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[Diabetes] General Chat and Support Thread

tbh

Hey guys - I've created a single "chat" thread for all the diabetics for any topics of conversation that don't fit in the existing threads.

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Eurovisionmad

I like to insert it into my sides, I find that it feels a little better attached there, and I have found that it doesn't pull out as often!

CramCycle

cynder wrote: »

Got my daughters hba1c today she was 58 or 7.4% that's the best she has been in 6 years. Her last few were up in 10s and 11s. She was 10.8 back in October.

She got knocked off the pump list due to bad control.

That is shocking, my nurse done cartwheels and praised me when I made a similar jump down.

robinph wrote: »

There doesn't seem to be any consistency with the requirements for getting a pump.

It seems to be better now in my hospital but I can only hope it is improving across the board.

Eurovisionmad wrote: »

I like to insert it into my sides, I find that it feels a little better attached there, and I have found that it doesn't pull out as often!

Did you notice a change in your bolus or did it remain the same?

graflynn

http://www.hse.ie/eng/about/Who/clinical/natclinprog/diabetesprogramme/paed.pdf

Children & their families are assessed for Insulin Pump suitability using the Kaufman Competency Scale. The diagram on page 8 titled CSII Therapy for Under 5s - Patient Pathway shows how the system should work for children.

The is a little more on the Kaufman Competency Scale on page 10 and on 24.

Hope this might give people a little more power in their quest for Insulin Pumps.

CathyMoran

Interesting as I was diagnosed when I was 10 and am 40 now but when I went for the pump they wanted me to keep my blood sugars higher (last HbA1c was 5.1 in old terms). I have not given up on the pump but want to go back to the person that looked after me when I was pregnant as they were amazing and the first one that I felt was brilliant.

CramCycle

CathyMoran wrote: »

I have not given up on the pump but want to go back to the person that looked after me when I was pregnant as they were amazing and the first one that I felt was brilliant.

I have always found the nurses to be the most consistent and brilliant in my years as a Diabetic. From Legends like Maire and Nell in Crumlin to the well oiled team in St. James who are so great the doctor appointments are pointless.

ElBarco

CramCycle wrote: »

Most of the time it holds in place, just wondering would it be possible to do somewhere else, might try the back of my arm and the pump in an ipod style case next. Probably have to have the cable coming down my arm though and the pump on my wrist for boluses though. Will think it over. Probably end up looking like a 60s/70s BBC sci fi adventurer as I punch in things to my giant oversized wrist band.

I go for the thighs myself and it would be unusual for me to get it pulled out, save for well placed kicks from my son. I've seen this dressing ( http://www.amazon.co.uk/Opsite-Flexifix-Transparent-Film-10cmx1m/dp/B0047W6NO4/ref=sr_1_sc_1?ie=UTF8&qid=1407873382&sr=8-1-spell&keywords=opsite+flexfix ) mentioned on a few diabetes blogs. I've never had to use it but if you are having problems it might be worth a try.

CramCycle

Seems to have improved dramatically since I have got back to work, routine seems to be working, still getting used to it, in particular when changing clothes when I get into work but so far it hasn't tugged strong enough to pull it out yet.

Liking the basal change bit as well, bloods seem to be settling into what they were before I installed the pump except for my morning test which seems to be always high, going to jump the basal by half a unit from 3 till 7 tonight to see what that does.

Preset No.3

Combination of Diamicron and Januvia and I just cant get it down. Im not in a clinic, I have to go to my consultant. It still hovers around the 10 mark. Should I be trying a different combination?

CramCycle

Preset No.3 wrote: »

Combination of Diamicron and Januvia and I just cant get it down. Im not in a clinic, I have to go to my consultant. It still hovers around the 10 mark. Should I be trying a different combination?

Possibly but that would be something for a Consultant or Nurse to recommend as they would have all the details to fall back on. Not knowing you, the best advice I could give is to look at your diet and exercise over the day, are there areas where these could be adapted. Exercise will make you more insulin sensitive (essentially lowering your BG levels) and alot of people eat more than they need on a daily basis, can you swap out any meals for less carb rich ones (if that's an issue).

Of course you could be eating quite well and running in and out to work every day so my advice maybe complete rubbish.

P_1

Got my hands on an Accu-Chek Aviva Expert meter today. Looks like the mutts nuts. HBA1C down again, not quite where it should be but getting there.

Eurovisionmad

Forgot to mention @cramcycle if you want to avoid the infusion set pulling out make a small hole at the inside top of your pocket, thread the reservoir (which needs to be detached from the pump) through and reattach the pump in the pocket, this way the tubing is out of the reach of door handles and also discreetly hidden, I find it so useful!

Beano

When i did my morning blood check yesterday morning it came back at 4.1mmol. It is normally in the 6.5 to 7 range. I didnt think much of it, just thought it was an anomaly. when i checked it yesterday evening it was 5.0. Nothing terribly out of the ordinary (but still lower than normal) so again i left it. This morning it was 4.6. I've never had such a succession of low readings. I havent reduced my food intake at all. The only change is with my medication. A month ago my consultant switched me from glucophage to something called janumet as my hba1c was too high. My readings have been going down slowly but this sudden drop is totally out of the blue. Is this something that i should be worried about? Should i go back to my GP or just monitor it for a few days before doing that?

Hmm, just realised. I started a new box of test strips yesterday morning. Could it be the strips are dodgy?

The_Conductor

Beano wrote: »

Hmm, just realised. I started a new box of test strips yesterday morning. Could it be the strips are dodgy?

Depending on the strips- they might need recoding.
We got some strips (which are normally coded 25) with a 30 code from the pharmacy a few weeks back. They're in a different coloured box- but still the standard Lifescan strips- so not sure what the story is with them.

4.1 or 4.6 is low'ish (though not in dangerous territory). If there is a big change its always good to get clarification as to why its happened- maybe ring the nurse in the clinic- she may be able to give you some suggestions?

Beano

The_Conductor wrote: »

Depending on the strips- they might need recoding.
We got some strips (which are normally coded 25) with a 30 code from the pharmacy a few weeks back. They're in a different coloured box- but still the standard Lifescan strips- so not sure what the story is with them.

4.1 or 4.6 is low'ish (though not in dangerous territory). If there is a big change its always good to get clarification as to why its happened- maybe ring the nurse in the clinic- she may be able to give you some suggestions?

The strips are accucheck. They dont code them any more. Or rather they all use the same code now.

gctest50

you should have got some "control solution" in a little bottle with the meter - did you try that ?

( its just fluid that is bang on say 5.0mmol )

the meter isn't much use without it really - unless you have another known good one to try it against

find your meter here and look for control solution

https://www.accu-chek.co.uk/gb/myaccuchek/orderaccessories.html?nav=customerservice

,

Beano

gctest50 wrote: »

you should have got some "control solution" in a little bottle with the meter - did you try that ?

( its just fluid that is bang on say 5.0mmol )

no control solution with any of the meters i've had.

bd2012

Just a quick update. Was diagnosed as a type 2 about 4 months ago. On janumet and watching the diet very carefully. Exercise makes a HUGE difference. Anyhoo. I got my hba1c back today. 4 months ago it was at 110!!! Glad to report that in those few months it has halved to 56. Still a little raised but I for one am delighted with that. Regularly in the 5s 2 hours after dinner (an hours brisk walk after dinner definitely has a lot to do with that)

Anyhoo. Just wanted to share. Hup

Rucking_Fetard

Any of ye Type 2ers do (and stick) to the Newcastle Diet?

Outta curiosity?

And if ye didn't, do it at all, why?

Eurovisionmad

Hey l know this is a bit early, but I planning on heading on a J1 next summer, has anyone here had any issues with bulk ordering supplies when going away for an extended period?

Beano

I've done a check with my backup meter and its reading 3mmol higher than my main one. I'll get some control solution and see which is right

graflynn

Eurovisionmad wrote: »

Hey l know this is a bit early, but I planning on heading on a J1 next summer, has anyone here had any issues with bulk ordering supplies when going away for an extended period?

I lived in the US from 2002 to 2005. I used to get my supplies in bulk from my chemist, whenever I was home or if my mother was coming over. I had them in my carry on case and was never stopped.

That's over 10 years ago now so maybe someone with a more recent experience could help you further.

CramCycle

Shouldn't be any issue with the J1 as you can get a letter from the hospital to explain and you will have your visa as well. Shipping can be a pain as customs can sometimes pick it out and return to sender. Best person to ask would be your specialist nurse as there is a high chance they will have dealt with this issue before, or the Diabetes federation of Ireland.

Rucking_Fetard

graflynn wrote: »

In April 2014, we, a group of volunteers with type 1 diabetes, posted survey to find out what type of type 1 diabetes event people would like to attend.

This is a follow-up survey which contains more details on what you wanted. We hope to organise this conference for October 2015.

We would greatly appreciate it if you would take the time to fill out our survey. It should only take 10 minutes to complete.

Thank you so much.

https://docs.google.com/forms/d/1d_njoLSwmZY0RDqTacXdlWKuCMJv_gd4QfaSRLmlfXo/edit?usp=sharing

linky no worky

sezyboo

I am diagnosed type two and have went from 6,9 last year to 5,8 this year so pretty pleased with that. I was wondering if anybody else gets hypos during menstruation? Yesterday I felt awful like I was going to pass out and all shaking and my bloods were only 52 (2,9). I took some juice and chocolate and then felt better but I am confused as I am not on meds as yet.

graflynn

I posted what I thought was the link to the survey earlier today (Saturday 30th Aug) but if was actually an incorrect link. I realise that people have tried to fill out the survey and it wasn't working properly and I am so sorry.

I sincerely hope that you could spare a few more minutes to fill the survey out again. We would really appreciate it.

For those of you who are seeing this for the first time please read on;
Take 2; In April 2014, we, a group of volunteers with type 1 diabetes, posted survey to find out what type of type 1 diabetes event people would like to attend. This is a follow-up survey which contains more details on what you wanted.

We would really appreciate it if you could spare a few minutes to complete it for us. Many, many thanks.

Royal Legend

Rucking_Fetard wrote: »

Any of ye Type 2ers do (and stick) to the Newcastle Diet?

Outta curiosity?

And if ye didn't, do it at all, why?

Did it and posted here last year, lost around 4 stone and with walking etc got pretty fit.
Stopped it and got lazy and put a lot of the weight back on.

would recommend it to anyone, very hard, but you get results.

Will be back training in the next week or so (being telling myself that for weeks now

) so might use it partially again.

I tended to substitute a baked breast of chicken for one of the shakes with veg for dinner and I felt this worked better.

Preset No.3

For some reason I have been seeing more ads about the bad things that Coke does to your system. Now being a type 2 diabetic, I would drink Diet Coke, which is another can of worms altogether.

But apart from water, what else can I take from the cold drinks fridge thats not going to spike my blood sugar.

Dick Dastardly

Apart from sugar free / diet drinks like diet coke & pepsi max, and water, there's very little that I can think of - fruit juices and other soft drinks will spike your b/g quickly. Maybe unsweetened iced teas or flavoured waters

Intensive Care Bear

Preset No.3 wrote: »

For some reason I have been seeing more ads about the bad things that Coke does to your system. Now being a type 2 diabetic, I would drink Diet Coke, which is another can of worms altogether.

But apart from water, what else can I take from the cold drinks fridge thats not going to spike my blood sugar.

I hate water and used to always drink soft drinks up until a few months ago when i found out i'm diabetic. Since then i've got into the habit of bringing a bottle of water mixed with no added sugar squash. The lemon one from Tesco is really nice.

Meauldsegosha

1210m5g wrote: »

I hate water and used to always drink soft drinks up until a few months ago when i found out i'm diabetic. Since then i've got into the habit of bringing a bottle of water mixed with no added sugar squash. The lemon one from Tesco is really nice.

No added sugar stills contains sugar. Try sugar free.