Keratoconus

tashiusclay · 22-07-2014 8:43am

Thanks for that. Any idea where she's going?

glineli · 22-07-2014 9:13am

No idea, going up in 2 weeks to see her so will ask her then

numbskull20 · 07-08-2014 1:59pm

I have Keratoconus in both of my eyes. My left eye is the worst. I don't know what stage it is at but I cannot read the first line of a chart without a lens.

I was at the Royal Eye & Ear a few weeks ago and a consultant told me that I should consider getting a corneal graft done in my left eye.

After reading this whole thread, it seems that the corneal graft and transplant should only be considered as a last resort when it is no longer possible to wear a lens.

The thing is, I can wear an RGP lens no problem with no real discomfort. And I can see very well through it (except for some ghosting issues which will hopefully be fixed with a larger lens).

My main question is, why is the corneal graft or transplant considered as a last resort?

And why would this consultant tell me that I should get it done?

irishproduce · 07-08-2014 4:39pm

I got it done as my first option straight off in 2005. Was only diagnosed that year.
Its fine, certainly not super vision but about the same if not better than it was but crucially, combined soft/ hard lens fits on it now when I play sports.

The good thing is it is permanent, doesn't need you putting lenses on every morning etc but I suppose the negative is there is no going back, once you are grafted, you are grafted. I am not sure how long a grafted cornea lasts either...actually does anyone know that? I never asked the consultants at the time.

Peter Crowe · 07-08-2014 11:55pm

Blah blah blah, can no body see that it's completely backward here in Ireland ! I got so sick and tired of waitin and not knowing here in Ireland that I went to America and got it all sorted in one weekend and spent my recovery in Vegas ! Everyone is always moaning about the same thing here, it's too slow, the doctors don't know how to procede. Just make the decision if you want it done right or not !!! They are useless here, if anyone wants to discuss what I done cAll me on 0860202330 otherwise just keep pricking around and get nowhere !

irishproduce · 08-08-2014 12:24pm

Hi Peter, what did you have done in America?

Peter Crowe · 09-08-2014 9:02am

irishproduce wrote: »

Hi Peter, what did you have done in America?

Hi irishproduce I went to California and had surgery done to both my eyes. It was over In one day with a two day rest period after and them off to Vegas to celebrate !!! If the surgeon here In Ireland were to do the same procedure it would have taken nearly two years to do and I would of been clinically blind by then !!!! The surgeons and eye specialists here are too far behind the times. Even when I was telling them what I was going to get done they nearly laughed at me saying no one would do that surgery in one day ! I now never wear glasses and I laugh every time I go to my specialist here for my 6 month checkup and he sees the shape of my eye

irishproduce · 09-08-2014 10:17am

Thanks Peter. I'm going to hazard that you went entirely private yes? Or did health insurance cover it?

glineli · 09-08-2014 12:48pm

Sounds interesting Peter, were you over there for long or all done and dusted in a few days?

I have to say my experience with the Wellington Clinic has been excellent. From day 1 Dr Cummings explained everything and also put the course of treatment on the table. Clare has been great getting the lens fit perfect. I am very happy with them.

Met with Clare yesterday. She is taking a leave of absence but might be back in January or so. Lens still fitting perfect so all good

Dodo bear · 04-09-2014 1:11am

Hi
I have had kerataconas in both my eyes for 15 years now. I'm 30 now. My right eye deteriorated more and I had little or no vision in it. My last option was a corneal transplant. I had it in February of this year and so far every thing has gone great. My consultant is very pleased with how the stitches look and I am now down to one steroid drop per day. I can't play contact sports or swim for now but that's ok. I should be getting some stitches out at my next appointment

does anyone who has had this surgery know is this sore and does it leave you with side effects? I also find on some occasions my eye is gritty and tired feeling and begins to look very sleepy and is hard to open, also I think it maybe more sensitive to make up. Does anyone else feel this? I have felt this a lot since my transplant, but my consultant says my eye looks great.

glineli · 04-09-2014 4:32pm

Where did you get it done?

super106 · 05-09-2014 12:04pm

Hi

Where did you have it done and how was the whole procedure, il be facing down that road when ive had enough of my lenses, iv had keratoconus for simular time as you and im the same age,

Barry

Dodo bear wrote: »

Hi
I have had kerataconas in both my eyes for 15 years now. I'm 30 now. My right eye deteriorated more and I had little or no vision in it. My last option was a corneal transplant. I had it in February of this year and so far every thing has gone great. My consultant is very pleased with how the stitches look and I am now down to one steroid drop per day. I can't play contact sports or swim for now but that's ok. I should be getting some stitches out at my next appointment does anyone who has had this surgery know is this sore and does it leave you with side effects? I also find on some occasions my eye is gritty and tired feeling and begins to look very sleepy and is hard to open, also I think it maybe more sensitive to make up. Does anyone else feel this? I have felt this a lot since my transplant, but my consultant says my eye looks great.

muthupr · 11-12-2014 12:29am

Hi All,

I guess I'm bit late into this discussion, I'm similar to many others discussing in this thread having KC for 15+ years. It is really gone bad now, as I'm not able get any lenses fitted to both my eyes. Luckily I'm able to survive with a set specs for my right eye. Now I have the only option of Corneal transplant, which I'll be having on mid Jan at Eye and Ear by Dr.Power. Can anyone share their experience if you had the transplant done already.

Thanks
Muthu

Dodo bear · 11-12-2014 2:07am

Hi
I had my transplant done with mr power in feb last year in the eye and ear. I was very nervous going in as i really didnt know much about how i was going to feel, only that my eye would feel gritty.
As i said above i have had the condition for 15 years and no vision in right eye in the last few years.
After the operation i was very groggy as you would be. There was a bit of pain as i woke after surgery but as soon as i said it they gave me pain relief. After that it was just nurofen or paracetmol which i didnt really take as the pain was not to bad. Then it was lots and LOTS of drops for a few weeks, before i went back to mr power again for my check up. You have to weAr a plastic eye patch at night time as your eye is EXTREMELY sensitive to touch. Your eye should be cleaned regularly which is so important, but you will be told all about cleaning and drops and eye care. My whole eye ball looked bloody after the surgery, But nothing to worry about. Im ten months after the surgery now and im on only 1 steroid drop a day. I got one stitch out last wk (which didnt hurt, just weird seeing a tweezers coming so close to your eye ðŸ˜³) he says my eye is looking great and my vision is great. I can read a vision chart now. Before i couldnt see your fingers if they were held close to my face! I still cant play sports ( like football) or swim but thats grand. I go to the gym instead.
When i had the surgery i took 2 wks off ( i kinda needed more time that that, which i would recommend taking if you can) including my time in hospital. Which was a full day of just waiting in my room being anxious and getting my blood pressure monitored and filling out info forms, next day was surgery and
next day was recovery and i was out the following dAy.
I would say my biggest side effect was sensitivity to light( invest in a pair of sun glasses) and in the months after very tired eyes after a long day, or sore eyes if i wear alot of eye makeup, which i try to only do on a night out. (I loved my eye make up

Overall im happy i got it done and seeing great results with my vision with out glasses r contact lenses yet (still to early for them)
Hope it goes well for you in janurary and ask mr power lots of questions, because it can be quiet daunting not knowing whats going to happen. I would love to hear how you get on.

Good luck ðŸ‘ðŸ‘€
[I have the only option of Corneal transplant, which I'll be having on mid Jan at Eye and Ear by Dr.Power. Can anyone share their experience if you had the transplant done already.

Thanks
Muthu[/quote]

muthupr · 11-12-2014 6:41pm

Thanks a lot Dodo bear, for sharing your experience. How long did you take to resume your office work? and how long before you could drive?

Dodo bear · 11-12-2014 9:02pm

Hi muthupr
I went back about a wk and a half after the surgery. I work with children with special needs, so was not looking at a computer all the time, but i had to be very very careful not to get a bang in the eye as somthing like that could cause rejection. To be honest i think i went back too early as my eye was still quiet raw and sore. You will know yourself how you feel after its done and how lond you need off. I think they say around 2-3 wks. But it also depends on your job type. I drove when i went back to work. As i said my eyes were extremely sensitive to light even when it was dull so i always needed my sun glasses and still have some sensitivity to light now.

muthupr wrote: »

Thanks a lot Dodo bear, for sharing your experience. How long did you take to resume your office work? and how long before you could drive?

muthupr · 11-12-2014 10:44pm

Thanks once again, that was very helpful and made me a little bit relaxed

Shane732 · 11-01-2015 1:16pm

So just to give an update on my position. I started this thread in 2010 and have seen various different consultants, had cross linking and keraflex and had countless trips to my optician Dixon Hempenstall.

The keraflex procedure was totally unsuccessful and left me with worse vision than I had before the procedure. In fact the shape of my eye was actually worse than before the procedure. As a result of the keraflex I wasn't actually able to get a lens on to my eye at all and had totally blurred vision in my left eye. I couldn't tell you how many fingers you were holding up if you were right in front of me.

Anyway over the last 18 months I've been left with only 2 options - either do nothing and live with the vision or have a cornea transplant. I eventually decided to have the transplant with Mr. Fulcher. I have keratoconus in my right eye as well, albeit not as far progressed. I was conscious that I could function with poor vision in one eye but if the vision in my right eye was to deteriorate then I would be in trouble.

The operation went fine, my experience was similar to what others have noted on this thread. I actually haven't had to take any pain relief since the operation last week. The pain in the eye is minimal. As others have stated it drops and cleaning appear to be key.

At the moment the vision is better than before the operation but there's still a lot of improving to do. I'm told it will be at least 3-4 weeks before we know what the refraction in the eye will be and whether anything else needs to be done to improve the refraction. I'm told the vision can take months to improve to what it will be going forward.

My stitches are progressive as opposed to individual stitches.

S.M.B. · 11-01-2015 2:59pm

That's great to hear. Hope the good progress continues.

I'm approaching 15 years since I was diagnosed with KC and I've yet to face the operating table. I have been just about getting by with various contact lens.

I do feel that I'll have to bite the bullet soon and get the transplant done within the next 18 months or so.

irishproduce · 12-01-2015 12:24pm

@dodobear

I had transplant in 2005

You will never get all of the stitches out, some remain permanently.
I got them out gradually. What happens is they break over time, as the cornea beds in. This takes years because of the small blood flow to the cornea.
I had my most recent ones out in 2012 and even during that surgery, I had an incision made into the new cornea to relieve tension/ stress/ pull on it, so that a new type of lens could be fitted to allow me to play hurling. I also had an extra one or two stitches put in, can't remember how many.
That went well too.

I would say that, when a stitch breaks, you will know. It will be like a grain of sand is inside your eye - it is awful uncomfortable and your eye will start watering up and getting irritated until you go to the hospital to get one out.
I used to just go to the regional hospital and an eye doctor would sit me on the thing they use for looking into your eyes, put on some numbing drops and then get out the tweezers and get to work. Takes a few minutes.

It's been settled since 2012 though thankfully, haven't had a bother with it.

I only wonder how long the transplant lasts as I am aware they are not forever

- I am very happy with my one, wouldn't want to lose it

Shane732 · 12-01-2015 1:17pm

How long did it take for your vision to improve? To what level did the vision improve? For example have you got driving vision without glasses/lens?

irishproduce · 12-01-2015 1:52pm

No Shane, certainly not.
Mine was poor to begin with, I noticed it after a very long time.
I covered my left eye one day and realised the vision in my right was dire. Went specsavers - referred as they couldn't make sense of my vision/ eye.
Consultant said you have KC. Straight down surgery route.
I honestly can't remember the vision when I had the surgery but I recall it was pretty crap. With the new one in, I can see colours, barely make out familiar faces from 2 metres away but anything further and it is not possible.

With that said, it allowed me to get fitted with a hard/ soft lens and with that on, I can pretty much see anything that you would normally expect to be able to see.

It wasn't a silver bullet, I don't think it was meant to be but what it has allowed is for the consultants to control it, take it on their terms and use lenses to adjust for where the transplant falls down.

boo84 · 17-03-2015 8:41pm

Hi,

I had CXL carried out in my right eye in June 2014. Everything was fine after the procedure (well, apart from the terrible pain of the first few days!) and my eye was healing fine. However, at the end of September, my vision started to deteriorate and I started to get severe headaches and eye strain. I also contracted an allergy in my eye at the same time.

Following 3 separate visits to the opthamologist in my local hospital the allergy was cured. If I wanted to improve my vision and eye strain I was told that I needed a contact lens. They said that the CXL had stabilised the condition in my right eye. I went to the contact lens specialist in the hospital and was told to wait and see what they say in the Eye & Ear about a lens.

I finally got back to the Eye & Ear for my 6 month check up last month (my original appointment was cancelled - which seems to happen quite often) and was told that the condition had stabilised and they won't be doing anything else. I asked about a lens and they said I could get one if I wanted to. I have an appointment with the contact lens clinic next month (Donal O'Malley).

I don't know if I should go this clinic or should I go private. There's a strong possibility that I won't be able to tolerate an RGP lens. Also, I live 100 miles from this clinic so I would have to take a day of work to attend it each time. My vision is fine with the glasses I have but the headaches and eye strain are still bad.

Dodo bear · 18-03-2015 3:05am

Hi all

Just following up on messages i had previously written about my corneal grAFt. Its 13 months now since my surgery. I have had my vision checked a couple of times now. At my last appointment i could read the eye test board down to the forth line with out lenses r glasses ðŸ‘. Before if u had your hand up infront of my face. I would not be able to see how many fingers you were holding up. Still only 1 stitch out after all this time. Also if i have a long day r not enough sleep i an get a gritty feeling in my eye on the outer right hand corner. Over all though, so far so good!

irishproduce · 23-03-2015 2:24pm

That is great news Dodo bear, seems like your graft is performing very well! Long may it continue!!

mullerfocus · 27-05-2015 6:28pm

Hi all thought Id join I've got kt 31 years now dx when I was 10 had a cornea graft in my left eye 20 years ago now and have never looked back I wear a lens which I get from Donal o mal ley who I find excellent

Shane732 · 01-06-2015 8:17pm

Dodo bear wrote: »

Hi all

Just following up on messages i had previously written about my corneal grAFt. Its 13 months now since my surgery. I have had my vision checked a couple of times now. At my last appointment i could read the eye test board down to the forth line with out lenses r glasses ðŸ‘. Before if u had your hand up infront of my face. I would not be able to see how many fingers you were holding up. Still only 1 stitch out after all this time. Also if i have a long day r not enough sleep i an get a gritty feeling in my eye on the outer right hand corner. Over all though, so far so good!

That's incredible. I'm 5/6 months post graft now. I have one continuous stitch.

I'm told the stitch is quite tight on the which means the vision isn't brilliant but that the vision should improve significantly once I have the stitch out.

Taltos · 22-06-2015 3:31pm

In for a review tomorrow to see if I can get the cross linkage treatment. Keep your fingers crossed and I'll give an update if I'm eligible.

Taltos · 23-06-2015 9:04pm

So have to call back in 6 mts. Due to my age they don't think it will progress so cross linkage may be off the cards, but will know for definite in 6mts when they compare where I am now to then...

Glad today's over though, hate folk at my eyes.

glineli · 23-06-2015 9:15pm

Taltos wrote: »

So have to call back in 6 mts. Due to my age they don't think it will progress so cross linkage may be off the cards, but will know for definite in 6mts when they compare where I am now to then...

Glad today's over though, hate folk at my eyes.

Where are you going and who are you seeing?

Taltos · 24-06-2015 6:36am

The Wellington in the Beacon.
Found them to be friendly and helpful. The DVD they sent me before my appointment was very useful, nice to see and hear feedback from patients who had already undergone some of the treatments.

Just using some anti histamine drops until I go back, never realised the damage my constant rubbing was doing. But the Dr there left me in no doubt at the consequences and despite being busy took loads of time to reassure me and take me again through all the options including some newer less risky (infection) treatments.

Shane732 · 24-06-2015 9:55pm

Shane732 wrote: »

That's incredible. I'm 5/6 months post graft now. I have one continuous stitch.

I'm told the stitch is quite tight on the which means the vision isn't brilliant but that the vision should improve significantly once I have the stitch out.

Have noticed in the last week that the vision has improved ever so slightly. I'm in tomorrow morning for a 6 month review.

Red King · 24-08-2015 5:10pm

Have Keratoconus for 15 years now. It is really bad in both eyes. 3 years ago I tore the cornea in my right eye and that was a right bother for 6 months or so. I have been over to London to enquire about surgery and was told at the Centre for Sight clinic that I would be eligible for a partial cornea transplant using the latest techniques. I still don't want to go down that road though and the surgeon there told me that if I can still wear contacts then he see's no reason for me to get surgery just yet.

So I am currently getting fitted with new lenses called Synergeyes Ultrahealth.

Only thing is they cost me 534euro for a pair and Aviva have told me they won't cover a cent of it.

I am so pissed off and depressed right now. I can't afford these contacts as I am still at college and yet I have to get them in order to finish my studies.

Has anyone had any success in claiming cover from any health insurers out there? If so what plan are you on?

I have been paying Aviva 75euro a month for years now and the one time I need help they tell me to go and jump. So angry.

Mr555 · 24-08-2015 6:40pm

(@ Red King)
I am the exact same as you. After 17+ with Keratoconus,i have a scare in both Corena's. Was up in the beacon 2 weeks ago(highly recommend, even though was only my first visit), and they are referring me to another clinic for DALK(partial Corena transplant). That would be covered hopefully under health insure, but must wait for consultation. They recommended CXL for other eye, but first wish to monitor it for six months. I have never come across a health plan that you can claim for contacts. (Think there might be €30 claim allowance for glasses in VHI plan I'm on, but need to investigate further), however you can claim tax back on the lenses every two years, so that is some benefit. Your opticians should be able to advise you on that.

S.M.B. · 25-08-2015 7:07pm

Red King wrote: »

Have Keratoconus for 15 years now. It is really bad in both eyes. 3 years ago I tore the cornea in my right eye and that was a right bother for 6 months or so. I have been over to London to enquire about surgery and was told at the Centre for Sight clinic that I would be eligible for a partial cornea transplant using the latest techniques. I still don't want to go down that road though and the surgeon there told me that if I can still wear contacts then he see's no reason for me to get surgery just yet.

So I am currently getting fitted with new lenses called Synergeyes Ultrahealth.

Only thing is they cost me 534euro for a pair and Aviva have told me they won't cover a cent of it.

I am so pissed off and depressed right now. I can't afford these contacts as I am still at college and yet I have to get them in order to finish my studies.

Has anyone had any success in claiming cover from any health insurers out there? If so what plan are you on?

I have been paying Aviva 75euro a month for years now and the one time I need help they tell me to go and jump. So angry.

Interesting, I had a very different experience at Centre for Sight. Do you mind me asking who your consultation was with.

I am in a similar situation to yourself. 15 years with KC but I have one amblyopic eye with little to no vision so I've been very reluctant to have surgery.

I'm currently going through a really bad patch at the moment as my eye is struggling to cope with a scleral lens I've had for 5 years.

Think I'm going to have to seriously consider surgery if things don't sort themselves out.

S.M.B. · 25-08-2015 7:10pm

Mr555 wrote: »

(@ Red King)
I am the exact same as you. After 17+ with Keratoconus,i have a scare in both Corena's. Was up in the beacon 2 weeks ago(highly recommend, even though was only my first visit), and they are referring me to another clinic for DALK(partial Corena transplant). That would be covered hopefully under health insure, but must wait for consultation. They recommended CXL for other eye, but first wish to monitor it for six months. I have never come across a health plan that you can claim for contacts. (Think there might be €30 claim allowance for glasses in VHI plan I'm on, but need to investigate further), however you can claim tax back on the lenses every two years, so that is some benefit. Your opticians should be able to advise you on that.

Have they started doing DALK procedures in Ireland?

Really thought it was a massive breakthrough within the field but my ophthalmologist just went on a big rant about its potential risks over the weekend which had me second guessing the whole thing.

Red King · 26-08-2015 6:01pm

S.M.B. wrote: »

Interesting, I had a very different experience at Centre for Sight. Do you mind me asking who your consultation was with.

I am in a similar situation to yourself. 15 years with KC but I have one amblyopic eye with little to no vision so I've been very reluctant to have surgery.

I'm currently going through a really bad patch at the moment as my eye is struggling to cope with a scleral lens I've had for 5 years.

Think I'm going to have to seriously consider surgery if things don't sort themselves out.

Sheraz Daya.

Sounds like you are worse than I am though. Sorry to hear that, hope it improves for you.

S.M.B. · 26-08-2015 8:14pm

Very interesting. That's who I saw.

I got the impression that he was a little too eager to operate and questioned his motives.

Your experience seems to paint a different picture.

Cheers for the info!

Red King · 27-08-2015 3:49pm

S.M.B. wrote: »

Very interesting. That's who I saw.

I got the impression that he was a little too eager to operate and questioned his motives.

Your experience seems to paint a different picture.

Cheers for the info!

For what it is worth, I see contact lens specialist Patrick Madden in Egans Opticians Cork. I used to see Peter Crisp there but he retired recently. Patrick Madden has switched me to using Synergeyes Ultrahealth lenses now and though they feel a little "different" my vision with them is fine. I can drive etc.

Without the lenses I would struggle to make out the top letter on the eye chart. My corneas are scarred so badly that anyone who has seen them remark that they are up there with the worst they have seen. Though Sheraz Daya has said he has seen worse

S.M.B. · 27-08-2015 4:33pm

I'm actually based in London for the past 5 years now, partly because I felt Ireland lagged behind in terms of KC support.

I did go back for a second opinion/glimpse at what progress has been made a few years ago and that's how I was referred to Daya.

I was of the belief that nobody in Ireland was doing DALK procedures.

I see they are a form of hybrid lens. It's been well over 10 years since I had to move away from something similar.

Red King · 27-08-2015 5:01pm

S.M.B. wrote: »

I'm actually based in London for the past 5 years now, partly because I felt Ireland lagged behind in terms of KC support.

I did go back for a second opinion/glimpse at what progress has been made a few years ago and that's how I was referred to Daya.

I was of the belief that nobody in Ireland was doing DALK procedures.

I see they are a form of hybrid lens. It's been well over 10 years since I had to move away from something similar.

I think they have made a lot of progress with the lenses in that period.

These new ones are supposed to be healthier for your eye over the long term as they allow more oxygen to pass through and do not put undue pressure on the cornea.

sebphoto · 05-11-2015 12:58am

hi all. I'm looking for some more information about cornea transplant surgery in Ireland i.e. what is required (paperwork), where it can be done, how long I would have to wait for it and how much does it cost?

tashiusclay · 06-11-2015 10:18pm

I recently got Intac's fitted to my previously cross linked keratoconus eye, if any one has any questions about how this went and the recovery period (currently about 6 weeks since I got it done) feel free to ask away.

glineli · 07-11-2015 10:51am

tashiusclay wrote: »

I recently got Intac's fitted to my previously cross linked keratoconus eye, if any one has any questions about how this went and the recovery period (currently about 6 weeks since I got it done) feel free to ask away.

Where you get it done? How does it feel? I had cross linking done myself, found it great

super106 · 11-03-2016 8:53pm

tashiusclay wrote: »

I recently got Intac's fitted to my previously cross linked keratoconus eye, if any one has any questions about how this went and the recovery period (currently about 6 weeks since I got it done) feel free to ask away.

Dodo bear · 12-03-2016 3:58am

Hi everyone
Just said i would leave a msg in relation to my corneal transplant that i got in feb 2014.
I got all my stitches out (finally after 2 yrs) in the eye and ear last month feb 2016. I was quiet nervous going in ( prob my fear of hospitalsðŸ€•) so on the day i was in 5.5 hrs 8 am to 1.30 pm. On arrival i get my blood pressure, urine sample, the docturs ask a few questions. Then i got taken down to the room where the procedure was done.
I was in a gown on a bed, i was given oxegen, an introvenus relaxant to make me relax, numbing drops in the eye and mr power used a sissors ( i think) to cut the stitches ( my eye waters at the thought of the sissors but i didnt feel a thing) ðŸ˜Š
It was all over in about a half hr r so and i was taken to recovery a bit woozy.
I got tea and toast back in the ward and had to stay around for about an hr so they could monitor me.
Every thing went fine ( besides me being so nervous before i went in) and i stared on 2 drops 4 times a day for a wk and am now on 1 drop for the next month until i see mr power 2 months after stitches out.
My vision doesnt seem as good as it was before stitches were removed but i was expecting that. I wont know really what the story is with my vision until i go back to mr power. My vision was so good before and i could read small writing on tv from far away with out any glasses r contact. I will ask will my vision improve at my next appointment.
I would love to hear how the others above who said they were having the transplant got on and any issues they are having or more importantly or hopefully how great its going?

Also i still attend egans in cork for my corrective lenses for my other eye that has kerataconus but not as severe. Only attended the new guy there once. But have another appointment soon. Is he good??
Hope everyone is doing well ðŸ‘ðŸ»

irishproduce · 16-05-2016 2:53pm

That is good news Dodo.
The first step is getting a positive result and no rejection issues.

I've mine 10 years now.
Vision never got better even after attempted second surgery to release some pressure on cornea in 2012 but look, I can wear a lense with the eye now (although I don't)

rocally · 16-05-2016 3:27pm

Only attended the new guy there once. But have another appointment soon. Is he good??

How did you find him ? I've been twice and I'll be honest I wasn't overly impressed

misstearheus · 20-07-2016 12:13am

Family member just got diagnosed with this. Am a bit heartbroken for them.

One eye is too far gone, - could say they're blind in that eye, the other eye is really bad and not sure if anything can be done for it, but they are hoping to go ahead with a Cornea Transplant. Don't know what to think about the whole transplant thing! No experience in dealing in anything like that. Not a great topic of conversation is having anything to do with a transplant! It's talking about death in some way shape or form isn't it, whether it may be as a Recipient or a Donor! A lot to be mulled over!! How does one accept or deal with or cope with anything got to do with the whole process of Donor-ship/transplanting?!?

Be it a cornea or a kidney or whatever....

It has me immersed in floods of tears thinking about it all. They're under 40 and it's very sad and difficult to think they'll be missing out on so much and they'll never have decent sight again!

There seems to be quite a lot out there with this condition, didn't realize that many had it. Don't really know what to do or how to help in a tactful yet useful way! They are actually bumping into things around the room it's that bad!!

This is only just the beginning like, a nasty intro of the road ahead...

There could be walking-canes or whatever, who knows what, involved at some stage.... A horrendous thing to have to adapt to to go from a healthy fit active hyper youngster to.... this..... It's a pretty seriously adaptive thing to have to get used to.....

Ye all seem to be coping superbly and barely complaining at all! I don't know whether it's that ye're playing it down a bit or if it's just that ye're not complainers...! But ye'all sound so brilliant fair play to ye! I know there's probably worse things that can happen and at the minute in my own mind I'm probably being a bit over-dramatic but it's still serious enough in a way too though..... But ye sound brilliant coping with it! Perhaps ye are downplaying or perhaps I'm just thinking the absolute worst of it.... I can't even begin to imagine how much of a nightmare getting around every day with this must be, but ye sound like ye're coping so well and not making a big deal out it! and getting on with things as best ye can. What a triumph. Walking/getting around and daily tasks must be such a struggle like....

I would love to know more about it.... Where can I find out more.... How bad does it get.... Does it get to a stage where ya can't make people out.. where even humans are just a blur-spot/spot/shape/blur.... Where can I find out how bad it can get....

Nicknamed · 07-08-2016 12:01pm

I was using hard lenses but not any more as my optician has switched me to Spectacles-- I have quiet a few unopened Boston advance conditioning lens solution which I am happy to sale at reduced price if anyone is interested. I have 3-4 Boston lens cleaner fluid bottles as well. PM me for details.

Keratoconus

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