makeorbrake wrote: » Yes...because despite the amazing tech that's knocking around these days, they have no earthly idea how to unravel the psoriasis enigma.
Shoneen wrote: » I think one of the problems with finding a cure for Psoriasis is that there's far more money to be made in controlling it than in curing it. ...If a Pharma company were to find a cure for it they could probably charge a heap load of money for it, but it would be a one off hit.
Shoneen wrote: » I had been on Humira for 18 months and I was entirely clear of Psoriasis.
makeorbrake wrote: » That's likely to be very true. Of all the numerous commercials on US TV for drugs, psoriasis drugs like Humira are advertised far more than others. When you went off the Humira earlier this year, did your psoriasis come back? If so, how quickly did it come back and to what level of intensity (relative to what you would have experienced in the past)?
Shoneen wrote: » I had been on Humira for 18 months and I was entirely clear of Psoriasis. When Covid came I chose to stop taking the Humira, partially because of the reduced immunity caused by Humira but also due to the fact that my lungs aren't great due to having had pneumonia four times when I was younger. When I got to talk to my Dermatologist about it she wasn't entirely on board with the action I had taken, but could see the logic and said that in another six months we'd have better knowledge as to the risks posed by Covid to people who are on biologics. That's great and all, but personally I didn't want to be contributing to the statistics. I'm getting back to where I was now previous to going on humira - topicals are next to useless for me so I'm going to try diet. I started drinking Kombucha and eating raw sauerkraut yesterday and have ordered curcumin tablets. We'll see how it goes.
wonga77 wrote: » and soak in vinegar for a while when I'm watching tv or youtube.
senordingdong wrote: » The probiotic effect from fermented veg, would other probiotic have the same effect? Like a probiotic yoghurt?
senordingdong wrote: » Also, I was under the illusion that UV couldn't penetrate the nail?
Misguided1 wrote: » I have Psoriatic Arthritis. I was taking Cosentyx and Methotrexate before Covid (BC) but decided to come off Methotrexate due to immunosuppression and concerns about getting the virus. Psoriasis started to come back but nothing like I expected. A couple of patches here and there but nothing dramatic. My consultant wasn't thrilled when I told him.... My finger joints aren't great at the moment so I've restarted taking the Methotrexate. It's a scary time so stay safe everyone:)
Gael23 wrote: » I was told under no uncertain terms to keep taking my medication. The risks of stopping outweigh the benefit
eeloe wrote: » I’m taking stelara and while I was petrified of Covid, I spoke with my consultant, and we both agreed that stelara hasn’t really lowered my immune system all that much, so I kept on taking it. Even moved it from 12 weeks to 8 as I was having some slight flare ups due to stress and lack of sleep in a new job. While you’re on biologics, if you live a healthy lifestyle I can’t personally see them lowering the immune system as much as a higher dose of MTX or some of the chemo drugs.
rubadub wrote: » Found an Irish online chemist with dovonex for 24.50, its usually 25, They sell a max of 2 and you get free delivery if its over 30euro. So not huge savings but saves you travelling outside.https://www.inishpharmacy.com/p/dovonex-psoriasis-ointment-60gm/a18725 400g sudocrem is 10.95 which is a bit cheaper than tesco or supervalu Eurax is 10.99 which is cheaper than I usually pay.
Foggy Jew wrote: » Hi. I've had psoriasis for 12 tears; all on my scalp, torso, bum etc - nowhere visible unless I want someone to see it. But now, the full length of my two arms are beginning to get red, peely & I just know I'm in for massive patches very soon. Is there anyway (she wept piteously) that i can stop it in it's tracks before it takes over? All advice much appreciated.
wonga77 wrote: » What do people think of dovonex? I find it pretty ineffective, even more so when you compare to dovobet, might just be me
makeorbrake wrote: » risks of stopping? You mean in terms of the re-emergence of the psoriasis or are there other risks?
rubadub wrote: » I still find it good. dovobet is just dovonex with steroids in it, which is why I would not go near it.
wonga77 wrote: » Have you been to see anyone about it? I have had it for years, bits here and there, everyone seems to have different opinions but for me there are certain foods that trigger it like dairy or too much wheat. Have you any foods that you think might be causing issues? Also as it gets worse, which in turn makes you more conscious of it, the stress drives it mad.
Foggy Jew wrote: » My psoriasis is clearly genetic. Multiple uncles, cousins, siblings have it. However, mine differs from theirs, in that theirs is cyclical. Theirs comes & goes. My just comes and stays and spreads. It’s heartbreaking watching it taking hold of my arms, and not bloody thing I can do about it. Ugh
Looptheloop30 wrote: » Starting stelara mid Oct. Held out as wanted to see the craic with the Corona. Patches are getting worse so time to make the move.
