banie01 wrote: » Just thought I'd revisit this post with an update on how my Diabetes journey is going. I am still insulin free, I have a HbA1c due next week and my 1st Endo appointment since completing my run at the Newcastle diet. My BG levels are still great IMO, and my 7, 14, 30 and 90day numbers would seem to bare that out too. I'm really looking forward to getting the actual HbA1c and getting a comparison of the numbers after 6 months without Insulin. I've returned to a normal diet, all things in moderation. I would say however that my actual appetite has reduced greatly since finishing the Diet. Over the course of the diet I dropped a total of 16kg, and it's stayed off. Went as low as 94kg and am @95kg at the moment. My Diabetes is better than it has been at any point since diagnosis. The diet itself was very hard slog, but I'd hope my outcome does demonstrate that when it comes to T2, T1.5 and LADA that a little determination can make huge differences.
CramCycle wrote: » Anyone else wondering if BlackEdelweiss is OK?
Royal Legend wrote: » Well done Banie P.S I am lost on the figures HbA1C etc Totally confused
echo beach wrote: » You are not alone. Think of it as being like getting a distance in miles or kilometers or a temperature in Fahrenheit or Celsius. It is still the same distance or temperature but different figures. There are plenty of online conversion tables so you can see how the figures relate to each other. https://www.diabetes.co.uk/hba1c-units-converter.html
Royal Legend wrote: » Still none the wiser? So is the 7.3 from June an DCCT figure? so at 8% on the new figure that would be 6.6??? or have i gone from 7.3 to 8???? Completely confused Then what are the bands in relation to pre-diabetic?
Galbin wrote: Does anyone know if there is anywhere in Ireland I could get a fasting insulin test done? Had one done years and years ago in England, but with my recent situation would like to get one again. I am happy to pay for it. My GP is fantastic and will order different tests, but the hospital lab rejects anything out of the ordinary.
BlackEdelweiss wrote: » Im looking for a bit of quick advice. I came home from work sick at 5.15. My blood had been rising all day even with insulin. Have a really sick stomach and strange feeling in my head. Just done a keytone test and I am reading 5.1. I have never had more than 0.2 before. What is the best course of action here?
BlackEdelweiss wrote: » ... Thanks to all the nurses and doctors in A&E in UHG.
BlackEdelweiss wrote: » .. Got tested again at about 5am and I had gone into DKA at this stage so I got a bed an started receiving treatment then.
Martina1991 wrote: » I don't know where you're getting this information from. A hospital lab only rejects samples that aren't appropriate for analysis (wrong blood tube, haemolysed, insufficient etc).
Galbin wrote: » Our local lab regularly decides that they won't do tests the doctor has ordered. This summer for example they refused to do two specific blood tests that the GP had ordered. And the craziest thing of all is that she had sent me to the lab beforehand for a special tube with a letter from her stating why I needed this test, and that they needed to supply me with that particular tube. If she wants B12 tested (to name a specific example) she actually sends her patient to another hospital in the area, as they refuse to test it. Our local hospital has a terrible reputation, and this is one example of its policies.
Martina1991 wrote: » No lab just 'decides' not to process a sample. There has to be a legitimate reason for rejection. Hospital labs provide a public service. The service users are the hospital doctors and GPs. The lab tries to accommodate all requests as long as the right sample is received. I think you should find out why your tests were rejected instead of blaming the lab.
Martina1991 wrote: » As for the B12, many GPs send in blood samples for 'routine screening' and request a vast number of tests. These routine blood tests are often not clinically indicated i.e. the patient has no symptoms and therefore doesn't need the test. This includes Vitamin 12, Vitamin D, Thyroid function, Folic acid etc. If a hospital is rejecting these requests from GPs it is because the Dr. did not state on the request form that the patient has symptoms and needs the test. It would save the HSE millions of euro a year if GPs only requested what was needed and didn't request unnecessary tests.
Galbin wrote: She requested a particular tube and they gave me said tube after reading the letter. I then took that tube to the practice nurse who drew the blood into that specific tube. A few weeks later (and after all those careful steps), my blood test results came back. They had not done the two tests (despite the letter and giving me the specific tube) and had written [/b] "test not routinely conducted."
Martina1991 wrote: » But why would you have been provided with the blood tube in the first place if the test wasn't available?
Martina1991 wrote: » There are a vast number of tests that arent routinely available in every hospital. Those tests are then referred to a lab that can perform the test. That may be in Ireland, UK or further.
Martina1991 wrote: » I apologise if my tone was harsh. I certainly didn't mean to scold you. It's frustrating working in a field behind the scenes where the blame can be placed and no one can question it. I always wonder what the Dr had to say to the patient when they have to bring them back again to take more blood. Honestly it probably is easier to say the lab rejected your sample instead of I f*cked up.
gerrybbadd wrote: » In the meantime, I had done a bit of reading on Xultophy. Apparently, treatment is to be started at 16 units, and built up from there. Sligo told me to simply swap my 56 units of Tresiba, with 56 units of Xultophy. This is why i was feeling sick, puking etc. They were to ring me back last Friday, and this didn't happen, so i continued with Tresiba.
banie01 wrote: » Thats actually fúcking disgraceful Gerry! All those SLGP injectibles need to be tritrated quite slowly as its not a case of "if" you get side effects. Its a case of does your body react and adjust to the side effect by diminishing it as you adjust. That anyone would prescribe a med withthose particular side effects and what are from my recollection quite clear prescribing and tritration guidelines is very worrying. The med can work wonders in improving BG control but it does take careful introduction. They are bloody muppets, straight onto 56 units! You must have felt like you were walking a boat deck in a hurricane!
gerrybbadd wrote: » Pretty much Banie! terrible nausea, constant wretching, dehydration etc, had a terrible few days after it. It took me a good couple of days to come back around even after stopping it.
banie01 wrote: » Had my HbA1c result today and it's maintaining at 49 So thats 8 months insulin free and 2 HbA1c results at 49, I'm quite chuffed with the outcome. Have had a podiatrist review today that tempers that great news with some not so good in that neuropathy has begun to set in. Nothing major, but hot/cold sensation has been lost. Endo was quite dismissive of the improvement made and complained that undertaking the NC diet whilst on Jardiance can cause DKA. I told him that I'd discussed the effort at length with his Nursing team before starting and they'd said nothing about it at all to me. Only advice was, monitor your BG and call us/them if I noticed an issue. I'm glad I wasn't relying on my endo's appreciation or anything as a motivating factor in my pushing myself on the NC as it was a little deflating to have done everything right. To drop 16kg, be insulin free and to have a further med dropped from my control regime (Goodbye Jardiance!!!) and get a meh but it could have been dangerous was a bit of a downer. But I did this for me, and it's made a big difference.
