Psoriasis

eeloe wrote: »

I'm due my shot tonight, looking forward to it also, because i'm having some tiny flare ups!

How often are you getting it now?

I'm due my shot tonight, looking forward to it also, because i'm having some tiny flare ups!

eeloe wrote: »

Hey, any progress...take it!

I remember when i started Stelara, i stopped the extreme moisturising and i still saw improvements rather quickly, again, everyone is different.

Maybe I am just seeing something that I want to see but I think there are some improvements already.

Another shot this week, which strangely to say I am looking forward to as it hopefully means more progress.

suttonboi1 wrote: »

Not sure if I am seeing improvement as I am very eager to do so but today it appears like the scaling is significantly reduced. My moisturising regime is pretty good but having said that for the last few weeks I have had significant scaling and flakes which appear to be well reduced. Might be too soon and may be just the moisturiser but starting to look and feel a bit better. Here’s hoping.

Hey, any progress...take it!

I remember when i started Stelara, i stopped the extreme moisturising and i still saw improvements rather quickly, again, everyone is different.

Not sure if I am seeing improvement as I am very eager to do so but today it appears like the scaling is significantly reduced. My moisturising regime is pretty good but having said that for the last few weeks I have had significant scaling and flakes which appear to be well reduced. Might be too soon and may be just the moisturiser but starting to look and feel a bit better. Here’s hoping.

Gael23 wrote: »

Biologics are not a miracle, it can take up to 3 months to see real results

Yes I understand that. I was on Humira a few years back and recall I did see some very quick improvements. Should have documented the chances.

Hoping I will see a similar response here.

Bojill wrote: »

I went to Rupert Barry at James private, it was 250 for the first consultation.
James Hospital is on a direct Luas line from Busaras.
I found him very good.
Started on Stelara injections last week and can already see small signs of improvement.

Stelara does tend to work SUPER fast, i was clear in a couple of weeks on it.

suttonboi1 wrote: »

Patience is not a virtue I am blessed with unfortunately

Biologics are not a miracle, it can take up to 3 months to see real results

Gael23 wrote: »

It can take a while but hang in there.

Patience is not a virtue I am blessed with unfortunately

suttonboi1 wrote: »

Thanks for the insights here people. Can I ask how long it took people to share seeing some improvement on Amgevita and how long to see significant improvement / nearly getting clear?

It can take a while but hang in there.

rubadub

The DayDream wrote: »

I also have used a home UVB lamp which is just too tedious when you have it on awkward places.

you could make a holder for it. Also many are sold installed in office desk lamps, which have moveable arms so they can be put in various postions. You could get one of these lamp fittings on its own and put your bulb in it (has to be the specific one with the proper fitting, I would pick if out if you have any interest).

I found using my small one tedious too, due to the time needed. I upgraded to a large light fitting that took 2x36W bulbs. So I can do large areas and it takes less time on each spot too as the light is more intense.

Bojill

The DayDream wrote: »

I've been looking for a dermatologist in Donegal or Sligo without success, it seems most are Dublin based.

Can anyone recommend someone, preferably easy to reach with public transport from Busaras/Connolly as I'll have to take the bus to Dublin.

Ive been on dovonex for years and had psoriasis for over 20. I also have used a home UVB lamp which is just too tedious when you have it on awkward places.

I started a new job 6 months ago and the stress has caused my skin to flare up. It's a public facing role so i need to get this under control.

What kind of costs are involved paying private? I have a med card at the moment, they'll probably take it off me though now that I'm working.

I went to Rupert Barry at James private, it was 250 for the first consultation.
James Hospital is on a direct Luas line from Busaras.
I found him very good.
Started on Stelara injections last week and can already see small signs of improvement.

The DayDream

I've been looking for a dermatologist in Donegal or Sligo without success, it seems most are Dublin based.

Can anyone recommend someone, preferably easy to reach with public transport from Busaras/Connolly as I'll have to take the bus to Dublin.

Ive been on dovonex for years and had psoriasis for over 20. I also have used a home UVB lamp which is just too tedious when you have it on awkward places.

I started a new job 6 months ago and the stress has caused my skin to flare up. It's a public facing role so i need to get this under control.

What kind of costs are involved paying private? I have a med card at the moment, they'll probably take it off me though now that I'm working.

First two injections taken today (loading dose) of Imraldi (adalimumab) next one due in a weeks time and then every 2 weeks thereafter.

Hopeful of seeming some improvement in the next few weeks, maybe around the end of the month. Will try to remember to post here regularly to note any chances I am seeing.

Looking forward to getting back to shorts and T-shirt’s.

Thanks for the insights here people. Can I ask how long it took people to share seeing some improvement on Amgevita and how long to see significant improvement / nearly getting clear?

Shoneen

suttonboi1 wrote: »

That’s some great news to hear there about the effectiveness of it. Really chomping at the bit to get back on it.

Not worried about the lack of support and to be honest I found the text fairly annoying. How did you sort out a sharps bin then?

Also do you know if you can get a injection pen or if it’s a syringe that you need to use? Had the pens with Humira and they were very useful.

The narrative you are putting out there sounds very similar to my consultant so I would say we have the same.

Amgevita is an injection pen - the exact same as Humira. I had an unused Sharps bin leftover from when I was on Humira but as the previous poster mentioned, I think you can get them from any chemist.

suttonboi1 wrote: »

That’s some great news to hear there about the effectiveness of it. Really chomping at the bit to get back on it.

Not worried about the lack of support and to be honest I found the text fairly annoying. How did you sort out a sharps bin then?

Also do you know if you can get a injection pen or if it’s a syringe that you need to use? Had the pens with Humira and they were very useful.

The narrative you are putting out there sounds very similar to my consultant so I would say we have the same.

I got a sharps bin from my local pharmacy, and they have a service where they destroy it for me when it's full.

Shoneen wrote: »

I did the same thing and I felt like an idiot for going off it - particularly because the Dermatologist didn't agree with me going off it (although she understood the reasoning). When I went back they put me on Amgevita which is a Humira biosimilar and works via injection. Seems to be just as effective as Humira and I was Psoriasis free again in around 6 weeks.

Only thing I would say that is different is that unlike Humira you don't have Abbiviecare support so there's no text reminders, used needle storage, helpline or nurse who comes out and shows you how to use it (although the injection process is the same as Humira).

Also, little things like the prescription itself doesn't come with medi-swabs so you need to remember to but them separately.

When I saw the dermatologist in December, she thought people on immunosuppressants would be fairly high up the list for vaccines - I haven't heard anything yet though. She also mentioned that there was a study done at the time of SARS and that people who were on Humira had been statistically less impacted than the general population. Its a different disease of course but I suppose it gives some level of comfort that Humira isn't necessarily increasing the risk around covid.

That’s some great news to hear there about the effectiveness of it. Really chomping at the bit to get back on it.

Not worried about the lack of support and to be honest I found the text fairly annoying. How did you sort out a sharps bin then?

Also do you know if you can get a injection pen or if it’s a syringe that you need to use? Had the pens with Humira and they were very useful.

The narrative you are putting out there sounds very similar to my consultant so I would say we have the same.

nibtrix

dahat wrote: »

MTX & Enbrel for some years now.

Congrats!

I’m really struggling with the patient “wait to be contacted, don’t try to get in touch with your consultant, you will be contacted for your vaccine appointment” malarkey.

I’m also on a MTX and biologic combo, and have previously ended up in hospital with pneumonia while on it, and I’m getting stressed because I can’t find anything that says it will definitely put me in cohort 4 rather than 7!

dahat

Gael23 wrote: »

What are you on?

MTX & Enbrel for some years now.

dahat wrote: »

Yes, today.

What are you on?

dahat

Yes, today.

Have any of you on biologics or tablets got the Covid vaccine yet?

Johnny Derpp

eeloe wrote: »

Great job. Took some dedication to get there I’d say!

It did, i can't believe the mood swings and energy crashes from cutting so much carbs, but i think the 'detox' was the easy part on hindsight. the trial and error of reintroducing certain foods is such a slow process.

gael23 wrote:

how does it make your digestive system feel

Actually i lost alot of my 'regularity' as the intake of carbs, and therefore fibre, has changed dramatically. i go less often and it's fairly irregular.

rubadub wrote:

Are you strictly folowing it?

I messed up for the first week and and a half as i wasn't excluding nightshades and white rice/potatoes.
Like you my main focus was on sugar/processed food.
The first two weeks was the hardest because i was realising how much sugar permeates out everyday lives and how much of what i ate depended on tomatoes.
But once the sugar cravings passed it was just a case of getting sweet potatoes or brown rice into me at the right times of the day and then i was better able to manage energy levels.

Shoneen

suttonboi1 wrote: »

Interesting, it is definitely an injection that I am due to be on but didn’t get much more information than that.

Really keen to get started as experienced get results on Humira, was so stupid to come off it.

Due to start on it next week so wonder if that will impact the timing of the vaccine, will probably fall between the cracks with the timing of it all, as wouldn’t be considered immunocompromised right now be will in a few weeks.

I did the same thing and I felt like an idiot for going off it - particularly because the Dermatologist didn't agree with me going off it (although she understood the reasoning). When I went back they put me on Amgevita which is a Humira biosimilar and works via injection. Seems to be just as effective as Humira and I was Psoriasis free again in around 6 weeks.

Only thing I would say that is different is that unlike Humira you don't have Abbiviecare support so there's no text reminders, used needle storage, helpline or nurse who comes out and shows you how to use it (although the injection process is the same as Humira).

Also, little things like the prescription itself doesn't come with medi-swabs so you need to remember to but them separately.

When I saw the dermatologist in December, she thought people on immunosuppressants would be fairly high up the list for vaccines - I haven't heard anything yet though. She also mentioned that there was a study done at the time of SARS and that people who were on Humira had been statistically less impacted than the general population. Its a different disease of course but I suppose it gives some level of comfort that Humira isn't necessarily increasing the risk around covid.

brevity wrote: »

Without the name of the drug it would be hard to say. I have been on Humira, Stelara, Tremfya and now Rinvoq. Interestingly, they did ask if I had been on Humira before putting me on Rinvoq.

With Rinvoq, its a daily tablet rather than injections. I have noticed and improvement in both my psoriasis and psoriatic arthritis so happy with that. I am keeping an eye on any side effects...nothing major to report. I seemed to have developed scalp acne/folliculitis when I was on Tremfya which hasn’t gone away. It’s a nuisance.

Regarding the COVID vaccine, I would imagine you would be placed on an at risk list due to the fact that the biologics have an effect on your immune system.

Interesting, it is definitely an injection that I am due to be on but didn’t get much more information than that.

Really keen to get started as experienced get results on Humira, was so stupid to come off it.

Due to start on it next week so wonder if that will impact the timing of the vaccine, will probably fall between the cracks with the timing of it all, as wouldn’t be considered immunocompromised right now be will in a few weeks.

dahat

Gael23 wrote: »

Yeah then your in group 7.

Just an update here, i'm booked for the vaccine today with a few other people on MTX also getting one over the next week or so.

brevity

suttonboi1 wrote: »

I came off Humira last year as a precaution due to Covid, I am now due to start back on a biosimilar, not sure of what exactly but do others have any experience of a biosimilar to Humira? If so what is it called and what has your experience been?

Also does going on this mean I should get the vaccine sooner?

Without the name of the drug it would be hard to say. I have been on Humira, Stelara, Tremfya and now Rinvoq. Interestingly, they did ask if I had been on Humira before putting me on Rinvoq.

With Rinvoq, its a daily tablet rather than injections. I have noticed and improvement in both my psoriasis and psoriatic arthritis so happy with that. I am keeping an eye on any side effects...nothing major to report. I seemed to have developed scalp acne/folliculitis when I was on Tremfya which hasn’t gone away. It’s a nuisance.

Regarding the COVID vaccine, I would imagine you would be placed on an at risk list due to the fact that the biologics have an effect on your immune system.