Psoriasis

My doctor never told me a day to take Mtx. He told me to take it whatever day works best for me!

ibarelycare wrote: »

My doctor never told me a day to take Mtx. He told me to take it whatever day works best for me!

That's strange, rheumy had told me the same as the GP today.

Maybe it's a new policy ?

Or maybe I just need to revert back to another GP as this is a new one and I was a bit disappointed overall at the outcome of today's visit. There seems to be little communication between services, I had been advised by bloods nurse and rheumy nurse to consult asap in that kind of situation, GP seemed surprised I should show up for anemia or a potential virus.:(



I'm always fine by the Thursday/Friday, well especially Friday after the Folic Acid I feel great, so that would sort my work problem altogether if I could change to taking it Wednesday evening. It's a bit ridiculous to impose a day like that, especially a start of the work week day.

ibarelycare wrote: »

My doctor never told me a day to take Mtx. He told me to take it whatever day works best for me!

Same here. No-one has ever told me what day to take it.
I know two other people who take it on different days.

I dont believe for one minute the story about someone needing to know when you took it, in the case of an accident. if you were in A&E after an accident, how would they know you are on MtX at all and even if they did know, would they really base a medical decision on some memo that said that everyone takes it on Mondays.

I have been to see many doctors over the years. No-one has ever asked me what day I take it, for any reason.

The Irish health system and ethics is so annoying on so many fronts. I'm so sick of being treated like an idiot. I had my son with me also, and on another issue to do with him, the GP pulled the wool over my eyes too, only this was something easily checked back at home, so now I have even more reasons to be annoyed at her.

She's definitely crossed off the list. There are 4 GPs in that practice, and the 2 female docs are now crossed off, thankfully I think the 2 male docs have a much more respectful and informative attitude.


edit : huskerdu thanks.
Yeah, I thought maybe the GP would advise on more FA as well as iron, but she didn't even. No mention of other supplements which might help either.

I'm not sure if anyone here is familiar with Jordan Peterson but he was on the Joe Rogan podcast and he mentioned how his daughter suffered from a lot of auto immune disorders - RA being one of them. She was on heaps of medication by the time she was 17 and had to have replacement hip and ankle surgery. Anyway, she took it upon herself to look at her diet and has basically rid herself of the conditions. She then talked to Jordan about his diet. He suffered from psoriasis, acid reflux, gum disease and fatigue. Within a month of the diet he was feeling much better and most if not all his conditions had cleared up.

Here is her website and the diet that Jordan was on:

https://mikhailapeterson.com/2017/09/20/jordan-petersons-diet/

For those that are interested in the diet option it might be worth a go. My wife suffers from psoriasis, acid reflux and fatigue and I am going to try the diet on her.

For me, i'm sticking with the Humira for the time being. If it starts to get too expensive i may go back to the diet option. I think i could cut out the carbs and the sugar. I do believe this is a problem that will be fixed from the inside out. Or else moving to a sunnier climate - not really an option for me.

I was getting bloods done in my gp's yesterday and she mentioned the long term illness card. I looked it up and psoriasis isn't listed, just wondering if anyone has contacted them to see if there is a possibility of qualifying for it?

Robin132 wrote: »

I was getting bloods done in my gp's yesterday and she mentioned the long term illness card. I looked it up and psoriasis isn't listed, just wondering if anyone has contacted them to see if there is a possibility of qualifying for it?

Here is the list of medical conditions covered. I have neve heard of anyone with psoriaris being covered.

http://www.citizensinformation.ie/en/health/drugs_and_medicines/long_term_illness_scheme.html

Jack Kanoff wrote: »

It knocks me out...so I'm off on Saturday...I take it Friday evening and I have all day Saturday to recover... But everyone is different I'm afraid.

Robin 132 I used to get knocked off the day after, now it seems it's more the end of the day after and the day following (40-48 hours) that I get the worst of it so maybe if there are 2 days of the week you don't mind being "off" then I would take it the night before that.

Rizzee sorry I've no tip, I just keep the nails really short.

I used to religiously put on lots of hand creams/moisturizers, but it didn't make ridging/yellowing/whitening go away, all it did was make the nails softer and weaker, they bent more and it was painful.

I tried putting on a layer of germolene liquid plaster too, as I use it on the cuticles and little sores around nails, but it didn't help either, although it really does help with discomfort if you have a nail that starts splitting.

CastielJ wrote: »

my nephew has psoriasis, I know that he was prescribed with UV light treatment

It didn’t work for me but I know people do get great results with it.

Budawanny wrote: »

Narrowband works for me , very well , but only if the emollient regime is followed strictly.

have you any details/info about this regime?

Did you ever get significant reddening/burning from the light? I have found it works far better if I have gotten red to the point where it peels a little a few days later, like a proper sunburn. Where this has happened in the past patches have gone completely.

I usually use sudocreme after to lessen the reddening, like I would if I was out in the sun and suspected I got burned.

rubadub wrote: »

have you any details/info about this regime?

Did you ever get significant reddening/burning from the light? I have found it works far better if I have gotten red to the point where it peels a little a few days later, like a proper sunburn. Where this has happened in the past patches have gone completely.

I usually use sudocreme after to lessen the reddening, like I would if I was out in the sun and suspected I got burned.

my dermatologist and staff were very careful with the incremental dosage ,so the risk of burn is reduced. I did get a small burn on one day , but it was really harmless compared to what I have done to myself on a sunny day too many times. they strive to ensure you do not burn , as that reduces effectiveness.(inflammation bad)

Emollient should be applied to your skin every day, once in the morning and once in the evening.



The most effective is emulisfying ointment (rowa brand) , but there are others than will suffice. on days of visiting the clinic, you should replace emulsifying ointment with Silcocks base. ( as EO acts as a mild sun block)

it is utterly vital to apply emulsifying ointment (or equivalent) after each treatment.

Also they are really insistent on not using soap or shower gel. so I use Aveeno Dermexa, which is approved.

Budawanny wrote: »

was it PUVA?

Yes, good while I was in it but didn’t last long when treatment ended.
On another note, I am seeing some good results on my scalp with TGel shampoo. Only been using it for around a week so still early days.

rizzee wrote: »

I used that for a while but it left my scalp awful dry afterwards. Using Elave approx 3/4 years now, scalp is still on/off red (especially under fringe, 80% of the time its red but I sometimes dab some dovobet on it and its ok for a couple of days) and I try keep hair as short as possible.

I only use child's farm these days for moisturizing but also the hair and body wash (all in one!) and my scalp hasn't been this good in a very long time. Even when I was us in cocois and dovobet scalp it wasn't this good.

Just saw this topic about Psoriasis and thought I would give some of my own tips from personal experience. Firstly, I have had Psoriasis for around 30 years and unfortunately from my experience it never goes away but it CAN be controlled with determination!!

I have tried all sorts of treatments over the years, many of them costing me a fair bit of cash but in the end few of them have worked well. I will not list all the things I have tried as it is too long! But, the weirdest thing I tried was crushed roasted frog mixed with charcoal and engine oil!!!

Anyway, back to the things that MAY work for you. I say MAY, because everyone is different, and what works someone may not work for others. Below are the things that work best for me.

1. The best thing that works for me without doing anything else is sun bathing. If you are in position to have lots of sunny holidays then do so whenever you can and make sure you sunbathe. If you can not sunbathe then you could try sun tan shops which also work. Of course, the side affect maybe getting burned or possibly skin cancer so do not over do it.

2. If you do not have the luxury of going on sunny hols regularly then the next best thing is my diet. However, this is very difficult to do for me. I know for sure, that dairy products, meats and processed foods are a killer for me when it comes to my Psoriasis but also helps with my arthritis. However, this is very difficult, especially in the winter. In the summer I eat salads and plenty of them. I also eat potatoes, peppers and tomatoes which MAY affect some people with Psoriasis, these are veggies/fruits in the nightshade family which are suppose to affect people with the Psoriasis although they do not seem to affect me. By eating foods that your body does not like creates something called leaky gut, at first I did not take this seriously, but after trying to change my food habits, it really does work but takes a lot of determination.

3. TURMERIC. This one is my favourite, and at first I was very skeptical about it as I tried so many things in the past. Turmeric has properties in it that are great for inflammation so good for any kind of auto-immune disease like Psoriasis. I found the best way to take turmeric is by making something called "Golden Paste". If you Google it, you will find loads of recipes for it, it is very easy to make and can be added to you food dishes like curries, stews, tea etc etc. I find the easier way to take it is with fruit/veggie shakes. Anyway, it really does help but takes about 3-6 weeks of use to kick in.

I reckon if you do all 3 above, your Psoriasis will clear up considerably. Of course, it is difficult to stick with the above, and I struggle too. Luckily for me, my Psoriasis does not bother me so much now, I have just learned to live with it.

I hope this helps and good luck to you all.