endometriosis... help!

bubbaloo · 28-04-2011 3:34pm

Hi Zoegh,
Sorry to hear you've had to go through so much but at least now you have an idea of what could be causing your pain.
The only real way of diagnosing endo is a laparoscopy (keyhole surgery) so you may have to have one. I just had one at the end of March and the recovery is about 10 days or so.
In the meantime, the Endometriosis Association of Ireland have a website which may answer some of your questions and it gives dates of information events etc: www.endo.ie
Hope you get some answers soon.

faw1tytowers · 28-04-2011 10:29pm

I had my clinic visit again last week, this doc said she didnt think it was endo.. She was suprised I had not had my scan yet after 8 weeks wait. I rang ultra sound to find out I could be wait a further 6 months!!! This is really annoying me now. I had to take time off work in FEBRUARY pending a tonsilectomy cos I was in training and missing alot of days. I was told I would be waiting max 3 months... now I am told I will be waiting at LEAST another 3 months if not more. This is EMERGENCY SURGERY apparently

So the last 3 months of unpaid sick days were a waste of time!

Ms. Koi · 29-04-2011 1:28am

Sorry I haven't been on in ages! Up to my eyes with college work and being sick

I'll pop an update tomorrow probably, just came up with a lovely idea, how about we all meet up soon? I'm finished exams on the 26th of May. Would be nice to meet you all for maybe dinner and getting to meet each other properly!

Let me know what you all think!

baby and crumble · 05-05-2011 11:27am

Well I just got a referral appointment in Holles St with Dr. McParland, any of you ladies ever attend him? I'm a bit nervous about the first appointment, presumably it'll just be a chat and a check to see if he thinks it could be endo too?

bubbaloo · 06-05-2011 9:10am

Sorry Zoe - I'm not in Dublin so I don't know anything about him but I googled him and people seem to have lots of positive things to say about him.
He'll probably have a chat about your history - and may even scan you depending on where you are in your cycle and then make his recommendations, which may include asking you to come in for a lap. Best of luck.

Ms. Koi · 15-05-2011 3:29pm

Hey ladies

How is everyone feeling? I've had a rough couple of weeks around 5 weeks ago, pain got so intense I collapsed and was brought into hospital. I keep getting stabbing, hot pains in my womb and ovaries, they come on suddenly, wipe me out, I usually pass out, but this time it didn't stop all day. I was brought into St. James' (where my doctors at the time were based) and they had no idea. They ran loads of bloods, did ultrasounds, couldn't find anything. They brought me back the following week, couldn't understand the pain and gave me more painkillers, said see you in 6 months and that was it!
I was livid, really quite upset too. I've been seeing a homeopath and up until then had only really started on remedies about two or three weeks before. Since then, they have changed my remedies, are looking at clearing out all the toxins that have built up in my body. I haven't taken a painkiller in five weeks. I am able to go running again, something I haven't been able to do in almost a year. I am sleeping properly and I can manage mild pain easier, where as before if I hit my knee, the pain would be so intense because I was so used to taking painkillers all day every day. I have honestly not felt this good in so long. It's amazing me, I feel like I'm actually getting better.

I'm happy again, for now my life isn't being ruled by painkillers and tablets. I'm still on the pill, they changed me back to Minulet and I do think this has gone someway to help, I haven't had a period since February. I'm taking it back to back, to give my endo a chance to relax.

Anyway, I better get back to studying. Just wanted to pop in and see how everyone was feeling.

xx

Lainey89 · 21-05-2011 9:59pm

Hi ladies. It's really comforting to know there's others out there who understand!

I was diagnoised in March last year after a lap was done by my gyny. I've always had really bad period pain and heavy bleeding so in 6th year my doc put me on the pill to help get me throught the LC. During the week of the Orals I ended up in hospital with suspected appendicities. 4 days of waiting around and getting some bloods and xrays done I had an ultrasound and my first lap. The surgeon at the time said everything was normal but that they found blood, possibly from a burst cyst or from retrograde menstration. He didnt seem overly bothered by it either way, and said it couldnt have been ovarion cysts as I was on the pill.

I stopped the pill around April of my first year in college and the periods just went back to being horrible after a few months. Back to my own GP and he refered me straight away to a gyny. went to see her 6 weeks later and she changed my pill and said to come back in 6 months as all the physical exams seemed fine.I also had an ultrasound which turned up nothing during this time. So finally in March of 2010 went in to Holles St. and had my 2nd lap done. Gyny came into me after and said shehad found stage one endo and that I should run 3 months of my pill into eachother for the next year seeing as i was going into final year of college. I was glad to have a diagnoises at that stage as I was begining to wonder if the pain was in my head.

I had been aware of endo before this and suspected it as my mother also had it. She had a complete hysterectomy when I was younger after several surgeries to try and solve the problem.

Last summer I had to come off the pill completly as I needed to have a hernia operation. I was completly drained and exhausted during that time when I had my period, and quite painful about 2 weeks into my cycle as well. On my third continuous pack at the moment and am not enjoying the side affects of it as I'm in the middle of my finals! It is much more appealing then the alternative, tho kind of dreading what I'll be like when I finish this pack.

I must say my OH is brilliant with it. He even asked about it before we got together and he lets me talk and rant about it. And fills my hot water bottle for me : )

How does everyone elses partner take it?, (as past partners thought I was making up the pain and that it couldn't be that bad :mad:)

bubbaloo · 23-05-2011 10:16am

Hi Lainey - welcome to the endo thread.
I understand your relief to finally get a diagnosis - being told there's nothing wrong is the worst part.
To answer your question, my hubby is absolutely fantastic and 100% supportive - even though he gets the brunt of my PMS.!

The endo causes low progresterone which in turn makes me psycho for a week or so before my period. But he understands that this is part of me, and there is little I can do to change it. We end up having our monthly argument, and then I apologise and he hugs me and says it's okay!

It's good to have this thread to come on to for a rant if necessary!

Little Miss! · 23-05-2011 12:52pm

Hey all, so glad to have found this thread.

I wish I had a supportive partner, he lives abroad so is never around when needed, only get to see him once every 2 months so I spend a lot of time alone and when in pain with my endo it can get quite lonely.

I've suffered for years with this disease and there's no end in sight, i've had surgeries, taken the pill, tried altering my diet but nothing helps.

At my last doctors visit I asked for stronger painkillers, he actually thought hard of giving them to me, he suggested i see another gynae but i don't see the point. I'm not paying yet another doctor over €200 to be told my options are:

a. hysterectomy (sp?)
b. hormones
c. more surgery

It helps to know i'm not the only one suffering from this terrible disease but it's so so sad we're all suffering so much with no help from anyone :mad:

Lainey89 · 23-05-2011 7:32pm

Hey Little Miss,

My mam had a complete hysterectomy to sort out her endo about ten years ago and I think it helped. Tho a lot of that decision might depend on your age and where your endo is, as the hormone replacement therapy you have to go on after also has a lot of side affects.

I went to my doctor last month to ask about stronger painkillers too. She didn't listen to me when I tried to explain what I was currently doing to manage the pain and just wrote me a prescription for nurofen and told me to take panadol in-between. Ended up going to the college doc about something else and decided to ask him about the endo and see what his thoughts were. He was much nicer about it, and told me how to take NSAI's (ibuprofen) properly.

On another note things I've found that help a little are:

lying on the couch with my feet up on the back of it
rubbing lavender oil/ evening primrose oil into my belly
reflexology

I also read that an ice pack works better than a hot water bottle but haven't tried that one yet!

Little Miss! · 24-05-2011 9:45am

Lainey89 wrote: »

Hey Little Miss,

My mam had a complete hysterectomy to sort out her endo about ten years ago and I think it helped. Tho a lot of that decision might depend on your age and where your endo is, as the hormone replacement therapy you have to go on after also has a lot of side affects.

I went to my doctor last month to ask about stronger painkillers too. She didn't listen to me when I tried to explain what I was currently doing to manage the pain and just wrote me a prescription for nurofen and told me to take panadol in-between. Ended up going to the college doc about something else and decided to ask him about the endo and see what his thoughts were. He was much nicer about it, and told me how to take NSAI's (ibuprofen) properly.

On another note things I've found that help a little are:
lying on the couch with my feet up on the back of it

rubbing lavender oil/ evening primrose oil into my belly

reflexology

I also read that an ice pack works better than a hot water bottle but haven't tried that one yet!

Hey thanks for the advice, will have to try rubbing oil on my tummy to see if it helps. I'm at the stage now that i'm lucky if i get 2 weeks a month with no pain. It used to be only when i had my periods but now it's almost every day. I've lost faith in all doctors, the only thing doctors can do to help me is to prescribe painkillers.

It's so hard to try hold down a full time job, pay a mortgage & bills when ur constantly in pain with absolutely no help from anyone, sorry if i'm ranting i just get so frustrated with this damn disease sometimes

Lainey89 · 24-05-2011 7:32pm

It's ok, sometimes a good rant is needed to clear the head!

faw1tytowers · 24-05-2011 9:12pm

I finally go tmy appointment for June 28th but as you know the last doc I saw is only going for a ultrasound as she doesnt think I have endo now.... Whatever it is or is not, I hope this scan does the job as previously I have been told I should get a lapro.:(

ppink · 25-05-2011 8:31am

I had a laparoscopy a few months back and was told several times over that the only way they can find endometriosis is by lap, they cannot see it on scans.

can I ask do any of you exercise much? reason for asking is I exercise a lot- its how I get rid of period and IBS pain. If I am in pain i jump on the treadmill and it eases it within a few minutes.

faw1tytowers · 28-05-2011 2:12am

ppink wrote: »

I had a laparoscopy a few months back and was told several times over that the only way they can find endometriosis is by lap, they cannot see it on scans.

can I ask do any of you exercise much? reason for asking is I exercise a lot- its how I get rid of period and IBS pain. If I am in pain i jump on the treadmill and it eases it within a few minutes.

Not so much now, not actively, other than running after my 2 young ones. However I was very active as a teen and sporty but still had same issues and would be crippled with pains.

ppink · 28-05-2011 4:36pm

faw1tytowers wrote: »

Not so much now, not actively, other than running after my 2 young ones. However I was very active as a teen and sporty but still had same issues and would be crippled with pains.

Oh well.....there goes another theory;). maybe I have just convinced myself that it works for me:p

it did not effect you having children then. I thought that was one of the big issues with it.

Lainey89 · 28-05-2011 5:55pm

ppink wrote: »

it did not effect you having children then. I thought that was one of the big issues with it.

I think that depends on what stage its at. And the stage you have has no relation to the pain you experience what so ever. ie Stage 1 can have sever pain and some one else with stage 4 could have very little pain.

Anyone else have a tipped uterus as well?

Raedwald · 29-05-2011 12:00am

Hi Ladies,

I'm looking for a second opinion about my current condition. I have both Endo and PCOS and it has gotten to the stage, were I have lost all confidence in my current medical team and want to get second opinions on what they have told me so far and the treatment options available to me.

So basically I was wondering could anybody tell me where would be the best place to go ie Rotunda or Holles St or somewhere unbeknownst to me and who would I want to have a look at my case file.

Thanks.

faw1tytowers · 29-05-2011 12:07am

ppink wrote: »

Oh well.....there goes another theory;). maybe I have just convinced myself that it works for me:p

it did not effect you having children then. I thought that was one of the big issues with it.

Well remember I have not been confirmed yet.

Although my friend did have endo... and told she would have fertility problems. She now has 3 children and no more endo!

Lainey89 · 29-05-2011 10:39pm

faw1tytowers wrote: »

Although my friend did have endo... and told she would have fertility problems. She now has 3 children and no more endo!

Did she have the endo lasered off and it never came back? I was under the impression that there isn't really a cure for it and that you just have to try and manage it and stop progression via the pill or other methods?

faw1tytowers · 30-05-2011 1:15pm

Lainey89 wrote: »

Did she have the endo lasered off and it never came back? I was under the impression that there isn't really a cure for it and that you just have to try and manage it and stop progression via the pill or other methods?

Yes she had all the treatments and it kept growing back it was very aggressive and she was told she was most likely infertile.....

I have heard pregnancy cures it... but some argue this point but agree it certainly lessens its effects.

pregnancy may cure endometriosis in three ways. Progesterone tells the cells to stop proliferating and differentiate (grow up into an adult cell). Progesterone also signals the ovary to NOT ovulate and thus, the ovary does NOT produce estradiol. Estriol goes into the estrogen receptor and blocks out estradiol and xenoestrogens from stimulating the estrogen receptor, and causing the endometriosis to grow.

Endo causes infertility in SOME women and there are treatments and proactive ways of increasing your feritlity if you have endo.

bubbaloo · 31-05-2011 10:13am

I have severe endo but after much heartache, I had my little boy in 2009.
I was able to get pregnant - and did so twice beforehand - but m/c both times. This was becaused the endo caused the quality of my eggs to be crap and they never had a chance!

Pregnancy does not cure endo - but endo does not occur when you're pregnant. I had a laparotomy in 2007 which cleared all the endo and gave me a window of opportunity before it grew back. I was lucky to get pregnant (with the help of fertility drugs) within that window and it was successful pregnancy, resulting in my little man arriving in 2009!

For someone looking for help, I could not say enough about my gynae - he's in Ballinasloe in Galway and his name is John Monaghan - feel free to pm me if you want all his contact details. He's fab!

Netanya · 31-05-2011 3:02pm

I finally got to my appointment today. After a year of having two weeks a month or more of pain I went in with a list of everything that was wrong. Ten minutes later I am out the door with an appointment for a lap in early august. The doc was happy to say she would feel it is moderate endo, that they are going to go in and laser it out and, to help me out over the next couple of years until I am ready to have kids, insert a coil. I almost cried. It was the most efficient and effective visit to a specialist I have ever had.

I have my fingers crossed that the lasering works and that I can get back to running and feel like I have my own life again. I also just got engaged and I want to be able to concentrate on that and not my pain as soon as I can.

faw1tytowers · 01-06-2011 9:39pm

there talking endo on embarressing bodies now.. said it takes 7-8 years to get diagnosed on average.... so we are not alone!

Lainey89 · 01-06-2011 9:53pm

I read that somewhere between 5 and 10% of women have it which is quite a high number. But I guess if you had no pain from it you wouldn't really know there was a problem unless you were concerned about having heavy periods. I remember seeing Embarrising Bodies awhile ago and they were asking women what they thought an average flow would be. Loads of them reckoned it was about 200 ml, when the average is between 20 and 80ml. Good that it got some coverage tho.

faw1tytowers · 01-06-2011 10:07pm

Lainey89 wrote: »

I read that somewhere between 5 and 10% of women have it which is quite a high number. But I guess if you had no pain from it you wouldn't really know there was a problem unless you were concerned about having heavy periods. I remember seeing Embarrising Bodies awhile ago and they were asking women what they thought an average flow would be. Loads of them reckoned it was about 200 ml, when the average is between 20 and 80ml. Good that it got some coverage tho.

Ya i heard 3 tea spoons of blood. I loose that every few hours I am sure!

Lainey89 · 02-06-2011 10:56am

I think they were measuring with a moon cup and a measuring jug. It sounds a little messy but seems to be the only way to know for sure. I always found it a bit confusing when doctors would ask is your flow was heavy when you'd have very little frame of reference!

Netanya · 03-08-2011 10:37pm

I got my diagnosis today. It seems I am very lucky and I feel blessed to be honest. The endo had been hiding on the back of my womb and spreading to the ligaments that support it. But dr. Anglim seemed truly amazed that there was none to be found on my ovaries or tubes. So my fertility should be totally normal. I really do feel so lucky about that as I had mentally prepared myself to be told I couldn't have children.

To control it I had all of the area lasered and then to prevent regrowth they inserted a coil. I am crossing my fingers that this all works. I have to say the pain in my shoulders is worse than my stomach but I'm told that dissipates a day or two after the lap.

I really hope everyone here is doing ok and taking good care of themselves.

bubbaloo · 04-08-2011 9:34am

That's is great news Natanya. You could ease the shoulder pain by moving around (if you can). I know it's not easy but it helps because the pain is just trapped gas from the op and moving around dislodges the gas.

It's great to hear it wasn't on your ovaries/womb - such a relief for you I'm sure.
In any case, endo doesn't have to mean that you can't have children so don't ever give up hope!
I have very severe endo and (admittedly after years of crap) I have a little boy who's now 2. I am having my right ovary removed in 3 weeks but my surgeon is hopeful and confident that we will be able to conceive again from the left.

Fingers crossed! (Not my legs!!

)

Netanya · 04-08-2011 9:53am

Thanks Bub, I have been moving around as much as possible and this morning the pain in the shoulders has really eased off, I used heat patches on them as well and it seemed to help.

The endo was on my womb and uterosacral ligaments and was quite severe actually it just wasn't on my ovaries or tubes which the doc thought was a bit unusual.

Great to hear about your little boy, good luck with your op and I have my fingers crossed for you having another little bundle of joy.

bubbaloo · 31-08-2011 10:16am

Well, here's the good news........ I still have two ovaries!!

I had my surgery on Friday and the surgeon told me that when he opened me up he thought "oh god, this is a disaster!" but as he cleared the endo away (lots and lots of it) he realised that my ovary had been pushed back behind my womb. When he moved it back into the correct position he saw that it was okay and he didn't need to remove it!
He said that things are in good condition now and we have a "window of opportunity"

.
So once I'm recovered, in about 6 weeks, we will "get started".
My husband is obviously thrilled! :pac:

MarthaMyDear · 02-09-2011 7:30pm

My doctor also suspects that I have endometriosis but he said he hopes he is wrong..

I'm supposed to book a laparoscopy (sorry spelling) to check for it but have been putting it off as I've never been under general anesthetic and I'm a wuss for pain!

I'm afraid they'll go through the whole procedure and then afterwards be like nope nothing wrong and I'll regret going for it...

bubbaloo · 03-09-2011 12:56pm

Marha, I honestly wouldn't rule out surgery.
Isn't it better to have it and know if you have endo that continue in pain (or whatever symptoms you might have) and search for answers?
Admittedly, I'm not too bad with pain - but only because I've been through 3 laparoscopies and 2 laparotomies as well as a c-section, but a laparoscopy is not too bad. It's just a day surgery with a 5-7 day recovery period.
My own opinion would say a week of that is better than months/years of not knowing!
Good luck to you.

MarthaMyDear · 03-09-2011 3:45pm

Thanks

That's true! I have a few of the symptoms but I've never been in pain so bad that I pass out or anything like a lot of people so I wonder if I'm being a bit dramatic!

I'm on the pill but my period pains are quite severe and would have me doubled over. If I take feminex (I love that stuff!) or nuerofen plus then I'm not too bad. I have dull cramps all during the month too but never really strong enough to interfere.

I'm only 19 so the thought of going into hospital and being put under general is a bit daunting!

Lainey89 · 03-09-2011 5:23pm

Martha I'd second bubbaloo's comment about it being better to know if you have endo or not. I was scared the first time I got put under general but its a short op and really feels like no time at all once you wake up. All my external exams and ultrasounds were clear so really the op is the only way to tell for sure, and for me was better then wondering if it was all just in my head.

MarthaMyDear · 05-09-2011 6:52pm

Laparoscopy booked for coming Monday

Can't help but be nervous!

Sound Bite · 05-09-2011 11:51pm

Martha, have to agree with the other posters above. Better to know sooner rather than later. took until my late 20s and the change in my life has been incredible.

The procedure itself it not painful. You just feel a little tender afterwards, same as you would with an surgery.

IMO if you have endo, the sooner you get it treated the better. Life is too short to up but with years of agony.

Best of luck. PM me with any questions if you want.

MarthaMyDear · 06-09-2011 1:24am

I'm afraid of waking up afterwards and being really sore...thank everybody though this forum is so supportive

Lainey89 · 06-09-2011 10:37am

They give you quite a bit of painkiller while you're under so you shouldn't feel to much : ) Then you just need to take it easy for a few days. It might be an idea to ask for anti sickness drugs with the anesthetic tho as it can make people very queasy sometimes!

Good Luck : )

bubbaloo · 06-09-2011 12:13pm

Martha - best of luck. Honestly if you get an answer from the lap it will be all worthwhile.
After the lap the main pain will be in your shoulder. They use gas to expand your stomach so they have a good view inside. Once they close you up the gas is still trapped in there and usually lodges in your shoulder and the best way to ease it is to move around as much as you can.
The wound itself is only a small incision in your belly button - and maybe another tiny incision around your bikini line. They can give you a prescription for strong painkillers so don't worry too much about being sore.
A week later you will as fit as a fiddle again!
Let us all know how it goes.

MarthaMyDear · 11-09-2011 11:13pm

Have my lap in the morning. Have been on the liquid diet all day-3 different kinds of soup and some smoothies!!

I'm really nervous, mainly of just the hospital environment and the pain when I wake up. I hear it's not too bad though I just can't wait for it to be over!

I feel so much better knowing so many people on this thread have been through the same thing and I'll be thinking of all of you when I'm really nervous tomorrow! I think going into the theatre and waiting to be put to sleep will be the worst

I'll report back as soon as I can and let everyone know how it went

MarthaMyDear · 12-09-2011 8:25pm

So home from hospital a few hours and not feeling too bad! I'm gonna tell my story so other people who have to get the laparoscopy know what to expect! I spent hours last night looking for info on the internet (not advisable!)

I slept terrible last night worrying about the hospital and felt like I was gonna get sick with nerves on the way there. I got admitted and was brought up to the ward where I was shown a bed after a few minutes then left there. I couldn't relax at all I was completely freaked out at this stage! Got a few visits from some nurses and a doctor and had to sign some forms-my hand was shaking so much!

Was dozing off after waiting a couple of hours when someone came to get me. Walking down to the theatre was horrible! I was put on a bed just outside the theatre and got an IV in. I started to not be as nervous then as there was no turning back and I knew I'd be asleep soon! I was brought in then and given an injection to make me sleepy (and very happy!) then was giving the other injection to knock me out. The last thing I remember is the oxegen mask.

I woke up with stinging in my stomach and was given painkillers. The pain never got too bad and I didn't get nausea either! I think I was one of the lucky ones! I was up and talking not long after coming out of recovery. I had some tea and toast and was reading my book for most of the day. My stomach did have a pulling/stingy sensation when I moved the wrong way! When my lift came to get me I waited in the main waiting room downstairs for them to bring the car around and I started to feel really horrible and hot. Woke up sprawled out on a row of seats. My first time ever fainting! Nobody in the room even noticed! :rolleyes: Think they thought I was having a little snooze...

Anyway..sorry for the long post don't know if it makes any sense! After all that it turns out that I am now officially a member of the endo club! Apparently I'm lucky to have caught it at 19. The doctor lasered it off but I assume I'll have to go back again for more. Have another appointment in November! He said he found in the area just above my bowel and below my uterus.

In bed now with a hot water bottle on a slightly aching shoulder and taking nuerofen plus for my tummy pains

bubbaloo · 13-09-2011 9:56am

Well done Martha - glad you're doing well and isn't it great that you have discovered the endo now and you know what you're up against!
Move your shoulder as much as you can - walk around if possible - that will get rid of the pain.
I can't believe nobody noticed when you fainted - I have had it done 3 times and never fainted, but a friend of mine has also had 3 laps done and fainted twice. The anaesthetic affects everyone differently.
Good luck in November.

MarthaMyDear · 13-09-2011 10:57am

Thank you

feeling odd this morning but happy to have an excuse for a few days of bed rest! Meant to be back in work Thursday have to see how I go!

I'm not really up to scratch on endo, I'm just wondering because I have it now does this mean it'll probably get worse as I get older? And could it grow in other places apart from where he found it or does it usually stay in the same area? I probably asked him this but was too out of it on pain killers

Lainey89 · 13-09-2011 1:02pm

Hi Martha. Glad to here the op went well for you. I'm very close to you in age and got diagnosed last year. My understanding of it was that it will probably get worse as you get older but because you know you have it you can manage it by taking the pill. You're doc will probably discuss this with you in November but feel free to PM me if you want to talk

MarthaMyDear · 13-09-2011 1:04pm

Thanks Lainey

I've been on the pill for years due to bad pains so I'll definitely be staying on it!

bubbaloo · 13-09-2011 3:55pm

Ladies I can tell you, as a 37 year old, that unfortunately it does get worse as you get older but there are things you can do to help yourselves....
A good healthy diet always helps - I was very heavy up until last October and this did certainly not help. Try, where possible, to stay away from dairy products and stock up Omega 3. The pill will help, but as you get older IF you want to have children you should talk to your doc before trying to conceive.
It took me 5 years (and 2 miscarriages) to get my diagnosis so although it doesn't seem like it now, you are lucky to know early in life what you are facing. The good news is that I have a little boy now so if you want it it's possible.

MarthaMyDear · 19-09-2011 10:15pm

did any of you guys go for a check up after your lap? I have a few questions about endo and I don't wanna wait for two months until my next hospital appointment! Would they think I was silly going into my college doctor for a check up? Still have pulling and pain in my belly button and very tired but grand apart from that! Stitches soooo itchy

Lainey89 · 27-09-2011 5:08pm

hey Martha, hope you're feeling better after your surgery. I went to the college doc last year to ask about pain managment for endo. I had to see the nurse first, and she had a vague knowledge of it. She also asked me if they were still telling women with it to get pregnant and it'd sort itself out. This was an old attitude to it. The doc knew very little on it but was helpful with the pain managment side. It would really be best to talk to your gyny as you get much better info. In the mean time, I've found this site very helpful http://www.endo-resolved.com/index.html

MarthaMyDear · 03-10-2011 9:50pm

Thanks! Went to the college doctor and he was very dismissive..I was in their for about 30 seconds. I was annoyed because he was really patronizing! I tried to ask him some questions but he didn't answer them, just gonna have to wait for my appointment in November!

endometriosis... help!

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