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Psoriasis

Sykk

Hey all,

So I have been to around 4 different doctors over a skin condition I've had for around a year. 2 didn't know and 2 said I have psoriasis. It's very annoying, looks bad, and has a chance of spreading...

I have it on some parts of my head and the doctor told me there is no cure for it, it's only containable.

I have done some looking up on the web about cures, and some people say it's not cureable, some say it is. I have yet to go to a dermatolisist (I've one booked) or a chinese herbalist.

Does anyone else have this skin problem? If so what are you taking for it? And does anyone know if it's actually cureable or not.

Thanks in advance.

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Gael23

I couldn't give up potatoes!

DonFred

I agree with alcohol!! HAd been drinking heavy over weekend and my skin is dry, flaky and itchy!!

rimana

I didn't know about potatoes! I'll try not to eat them from today. I thought that we shouldnt eat any canned food, I only eat fresh fish, but not too often.

Amazingfun

I haven't had any nightshades, coffee, dairy, white potatoes or nuts since January 1st and my elbows are completely clear.

I eat lots of sweet potatoes and just bought tins of mackerel (and sardines) today myself

rubadub

rimana wrote: »

took Omega-3, vitamins and minerals.

I have been eating tins of atlantic mackerel. I was after the omega 3 but then also saw it was very high in vitamin D too, a tin can be around 100% of your RDA depending on which RDA you look at.

I am off the tomatoes & potatoes just over 2 weeks now and have seen a very noticeable difference, only started eating mackerel in that time too. Have had just maybe 10 fat chipper chips over that time and a tiny bit of ketchup mixed into some other sauce. Still drinking a lot of alcohol too. Eating sweet potatoes instead of regular ones, they are not just simply as a substitute -they are supposedly very good for skin conditions.

rimana

Hi everyone! I have vulgaris but this summer I got guttate after bad throught infection or/and after using strong antibiotics or/and sun burned. Did someone have similar experience? Before that it was finally getting better without using corticosteroids, after years, only oils and vitamins. I have it for 19 years. After this summer I had spotts all over my body. Horrible! Now I'm using cortics again (its better but I'm afraid of boomerang effect) and some essential oils. Did anyone helped homeopathy? I just came to Ireland and I don't have health insurance. Which one would you recommend? How much would I pay here to visit dermatologist? I'm scared that after using cortics it will come back even worse, thats why I'm trying to minimize the damage with essential oils. Garlic oil helped me a lot, but I live in hostel now and I can't try it again. It stinks like hell. But its good. Its easy to make - just 1/3 chopped garlick and put it in 2/3 cold pressed oil (I used St. John's wort oil, or olive oil, sesame or almond - but cold press). Store it in cold place and after 10-15 days I used it every night. I also drank some teas and took Omega-3, vitamins and minerals... Anyway, if anybody knows something that would help, please tell... Thanks.

rubadub

Tesco also have various E45 creams on offer, there is a "intense recovery" cream I have not seen before

http://www.tesco.ie/groceries/product/search/default.aspx?searchBox=e45

I have never used E45 before

There is also a tesco aqueous cream, 500g for 2.99
http://www.tesco.ie/groceries/Product/Details/?id=266892117

Also for anybody trying to give up tomatoes I found that tesco finest brown sauce has no tomatoes in it, all the other brown sauces I saw do. It does have chilli pepper in it but its way down the list of ingredients, so very little in it. Its nice stuff too, it is a little lumpy if that matters.

brevity

In Aldi on the 30th of January there are some offer that might help some people around here

Aqueous Cream
https://www.aldi.ie/en/specialbuys/thursday-30th-january/products-detail-page/ps/p/aqueous-cream/

Pure Petroleum Jelly
https://www.aldi.ie/en/specialbuys/thursday-30th-january/products-detail-page/ps/p/pure-petroleum-jelly/

Nappy Barrier Cream
https://www.aldi.ie/en/specialbuys/thursday-30th-january/products-detail-page/ps/p/nappy-barrier-cream/

I have used the Nappy Barrier Cream and I've found it really good for instances where the Psoriasis might be come inflamed.

Will I Amnt

SEANoftheDEAD wrote: »

Thanks for the replies people.

The diet thing is something I never considered. I get the whole smoking and drinking thing of the doc, but sure them things get the blame for everything these days. No matter what you go to see them for.

Oh and I don't smoke, but would drink a good bit on a weekly basis.

Where would I get a food test thing that would tell me what agrees with me or not?

If you have never tried giving up the drink for a while I would recommend you do. It's the only thing that I can say with 100% certainty does affect it for me and for a long time afterwards.

I was a very heavy drinker myself, now I've limited myself to occasional Summer drinking, I can get away with it once I'm getting a lot of sun.

SEANoftheDEAD

Thanks for the replies people.

The diet thing is something I never considered. I get the whole smoking and drinking thing of the doc, but sure them things get the blame for everything these days. No matter what you go to see them for.

Oh and I don't smoke, but would drink a good bit on a weekly basis.

Where would I get a food test thing that would tell me what agrees with me or not?

rubadub

SEANoftheDEAD wrote: »

I'd apply it at night, wrap cling-film around it and leave it til morning.

I am using these armband type things on my arm & leg, like sweat bands, you can apply cream and then a plastic film on top and the armband on top of it to hold it on all day and they don't budge.

rubadub

SEANoftheDEAD wrote: »

I normamly use Dermovate Cream to clear my Psoriasis.

Dermovate is considered to be a very powerful steroid. I have seen on many forums people saying they will not touch any steroids with a bargepole as it often comes back worse afterwards.

I had contact dermatitis as a kid on my feet and eventually got dermovate, the feet were better literally overnight, from being red raw oozing sores to just red, then the redness slowly went away.

In recent years it has come back, which I thought it might as I had psoriasis & eczema. I use the UVB on my feet and it sorts them alright.

wonga77

Hi sean, id be similar enough to you, I have often got rid of it only for it to come back with a bang too. Ive finally realised that it needs to be treated constantly for it to stay away, a nuisance I know but its just the way it is.(for me anyway)
Have you ever tried varying your diet at any stage? It seems to work for alot of the other posters here. Even if you could pinpoint one food that aggravates it, that would be a good start

deadeye187

Hi Sean like you I have it on all the same areas but my back is quite bad at the moment. Now what I finds works great for me is:

2 times a day I put Paraffin Gel on

1 time I put my Dovobet on.

This works a treat for me, but this wont work for everyone. Again like you I did not go swimming for months because of my skin, but a doctor said for me to try this and I did. After about 4/5 weeks my skin was clear. I keep the Paraffin Gel everyday and I now only use the Dovobet only when I have too. Saying this if I have a drink nothing will help with holding it back. Again ask your Doctor for any advise first and good luck.

SEANoftheDEAD

Long time reader... 1st time poster to this thread.

I have psoriasis since I was about 11/12. I get it really bad on my elbows, knees, calfs, shins, wrists, ears and nose.

In 2006 I went for the lamp treatment in St.Vincents hospital for about 4 months and I was 100% clear after. 3 weeks later it was all back with a bang.

I normamly use Dermovate Cream to clear my Psoriasis. I'd apply it at night, wrap cling-film around it and leave it til morning. I'd do this for about a 4 week period and get about a 2 week period of clear skin before it all comes back.

In October, I went for the lamp treatment again, this time in Tallaght Hospital, and on Xmas eve I was about 95% clear and treatment stopped.

Today it's all back with a bang.

I'll be going back to the Dermovate tomorrow, but I know for a fact, that it'll clear for a fortnight before I'm back to this point again.

Btw I would moisterise after every shower with either Diprobase or Aqueous cream. And most of the time that keeps that scales away...

But my fear is this; I havent been able to wear a pair shorts in the summer time for about 4-5 years now. I would give anything to be able to wear them this summer flake/scale free. Or better yet, join a gym and go swimming. These are things I've wanted to do for years but always avoid because of my poxy skin.

Which is why I'm writing tonight; has anyone got any tips or any advice that can make this happen for me this summer???

It'd be much appreciated.

Thanks
Seán

rubadub

deadeye187 wrote: »

Just a question for all the ppl using UVB lamps, how bad is your psoriasis?

Have it on my scalp and 3 other small spots on arm, chest & leg, 2 of those spots are 1" diameter, the other is 1/2" diameter.

I have only seen people with the small handhelds here, which would all be using the small 9W bulb. Anybody with large coverage would go for the bigger sun bed types, or the panels.

deadeye187

Just a question for all the ppl using UVB lamps, how bad is your psoriasis? How much of your body does it cover?

rubadub

Call Me Jimmy wrote: »

I've ordered this: http://www.amazon.co.uk/Dermfix-1000MX-Psoriasis-Vitiligo-Eczema/dp/B001JR7CPY/ref=sr_1_1?ie=UTF8&qid=1390386547&sr=8-1&keywords=uvb+lamp+psoriasis

the light is fine but it could possibly be got cheaper if you want to bother. Might be too late to cancel

The amazon seller is the same androv company mentioned before

http://www.androv-medical.com/product/27/dermfix-1000mx-uv-b-lamp-for-psoriasis--vitiligo-or-eczema/3b537f3c2f5e6d0071edfc23a18130d6

It seems you can buy a VAT free version in the UK, the site parcel motel gives you a northern ireland address, then they deliver down here and you pick it up from a locker near you. So you could have possibly have gotten that. Parcel motel would cost about €3.50

Call Me Jimmy wrote: »

Also, it is possible that I have had dermititis all along. Apparently psoriasis on the face is actually very uncommon.

I have dermatitis on my feet and the UVB works well on it. And on eczema on my hands.
http://www.webmd.com/skin-problems-and-treatments/eczema/phototherapy-for-atopic-dermatitis

the light is also used for vitilgo, the condition michael jackson claimed to have which turned him white.

I never heard the warning about the hands before, I am going to start wearing gloves now. I get light on my hands since I hold back my ears to get the light on my scalp better, I didn't mind the exposure as I get eczema on my hands the odd time. If it comes back I can take the gloves off again.

huskerdu

Call Me Jimmy wrote: »

So you're face was targetted and then after a week it was stopped, targetting other areas?

In the hospital UV machine, you are standing naked in an enclosed room surrounded by UV lamps. EVERYTHING is targetted.

I had a small patch of psoriasis on my forehead but after a week, they did not want to expose my face anymore.

Call Me Jimmy

So you're face was targetted and then after a week it was stopped, targetting other areas?

There seems to be goggles with the one I ordered, although I should have cast my eye over the comments better, some of the positive ones look suspect.

Also, it is possible that I have had dermititis all along. Apparently psoriasis on the face is actually very uncommon.

Too much information!

huskerdu

Call Me Jimmy wrote: »

Was not aware of this, would sunglasses work? Or goggles (or do the goggles do nothing :pac:)

When I had UV treatment in St Vincents, I had to wear googles. I dont know what type they were.
After about a week, they decided my face had had enough exposure and then I was given a massive helmet type face mask to wear. It was like the things that bomb disposal guys wear.

I was also told to put sum block on my hands. The backs of your hands get the high light exposure over the course of your life and are high risk for skin cancer.

Call Me Jimmy

Well yes steroid creams are actually not recommended on the face, they are prescribed for extremely targetted use and not meant to be used on the face for any long period of time.

I've ordered this: http://www.amazon.co.uk/Dermfix-1000MX-Psoriasis-Vitiligo-Eczema/dp/B001JR7CPY/ref=sr_1_1?ie=UTF8&qid=1390386547&sr=8-1&keywords=uvb+lamp+psoriasis

rubadub

Call Me Jimmy wrote: »

Was not aware of this, would sunglasses work? Or goggles (or do the goggles do nothing :pac:)

You would probably get sunbed type goggles with the unit you are looking at, have a link to the amazon page?

I got sunbed goggles on ebay, they are just like extra dark sunglasses, but look more like swimming goggles.

I would read up more about it on the face though, I think some did not recommend it for some other reasons, though I might be mixing it up with steroid creams.

Call Me Jimmy

Was not aware of this, would sunglasses work? Or goggles (or do the goggles do nothing :pac:)

rubadub

Call Me Jimmy wrote: »

So I'm going to pay 200 for one with 25 5 star reviews out of 26.

Have you a link to this? have you heard of www.flubit.com ?

You can enter in the amazon link and it will try and get you a better price, on a high markup item like these lamps it can offer good reductions. But it has got to be sent via parcel motel as the flubit offers are only to the UK.

Call Me Jimmy wrote: »

Years of rubbing and ruining that part my of my face left it pretty damaged so I think the lamp will hopefully be the final cog.

I have seen many warnings about uvb on the face, especially the eye protection, closing your eyes is not enough.

wonga77

Call Me Jimmy wrote: »

I'm going to spend the bit of extra cash on a lamp with extremely positive reviews on amazon. If I'm buying one I want to make sure it's a once of and I amn't left wondering 'have i bought something that won't do the job'.

So I'm going to pay 200 for one with 25 5 star reviews out of 26.

Wonga I think the fact that it cleared up after the burn probably means if you stick with it it will clear up!

Cool, keep us updated

Gael23

Never tried this but once a doctor told me to use emulsifying ointment as body wash. He said that you want to build up the lipid layer on your skin that is damaged my psoriasis.

Call Me Jimmy

Nothing really mentionable no. I did have a small circular patch on my leg but that has disappear as i've been doing a lot of leg-based yoga. The fear of showering and aggravating my skin means my skin has not been as clean as it could be but I'm getting over that I think with the recent stability. I actually will try the apple cider vinegar on my upper arms as well, they've always been a bit blotchy.

Gael23

You have to be so careful what you use on your face. Some of the creams specifically say do not use on the face. When I have my face under control with protopic, I sometimes use E45 moisturiser to keep it good for longer.
Have you plaques on other areas besides your face?

Call Me Jimmy

Well not at the moment, I put a bit mixed with water in a tub and the rub it on my face and scalp with a cotton pad. I haven't had any problems with it, I also use the hyaluronic acid just rubbed into skin on around my nose. I've managed to keep it under control like this. Years of rubbing and ruining that part my of my face left it pretty damaged so I think the lamp will hopefully be the final cog.