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Advice please

  • 17-07-2020 4:29pm
    #1
    Registered Users Posts: 968 ✭✭✭


    hi all

    My son has had a diagnosis of ADHD and ASD (Aspergers' version?), we went private. We knew it was coming but still a bit of a shock to see it on paper.

    We are trying to be proactive and have him on a waiting list for private OT etc.

    with regards to school and the HSE how do we approach the situation?

    there is a dedicated ADHD section in the area we are covered by (Linn dara) but i have been told by his doctor and a fried who is an SEN co-cordinator in a school that if we present with ASD and ADHD that we might not access this as HSE will see it as an ASD issue not a ADHD issue.

    my worry with school is that he scores well enough on STEN's and will that be "used" against him in allocation.

    any pointers, help ,appreciated


Comments

  • Registered Users Posts: 13,235 ✭✭✭✭fits


    How old is he?


  • Registered Users Posts: 968 ✭✭✭Str8outtaWuhan


    fits wrote: »
    How old is he?

    sorry, 7. btw, he hasn't done stens yet but the school do mini versions and give them on reports. Reading some of the byzantine literature on education.ie they use percentiles to help determine access to help. He is definitley struggling behaviourly, but not academically (yet...). Hope that makes some kind of sense.


  • Registered Users Posts: 1,452 ✭✭✭gogo


    sorry, 7. btw, he hasn't done stens yet but the school do mini versions and give them on reports. Reading some of the byzantine literature on education.ie they use percentiles to help determine access to help. He is definitley struggling behaviourly, but not academically (yet...). Hope that makes some kind of sense.

    My son is also 7, and also has both aspergers and adhd. He is gifted (few points off genius) and in mainstream school, where he will remain. He was assessed privately, and confirmed aspergers and alluded to adhd only, as we hadn’t asked it be tested for that, she confirmed it verbally though that he had it. The school give him every service that any other adhd kid gets, he has movement breaks, fidget toys etc and plenty of time warnings, as in five minutes left of maths type thing.

    Is it that you are trying to get him into a particular unit? And worried that the asd diagnosis over adhd will compromises that? Sorry, I’m not familiar with a the place you mentioned, is it for adhd kids only? Or is it that your trying to get other services?
    Every school has protocols in place for adhd kids, it can be as challenging asd, and schools would have a lot of supports in place to handle it, go in any talk to them is often the easiest solution, show them all reports you have and work together on behaviours.


  • Registered Users Posts: 55 ✭✭ulsen


    "my worry with school is that he scores well enough on STEN's and will that be "used" against him in allocation."

    Years ago if a student had a diagnosis for example adhd the were given so many hours support, and all children with adhd were given the same hours, similarly with asd etc. Nowadays schools look to the students needs and offer support based on the individual students need rather than a diagnosis. Student don't necessarily need a diagnosis to receive additional support in school, and the time given for each student varies depending on their needs, and the hours allocated to the school.

    If a student has difficulties in literacy, numeracy (this would be based on percentiles)-they will get extra support in literacy and numeracy. If a student has difficulty in communication or social skills which sometimes can be an area of need with students with ASD, they will receive support in that area. Likewise if the area of need is behavioural, the student will receive support in this area. So it not the diagnosis which gains the school support, but the area of need, and different students have different needs.

    You should make an appointment to meet your class teacher and special education teacher, and if necessary they will draw up a support plan, identifying what areas your child needs support in, and how they plan to achieve that. Did the report you received identify the areas you son might need help with- for example organisation, behaviour, sensory, social skills, etc. This can be a good starting point.


  • Registered Users Posts: 968 ✭✭✭Str8outtaWuhan


    ulsen wrote: »
    "my worry with school is that he scores well enough on STEN's and will that be "used" against him in allocation."

    Years ago if a student had a diagnosis for example adhd the were given so many hours support, and all children with adhd were given the same hours, similarly with asd etc. Nowadays schools look to the students needs and offer support based on the individual students need rather than a diagnosis. Student don't necessarily need a diagnosis to receive additional support in school, and the time given for each student varies depending on their needs, and the hours allocated to the school.

    If a student has difficulties in literacy, numeracy (this would be based on percentiles)-they will get extra support in literacy and numeracy. If a student has difficulty in communication or social skills which sometimes can be an area of need with students with ASD, they will receive support in that area. Likewise if the area of need is behavioural, the student will receive support in this area. So it not the diagnosis which gains the school support, but the area of need, and different students have different needs.

    You should make an appointment to meet your class teacher and special education teacher, and if necessary they will draw up a support plan, identifying what areas your child needs support in, and how they plan to achieve that. Did the report you received identify the areas you son might need help with- for example organisation, behaviour, sensory, social skills, etc. This can be a good starting point.

    thanks for that , report recommended we get OT and get assessed for other learning diffuculties e.g dyslexia, dyspraxia etc. We have him on waiting list for OT (private). thanks for info


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  • Registered Users Posts: 968 ✭✭✭Str8outtaWuhan


    gogo wrote: »
    My son is also 7, and also has both aspergers and adhd. He is gifted (few points off genius) and in mainstream school, where he will remain. He was assessed privately, and confirmed aspergers and alluded to adhd only, as we hadn’t asked it be tested for that, she confirmed it verbally though that he had it. The school give him every service that any other adhd kid gets, he has movement breaks, fidget toys etc and plenty of time warnings, as in five minutes left of maths type thing.

    Is it that you are trying to get him into a particular unit? And worried that the asd diagnosis over adhd will compromises that? Sorry, I’m not familiar with a the place you mentioned, is it for adhd kids only? Or is it that your trying to get other services?
    Every school has protocols in place for adhd kids, it can be as challenging asd, and schools would have a lot of supports in place to handle it, go in any talk to them is often the easiest solution, show them all reports you have and work together on behaviours.

    Our Cahms service have a fast track ADHD program early intervention etc but if we present with ADHD and ASD the program will not accept as they will put all behavioural issues down to the the ASD (the grapevine is that they are doing this)and not admit him to program, hence playing down the ASD. If not too personal, what is your opinion of medication for the ADHD? We are inclined to Try OT first but are worried that his ADHD will start to get worse once school starts back. Thanks


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