wonga77 wrote: » I wish it were that simple, a strict no wheat gluten free diet for well over a year made zero difference to my psoriasis. You keep on beating that drum though...
wonga77 wrote: » The only thing which has ever made any significant change for me, apart from dovenex and a few other topical ointments, is the sun. Unfortunately I havent been on a sun holiday for a few years now and our summers are very hit and miss
fighterman wrote: » Aware that it isn't going to work for 100% of people. The drum I'm beating is that when someone presents to a GP , the default response should be 1) please try an elimination diet for 3 weeks and/or 2) we will take a blood test and do Cyrex lab testing for gluten intolerance. If after 1) no improvement 2) negative then at least you can say well it isn't diet related. But right now as a rule neither happens when someone presents to an irish gp. Instead the patient is given by and large useless topical creams and shampoos and the patient goes on a mini tour of irish hospitals and dermatology units without ever getting closer to a cure. .There's a huge amount of posts on this forum along those lines. Jungle tribes don't suffer with seb derm, psoriasis, keratosis, vasculitis. They also have simple diets. 2+2=4. I don't believe in the majority of cases the issue is stress, weather, tiredness anything like that. But dietary issues should be ruled out first of all. That's the drum I'm beating
Shoneen wrote: » Well I finally got to see a dermatologist today and they agreed that I was well beyond topical steroids. They seem to be of the view that methotrexate is the way their going to go with me but I had to do a series of blood tests first to confirm I'm okay to go on that treatment. Obviously the thing that stands out about using methotrexate is the no alcohol rule. I'm really not a big drinker - primarily because I have practically zero social life these days - but I do enjoy having a couple glasses of wine at the weekend when we finally get the kids to bed. I don't mind going without wine most of the time but I do mind the prospect of not having the option. Anyway is anyone here on methotrexate and whats the experience been like (apart from sober)?
Mountainsandh wrote: » Do you have any links to studies about jungle tribes' health ? Not being difficult, I'd be genuinely interested, will do a search myself in a sec. If we assume in a general manner that yes, a lot of tribes do not suffer from such ailments, then another point to consider is simply ... genetics. Maybe we are just unlucky that our genetic pool is likely to be the cause of our caucasian ailments, just like other weaknesses in other nations can be traced to ancestors' DNA.
fighterman wrote: » Why no discussion of an elimination diet? I'm not going to waver from my view that this should be the default response for ALL skin conditions.
fighterman wrote: » A guy called Weston Price is your resource here. Totally disagree on your gene pool assertion. We are suffering a health epidemic as a result of the consumption of a strain of wheat protein which should have never been deemed fit for human consumption. In 30-40 years time, it's possible that that generation will look on us and our mass consumption of gluten in the same way we look back in pity at smoking in the 1950s and 1960s
Stephen Barrett, writing on the Quackwatch website, dismissed holistic dentistry and much of Price's research, writing "Price made a whirlwind tour of primitive areas, examined the natives superficially, and jumped to simplistic conclusions. While extolling their health, he ignored their short life expectancy and high rates of infant mortality, endemic diseases, and malnutrition. While praising their diets for not producing cavities, he ignored the fact that malnourished people don't usually get many cavities."
wonga77 wrote: » https://en.wikipedia.org/wiki/Weston_A._Price_Foundation The foundation has been criticized by the U.S. Food and Drug Administration (FDA) for its advocacy of drinking raw milk and by Joel Fuhrman, MD for its advocacy of the health benefits of animal-based fats. John Robbins has written a critique in which he reviews the history of the Weston Price Foundation and provides evidence that Weston Price had recommended a vegetarian and dairy diet to his own family members as the healthiest diet. The foundation has cited Price to the effect that he did not recommend a vegetarian diet. The anti-vegetarian and anti-soy views of the foundation have also been criticized as "myths" in several publications. Joel Fuhrman has written a series of articles entitled "The truth about the Weston Price Foundation" in which he argues the Foundation is a purveyor of "nutritional myths", largely because they have failed to update their recommendations in light of contradictory evidence. Quackwatch describes the Foundation as promoting "questionable dietary strategies" and Price's core assumptions as contrary to contemporary medical understanding.
Shoneen wrote: » Anyway is anyone here on methotrexate and whats the experience been like (apart from sober)?
Gael23 wrote: » I personally wouldn't take methotrexate because of the potential side effects but that's just how I feel.
ibarelycare wrote: » fighterman just because something worked for you, it doesn't mean it will work for others. That's one of the many unfortunate things about psoriasis...everyone reacts differently to different treatments. I've been on methotrexate for about 8 years and the positives far outweigh the negatives IME. My doctor told me if I drink at weekends, then take it in the middle of the week. So I've always taken it on a Tuesday/Wednesday. I still have a perfectly normal social life and drink once or twice a week. I'm more susceptible to colds, and have had the flu twice in the last few years (having never had it before in my life). My eyesight has also disimproved, which I feel could a side effect (I've read that it can be) but my doctor thinks not. I wear glasses anyway so it's not a big deal. I suffer from psoriatic arthritis and my psoriasis is completely under control 90% of the time as a result of my medication (I'm on Humira as well). When I do get flare ups they're very mild. You have to be very careful not to get pregnant if you're on methotrexate as it can cause birth defects. Luckily I don't want to have children, but if I did I'd be very torn on what to do. You have to be off methotrexate for 6 months before even trying to get pregnant, and obviously cannot go back on it until after you have given birth. Two years off methotrexate would likely leave me unable to walk/work etc. I'd have no quality of life.
fionny wrote: » Which? Dithrocream has been VERY effective for me personally, and its cheap and perscription free if got from the UK. Coal Tar worked in the past for me but is messy, stains (dithrocream can too but I havent found it bad) and some people cant abide the smell.
mayobumblebee wrote: » After an amazing 4 year clear spell I'm now dealing with psoriasis again . No changes in life other than a bit more stress. Just wanted to post where someone might understand the frustration. Starting to receive all sorts of helpful advice on what I'm doing wrong and all the magical cures that worked for some distant friend that someone kinda knows. 😧😧😒😑
Audioslaven wrote: » Dithrocream - This worked for me as well and sorted it for me on both occasions I got it
Gael23 wrote: » I don't believe in those "magical cures". They are often expensive and simply don't work.
adocholiday wrote: » Can dithrocream be used on the scalp? I can't get any polytar shampoo anymore and the Nizoral shampoo I find is better with the tar shampoo than on it's own
Gael23 wrote: » Professor Kirby told me not to use Nizoral.
rubadub wrote: » Did he give a reason? I would presume since it contains a form of sodium lauryl sulphate, I find it bizarre that stuff like this still contains a widely recognised irritant.
mayobumblebee wrote: » Starting to receive all sorts of helpful advice on what I'm doing wrong and all the magical cures that worked for some distant friend that someone kinda knows. 😧😧😒😑
kyeev wrote: » Huh? Anyone explain that one?!
