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28-10-2020, 20:15   #571
tiny14
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Hi all really appreciate any help!! Was diagnosed with osa few months ago but really struggling with cpap machine but im sitting up in my sleep an can stay that way til my partner puts me lying down or i can wake myself and few months ago i used to getvup out of bed and end up falling and have hurt myself falling against locked and only came to after hitting locker!! Has anyone else experienced this type of behaviour with obstructive sleep apnea & many thanks in advance
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28-10-2020, 20:21   #572
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Just stumbled across this thread as it was highlighted on the front page but I'm delighted to have found it.

New gf has alerted to me to some bad snoring and anytime she has stayed with me she has had to go to the couch. So she made me download snorelab yesterday and the results were fairly damming. I snored for just under 3 hours out of the 7 and quite badly at that. The recordings were quite extreme peaks.

A previous ex had alerted me to similar and I did nothing about it but now I'm thinking that it could well be a big part of low energy and feeling tired each day.

I'm going to run the app for 2 weeks and maybe see a specialist at the end of reviewing the whole data set.
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28-10-2020, 20:22   #573
whomitconcerns
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I had an ahi of 105 when I got the machine, down to about 1-3 now most nights. But struggle with leakage into my eyes which leaves me too warm and with eye bags most mornings. It's a Phillips under the nose mask. Stuck with it at this stage
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28-10-2020, 20:23   #574
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Originally Posted by tiny14 View Post
Hi all really appreciate any help!! Was diagnosed with osa few months ago but really struggling with cpap machine but im sitting up in my sleep an can stay that way til my partner puts me lying down or i can wake myself and few months ago i used to getvup out of bed and end up falling and have hurt myself falling against locked and only came to after hitting locker!! Has anyone else experienced this type of behaviour with obstructive sleep apnea & many thanks in advance
We can talk about our personal experiences in this thread. And that may be helpful to other members. I've learned a lot here. But if you are having serious problems with your treatment, you should first consult with your medical specialist.
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28-10-2020, 20:45   #575
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Hi Guys I would like to get any advice from anyone that has bought their own machine. I'm currently on therapy since last September and to be honest it is only in the last 4 months that I have gotten used to it. I get 5-6 hours sleep with the Airsence 10 and AirFit F30 Full Face mask, 6 hours might not be a lot to some but to me it is a whole lot better than the 1-1 1/2 hours I was getting before therapy.

Now I find that I don't get a whole lot for the €96 a month rental cost and when I was struggling to get used of it the assigned Nurse never even contacted me nor have I been called back for any review (Galway clinic). I feel as if this is just a a nice cozy cartel to milk the consumer. So here are some questions if anyone can help
- For anyone who has purchases it outright where would you recommend as a good supplier?
- Will I need approval from he consultant or a doctor to purchase one of these machines?

Any help would be greatly appreciated
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29-10-2020, 00:04   #576
tiny14
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We can talk about our personal experiences in this thread. And that may be helpful to other members. I've learned a lot here. But if you are having serious problems with your treatment, you should first consult with your medical specialist.
Thanks for reply and new to this so was wondering had anyone else this experience with sleep apnea and will consult my gp
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29-10-2020, 09:31   #577
Masala
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Originally Posted by beerguts View Post
Hi Guys I would like to get any advice from anyone that has bought their own machine. I'm currently on therapy since last September and to be honest it is only in the last 4 months that I have gotten used to it. I get 5-6 hours sleep with the Airsence 10 and AirFit F30 Full Face mask, 6 hours might not be a lot to some but to me it is a whole lot better than the 1-1 1/2 hours I was getting before therapy.

Now I find that I don't get a whole lot for the €96 a month rental cost and when I was struggling to get used of it the assigned Nurse never even contacted me nor have I been called back for any review (Galway clinic). I feel as if this is just a a nice cozy cartel to milk the consumer. So here are some questions if anyone can help
- For anyone who has purchases it outright where would you recommend as a good supplier?
- Will I need approval from he consultant or a doctor to purchase one of these machines?

Any help would be greatly appreciated


I have bought my Phillips outright and am now finding it hard to get a mask on the internet. I have broken all ties with my original supplier as their service was useless and not willing to give any more business to them. There is a link above to www.cpap.commbut they done do my mask. So... befiore u throw in the towel.. try and scrounge a mask or two to keep u going. OR make sure that your supplier will sell you one and spares after leaving them.
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29-10-2020, 21:35   #578
Fathom
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Thanks for reply and new to this so was wondering had anyone else this experience with sleep apnea and will consult my gp
Cool. We look forward to your experiences, discoveries and posts.
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31-10-2020, 16:37   #579
LittleGarry
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Originally Posted by beerguts View Post
Hi Guys I would like to get any advice from anyone that has bought their own machine. I'm currently on therapy since last September and to be honest it is only in the last 4 months that I have gotten used to it. I get 5-6 hours sleep with the Airsence 10 and AirFit F30 Full Face mask, 6 hours might not be a lot to some but to me it is a whole lot better than the 1-1 1/2 hours I was getting before therapy.

Now I find that I don't get a whole lot for the €96 a month rental cost and when I was struggling to get used of it the assigned Nurse never even contacted me nor have I been called back for any review (Galway clinic). I feel as if this is just a a nice cozy cartel to milk the consumer. So here are some questions if anyone can help
- For anyone who has purchases it outright where would you recommend as a good supplier?
- Will I need approval from he consultant or a doctor to purchase one of these machines?

Any help would be greatly appreciated
Have a look at my "story" posts from #269 to #276. It is now a couple of years on and I haven't looked back since - just ordered a new mask from the same company yesterday - excellent pricing and free delivery can't fault them. Just to clarify absolutely NO connection here simply sharing a positive experience.
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01-11-2020, 13:47   #580
Murt10
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Originally Posted by beerguts View Post
. I feel as if this is just a a nice cozy cartel to milk the consumer. So here are some questions if anyone can help
- For anyone who has purchases it outright where would you recommend as a good supplier?
- Will I need approval from he consultant or a doctor to purchase one of these machines?
I bought mine outright years ago and haven't looked back. You don't need any permission from anyone regarding which brand of machine you chose. It's like choosing a ford or a toyota. They both do exactly the same thing - get you from here to there.

CPAP machines are the same. They're basically just a high tech reverse vacuum cleaner. They all pump air up your nose at a particular pressure.

I'm on the CPAP many years. Originally I was with one company and looked to buy the machine I had with them. It was roughly €1,100 as far as I remember. They were supposed to give me a new mask and filters every 6 months - Never happened. They'd only give them to me when I looked for them, thereby saving themselves a fortune.

Anyway, despite the fact my machine was 3-4 years old at that stage, they tried to discourage me from buying it, when I inquired. They were looking to sell it to me for over 80% of the new price. Take it or leave it attitude. Obviously they didn't want to kill the goose that laid the golden egg.

I moved company several times. With the last company I told them I wanted to try the machine before buying it. I rented it for 2 months and they agreed to take the rental off the purchase price of the machine. It was a winner for them as I still buy my masks and filters (every 18-24 months) off them

Don't forget that the cost of the machine is also tax deductible saving you 20% off the cost. At the end of year one your'e in clover. You've paid once for the machine and it will last you a good many years. You don't have to keep going through the ritual of claiming money for the machine under the refund of drugs scheme, and feel that you're being used as a pawn, helping to bankrupt the health service.

As an aside, when I bought my machine, my family was paying €135 pm to the Chemist, under the Drugs Payment Scheme, for all our drugs, and the state paid the excess. Imagine my surprise when I was on holidays in Spain one year and brought the family prescriptions to the local pharmacist over there.

I was only looking to see how much they'd cost, but the assistant got them off the shelves. Imagine my surprise when she put them through the register and a months supply came to a total of €40. I rang the wife and asked her whether I should take them or not. Her reply was instant. Will they give you 6 months? I asked and got them no problem. And I've been buying my medication in Spain ever since.

I asked my Dr. about it, as I was worried as to whether I would be getting the genuine article or not. He reassured me that if I was buying them in a physical chemists shop, rather than over the net, I has nothing to worry about. He said that there was as much chance of me getting knock off drugs in an Irish chemists as there was in a Spanish one. He even wrote out the prescription using generic names.

Anyway, the point of the story is that the money I saved of the medicines, paid for the purchase of the machine in a year.
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05-11-2020, 22:33   #581
Fathom
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I asked my Dr. about it...
Good choice.
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06-11-2020, 13:18   #582
GadgetGeek
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Quote:
Originally Posted by beerguts View Post
Hi Guys I would like to get any advice from anyone that has bought their own machine. I'm currently on therapy since last September and to be honest it is only in the last 4 months that I have gotten used to it. I get 5-6 hours sleep with the Airsence 10 and AirFit F30 Full Face mask, 6 hours might not be a lot to some but to me it is a whole lot better than the 1-1 1/2 hours I was getting before therapy.

Now I find that I don't get a whole lot for the €96 a month rental cost and when I was struggling to get used of it the assigned Nurse never even contacted me nor have I been called back for any review (Galway clinic). I feel as if this is just a a nice cozy cartel to milk the consumer. So here are some questions if anyone can help
- For anyone who has purchases it outright where would you recommend as a good supplier?
- Will I need approval from he consultant or a doctor to purchase one of these machines?

Any help would be greatly appreciated

Have a look at my previous post #350 cheapest solution I could find. No issue with delivery.
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08-11-2020, 11:20   #583
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I am a bit worried about one possibility.

I wear my mask quite tight to minimise air leaks, but I have noticed that if the machine is off I have no air to breathe.

If there was a power cut during the night, is it not possible that I would asphyxiate?
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09-11-2020, 12:41   #584
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I am a bit worried about one possibility.

I wear my mask quite tight to minimise air leaks, but I have noticed that if the machine is off I have no air to breathe.

If there was a power cut during the night, is it not possible that I would asphyxiate?

CPAP or APAP machines for home use should always use vented masks to ensure that you can breathe when they are turned off i.e. they have a vent or small holes that allows an intake of air. It may be a little harder to breathe than usual as you are pulling air through a small opening, but it shouldn't close off your air supply completely.

Non-vented full-face masks are only for use with ventilators that have an active exhalation valve, and alarms and safety system for device failure.

What mask do you use Boulevardier?
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11-11-2020, 21:23   #585
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Wondering if anyone has experience with Apps for Resmed Airsense 10 CPAP device?

While renting Resmed Airsense 10 CPAP device, PEI offer myPatientSpace app.

If you buy, you dont have access to this and the Resmed App (myAir™ for Air10™ by ResMed) is not available in Ireland(!), so only option is to use resmed website.

Wondering if anyone has experience where they bought the machine and if the website (instead of the app) is useful?
Thanks.
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