a miricle

Does anybody know the cheapest place to get this?

I see it is reduced on amazon
http://www.amazon.co.uk/Bio-Oil-Specialist-Skincare-Oil-200/dp/B00129XP8M/ref=sr_1_1?m=A3P5ROKL5A1OLE&s=drugstore&ie=UTF8&qid=1411655837&sr=1-1&keywords=bio+oil

£13.26 (approx €17) for 200ml with irish vat at checkout. Buying 2 will get you over the £25 limit so you get free delivery.

In boots here 200ml is €25.99

Mountainsandh

I have this Phillips juicer, it is very good, and easy to clean (all the bits come apart, pulp mostly falls into the black box.
http://n2.sdlcdn.com/imgs/a/i/p/Philips-HR1861-Aluminium-Juicer-1186045-1-837a3.jpg

alie

Hiltons pharmacy in Rathfarnham Village have bio oil half price at the moment.

Dubl07

rubadub wrote: »

Does anybody know the cheapest place to get this?

I see it is reduced on amazon
http://www.amazon.co.uk/Bio-Oil-Specialist-Skincare-Oil-200/dp/B00129XP8M/ref=sr_1_1?m=A3P5ROKL5A1OLE&s=drugstore&ie=UTF8&qid=1411655837&sr=1-1&keywords=bio+oil

£13.26 (approx €17) for 200ml with irish vat at checkout. Buying 2 will get you over the £25 limit so you get free delivery.

In boots here 200ml is €25.99

Boots do a good own brand version and Aldi occasionally have their version available at an excellent price.

Gael23

How is everyone doing? Theres been no activity here for a while.
I'm doing pretty ok at the moment, most under control I have been in the last 6 months. I have my Dermatologist appointment in 2 weeks time so my hope is that I can make any changes that are needed to my current regime and use it long term going forward.
One problem I do have is that I have what looks like guttate on my legs, my GP isn't sure, and being a guy my legs are quite hairy so I find it difficult to get enough ointment on those areas.

Busi_Girl08

I'm seeing some definite signs of improvement. I've been using Silcock's Base, E45 on my face for moisturiser before make-up, and have recently started using Bio-Oil.

My chest and neck area, where it first flared up, has lost all the iching, inflamation, flaking and blotchiness. The pigment of the skin is a little weird but that's improving every day too.

The itching on my legs is nearly gone (more fading too) and my arms are starting to fade in some places too (again, it's in first in, first out mode). My stomach is a bit slower in improving, the itching is still a little nasty but it's not keeping me up at night anymore

stefanovich

Anyone used Dermalex cream? Any feedback?

Gael23

stefanovich wrote: »

Anyone used Dermalex cream? Any feedback?

Never heard of it but I just looked it up online. To be honest I don't have a lot of belief in those sort of things. In my experience they cost a fortune and re not always effective. Having said that Dermalex might work as a means of keeping it at bay when its good.
Im still to be convinced that theres a way of treating Psoriasis without some use of steroid or immune suppressant drug. It can be minimal usage but I think you can never eliminate it

stefanovich

ryanf1 wrote: »

Never heard of it but I just looked it up online. To be honest I don't have a lot of belief in those sort of things. In my experience they cost a fortune and re not always effective. Having said that Dermalex might work as a means of keeping it at bay when its good.
Im still to be convinced that theres a way of treating Psoriasis without some use of steroid or immune suppressant drug. It can be minimal usage but I think you can never eliminate it

I had seen an ad for it in an English broadsheet and just recently saw it for sale in a local pharmacy. Been using it for the last few days. I'll see how I get on. 30euros for a large tube.

It's been marketed as a very effective solution. I know there are a lot of companies trying to prey on sufferers of this condition but the fact it is in mainstream pharmacies and advertised in mainstream newspapers hopefully means it's actually effective.

brightkane

Hey folks. Been clear for 7 years and 2 weeks ago boom. Total breakout. Been getting worse daily. Torso. Feet. Arms. Legs. Head hands and face :-(.

Going to go to my gp tomorrow but from previous years the only thing that worked was diprosalic ointment and scalp lotion. Had it from. Age 7 to 28 and tried everything you can imagine.
I hear that diprosalic is cheaper in Spain and Portugal. Anyone have any experience of getting it from there or the UK. It's mentally priced here and the worrying about the cost of it doesn't help!
Acupuncture cleared it for me the last time and have an appointment next Sunday to start that again.
Fingers crossed

Cheers

Red dalmatian

Mountainsandh

Hi Brightkane, sorry to hear it's back, after all this time.

Sorry I don't know about getting diprosalic from Spain. I'm French and I know for a fact that medication in France is a fraction of the prices it is here, for sure, but don't know anything specifically about diprosalic either.

I would love to know more about what acupuncture you got, was it specifically targeted at psoriasis, or was it for something else but it somehow cured it ?

I've never tried acupuncture, and actually, even for other things, I'm very very tempted, but since it is likely to take several sessions whatever I do, I don't want to waste my money if it's useless.

brightkane

Hi Mountainsandh

I started getting it as a favour to a friend of a friend who needed someone to practice on. It almost immediately cleared me up and also cleared my asthma. I took it on and off for 2 years to keep myself topped up. Incidently my wife also tried it for her migraines. They also cleared up.

Not a huge believer in alternative therapies but it worked for me so I don't question it!

bucketybuck

Any recommendations for acupuncture clinics, as in places that have specifically done it for Psoriasis?

brightkane

I don't think k any of them specialise in it.. They cover all elements.

I used sinead in this list

http://prtcm.org/practitioners.html

Foggy Jew

Hi Flakers.

Since I was diagnosed with P over 7 years ago, I have not had one cold, no flu, no illness at all. Presumably my immune system is in overdrive, and bugs are fought off efficiently. (Prolly get struck down with ebola now, just for posting this....).
Does anybody else have this experience?

Mountainsandh

No, I wish...

I do have a job where you're exposed to everything going though... But no, psoriasis does not have that positive effect on me.

brightkane

I went to gp today. He looked at flare up and immediately asked if I had a throat infection prior to flare up. I advised I did. He said it's a very common trigger. It will go with diprosalic help in 2 weeks. He seemed very confident. Oh and he told. Me not to worry! Ha

Gael23

brightkane wrote: »

I went to gp today. He looked at flare up and immediately asked if I had a throat infection prior to flare up. I advised I did. He said it's a very common trigger. It will go with diprosalic help in 2 weeks. He seemed very confident. Oh and he told. Me not to worry! Ha

Did he mention giving you floucloxicillin antibiotics?

brightkane

ryanf1 wrote: »

Did he mention giving you floucloxicillin antibiotics?

No. I did specifically ask him did I need something from the inside out.
He said nope. He's confident it will be gone by 2 weeks.

Started off with diprosalic scalp lotion last night and the ointment on my body. I use moisturiser first and the ointment so I get more coverage and it's slightly diluted.

Will let you know how I get on

Gael23

Dermatologist tomorrow.
Been waiting for this for a while but I'm looking forward to hopefully getting a long term plan in place. Im actually reasonably under control at the minute though.

brevity

Mine's gone to crap lately. My legs look like they've been hit by shrapnel!

I'm off the sugar, gluten and wine up until around Christmas time.

Gael23

Wel Prof Kirby made some big changes to my regime.
He's taken me off Dovobet and Dovonex and put me on coal tar for 6 weeks.
Then he's sending me for PUVA therapy. BUT doing that means a 200 mile round trip twice a week for 6 weeks and I'm not sure that I can do that.

Call Me Jimmy

jeeaauuyssus ryan? that's mad.

I saw a couple genuine people on youtube (not shills) talking about how taking olive leaf extract internally has got rid of their symptoms. Taking olive oil internally as well on one of them so I've been doing that for a week (I messed up my skin REALLY bad trying new topical stuff) but I must say it seems to be getting there. Maybe imagining because only a week in, they say they noticed after 2 or 3 weeks. What's interesting is at this stage, the skin that doesn't have any redness looks a lot healthier too.

Will keep ye's poshted

EDIT: if anyone has tried this without success please DONT tell me! I haven't had this kind of optimism about it in a long time :P

BelleOfTheBall

Paraffin gel is brilliant again like Vaseline.i found it sealed in the steroid cream.givd it about half an hour after one application to next......also my scalp gets bad I do find the calpasol dries my scalp so make home made treatment of olive oil honey coconut.heat for 30secs I. Microwave.concentrate on my scalp only.doing the last 2weeks and working well itching stopped.i spent small fortune on all shampoos and wasn't working .i hear avacado suppose to be good so that's going to be added to my next potion of lotions.when ur desperate ull will try anything for relieve.

BelleOfTheBall

Any further suggestions in my lotion of potions would welcomed for scalp!!found loads for hair remedies but not for scalp.