Anyone experienced the regrown brain tumor ?

If or when, and how quickly a brain tumour regrows after surgery can depend partly or entirely on what type of tumour it is, where it is growing, how lucky/unlucky you are & about a thousand other things. It can be completely random.

I'm 33 now, diagnosed with a craniopharyngioma brain tumour & first had surgery when I was 10. In total I've had brain surgery for tumour removal/debulking & related problems 10 times. The longest gap between surgeries was just over 8 years, the shortest was about 8 months. I had radiotherapy in 1996 & they're talking about doing it again whenever the tumour starts to become a problem again. This type of tumour is benign, not likely to directly cause death by itself & is not cancerous.

I don't mean to frighten you with this story, just to show that tumour regrowth happens but it's not always the end of the road, and that not all of these tumours are cancerous.

When you see or talk to the doctors, ask questions about anything you are not sure of or don't understand. If you find you can't think of any questions to ask when you get in there, write them down together in the days before your appointment. When you're talking with the doctors, especially about a serious subject such as this, it can be easy to drift in-and-out or focus only on certain parts of what they are telling you, or feel overwhelmed by bad news & big words. This is completely normal. Make sure while talking to the doctors that you are not alone, or if you find you can't remember or don't understand what they said, ask if a nurse could join you for the meeting. Having a nurse sit in on doctors appointments with my parents when I was a child always helped them a lot. The nurse was not so easily distracted & was able to guide my parents through what the doctor was saying & they always said in the years afterwards that during the initial shock around the time of my first surgery this helped greatly.

Be positive!