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Child Item

Psoriasis

Sykk

Hey all,

So I have been to around 4 different doctors over a skin condition I've had for around a year. 2 didn't know and 2 said I have psoriasis. It's very annoying, looks bad, and has a chance of spreading...

I have it on some parts of my head and the doctor told me there is no cure for it, it's only containable.

I have done some looking up on the web about cures, and some people say it's not cureable, some say it is. I have yet to go to a dermatolisist (I've one booked) or a chinese herbalist.

Does anyone else have this skin problem? If so what are you taking for it? And does anyone know if it's actually cureable or not.

Thanks in advance.

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Dubl07

BohsCeltic wrote: »

I've been to my Doc many times. But waiting for specialist. Sometimes because i have depression i can get lazy to put creams on, because i just want to sleep or bury my head in the sand. Easy for people to say just get up and put the creams on.
I know i need to but hard to explain to people that when my mood is so low i dont want to do anything.

Nightmare.

People with hangovers go the ER. If your Ps is causing you pain it's probably also stressing your heart and lungs. Go to the ER and refuse to leave until you see a specialist. Vincent's or James's if you're within reach of Dublin.

siblers

What are yer experiences with UV light treatment like? Hit and miss with short term results? Or are there long term benefits?

makeorbrake

siblers wrote: »

What are yer experiences with UV light treatment like? Hit and miss with short term results? Or are there long term benefits?

I'm living overseas and over here, they decided not to offer UV treatment because of the cancer risk.

I thought that natural UV (sunnier climbs) last year had cleared the damn thing up...but it came back with a vengence this year.

On holiday in Ireland right now and its gone hyperbolic. I think it's the (alkaline/limey) water that's driving it crazy.

brevity

siblers wrote: »

What are yer experiences with UV light treatment like? Hit and miss with short term results? Or are there long term benefits?

Works great for a while but it always comes back.

Gael23

It came back about a month after I stopped the UV sessions

khalessi

Started uv light sessions have had it before years ago and found it stayed away for about a year or so.

Tell ya one ting trying to get to the hospital a nightmare as traffic woeful

rubadub

khalessi wrote: »

Tell ya one ting trying to get to the hospital a nightmare as traffic woeful

This was listed as one of the advantages of home UVB therapy, less stress having to travel, and for self concious people less stress having to have people see them undressed.

BohsCeltic

Dubl07 wrote: »

People with hangovers go the ER. If your Ps is causing you pain it's probably also stressing your heart and lungs. Go to the ER and refuse to leave until you see a specialist. Vincent's or James's if you're within reach of Dublin.

I live beside Connolly hospital in Dublin. I don't want to burden their already overcrowded a&e dept.

I am waiting for my insurance claim, i will go private if approved then take a holiday in the sun. But i am worrying they will say no so that causes me more stress.

I can't even bring my dogs for a walk, or even my nephew's who i babysit. It's demoralizing .

siblers

How many sessions before treatment started to work? Or was it one session and it kicks in after a few days?

khalessi

Generally they give you between 25 -30 sessions and I have been told it is the equivalent to 2 weeks in the sun. Today was my first session of this round and was 18 seconds long. Getting undressed and dressed took longer

rizzee

Got 2 rounds of light treatment in drogheda years ago. Stays away for a year or so then slowly comes back. No where near as bad now anyway.

khalessi

siblers wrote: »

How many sessions before treatment started to work? Or was it one session and it kicks in after a few days?

Its 25-30 sessions over 10 weeks about 3 sessions a week. This along with the moisturising and bathing etc. Effect happens gradually, the last time my back was covered ad by the end I was left with a bit the size of a 20c piece

Gael23

siblers wrote: »

How many sessions before treatment started to work? Or was it one session and it kicks in after a few days?

That’s different for everyone but it’s unlikely to kick in after just one session. I had 40 sessions and got 6 weeks clear after

siblers

Thanks for the replies, no idea it needed that amount of sessions, bit of a pain doing multiple sessions a week if working full time

Did UV treatment help with it on the scalp? Always found psoriasis on the scalp comes back way quicker than on my body

khalessi

UV doesnt help with the scalp. I was recommended capasal shampoo and cocois left in overnight the combed out

Generally the sessions are in the morning time between 745-9. I just informed work i had been on a waiting list and my turn came up so Id be a little late. they have been ok about it

BohsCeltic

So bad now. I think I will have to go to hospital soon if it doesn't get any better. No other real option now.

Gael23

BohsCeltic wrote: »

So bad now. I think I will have to go to hospital soon if it doesn't get any better. No other real option now.

Have you got an appointment date to see a Dermatologist?

BohsCeltic

Gael23 wrote: »

Have you got an appointment date to see a Dermatologist?

No, haven't even got a date yet so can only imagine it will be a long time away. I am building all my hope on my insurance so i can go private.

Gael23

BohsCeltic wrote: »

No, haven't even got a date yet so can only imagine it will be a long time away. I am building all my hope on my insurance so i can go private.

Do you have health insurance? There’s no need to be on a public waiting list if you do

BohsCeltic

Gael23 wrote: »

Do you have health insurance? There’s no need to be on a public waiting list if you do

No. I am on illness benefit but have income protection insurance through my job but they dismissed my first claim so i had to appeal. It's just taking so long now. Getting really angry at this stage because it's supposed to kick in to help you but it's not doing what it's supposed to do.

brevity

https://www.eventbrite.ie/e/skinsideout-skin-health-event-tickets-70744150659

Irish Skin Foundation are doing an event. Professor Kirby is at it, might be worth a trip for people in Dublin

Esse85

brevity wrote: »

https://www.eventbrite.ie/e/skinsideout-skin-health-event-tickets-70744150659

Irish Skin Foundation are doing an event. Professor Kirby is at it, might be worth a trip for people in Dublin

Just to clarify any confusion, it's €5 per talk, rather than €5 to attend the whole event.

Gael23

Esse85 wrote: »

Just to clarify any confusion, it's €5 per talk, rather than €5 to attend the whole event.

It used to be free. Disappointing that they are charging

BohsCeltic

Gael23 wrote: »

It used to be free. Disappointing that they are charging

Just sums up this whole country. Always money.

Always Tired

BohsCeltic wrote: »

So bad now. I think I will have to go to hospital soon if it doesn't get any better. No other real option now.

I'm sure youve had plenty of suggestions all I can say is when i flare up and am feeling so bad that i can't do anything even put on creams, that taking epsom salt and dead sea salt baths are the best thing to do.

I find it works best if you use a shedload of the salts, i use about half the big epsom salt buckets from the chemist and a pack of dead sea salts together and it not only helps the skin it will relax you. And when you get out of the bath then you will have the opportunity to put on the creams and it's the best time do it as well.

This takes effort obviously but it's literally been the start of every clear up after a flare up to do this process.

I had it in on my feet and hands before, now they are totally clear but it has migrated other places. I know how it feels when you cant walk it's awful.

Ive been taking the baths, finally remembering to take fish oil every day, and eating healthy most days and i see a slight, slow improvement.

khalessi

Are you entitled to the longterm illness card for psoriasis?

brevity

Nope.

BohsCeltic

Managed a painfull shower last night and put cream on. Still in agony and need to put more cream on soon. I am walking on my tippy toes. All my joints seem to be the worst affected.
My back has now also developed more. But that's just itchy. It's my shoulders, elbows, knees, knuckles and feet that are the worst.

Taking multivitamins and will try as suggested fish oil.

I really feel like i should go to a&e. But i am afraid they will keep me in. And tomorrow i am babysitting 3 Nephew's overnight. I know i should take care of myself first but i have promised my Sister i would do as she and her husband are going to a wedding.

I won't be alone anyway so will have help. But trying to play with them is very hard. Fecking hate this horrible thing.

brevity

BohsCeltic wrote: »

Managed a painfull shower last night and put cream on. Still in agony and need to put more cream on soon. I am walking on my tippy toes. All my joints seem to be the worst affected.
My back has now also developed more. But that's just itchy. It's my shoulders, elbows, knees, knuckles and feet that are the worst.

Taking multivitamins and will try as suggested fish oil.

I really feel like i should go to a&e. But i am afraid they will keep me in. And tomorrow i am babysitting 3 Nephew's overnight. I know i should take care of myself first but i have promised my Sister i would do as she and her husband are going to a wedding.

I won't be alone anyway so will have help. But trying to play with them is very hard. Fecking hate this horrible thing.

To me there sounds like a number of different issues here.

- Mental health and self care.
- Your skin, joints and pain management

Is there anyway you can get to a GP? Write down a list of questions before going in. Don’t leave until you feel a bit better or that there is a proper plan in place. Ask to be referred to a dermatologist.

Once this is done you need to start a routine and a bit of a shopping list. Epsom salts, antihistamines and paracetamol or neurofen. Try and soak in a bath twice a week. Start a food diary. Try and cut out processed foods, sugar and alcohol. Download the Oak app and try and meditate. Fresh fruit and veg.

You don’t have do all of these things at once but it’s a plan.

I’ve been there and it’s a horrible place. PM me if you need to chat

qo2cj1dsne8y4k

Still waiting to be well enough to start cimzia, in ribbons