Sleep Apnoea and CPAP

Davexirl wrote: »

I am waiting since September to go back in to St Vincents to start my CPAP trial. Doesn't look like I'll be going in anytime soon with the current Covid situation.

Would I be mad to go buy a machine without having the trials in St Vincents?

Hi Davexirl

I seem to be about 4 months behind you on the study then diagnosis (2 weeks ago) - I'm wondering did you try anything or are you still waiting? I'm desperate to get started!

Thanks

Davexirl wrote: »

I contacted Vincent's and asked when I might be brought in for the trial, they said they have no control over the appointments and they can't give me any date. I haven't heard anything since. I am like you, desperate to get started.

Ok, thank you for coming back to me. Fingers crossed for both of us!

Does anyone think something like this has any credibility when it comes to sleep apnea, or is it just wild claims that it would help?

https://www.gordonsdirect.com/salin-plus-salt-therapy-air-purifier.html?gclid=EAIaIQobChMI1tW6zrnp7wIVwp7tCh2SMAC2EAQYAyABEgJ-7_D_BwE

Samuel T. Cogley wrote: »

If you taped it to your face maybe. Otherwise I can't see how it would work.

Ah Ha! I was sent this yesterday from a friend, now it makes sense after seeing these last few posts!

NIMAN wrote: »

Does anyone think something like this has any credibility when it comes to sleep apnea, or is it just wild claims that it would help?

https://www.gordonsdirect.com/salin-plus-salt-therapy-air-purifier.html?gclid=EAIaIQobChMI1tW6zrnp7wIVwp7tCh2SMAC2EAQYAyABEgJ-7_D_BwE

I don't know if it would help with S/A, but my daughter has been using it for about 1.5 years and it has definitely improved her sleep. I notice a difference in the air quality in her room,no doubt about it,so much so that I'm considering getting one myself.

I get one a year free from the machine rental company. After that I buy spares and replacements from http://cpapstore.eu/

plhealy2000 wrote: »

I generally just get them from the rental company and reclaim under the drug payment scheme.

Covers most of the cost of the replacement parts.

Same,I get one per year from the rental company,also tubes and filters. Then I buy one from them and reclaim on the drugs payment scheme,it covers the entire cost for me.

The Mighty Quinn wrote: »

If I purchase a new CPAP machine (or APAP as it'd likely be) - they are about 700-800eur - can I claim some tax back on this as a medical expense at the end of the year does anybody know?

I've a Fisher Paykal Icon+ at the moment, this fella here



which will be needing replacement I'm guessing sometime soon. Maybe not, but trying to get the facts straight before going to buy another!

Any recommendations on brand and why?

I'd be looking for something quiet, the FP one is quiet enough really, only noise is it hissing air if it slips off my face a bit during the night. I don't like the water tank in it though. It's difficult to clean, and routinely limescales up (i do use a descaler, but if I could actually take it apart to clean it regularly it'd be better)

Can't help you with you're first question, although I would imagine the answer is no, however on your limescale problem, I use de-ionised water from Tesco in mine. Wiped out my limescale problem overnight. Cheap as chips,it's €1.50 for 2.5 liters

Dublinandy3 wrote: »

The last cushion I bought I save 18 euro over the cpapstore.eu price doing it that way, that included the extra money it cost me to pay for it to be sent from the UK to here. But that is a bit of a ball ache, cpapstore is cheap and reliable.

Just wondering, was that before Brexit? I wonder would you get caught for VAT/import fees on arrival into Ireland now, in particular from July when the exemption for low value shipments is ended.

Dublinandy3 wrote: »

No, I got my last one last week. I also got the sender to put a value of £10 on it to avoid any extra fees. I know not particularly honest. In July, I'll have to wait and see what happens I guess, it probably will shut that option down.

Thanks, we'll have to wait and see I guess!

It's the fact that they will charge VAT on the combined value of the item and the shipping charge, plus the €10-18 admin fee depending on which post/courier service it is that could really add a sting.

I am with a consultant who is supposed to be one of the best, but I am not convinced. After my last phone consultation I have been aggravated since, I cannot get answers to questions and significant things that are causing problems are not addressed. I found them abrupt, dismissive and accusatory. Everything is my 'fault' with no suggestions as to how any issues could be dealt with. I am only getting about 5 hours sleep on average - absolute best, very occasionally might be 7 but also some 4 hours.

I have not felt well rested since I (re)started the therapy about 15 months ago, I have been told by the Resmed nurse that my conformity is very good, and I have missed almost no nights of using the mask (illness or power cuts being only exceptions). But the consultant is consistently negative about it all. There are some rather complicated connected issues that the consultant is not taking on board, just use the machine, increase the pressure, any issues are your fault. I am getting noticeably slower to understand things or think and permanently weary.

Too many sleep apnoea consultants are respiratory specialists who have picked up a bit of sleep apnoea stuff on the side and don't really know much about it. I have had two like that in the past. I think the current one knows the stuff but isn't really all that interested in individuals. If anyone is with a consultant who they are happy with and who knows the subject could you pm me names please? I think I need to move on.

The fact that they are responding to email queries in a timely manner would allay my concerns.

Yup and had no issues whatsoever - CPAP machine and accessories across multiple orders.

Thanks thats reassuring. Bulgaria is the address on the website?