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Syrnix/syringomyelia

  • 21-01-2015 9:40am
    #1
    FluffyAngel
    Closed Accounts Posts: 518 ✭✭✭


    Hi All

    I want to connect with anybody who has this condition

    I cant seem to find a whole lot of info re Irish Support groups or even Doctors who know about it ..


    i have a syrinx on the t5/t6 to toraic 11

    Any info would be great


Comments

  • #2
    rod64
    Registered Users Posts: 1 ✭rod64


    Hi.

    I also have a Syrinx @ C6/7 to T2 along with other problems at that spinal level.
    Syringomyelia is rare and not well understood by medics. They do not see SM very often in their practice....

    A syrinx is a cavity or cyst in the center of the spinal cord. It is believed by medics that a syrinx develops when there is an obstruction in the flow of the CSF. The CSF is the fluid that flows around the brain & spinal cord, when the fluid gets obstructed the fluid will follow the path of least resistance, you may think this would be out of the cord but the Dura, (Dura is the outer layer of the spinal cord) is tough like leather.
    As the syrinx develops it damages the spinal cord from the inside oute. The center of the cord carry's the sensory nerve pathways so the first signs of a problem is sensory....loss of feeling on the skin....strange sensations.
    Symptoms usually begin at or below the level of the syrinx.

    Syringomyelia is often linked with a brain malformation called Chiari Malformation, ask your Doctor about this. (Chiari is pronounced Kee Arey)

    There is a support group here in Ireland but the website is out of date.
    There is a website in the UK that gives good info, Ann Conroy Trust.org



    I hope this helps.


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