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Post your web resources here

r3nu4l

Just thought I'd post a few information resources here. I've dealt mostly with Diabetes and Cancer organsiations and pharma divisions in my work so I thought I'd post some links here (non-pharma and non-promotional)

If you have links for any other long-term illness or anything to add please do.

I've tried to order them like so: Ireland, UK, Europe, US

Diabetes

Diabetes Federation of Ireland
Diabetes UK
European Association for the Study of Diabetes
American Diabetes Association

Cancer

Irish Cancer Society
Cancer Research UK
European Cancer Patient Coalition (Part of CancerWorld)
US National Cancer Institute

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Comments

tbh

Stickied!

The Hill Billy

This public NHS site contains invaluable patient information leaflets (PILs) convering a very broad range of illnesses:

Prodigy - NHS National Library for Health

mike65

Diabetic Forums Its an Amercian based site so some of the terms, jargon and brand names may be unfamilair.

Mike

embee

Brainwave - The Irish Epilepsy Association

http://www.epilepsy.ie

Cystic Fibrosis Ireland

http://www.cfireland.ie

The Irish Association for Spina Bifida & Hydrocephalus

http://www.iasbah.ie

The Irish Kidney Association

http://www.ika.ie

Asthma Society of Ireland

http://www.asthmasociety.ie

E@gle.

Great Site for anyone on Chemo

http://www.chemocare.com

explains side effects

www.CancerLine.com

condra

M.E / CFS
Modern up-to-date information about Myalgic Encephalomyelitis.
http://www.ahummingbirdsguide.com/themesymptomlist.htm

M.E is classified as a serious neurological condition by the WHO.
Despite this, it still divides the medical community into several camps, with varying opinions on the causes of M.E., how best to treat it, and some who deny its existence.
The odds are stacked firmly against M.E sufferers who can find it hard to be taken seriously by GPs and specialists.
Not only that but there are many cynical and irresponsible entities who claim to have cures for the condition, none of which have been proven to work.
Many in the medical world argue a psychiatric, rather than organic nature to M.E. and encourage excercise and "cognative behavioural therapy" to cure M.E.
In genuine cases of M.E. [as opposed to chronic fatigue which may be caused by numerous factors], forced excertion has often made the condition of the patient worse, causing instant death in some cases.
There are a number of symptoms which are common to M.E patients, and some which are unique to the illness.
The site mentioned above provides information about what M.E really is, and what M.E certainly is not.

CathyMoran

This is a web site for diabetics wanting to or who are pregnant - it does have some useful articles for diabetics in general also - highly recommended:

http://www.diabeticmommy.com/

nothing

For Depression :

http://buslist.org/phpBB/

tallaght01

fantastic support group for teenagers and young adults with cancer

www.canteen.ie

nesf

For Bipolar/Schizophrenia:

http://www.seroquel.com/ (Choose the section that interests you)

It's a drug website (i.e. seroquel is prescribed for both bipolar mania and schizophrenia) but beyond the obvious advertising there's a good amount of decent information on coping strategies and advice on what may trigger episodes etc.

For mental illnesses in general:The Royal College of Psychiatrists

Some good pdfs here. Both aimed at sufferers and partners/relatives of people with mental illness.

tallaght01

The most important link of all......the newest up and coming blog on t'interweb. The healthcare professionals who use the medicine/biology forum have started a blog. There's only one post so far though, as it's only a few hours old. It might dissolve into nothing as boredom sets in, or it might be an interesting read for those of you interested in medicine.

www.twoweeksonatrolley.blogspot.com

Have a look and see what you think.

Dizzyblonde

For people with dizziness and balance problems

www.labyrinthitis.org.uk

www.dizziness-and-balance.com

And for support from other sufferers,

www.dizzytimes.com

The_Conductor

Notes on over 200 different medical conditions.

http://news.bbc.co.uk/2/hi/health/medical_notes/default.stm

cathy01

www.adhd.ie

For parents of children with ADD/ADHD and adults with ADHD/ADD

tbh

There's a new Irish business doing medic alert ID's, and they are offering a 10% discount for boardsies. (for everything except P&P)

the url is http://www.icemedicaljewellery.ie/ and to avail of the discount, enter the code BRD123 on the checkout page. They also offer 4 lines free engraving at the moment.

nesf

One of my favourite mental health websites: http://www.psycheducation.org/index.html

It's written for an American audience but there is a lot of detail on there about the medication used in treating mental illness and a lot of references to the literature on the subject for those of us with an academic interest to go along with the particular illness in question.

kangaroo

ME/CFS

ME Association (UK)
http://www.meassociation.org.uk

The Young ME Sufferers' Trust
http://www.tymestrust.org/

25% ME Group (for the most severely affected people with ME (25% of those with ME) who are bedbound or housebound or virtually housebound
http://www.25megroup.org/

ME Research UK (despite the title, it is financially supported by the two main Irish ME charities)
http://www.meresearch.org.uk/index.html

Irish ME Trust
http://www.imet.ie

Irish ME/CFS Association (until recently known as the Irish ME/CFS Support Group)
http://www.dublin.ie/websites/irishmecfssupportgroup/

Bidd

Irish Chronic Pain Association

http://www.chronicpainireland.org/

tbh

there is great support for people with MG from the Myasthenia Gravis Association. They have a very good information pack for patients and doctors. If you haven't been in contact already you can email MGA at info@mga-charity.ie and they will send out a pack to you.

CathyMoran

The bbc had this article: http://news.bbc.co.uk/1/hi/health/7874266.stm
which is linked to this which is sort of a support site for younger adults with cancer http://no-surrender-network.org/ , have been using it for a day now and it seems quite good.

graflynn

www.dlife.com
www.diabetesmine.com
http://www.dlife.com/diabetes-forum/
http://www.diabeteshealth.com/

All american sites but lots of information and you can connect with others with diabetes.

jackandjade

www.friendsofben.net

FriendsofBen is a fundraising website aiming to raise money for Cystic Fibrosis vests which offer relief to Cystic Fibrosis sufferers.

www.friendsofben.net

The_Conductor

The Irish Osteoporosis Society - http://www.irishosteoporosis.ie/risk.htm

neil_18_

Alzheimers/Dementia

http://www.alzheimer.ie/

Carpenter

Please read and support her

http://thestoryofmybreast.blogspot.com/

tbh

Carpenter wrote: »

Please read and support her

http://thestoryofmybreast.blogspot.com/

your wife is amazing, Great story. Kudos from me

Goldenquick

Haemochromatosis is an iron overload
disorder. It is a genetic condition that
causes people to absorb excessive amounts
of dietary iron. This excess absorption may in time
lead to serious organ damage.
Haemochromatosis is especially prevalent among
the Irish and other Celtic people.

http://www.haemochromatosis-ir.com/index.html

kangaroo

kangaroo wrote: »

ME/CFS

ME Association (UK)
http://www.meassociation.org.uk

The Young ME Sufferers' Trust
http://www.tymestrust.org/

25% ME Group (for the most severely affected people with ME (25% of those with ME) who are bedbound or housebound or virtually housebound
http://www.25megroup.org/

ME Research UK (despite the title, it is financially supported by the two main Irish ME charities)
http://www.meresearch.org.uk/index.html

Irish ME Trust
http://www.imet.ie

Irish ME/CFS Association (until recently known as the Irish ME/CFS Support Group)
http://www.dublin.ie/websites/irishmecfssupportgroup/

Well, it doesn't let me edit this so I'll point out that the Irish ME/CFS Association is now at http://www.irishmecfs.org . Website is still fairly basic.

LegacyUser

Dr William Weir on ME/CFS

http://www.rte.ie/news/drivetime/index_av.html

Snooop

Arthritis

http://www.arthritisireland.ie

http://www.arthritis.org/

http://www.nras.org.uk/

http://www.arthritiscare.org.uk/Home

http://www.facebook.com/pages/Young-Arthritis-Network/151523674887711?ref=sgm ( network for people in their 20's & 30's )