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Child Item

Psoriasis

Sykk

Hey all,

So I have been to around 4 different doctors over a skin condition I've had for around a year. 2 didn't know and 2 said I have psoriasis. It's very annoying, looks bad, and has a chance of spreading...

I have it on some parts of my head and the doctor told me there is no cure for it, it's only containable.

I have done some looking up on the web about cures, and some people say it's not cureable, some say it is. I have yet to go to a dermatolisist (I've one booked) or a chinese herbalist.

Does anyone else have this skin problem? If so what are you taking for it? And does anyone know if it's actually cureable or not.

Thanks in advance.

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rizzee

1 1/2 or 2 on the sides every 2/3 weeks

rubadub

rizzee wrote: »

1 1/2 or 2 on the sides every 2/3 weeks

that is properly short, I think mayobumblebee is a woman so more than likely not growing out from a shaved head.

Once shaved it gets more sunlight and you can apply creams etc better, but my scalp was so bad for years that I could not have a tight cut as it looked so bad.

Gael23

I get a #2 all over once a month. It absolutely helps keeping your hair short. Makes it much easier to apply whatever you use.

rubadub

Gael23 wrote: »

I get a #2 all over once a month

This sounds like you go to a barber. If so I would just say it is easy to cut your own, esp. if going that close. They have trimmers/clippers designed for self use now. Loads of videos too.

I have cut my own since I was 15 or 16, long before I had psoriasis. But I was glad when my scalp was really bad that I could cut my own as I would be nervous going to a barber the way it was. Also if I am not sure if my scalp is OK I can give myself say a 4, check in the mirror to see its OK, then go to a 3 or 2 or 1.5.

And of course you save lots of money and time & effort travelling.

eeloe

I’d love to be able to cut my own, but I need to keep a bit of length in top, what little hair I have left is precious!

eeloe

My first appointment with Prof.Kirby is coming up this Friday, and for some reason i’m anxious AF.

I’ve done more reading in to the treatments than I care to admit, and the side effects are starting to freak me out.

I’m wondering is psoriasis better than the possible side effects?

brevity

eeloe wrote: »

I’m wondering is psoriasis better than the possible side effects?

This is normal imo. I had a similar reaction. For me, I'm sick of this condition. I've had it for 16 years now and it's a curse of a thing.

The only thing you need to watch out for is getting the flu shot and be mindful of any infections.

You will be required to get bloods done and if anything weird pops up they will be in touch.

Talk to the dermatologist though - they will be able to reassure you.

eeloe

I never get the flu shot, as i only ever seem to get it every couple of years, and it's mild when i do get it, more of a bad cold, than full blown flu!

I just can't wait to start on the journey of getting it cleared, i'm sick to the back teeth of reading up on everything by now, i just want to get some kind of treatment started, and go back to living my life instead of being held back by this crap!

Gael23

eeloe wrote: »

My first appointment with Prof.Kirby is coming up this Friday, and for some reason i’m anxious AF.

I’ve done more reading in to the treatments than I care to admit, and the side effects are starting to freak me out.

I’m wondering is psoriasis better than the possible side effects?

It’s a case of the less of two evils I suppose. Also don’t forget side effects are different for every single patient. Some patients might have a horrible time and others like me get 2/3 infections a year which I can deal with. Give it a chance and see how it affects y?

eeloe

What kind of infections, if you don't mind me asking?

I don't deal well with sickness, i'm such a wimp.

Gael23

eeloe wrote: »

What kind of infections, if you don't mind me asking?

I don't deal well with sickness, i'm such a wimp.

For me it’s sinus/ears and heavy colds in the winter usually.
You can take steps to reduce your risk; good personal/hand hygiene, not knowingly putting yourself in contact with anyone that has a contagious illness and perhaps the flu vaccine every September.

eeloe

That's not too bad, i guess i could deal with them.

I'd really like not to be have to fill myself with antibiotics when i get an infection tho, after recently having to have 2 sets of them in 3 weeks they really took a toll on me.

eeloe

2 more sleeps till my appointment with Prof.Kirby.

Is it right that i'm as excited as a kid on Christmas week waiting for this?

rizzee

Good luck

Gael23

eeloe wrote: »

2 more sleeps till my appointment with Prof.Kirby.

Is it right that i'm as excited as a kid on Christmas week waiting for this?

Yes. 2 more days to the beginning of you getting your life back. That’s how I felt anyway.

eeloe

Clear Skin Eve???? Is that a thing?

Praying for some options tomorrow!

eeloe

Had my appointment this morning with Professor Kirby.

I was a ball of nerves sitting in the waiting room this morning and I shouldn’t have been.

He’s such a nice man, really put my mind at ease and assured me that he’ll get a hold of this for me.

Worked out a treatment plan, just have to get some labs done and i’ll be on treatment in around a month, so another little bit of a wait, but at least I know i’m on the right path to getting this sorted finally!

Phil1969

I have been having some success with "enstilar", my GP had suggested it last year but never tried it as it was about 90 euros for 1 canister. Anyway, I managed to get some last month and started to test it, and it has been by far the best kind of treatment I have used. I have only ever used creams/lotions in the past so can not compare it against the hard stuff like Metho etc but I think enstilar maybe a good choice for some of you guys.

I have also been doing an elimination diet, Psoriasis has been clearing nicely (parts where I did not use enstilar), it takes time but looks like it will be worth it.

eeloe

I’ve been using enstilar for a while, and it is good, but only relieves the areas for a while.

So, has anyone got any success stories from methotrexate? Since i’m gonna be starting on it soon i’m kinda buzzing to hear.

Robin132

Can I just ask, has anyone suffered hair loss on methotrexate? If so did it continue all the time you were on it or did it ease off after a few weeks like the other side effects?

eeloe

interested to hear this too....

Who prescribed it to you Robin?

morebarn2

Robin132 wrote: »

Can I just ask, has anyone suffered hair loss on methotrexate? If so did it continue all the time you were on it or did it ease off after a few weeks like the other side effects?

I took Methotrexate for approx nine months. I have Rheumatoid Arthritis rather than Psoriasis, so apologies for intruding on this thread! At first my hair was ok but as the dose was increased I noticed my hair becoming really thin and sparse and eventually it seemed to almost stop growing.

I am in my sixties and realise that growth is not as strong for some of us as we age anyway, but I have always had long hair and it was very hard to deal with.

Due to elevated Liver numbers , I was taken off Methotrexate, much to my relief! After trying various other anti inflammatory Drugs I finally wound up on Biological injections.

However, my hair never went back to its former thickness which is a great sadness for me. I have accepted it now and take a course of Viviscal now and then and it helps to bring back some texture and growth Too expensive for regular use though!

Overall I think I was just unlucky as I know a lot of people with Psoriatic arthritis etc and I would say it’s a very mixed bag of results. Some have no issues with hair at all; some have slight issues and a few are like myself.

Fingers crossed it will work for you and no problems with hair. I wish you all the best.

Robin132

eeloe wrote: »

interested to hear this too....

Who prescribed it to you Robin?

It was prescribed by my dermatologist.

Thank you for your reply morebarn2. I've only been on it for 6 weeks so I was hoping it would stop like other people have said about other side effects. Guess I'm not so hopeful now!

eeloe

how are you finding it 6 weeks later?

I'm not starting till the end of August, i'm incredibly anxious to get started, but i'm also not too hopeful that's it's actually going to start clearing it for me.

Gael23

eeloe wrote: »

how are you finding it 6 weeks later?

I'm not starting till the end of August, i'm incredibly anxious to get started, but i'm also not too hopeful that's it's actually going to start clearing it for me.

I had given up hope of anything working until I went to Professor Kirby. I can still hear him saying to me that the first drug you try may not be the one for you, but there is always other options.

I’m not in a great place at the moment. I’ve been having some gastric issues going back about a year. My GP said it was stress related, and to a point it was. After many more months I got him to refer me to a colorectal specialist and a colonoscopy done last Monday has shown signs of Crohns Disease.

Not only does Enbrel not work for IBD but it may potentially cause it . Waiting to see a GI consultant and luckily have an appointment with Professor Kirby in a month.

eeloe

His words to me were ‘you have it bad, but don’t worry, I will clear it for you and keep it away’

When he explained Metho to me he said i’d expect to be on it for a year...hopefully I won’t be!

Hope your diagnosis isn’t causing you too much stress Gael.

This whole getting older and getting ailments is zero craic, is it?

Mountainsandh

Eeloe don't worry too much about the methotrexate, you know yourself, you always see the worst stuff online.

I'm on it a good few months now, lost track, could even be 6 months or a bit more ?? and it's grand.

I practically have no side effect now.
I'm still on the starter dose, we didn't increase it and we changed the way I take the folic acid (it stops/reduces side effects), I now take it 4 days a week instead of taking one big dose one day a week. It did the trick mostly and really improved on side effects.

Still a bit of a slump the day after taking it. If there are other things going on, like general tiredness, or some other health issue, I would expect proper tiredness the day after. Generally it's ok and I can function fine, and I'm better the next day and the rest of the week.

I haven't had hair loss. Maybe a slight thinning, but I'm not really sure tbh, maybe it's just me imagining it, my family say they don't think my hair looks any different.

I do heal slower, and have an increased risk of infection, I definitely see that, but I haven't had to rush to A&E for anything either ! But I had a problem with a toenail there this holiday, and it bloody lasted 3 weeks until it started healing ! Not a huge deal, but you'll find yourself being a little more careful about every day little cuts or grazes.

I feel my dose is too low tbh, as I still have some stiffness and fatigue after activity, and some plaques have creeped up again. But not many !

I was mostly interested in getting my life back from crippling pains and unrelenting fatigue and stiffness, and I would say that it's a 60-80 % improvement on how I was before for me.

It's worth it in my book !

eeloe

Thanks for the reply.

I told Prof.Kirby i’m aiming to get 100% clearance, so hopefully he won’t have me on this too long before moving me on to something else.

I can’t compete at my favourite sport until this is completely gone, because open wounds aren’t allowed at the events, and they class P as a wound, so I need it gone.

The more i’m thinking, I might have a touch of PA also, but I do a lot of training too, so I could just be generally stuff from the gym, it’s really hard to know!

Calmcookie84

I have had a bad flare up in the last week. I normally only have P on my scalp and my eyelids, but now it is from the tops of my thighs to my feet, my back and across my abdomen. My GP started me on Enstilar yesterday. It has made my thighs even more itchy than before I started. Does anyone know when I should start seeing results?

eeloe

Topicals(enstilar and other creams) never actually gave me clearance, they literally only removed the flaking for me, so i was always left with the red plaques.

How long have you been using the Enstilar? if you're finding it really itchy, particularly at night time, my GP advised me to use Phenergan anti-histamine just before bed, 10ml of it, and you sleep like a baby, basically knocks you out cold so you can't scratch it in your sleep, i find if i don't scratch it in my sleep, it's not itchy the next day....which aids in the healing.

It's no joke on the feet, i thought i just had really dry feet from getting mat burns at training, turns out my soles are covered in P.