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thyroid misery

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Comments

  • Registered Users, Registered Users 2 Posts: 5,391 ✭✭✭jozi


    Yeah that's what he told me to. Are there any immediate noticeable side effects like feeling I'll or nausea? I'll have to change my morning routine slightly, 30 mins before food doesn't work for me at the min when I'm usually eating 15 mins after getting up and showered.


  • Closed Accounts Posts: 23,646 ✭✭✭✭qo2cj1dsne8y4k


    What I do is bring them to bed with me, they're on my bedside locker. My phone goes off, I turn my alarm off. I take my tablets. I look on Facebook, get up, jump into the shower, get dried off and dressed and then it's time for breakfast.

    There was no ill effects for me. You don't feel any different at all straight away, at least I didn't. Mine got a lot worse and then I was nauseous and ill and vomitting so if that happens to you, it's prob an indication to get yourself checked


  • Registered Users Posts: 40 Rosie1983


    Hi all. Been a while since I've been on here. My old endo retired in January and have been to see my new one twice this year. But unfortunately my blood tests have swung quite HYPO again since March. My TSH was nearly at 0 in March, so I reduced my dose of Erfa from 75 to 60 a day. Had the bloods done again a month ago and now it's up to 9. Feel really frustrated as I am 33 now and would like to be able to start thinking about conceiving within the next year or so. Haven't got the antibodies test results back but according to the last ones from last year, I have Hashimotos. I think this is odd, as I didn't have enough antibodies to qualify as having Hashimotos when I first diagnosed in 2011. So confusing...

    Has anyone tried Erfa and then switched to something else? I'm not interested in going back in Eltroxin. Have given up gluten as of last week and am going to get the best ceramic fluoride water filter I can find. My new landlords are happy for us to get it installed - thankfully! Really not sure what else I can try at this stage! Had my cortisol tested last time I had bloods done and it's fine apparently. Pretty sure that stress and adrenal fatigue is what brought this on in the first place 5-7 years ago. My overall stress levels are MUCh better now.

    Despite all of this, I'm actually feeling ok, especially compared to how I've felt in the past. But I'm really convinced that my thyroid is preventing me from losing weight, as I eat really, really well most of the time and have put ON weight in the past year! So frustrating! I seem to be stuck up near the 14 stone mark. I used to always be about 11 stone, give or take. I am nearly 5'10", so that was a really good weight for me.

    What exercise have you found works best? I used to run, but ended up hurting my hip and now I'm thinking maybe I should be doing shorter, more intense exercise like HIIT or even bodyweight stuff. Not sure where to start...


  • Registered Users Posts: 40 Rosie1983


    jozi wrote: »
    Yeah that's what he told me to. Are there any immediate noticeable side effects like feeling I'll or nausea? I'll have to change my morning routine slightly, 30 mins before food doesn't work for me at the min when I'm usually eating 15 mins after getting up and showered.


    Hi there. You should expect to feel less tired and your digestion might speed up as well. When I first went on Eltroxin, I felt a huge boost in energy and I lost about 10 pounds over the first 6 weeks or so. Not sure if weight is a problem for you, sorry I haven't read all of your posts yet. Will go back now...

    I was diagnosed with an under-active thyroid about 5 years ago and put on Eltroxin. Unfortunately even with Eltroxin and supplements to support my thyroid, I couldn't keep my thyroid levels in the so-called normal range so after 2 years I went on to a "natural" form of thyroid hormones called Erfa Thyroid. Apparently I am one of the rare people who can't get their thyroid levels balanced. Even both my endocrinologists have told me that I am very unusual in that mine keeps swinging hypo and then hyper every year. But most people feel a lot better after a year or so of treatment so don't expect yours to be like mine! Please try not to worry about it - I know easier said than done!

    I don't know if this is the kind of advice you are looking for, but I can only speak for myself. If I was going back to when I was put on Eltroxin, I would NOT go on it straight away. Mainly because once you start taking thyroid hormones, it is much more difficult to ever come off them. I'm sure a lot of people on here would disagree with me and this is NOT medical advice - just personal experience. I would try and find out WHY your thyroid is under-active first before starting any medication. Of course if you are really suffering fatigue, depression, slow digestion, brain fog, period problems, I totally understand why you would want to find a treatment that will help. But I just wish I had tried to sort mine out naturally first to see if that worked. Now I'll never know if I could have restored mine to health with diet/nutrition/natural remedies. Stress can play a huge role. Best of luck with it all - it's very frustrating at times but you won't always feel this tired! :)


    ps Mary Shomon is a brilliant thyroid advocate and runs a website that has tons of info to get you started:

    https://www.verywell.com/thyroid-4014636


  • Closed Accounts Posts: 364 ✭✭lovelystuff


    I haven't posted in a while as I've had the same old cycle of feel ok for a while, then feel crap then get my eltroxon upped then feel ok again for a while. It's been four years now so I'm hoping things will even out soon! My tsh has skyrocketed in the last three months so I'm feeling atrocious at the minute. I always feel better when I post here as I know you guys understand :)


  • Registered Users, Registered Users 2 Posts: 1,510 ✭✭✭hadepsx


    Type 1 diabetic here. Recently put on 150 mg eltroxcin as I was feeling terrible.that was 2 months ago. Its only made a slight change in my overall wellbeing. Still cant loose weight either. I got more bloods last week and asked them to check antibodies. They came back today and nurse said antibodies were high but as im on eltroxcin they wont be treating high antibodies. Does this sound right. Dont ask me for exact numbers as ive forgotten what was said. Can I request blood results and are they free? Thanks all


  • Registered Users Posts: 52 ✭✭Brioscai


    Antibody tests (presumably Hashimotos?) are not free, nor are they standard. There is a 30euro charge for bloods for TSH, T3, T4 with the GPs nurse.


  • Closed Accounts Posts: 4,030 ✭✭✭njs030


    Brioscai wrote: »
    Antibody tests (presumably Hashimotos?) are not free, nor are they standard. There is a 30euro charge for bloods for TSH, T3, T4 with the GPs nurse.

    I think she meant results of tests already done in which case there shouldn't be a charge.


  • Moderators, Society & Culture Moderators Posts: 32,285 Mod ✭✭✭✭The_Conductor


    Brioscai wrote: »
    Antibody tests (presumably Hashimotos?) are not free, nor are they standard. There is a 30euro charge for bloods for TSH, T3, T4 with the GPs nurse.

    Depends on the GPs surgery- ours charges a standard 50 Euro with the GP's nurse for blood tests. Its definitely not free.


  • Registered Users, Registered Users 2 Posts: 2,131 ✭✭✭RentDayBlues


    Yes, you are entitled to all your medical notes. I always ask on the phone for the exact results and if I don't agree with the nurse/doctord opinion, I challenge it. After all, it's my health


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  • Registered Users, Registered Users 2 Posts: 2,131 ✭✭✭RentDayBlues


    As to your question on not treating antibodies, this does seem strange. I think you should speak to your gp and if you feel you need it then an endocrinologist


  • Registered Users, Registered Users 2 Posts: 1,510 ✭✭✭hadepsx


    Sorry for any misunderstanding. Yes I mean a print off of recent bloods. Called reception and they confirmed they are free. So ill post em up here tomorrow when I get them. Get your opinion of them. My gp that was helping me out has gone on maternity leave so im stuck with her substitute. I'll be pushing for something to be done about the high antibodies. Thanks all.


  • Registered Users, Registered Users 2 Posts: 1,510 ✭✭✭hadepsx


    So here's the results.I'll put them all up as don't know what valid or not in this case.ranges in ( ) In may: vitamin b12 545. (197_771).Folate 11.6, (4.6_18.7) Ferritin 284,(30_400). Urea electrolytes creatinine , urea 3.8,(2.5_7.8).sodium 138,(135_145).potussium 4.4,(3.5_5.3)creatinine 71,(62_106). TSH 5.930,(0.27_4.2). Free thyroxine 12.8,(12_22). Free t3 5.4,(3.1_6.8).

    . . In July: roche anti tpo *179,(0_34).TSH 2.430,(0.27_4.2). Free thyroxine 14.9,(12_22). Free t3 4.7,(3.1_6.8), then on last page it says another roche anti tpo of *184,(0_34).

    So ranges are in the brackets. From/to.

    So I don't know what these mean really so any advice would be great. Thanks


  • Registered Users, Registered Users 2 Posts: 2,131 ✭✭✭RentDayBlues


    hadepsx wrote: »
    So here's the results.I'll put them all up as don't know what valid or not in this case. In may: vitamin b12 545. Folate 11.6. Ferritin 284. Urea electrolytes creatinine , urea 3.8.sodium 138.potussium 4.4, creatinine 71. TSH 5.930. Free thyroxine 12.8. Free t3 5.4

    . . In July: roche anti tpo *179. TSH 2.430. Free thyroxine 14.9. Free t3 4.7. , then on last page it says another roche anti tpo of *184.

    So I don't know what these mean really so any advice would be great. Thanks

    I wouldn't be worried about the tpo's, those are very low in the range. Mine ate always in the 1000's even when I feel good


  • Registered Users Posts: 3,161 ✭✭✭Amazingfun


    hadepsx wrote: »
    So here's the results.I'll put them all up as don't know what valid or not in this case. In may: vitamin b12 545. Folate 11.6. Ferritin 284. Urea electrolytes creatinine , urea 3.8.sodium 138.potussium 4.4, creatinine 71. TSH 5.930. Free thyroxine 12.8. Free t3 5.4

    . . In July: roche anti tpo *179. TSH 2.430. Free thyroxine 14.9. Free t3 4.7. , then on last page it says another roche anti tpo of *184.

    So I don't know what these mean really so any advice would be great. Thanks

    I would encourage you to join the FTPO groups on Facebook. The gals there are brilliant at "reading labs".

    https://www.facebook.com/groups/FTPOUKandEurope/


    Also, some of us don't do well on Eltroxin (synthroid in the US) , I know I didn't. Getting on NDT changed my experience completely :)

    Good read here:
    http://www.stopthethyroidmadness.com/t4-only-meds-dont-work/

    Best of luck!

    PS: you need to post the ranges when you post your lab results. They should be on the results as well.


  • Registered Users, Registered Users 2 Posts: 1,510 ✭✭✭hadepsx


    I'll post ranges tomorrow, thanks


  • Registered Users, Registered Users 2 Posts: 1,510 ✭✭✭hadepsx


    hadepsx wrote: »
    So here's the results.I'll put them all up as don't know what valid or not in this case.ranges in ( ) In may: vitamin b12 545. (197_771).Folate 11.6, (4.6_18.7) Ferritin 284,(30_400). Urea electrolytes creatinine , urea 3.8,(2.5_7.8).sodium 138,(135_145).potussium 4.4,(3.5_5.3)creatinine 71,(62_106). TSH 5.930,(0.27_4.2). Free thyroxine 12.8,(12_22). Free t3 5.4,(3.1_6.8).

    . . In July: roche anti tpo *179,(0_34).TSH 2.430,(0.27_4.2). Free thyroxine 14.9,(12_22). Free t3 4.7,(3.1_6.8), then on last page it says another roche anti tpo of *184,(0_34).

    So ranges are in the brackets. From/to.

    So I don't know what these mean really so any advice would be great. Thanks

    Heres the ranges added into original text. Pm me if you wish.


  • Registered Users, Registered Users 2 Posts: 2,881 ✭✭✭Kurtosis


    Mod note

    Just a gentle reminder folks that medical advice (i.e. offering diagnoses, advising on medication taking) isn't permitted on boards, but sharing experiences or general discussion are all good.

    A reason for this is something like lab values are dependent on the context in terms of individual patient factors and the ranges for the lab that did the testing.

    Any queries feel free to drop a PM to the mods, thank you.


  • Registered Users, Registered Users 2 Posts: 1,151 ✭✭✭Irishchick


    Just wondering. Does anyone with hypothyroidism find their throat is constantly dry? It's been driving me loopy the past few days. Constantly coughing and trouble swallowing.


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  • Registered Users, Registered Users 2 Posts: 1,882 ✭✭✭Rattlehead_ie


    I have hypo, but I don't suffer from that. I am prone to it though due to allergies (hayfever) which this week has kicked off in vengeance.


  • Registered Users, Registered Users 2 Posts: 1,151 ✭✭✭Irishchick


    I have hypo, but I don't suffer from that. I am prone to it though due to allergies (hayfever) which this week has kicked off in vengeance.

    Allergies are the one thing I don't have. I just looked it up. Apparently hoarseness is common in hypo -_-


  • Registered Users, Registered Users 2 Posts: 2,131 ✭✭✭RentDayBlues


    Hoarseness is my sign I'm run down, a lack of sleep will lead to losing my voice! And a sign to get bloods done


  • Registered Users Posts: 57 ✭✭goldjogger


    Hello, I am interested to hear yer views, Today I have been diagnosed with having an underactive thyroid and to take 100mg of eltroxin. I had a baby 7 months ago and recently gave up breastfeeding, i cant help but think that my low thyroid levels is hormone related from pregnancy and breastfeeding. the doc wants me to go back in a months time to check my levels.

    part of me wants to do a total lifestyle change for the month and prove that i dont need to be on eltroxin for life. My gut feeling is that its pregnancy related and that it will regulate itself or am I living in denial? Is it possible for my levels to go back to normal? Also, if I start eltroxin can you ever come off it?

    I feel that no other option was given to me and it was just the most normal thing to diagnose me with and hand me the prescription.

    would i be crazy to not take the medication for a month and see how I am?


  • Registered Users, Registered Users 2 Posts: 3,251 ✭✭✭cyning


    Post partum thyroiditis is where your thyroid levels fluctuate usually within a year of giving birth. You need to take your meds but you won't necessarily be on them forever. They will do bloods and if you show signs of going overactive they will take you off them. But if you are under active even temporarily you need to take your meds.


  • Closed Accounts Posts: 23,646 ✭✭✭✭qo2cj1dsne8y4k


    Did he put you on 100mcg straight off the bat?


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  • Closed Accounts Posts: 23,646 ✭✭✭✭qo2cj1dsne8y4k


    goldjogger wrote: »
    would i be crazy to not take the medication for a month and see how I am?

    Quite frankly it would be foolish. For your doctor to put you straight away on 100mcg, your levels must have been hypo enough.
    I was a person diagnosed with hypo years ago and I didn't really take it seriously. I was on 50mcg for the past say 8 months. All of a sudden I started to feel a bit unwell. Not even unwell, but not myself at all. Tired, smells making me sick, boobs sore, certain foods making me vomit, going off my food completely, no periods. I was certain I was pregnant, but tests I done were neg. tests my dr done were neg and eventually the hospital preg tests, also neg.

    Then I got a bad dose. felt like my sinus, constant drip into my throat. I got really ill, and even when the symptoms of that "infection" disappeared, I was so unwell. I couldn't eat. I couldn't even smell food. My head was foggy. I constantly felt like I was going to collapse. The final straw was sitting on a bus on the way home from work, and I honestly didn't think I was going to make it to my stop (10 mins away). I went to the dr that night who couldn't find anything at all wrong with me. Told me it was probably heartburn and sent me home. It was a Friday night and I went home bawling my eyes out because he made me feel like I had imagined it, and I was questioning if it was all in my head.

    That Monday, my partner had enough of listening to me and he came with me to my own GP. I told her how sick id been, how I felt, and how nobody was listening or taking it seriously. In the space of 3 weeks I had been to see 3 doctors. She listened, said it could be my gallbladder or I could be coeliac. We needed blood tests for that. She said while I was there we might as well do my thyroid as I hadn't had my bloods done for a while. She told me she'd call me in a few days re;gallbladder and coeliac as they came back very fast but as thyroid had to go to a different lab to be tested that would be at least a week.

    The next day I missed a call from her. I rang back and the receptionst put me straight through to the dr (they never do that) so I knew there was something. The lab had called her with my thyroid results. They were freaking out because it was off the scale high (347, I think the very highest it should be is 5) my doctor had never seen it before and had called ahead to an endocronology unit in another county. They told her I needed to go straight in. I was in profound hypothyroidism/myxodema state. She told me on the phone (about 4:30) to go straight to hospital. I thought I could go in the morning, I mean surely the units would be closed. "No, you need to go this evening,".


    I won't bore you with the Ins and outs, but I eventually had to see an endocronologist. She tested me for every single thing you can think of. She told me I can't have kids right now as my condition would leave the foetus unable to develop its brain. The prolactin tests came back INSANE too, so i doubt I can even concieve right now.

    Slowly but surely it's getting better and its certainly going in the right direction. I have my bloods done monthly and monthly consultations with my endocronologist, but I would not wish that experience on anybody.


    When I was diagnosed I didn't believe it was that serious. I believed "hypothyroid" was just an excuse for fat people and didn't really have a lot of impact on someone. To me it was something as insignificant as a cut on my leg or something, something I had but didn't impact me too much. Boy - how wrong was I!

    Don't neglect it. Listen to your doctor, and if you're not happy get a referral to an endocronologist. Ignoring it won't help, and seems to cause a lot bigger problems in the long term.


  • Registered Users, Registered Users 2 Posts: 103 ✭✭fighterman


    https://chriskresser.com/the-gluten-thyroid-connection/

    In many cases thyroid problems are an undiagnosed gluten intolerance issue . Currently no testing available in Ireland for gluten intolerance available (Cyrex labs in the UK do testing , which you could do via a home test kit) . The best approach is to go cold turkey and completely remove gluten from the diet for a few weeks and see if symptoms improved.

    Here's a guide below to how to go about it and get over the first few days withdrawal symptoms

    http://www.wheatbellyblog.com/2011/10/wheat-belly-quick-and-dirty/


  • Registered Users, Registered Users 2 Posts: 3,251 ✭✭✭cyning


    fighterman wrote: »
    https://chriskresser.com/the-gluten-thyroid-connection/

    In many cases thyroid problems are an undiagnosed gluten intolerance issue . Currently no testing available in Ireland for gluten intolerance available (Cyrex labs in the UK do testing , which you could do via a home test kit) . The best approach is to go cold turkey and completely remove gluten from the diet for a few weeks and see if symptoms improved.

    Here's a guide below to how to go about it and get over the first few days withdrawal symptoms

    http://www.wheatbellyblog.com/2011/10/wheat-belly-quick-and-dirty/

    You still would need to take tablets to ensure that you are healthy. For a woman after having a baby it's particularly important.


  • Closed Accounts Posts: 3,962 ✭✭✭r93kaey5p2izun


    I was diagnosed with Hashimotos 2 years ago. I'm on 50mcg eltroxin since. I don't even think about being hypo though - have other more serious health problems so don't really take it seriously. I regularly miss my tablet too. I haven't had my bloods retested since I was diagnosed.

    For the past few months I've been feeling absolutely awful - very like you describe Lexie. I essentially have morning sickness, can't stomach anything only the plainest foods, I'm just exhausted and feel like I'm going stupid at times my mind is so foggy. My skin is gone paper thin and just unbelievably dry. I keep getting hot flushes too though I know hypo usually causes cold. For the past couple of weeks I'm experiencing a horrible feeling of pressure on my throat too.

    I think I'll ask my GP for my bloods to be done again just in case. Hopefully he'll oblige, though I'll feel like a hypochondriac asking - I always have such vague symptoms. I never really considered it might be my thyroid tbh.


  • Closed Accounts Posts: 23,646 ✭✭✭✭qo2cj1dsne8y4k


    I know they say hypo is always cold but when mine was that bad I could not beat heat on me. You need to have it reassessed. My dr told me that a very short time longer I could have went into a coma so it is serious and it's only since May I realised.


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  • Closed Accounts Posts: 4,030 ✭✭✭njs030


    Really struggling to get my meds balanced. They've pushed me slightly over into hyper now and combined with the meds I take for migraines I'm losing weight crazy fast (just under 2 stone in 6 weeks).

    Doc said its only very slightly (0.23) so she's gonna leave my eltroxin alone for now and reassess in 6 weeks but does anyone have any tips on how to deal with the sweaty anxiousness? I think I prefer fat and cold :D


  • Registered Users Posts: 57 ✭✭goldjogger


    Thanks everyone for the replies.

    Yes, he has put me on eltroxin 100mg straight away, so i guess they tsh level is out of whack. the few days leading upto getting bloods taken I was on a steroid - slowly coming off it for an allergic reaction, part of me stills thinks its all connected.
    I have been in touch with a nutritionist and she advocates a 100% gluten free diet, so I have started that with the last 3 days, so far so good.
    I am going to ask doc to do more bloods when I go back in 3 weeks for a retest and ask to test for thyroid antibodies, free t3 and t4, have ye found doctors to do them for ye without a struggle?


  • Registered Users, Registered Users 2 Posts: 3,251 ✭✭✭cyning


    With post partum thyroiditis you may have no antibodies and still need treatment. It is a good idea to have them done but it's something to bear in mind. Look for your vit d to be checked too. Some hosps are very poor at checking for ft3 but there should be no problem with ft4 or TSH. I've never seen TSH done without t4.


  • Hosted Moderators Posts: 6,817 ✭✭✭jenizzle


    Any of you had lingering weight issues? I'm currently eating at a 30% deficit and weight isn't shifting at all. In saying that, at least weight gain has stopped!

    Other symptoms have reduced, this is the remaining one and it's annoying.

    Have any of you sought the help of a dietitian or did weight sort itself out once the meds were correct?


  • Registered Users, Registered Users 2 Posts: 2,131 ✭✭✭RentDayBlues


    I did use a dietician when money was plentiful, it was helpful but 2 pregnancies and eating nonsense put paid to that

    I read some interesting studies in terms of thyroid and weightloss. For me, it'll always be a real struggle. I know that I will need to work twice as hard as the average person to lose half the amount of weight they would. Slow and steady! Meds definitely help and I know when I'm working my backside off and not seeing results I get my bloods checked, if I'm slightly hypo it really slows me down which demotivates me, and the cycle continues!

    It will take some time so don't be put off with slow results


  • Hosted Moderators Posts: 6,817 ✭✭✭jenizzle


    I studied my test results today and my levels have improved a lot in the last 6 months. I have taken up a new sport and have lost some inches around my hips and waist so I guess something is happening but I guess I thought once they stabilised that there would be a more drastic drop. I'm still slightly anaemic so I'll work on that and find some patience :)


  • Closed Accounts Posts: 4,030 ✭✭✭njs030


    jenizzle wrote: »
    I studied my test results today and my levels have improved a lot in the last 6 months. I have taken up a new sport and have lost some inches around my hips and waist so I guess something is happening but I guess I thought once they stabilised that there would be a more drastic drop. I'm still slightly anaemic so I'll work on that and find some patience :)

    When they stabilise we are just the same as everyone else unfortunately, losing inches is good though!

    I have been slightly overmedicated for the last couple of months and the weight is dropping off without any effort.....2 stone in that time though my gp is keeping a close eye on the situation as I'm borderline hyperthyroid.
    It's the only positive so far :D


  • Registered Users, Registered Users 2 Posts: 2,131 ✭✭✭RentDayBlues


    jenizzle wrote: »
    I studied my test results today and my levels have improved a lot in the last 6 months. I have taken up a new sport and have lost some inches around my hips and waist so I guess something is happening but I guess I thought once they stabilised that there would be a more drastic drop. I'm still slightly anaemic so I'll work on that and find some patience :)

    When they stabilise we are just the same as everyone else unfortunately, losing inches is good though!

    I have been slightly overmedicated for the last couple of months and the weight is dropping off without any effort.....2 stone in that time though my gp is keeping a close eye on the situation as I'm borderline hyperthyroid.
    It's the only positive so far :D

    Slightly jealous, even borderline I've never experienced this symptom


  • Registered Users, Registered Users 2 Posts: 3,251 ✭✭✭cyning


    Even with being hospitalised with an overactive thyroid I was gaining weight... As a 16 year old I felt incredibly hard done by! And again as a 20 year old and so on... :D


  • Closed Accounts Posts: 4,030 ✭✭✭njs030


    cyning wrote: »
    Even with being hospitalised with an overactive thyroid I was gaining weight... As a 16 year old I felt incredibly hard done by! And again as a 20 year old and so on... :D

    Wow I feel very lucky. Tsh is 0.23 so it is very borderline!


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  • Registered Users, Registered Users 2 Posts: 274 ✭✭Rathkenny


    My TSH is being managed with my meds but I was still feeling rubbish so closer look at bloods identified Hashimoto's as the cause. Luckily my GP was away and the locum was brilliant. She recommended going gluten and dairy free. I have been doing slimming world for a long time and any loss has been very slow (0.5lb a week at best). I went dairy and gluten free 3 weeks ago and lost 0.5 stone in that time so it must have an impact!


  • Closed Accounts Posts: 23,646 ✭✭✭✭qo2cj1dsne8y4k


    Guys how do you feel when you know you're getting sick again?


  • Closed Accounts Posts: 4,030 ✭✭✭njs030


    Guys how do you feel when you know you're getting sick again?

    My warning signs are fatigue, crankiness and a serious craving for salty carbs.

    Are you starting to feel rough again?


  • Registered Users Posts: 9 EJ78


    should i know what me TSH is? should i be asking certain questions about things i can be keeping an eye on myself? im only newly diagnosed and on the meds six months. im sweating like crazy, like flood waters down my back and from my head!! im heading in for blood tests on oct 3rd for my first check since i started them.


  • Closed Accounts Posts: 4,030 ✭✭✭njs030


    EJ78 wrote: »
    should i know what me TSH is? should i be asking certain questions about things i can be keeping an eye on myself? im only newly diagnosed and on the meds six months. im sweating like crazy, like flood waters down my back and from my head!! im heading in for blood tests on oct 3rd for my first check since i started them.

    I'd suggest getting those tests immediately, that doesn't sound good.
    Tests should be every 6-8 weeks or so until you stabilise and then it's between you and your doctor.

    Most people ask to know their records, you don't have to but it helps to know what's going on, you can look up symptoms fairly easily.


  • Registered Users Posts: 9 EJ78


    i was suppose to get the blood test ages ago but i hurt my shoulder and was on a lot of painkillers then got a steroid injection so had to wait for all that to clear up before get tested. i had about three weeks of fatigue at one point, that was hell! thank god that went away.


  • Closed Accounts Posts: 4,030 ✭✭✭njs030


    EJ78 wrote: »
    i was suppose to get the blood test ages ago but i hurt my shoulder and was on a lot of painkillers then got a steroid injection so had to wait for all that to clear up before get tested. i had about three weeks of fatigue at one point, that was hell! thank god that went away.

    Did the doctor tell you to wait? Unless you're specifically told not to get them done you should do them on time or you're not going to be properly treated.
    Always check.


  • Registered Users Posts: 9 EJ78


    yeah the doctor told me to wait but then when i got the go ahead from him i went to make the appointment and there was a one month wait.


  • Closed Accounts Posts: 4,030 ✭✭✭njs030


    EJ78 wrote: »
    yeah the doctor told me to wait but then when i got the go ahead from him i went to make the appointment and there was a one month wait.


    If you're happy with that it's your choice of course but perhaps checking with another doctor would be no harm?


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  • Registered Users Posts: 988 ✭✭✭wurzlitzer


    hi everyone
    New to here, I am writing regarding my recent diagnosis of hypothyroidism my TSH was 15 and the doctors prescribed me 25mcg of eltroxin I have been on the meds almost six weeks. But in the last few weeks symptoms have got worse.

    My symptoms were in January when I initially presented after what I think was Epstein Barr virus last December. I had chronic fatigue the whole month of January, I went to the doctor and told her how it was taking two hours to get ready for work normally it took me 45 mins. I was suffering from depression. In February hair started falling out, I stopped running difficulty breathing and napping.Gaining weight, eating less by July I suffering memory loss and had problems concentrating and two bad anxiety attack aches and pains Went to doctor she put me on antidepressants the lab report came back high TSH negative for antibodies.

    On eltroxin six weeks I am now so tired that when I come home I have to nap for a few hours memory bad cold all the time, light sensitive depressed. Although no anxiety I feel worse now than I did in July. Severe itchy scalp the last two weeks also carpal tunnel syndrome comes and goes.

    Bottom line should I go to doctor soon last week in bed by six 3 out of 7 days.

    I want to got on natural drug replacement how do I go about finding a GP that prescribes it I live in cork.

    I really want to go the natural route my mum has been on eltroxin for years and her symptoms are the same as mine she sleeps every afternoon for the last twenty years and she has type one diabetes and rheumatoid arthritis, my mums mum had hypothyroidism as well diagnosed in her forties, she became obese.

    I want to go natural as I feel the eltroxin is having no effect although it's a low dose. pm me if anyone knows a doctor in cork that can prescribe cheers.

    Does the fact the antibodies were negative mean that I don't have hashimotos that the it's secondary hypothyroidism that it could be an adrenal problem

    Thanks in advance


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