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05-03-2007, 00:26   #1
shore
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Ibs

I'm wondering if anyone else here is suffering from IBS - Irratible Bowel Syndromne and how they find it in their daily life? I have been suffering with this for over five years now and Doctors have not been helpful at all to me. I am a mother with 3 children and I work full time hence find it stressful as you can imagine. I am not asking for medical advice I'm aware of all the facts, its just it seems to be that the general attitude from people is that it is a made up conditions, believe me it isnt and I know all about the pain to prove it.

Has anyone else had this problem /experience?
 
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05-03-2007, 10:17   #2
Talliesin
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Maybe see what people think in the Long Term Illness forum.
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05-03-2007, 10:28   #3
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Yeah, cheers Tal. Moved from PI.
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05-03-2007, 21:57   #4
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If you pm me I can talk to you about this.
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06-03-2007, 00:51   #5
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Originally Posted by metrovelvet
If you pm me I can talk to you about this.
Likewise
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15-03-2007, 12:00   #6
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Ihave IBS , and the doctors have been really unhelpful. They have given me medication which worked for a few weeks, but 2years on Im still. Now I get replies like 'cut down stress' but no advice on how do to so. ( I also have stress related ecsema) I have found cutting out dairy and wheat helps, and I always feel better when Ive done a bit of excercise. I feel there is a stigma around it..a kind of everyone suffers from that cause its the new buzz word attitude
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15-03-2007, 17:01   #7
metrovelvet
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Cutting down on stress is crucial because stress compromsises your immunity. You need to see a very good GI and a dietician to suss out your food allergies.

Gluten is a common one. If your finding dairy a problem then you are probably lactose intolerant. Frucose intolerance can also cause it.

From what I undesterstand, the small intestine cant break the carbs down properly so all these symptoms flare up.

Last edited by metrovelvet; 15-03-2007 at 17:10.
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15-03-2007, 17:10   #8
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I have Ulcerative Colitis which is a little more severe than IBS (its actually IBD) but less so than Crohns. Or i should say i "had" as i pretty much healed it.
Diet is the key, find out whats not working for you and eliminate it.
When i got out of hospital i got rid of everthing bad and built it back. As in no sweets, no fatty foods, no caffeine etc.
I even went veggie for a while.

I can now eat most stuff again.
Main things to look out for is: (for me)
1) Red meat! Avoid beef/lamb etc (except for a bite of a steak to taste )
2) Caffeine (avoid completely) decaf tea is fine, decaf coffe is NOT fine as coffee itself is a laxative.

These 2 ended up being the worst offenders and i have not needed drugs in years.
Anyway three weeks in hospital makes you very focused to make sure you do not go back.

Oh one more thing... when you are sick your GP loves to dish out anti-biotics... do NOT take them unless you have no other choice... these kill the good bacteria in your bowel and can bring on an attack.
Make sure you drink plenty of probiotics etc if you have to take anti-biotics.

Last edited by Saruman; 15-03-2007 at 17:15.
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15-03-2007, 17:22   #9
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could that come back at any time, or is it's something that stays gone? after a while could you eat what you like?
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15-03-2007, 17:47   #10
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I was diagnosed with Crohn's at the end of last September. I was in Hospital for 2 weeks. When I got out Ion the 4th Oct, I lasted until the 18th so I had to go back in for another 2 weeks.

I found it quite hard to accept the fact that their is no cure and that I'm on long-term medication.

I'm in 5th year, so I missed a tonne of work and I'm trying to get back up to speed etc.

The foods I find myself avoiding are:
Brown Bread, scones etc.
Milk
Shepards pie (Bizzare, Just something in it doesn't agree with me)
Chicken Kiev
Tea (with milk)
Spicy food (Hot currys, kebabs etc,)

I only drink water now, nothing else. I saw a new type of milk out called "Lactofree Milk" or something like that. It's for people who are Latose intolerant (Most cronh's sufferers are), there is only 0.5% lactose in it and it's supposed to be like normal milk but jut for us type. I might try it at the weekend, I havn't been able to have cereal for months!
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15-03-2007, 21:23   #11
dame
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Shore, since you didn't want to log in and pm I'll give a reply here.

Yes it can be seen as a made-up condition. My doctor didn't believe there was anything wrong with me and asked me was I depressed (no), then gave me Colpermin (peppermint crap) to take for a few months but it did nothing for me and I wasn't taken seriously until one day I started passing blood (particularly stressful time). They did tests a couple of months later and told me I have IBS. To be honest that was a huge relief. I know someone with Crohn's disease and that is something I wouldn't wish on anyone.

The worrying about getting cramps, diarhoeia and needing the toilet in a hurry had been putting a hold on my life and worrying about it only made it worse. It has improved a huge lot in the last year, mainly because I've been avoiding things like milk (major culprit, far from the only one), but also I think because I know there's no serious disease and that it will pass if I sit it out. I used to stay at home some days rather than face the commute with cramps and diarhoeia but I can honestly say I haven't missed a day since Christmas and very few for months before that.

All stress can't be avoided but if you at least stop worrying about the IBS itself then that's something. Try and get yourself into the mindset of what will be willl be and let go of things you have no control over. By the way I'm also a mother and work full-time. I stopped worrying whether the house was in show-house condition and that helped also. It's hard to switch off and let go of things but you really should try. There are always changes you can make.
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15-03-2007, 21:58   #12
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Chrons and UC are IBD which differs from IBS though they are all auto immune issues.

UC and Chrons are in a whole different leage from IBS [I used to have UC -now I have IBS reactions to certain sugars] and require meds and sometimes hospitalisation depending on their severity.

You need a good gastro internist and a dietician. Dont let these doctors not take you seriously.

You need to be persistent and find out what makes your allergies flare up, because essentially thats what IBS is a food allergy.
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10-04-2007, 18:04   #13
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I was diagnosed with IBS last November, since then I’ve been back to the doctor 5 times. I was prescribed two different types of anti-spasm tablets, neither worked, a high fiber drink that made me feel worse, the forth time my doctor wrote a script for a anti-spasm drug that he claimed I wasn't on before when I actually had been, the next time he gave me nothing but asked me if I wanted deferral to a specialist. Each time he asked me was I stressed, I'm not at all and told him so.

I seen that specialist today, told him everything that was going on, the spasms, the nausea, the loss of appetite, the diarrhoea, the tiredness, the excess wind. He said well it sounds like IBS, he asked me was I stressed, I said no, I’m not stressed at all. He then said that there was two options, we can do nothing (!) or I can send you for an examination of the back passage. I opted for the latter. I asked him to give me some advice on how to deal with it and for example what foods should I avoid. He replied that foods don't trigger IBS.

So that’s it, I have to put up with this and no-one can give me advice on how I should deal with it. If my doctor and the specialist are so convinced its stress, you'd think they'd offer some tips on how to avoid stress. Nothing like this has been mentioned.

I have no idea when the symptoms will stop and I can start to feel normal again. To say its annoying would be an understatement.
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12-04-2007, 01:50   #14
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Quote:
Originally Posted by biZrb
I was diagnosed with IBS last November, since then I’ve been back to the doctor 5 times. I was prescribed two different types of anti-spasm tablets, neither worked, a high fiber drink that made me feel worse, the forth time my doctor wrote a script for a anti-spasm drug that he claimed I wasn't on before when I actually had been, the next time he gave me nothing but asked me if I wanted deferral to a specialist. Each time he asked me was I stressed, I'm not at all and told him so.

I seen that specialist today, told him everything that was going on, the spasms, the nausea, the loss of appetite, the diarrhoea, the tiredness, the excess wind. He said well it sounds like IBS, he asked me was I stressed, I said no, I’m not stressed at all. He then said that there was two options, we can do nothing (!) or I can send you for an examination of the back passage. I opted for the latter. I asked him to give me some advice on how to deal with it and for example what foods should I avoid. He replied that foods don't trigger IBS.

So that’s it, I have to put up with this and no-one can give me advice on how I should deal with it. If my doctor and the specialist are so convinced its stress, you'd think they'd offer some tips on how to avoid stress. Nothing like this has been mentioned.

I have no idea when the symptoms will stop and I can start to feel normal again. To say its annoying would be an understatement.
Been through the same rigmarole with my 10yr old son. Nobody seems to know what to do. After several visits to GP I wrote a pleasant but firm letter to the GP expressing my serious concerns with my son's health. Got sent to specialist in local hospital. He was useless. He asked me to keep a food/pain/bowel movement diary for a fortnight. Did this, it filled a copybook. When I presented this to him it wasn't good enough for him, as he wanted comments for each heading on the same page whereas we kept a separate section for each. He didn't even look at it! Well he did, long enough to make his criticism. He promised to organise a visit to the "top specialist in Ireland", in Northern Ireland. Waited for appointment, but got a call apologising that this cannot proceed as he has stopped seeing patients from the south. Got promised an appointment with a specialist in Dublin. Again, cancelled. It was deemed unnecessary by him and he suggested a diary free diet instead as a trial. My son spent a few days in hospital after being admitted to casualty one night when in severe pain (doubled up and unable to straighten). Nothing happened, except one cancelled visit from a dietician.

Several requests for an internal examination have been refused, as this deemed too invasive for a person of his age. Bowel cancer and UC are prevalent in the family.

The problem has caused my son to become depressed. He has suffered since the age of 3.

Now what? Nothing it looks like.
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12-04-2007, 13:48   #15
biZrb
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Jesus Shayser thats awful, your son has had problems for 7 years and no one can help. Hes 10 he shouldn't be upset like this at his age, its truly disgraceful.

You wrote that you've made sugestions to specialists about your son undertaking a bowel examination It might shed some light on the issue especially since you have a family history of bowel problems. I honestly can't believe they won't do it. I know your son is young but hes been sick most of his life, he probably forgotton what it feels like to be 'normal'. Surley this should be taken into consideration and an exception made. Its an absolute joke.

If you want the contact info of my specialist i can give it to you. Although he wasn't very nice, so im not sure if he'll be any help.

Has your son been tested for Chrons and Celiac disease?
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