Delldweller wrote: » Just need to say a big thank you to the people who post here Advice was invaluable After years of this psoriasis and lots of different treatments I’m starting on a biologic tomorrow Advice from posters here was the nudge in right direction I’ll post how it goes. Thanks again
Gael23 wrote: » Be aware that Biologics are not a miracle and take time to work so you need to be patient. It will change your life though. What one specifically are you going on?
Delldweller wrote: » It’s called Guselkumab. Two weeks now and I’m already seeing results I always get a bad flare up at Christmas which I attributed to wine and chocolates
Delldweller wrote: » It’s called Guselkumab. Two weeks now and I’m already seeing results I always get a bad flare up at Christmas which I attributed to wine and chocolate Interesting couple of weeks ahead Thanks again Guys
senordingdong wrote: » So will the guselkumab help your body process the wine and chocolate?
Delldweller wrote: » I don’t think so. Normal body function will process them And hopefully the biologic will just sort the psoriasis. I’m not a Doc D
Delldweller wrote: » Tremfya is the company name D
Chacha97 wrote: » I seem to be having bit of an issue around my ear. It seems to be like where my ear joins my head! And along hairline above ear. At first I was thinking scalp psoriasis but seems to be a bit different? Granted I shouldn't be doing this but sometimes I pick to see and it seems like scalp psoriasis but then kinda oozes and sometimes so a bit at a loss. Should I just try capasal shampoo? Nizoral or dermalex Sorry meant to add i do suffer from psoriasis. I have it on elbows, back, leg and scalp and a bit on forehead!
Looptheloop30 wrote: » Are those on biologics able to get 'the jab'?
dahat wrote: » Are we classed as being immune compromised in terms of COVID vaccination?
Gael23 wrote: » It depends what medication you are on really
dahat wrote: » Enbrel & MTX combo?
Gael23 wrote: » Yeah then your in group 7.
The DayDream wrote: » I was on the public derm list for so long I was eventually told after 2 years if I couldn't take a bus to Dublin from Donegal they couldn't help me. I couldn't afford that at the time especially knowing it would take multiple trips and Id need to book somewhere to stay. By some miracle I got a job last September in the middle of all, but the added stress has cause my psoriasis to flare up, mostly I have more plaques. I was wondering what the cost is to go private now I'm working I could maybe afford it. They haven't taken my medical card yet so I can still get medication with it but I've heard the biologics arent covered. Then I heard the consultation isnt but you can get the meds. I'll be getting the jab soon as I'm technically a healthcare worker (working in an opticians) and work with the public. I was wondering if anyone could recommend a good derm who will point me in the direction of a good biologics since I've tried literally everything else, and if they can give me an idea what to expect price wise.
brevity wrote: » I sometimes wish I had the discipline to try and sort all this with diet. Even though diet isn’t necessarily a sliver bullet, it seems like a healthier approach.
brevity wrote: » So I have been on Tremfya for about a year now. I was put on it because Stelara stopped working and the dermatologist and rheumatologist felt that Tremfya would kill two birds with one stone. It has helped with my psoriatic arthritis but my psoriasis is not improving. Today I found out that I am being put on rinvoq.https://www.rinvoq.com/ a tablet a day for the forceable future... What’s a bit concerning is that this stuff seems specifically for arthritis rather that psoriasis. It does seem to be a biologic so perhaps it will target the skin too. It of course has its laundry list of dodgy side effects. I sometimes wish I had the discipline to try and sort all this with diet. Even though diet isn’t necessarily a sliver bullet, it seems like a healthier approach.
Gael23 wrote: » My advice is to go private for the first consultation and then if needed go public. I paid €250 6 years ago but think of it as getting your life back. Biologics are covered by the medical card but you won’t get them straight off. They will try uV therapy next probably tablets first. Then if none of those work you go onto biologics. They are extremely expensive so tend to be given as a last resort rather than first option.
The DayDream wrote: » but most anti inflammation diets say to cut it out as anything high in fat can make you inflamed.
Gael23 wrote: » I wouldn’t be concerned about it being an RA drug, many autoimmune drugs are interchangeable, I’ve never heard of that medication though
The DayDream wrote: » Thanks. This is part of why I avoided going to one. Pay a bomb for a bunch of tedious time wasting (i don't drive and my work is considered essential so it will be hard to organize appointments) and given things I've already tried (I have a UV lamp, it takes forever to clear plaques that way and they come back as soon as you stop, plus you can get burned). 250 is crazy money, too. considering they and I know there is no cure! I wish I could stick to the diets too. When I stock up on fruit and veg half of it goes off before I have had the chance to eat it. Meals get more expensive and less tasty, too when you have to cut out most bread, pasta, pizza, tomato sauce, potatoes, fried foods, spicy stuff, red meat, all fizzy drinks, sugar, alcohol. Can't remember if dairy is allowed, I think small amounts on the Pagano diet but he says to drink black coffee/tea (blech) but most anti inflammation diets say to cut it out as anything high in fat can make you inflamed.
brevity wrote: » So I have been on Tremfya for about a year now. I was put on it because Stelara stopped workinge
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