swiftman wrote: » no i haven't been living under a rock for the past few months but to be honest i never bother reading 'oh buy the cd' and 'look at late late show, she's on'. ok she's sick, so are thousands of other kids in ireland. why did she get a cd made and elton john's song. is she famous or are her parents well known? im not slagging anyone off or anything, just want better understanding. hope song makes it to number 1 for xmas
_Whimsical_ wrote: » Her parents and her uncle know a lot of people in Irish music scene or know people who know people. I think they just mobilised the troops and were successful. Sadly its not an option for every sick child, there is a 7 year old in Galway with the same condition and facing the same odds and she is pretty much unknown. I think it's just a case of who you know and how much you're willing to do to put yourself out there. Other families probably don't have the resources or aren't emotionally or practically able to rally themselves into a national awareness and fund raising campaign. Hopefully they'll be successful but you'd like to think fund raising of this magnitude might benefit more than one child.[/] Fundraising is also for world research of her type of cancer which is absolutely magnificent. The 7 year old in Galway has been exposed a lot more due to this as well as the other kids in Ireland. It's a fantastic charity and everyone should applaud that people are helping out. Anyways it's trying to become Xmas No.1 and we have until midnight to do it. So fork out 99cents on iTunes and it will genuinely give more exposure and research to this horrible childhood cancer
_Whimsical_ wrote: » It's a fantastic charity and everyone should applaud that people are helping out.
threebeards wrote: » It didn't become huge by some Irish artists just agreeing to participate, it became huge as a result of the enormous amount of work put in by Stephen Macken and his team in terms of planning, arranging, recording, marketing, promoting, selling.
Mrs OBumble wrote: » It's also due to the family being willing to make a lot of very emotionally appealing photos of their child publically available, along with public appearances etc. I don't want to be begrudgerous, and yes I did shell out the E2 when approached by someone from Claregalway selling the CD. But in an age when it's not even a good idea to take a photo of anyone's kid without written consent - and when some of parents won't even give that consent - the wide use of her picture, especially some of the in-hospital shots, makes me a bit uncomfortable. If she makes it (and I sincerely hope that she, and any other sick child out there does) then there's going to be a certain image of her in people's minds which could prove troublesome later on when applying for jobs etc.
Cinders87 wrote: » It is also thanks to over 200 singers that were part of the choir.
Ed Winchester wrote: » It's a contingency plan in case of relapse. They're hanging on to the money in case of that. How long do they wait with the money before donating it to Neuroblastoma Ireland? When Lily Mae is 21??? What about the 140 other kids on St Johns Ward who need help NOW? St Johns ward is €4million short of the funds needed to finish its new ward. The kids on this ward are being treated in third world conditions. I think people should donate to that, to help kids in need NOW, rather than contribute to a contingency plan for one child. Here's a couple of links that, I think, are interesting reading.http://m.irishtimes.com/newspaper/ireland/2012/1218/1224327959947.htmlhttp://www.cmrf.org/appeal/show/20
d-gal wrote: » It simply amazes me at times when people pull together and do something great that there is always somebody moaning in the corner. Her parents and friends pulled together and have done something absolutely amazing and exposed a horrible childhood cancer that needs to be researched and made more aware of. They've worked their butts off and inspired 1000s around Ireland and Lily Mae has brought joy to so many around the world with her attitude of 'happy happy happy'. She's an extremely inspiring girl that I had the pleasure of meeting and I'm glad to give money to someone like her and the Sunni Mae foundation Could you not just say well done rather than trying to bring down people donating money to a 4 year old with cancer?!!
Ed Winchester wrote: » I find it amazing that you didn't take notice of, or dispute a single point I made. Like I said, what about all the other children she shares the ward with? The ones who don't have a network of rock stars to help them out. Lily Mae is extremely inspiring, every one of those kids are. They all need help. Not just one of them. Also, there is a lack of clarity as to where these funds are going. It is not a registered charity, it's a trust. How long is the money held in contingency. How much do Neuroblastoma Ireland get, and when do they get it? My point is, there are more worthy causes. And please don't reply with, more worthy than a 4 year old with cancer line, because you know what I mean. Children's cancer in Ireland is in dire need of funds. St. John's ward is the only children's cancer ward in the country, and its like the black hole of Calcutta in there.
me bolly wrote: » It amazes me even more that the likes of Bono , Enya ,Van Morrison etc could write a cheque that would rid the need to collect for these kids. Loose change to them.
d-gal wrote: » So I presume anyone that has a fundraiser for something, you stick your nose in and say there is 'more worthy causes'? As I said before, you could just say well done and fair play, rather than being like the Grinch and give out about a little girl and her 'rock stars'. Pathetic
Ed Winchester wrote: » I'm not giving out about a little girl, she's a wonderful child. I absolutely hope she has a full and complete recovery. I wish her nothing but the very very best. Maybe I am pathetic and the grinch. And maybe i'm sticking my nose in. But as I write this, from St Johns Ward, looking at my child who has cancer, I feel I'm in a position to. I'm sitting a few feet from one of the other children who has Neuroblastoma, chatting with the parents, and believe me, I'm certainly not alone in my opinions on this topic. Just to reiterate my point, all the children on the ward need funds urgently. Not just one. We all fundraise here, what we raise, we donate to the rebuilding of the ward.
Ed Winchester wrote: » Maybe I am pathetic and the grinch. And maybe i'm sticking my nose in. But as I write this, from St Johns Ward, looking at my child who has cancer, I feel I'm in a position to. I'm sitting a few feet from one of the other children who has Neuroblastoma, chatting with the parents, and believe me, I'm certainly not alone in my opinions on this topic. Just to reiterate my point, all the children on the ward need funds urgently. Not just one. We all fundraise here, what we raise, we donate to the rebuilding of the ward.
Arnia wrote: » This foundation has driven an amazing campaign which should be applauded. It however does not sit easy with me when the foundation is apparently not a registered charity and when lily mae's mum has stated publicly that she will keep the €750,000 target amount until her child has been given the all clear. how long is that for? If achieved It's a great achievement by a community to raise such funds for one girl but its a failure of an entire nation that our children are being treated at a centre of excellence that is in such a bad state of repair, its cramped, unhealthy, germ fest environment! As a parent of a child who is fighting cancer I have been reassured by my consultant that if my child needs more treatment that is unavailable in ireland they will source the best treatment suitable to the child and it will be funded by our state. I choose to put faith in our medical system and my child's life is in the hands of my consultant and their team. I have never been told an amount that my child's treatment has cost or will if my child needs to go abroad. I am aware that each cancer is individual and I don't have all the facts.
d-gal wrote: » It's a terrible situation you are in but personally if I was in your position I would just say well done on raising money for cancer. Money is going towards Neuroblastoma research which I'm sure parents next to you appreciate. At the end of it the foundation deserves absolutely zero criticism and I applaud everyone that has donated towards it. I wish your child the very best possible recovery and a very Happy Xmas
d-gal wrote: » There is certain treatments that will not be covered by the State or they may only cover a %. I would strongly disagree that it's a failure of an entire nation, it's the States fault. They unfortunately piss away OUR money on stupid things when hospital standards should be priority. Anyways that has nothing to do with 1 foundation (Sunni-Mae). Stay positive and I hope your child make a speedy recovery and has a wonderful Xmas
Arnia wrote: » I think all our children are worthy of a no.1 anytime of the year not just for Christmas. Therefore I think that the Crumlin building fund is a much worthier cause.
_Whimsical_ wrote: » I am so sorry for your trouble and very much hope your child makes a swift recovery. I don't think you're being a grinch ,I agree with you. I can fully understand Lilly Maes parents wanting to do this for her but it is true that funds directed at one individual are all to often funds diverted from a wider encompassing cause. When that is sick children it seems a great pity, particularly when it's such a large fundraiser. While she is not in need of treatment in the US I would like to see the money allocated for that being spent to help more children and their families. Yes it was a beautiful thing that so many people came together and shared of their love and their talent, equally I think that good will should extend outside of one person.
Arnia wrote: » This foundation has driven an amazing campaign which should be applauded. It however does not sit easy with me when the foundation is apparently not a registered charity
Seaneh wrote: » There is no such thing as a registered charity in Ireland.