Psoriasis

qo2cj1dsne8y4k · 13-09-2019 7:43pm

My tb test was indefinite, I’m freaked out and can’t start my meds yet

Gael23 · 25-09-2019 10:57am

Does anyone have reactions to detergents/cleaning products? I never usually wear gloves but I don’t want to end up damaging my hands

khalessi · 25-09-2019 6:48pm

Gael23 wrote: »

Does anyone have reactions to detergents/cleaning products? I never usually wear gloves but I don’t want to end up damaging my hands

I used to react to chlorhexidine in the antibacterial soaps in hospitals and had to use something else but not an issue now

eeloe · 26-09-2019 11:34am

Grace Thoughtless Mortal wrote: »

My tb test was indefinite, I’m freaked out and can’t start my meds yet

Any update?

khalessi · 26-09-2019 9:48pm

Sometimes the BCG can wear off after 19 years or so, maybe getting it redone could help

Gael23 · 26-09-2019 11:15pm

khalessi wrote: »

Sometimes the BCG can wear off after 19 years or so, maybe getting it redone could help

To the best of my knowledge the BCG vaccine is no longer administered in Ireland. It was seen to be eradicated and not really widely given, then after that the plant which supplied it was destroyed by fire and ceased trading.

I never had it as a baby because I was born with very serious complications and at that time at least it wasn’t given in Crumlin Childrens hospital

khalessi · 26-09-2019 11:19pm

Wow!!! I didnt realise. Just reading that after you said it. My kids got it 9 years ago cant believe they dont give it anymore. Apparently the supply went out of date in 2015 and had difficulty getting it, fierce dodgy that

qo2cj1dsne8y4k · 27-09-2019 1:13am

eeloe wrote: »

Any update?

Had the test redone on Monday and it was sent to Dublin so should know mid week now please god, I’m in an awful way. Skin isn’t too bad but I’m lethargic sick breathless sore you name it I can barely function

qo2cj1dsne8y4k · 27-09-2019 1:14am

What’s a bcg

khalessi · 27-09-2019 1:51am

Grace Thoughtless Mortal wrote: »

What’s a bcg

It is the injection babies got to prevent TB uptill 2015 apparently

Always Tired · 27-09-2019 3:11am

I remember i was in primary school in America and they gave us a TB test that was like this little spiky disc they prick you with, the dots rise if you have it.

They either never asked or were unaware I had been vaccinated in Ireland and my test came up like a half positive (guess you could call it indefinite) due to it.

qo2cj1dsne8y4k · 27-09-2019 7:10am

Omg so if I have had the vaccination it could throw the result

khalessi · 27-09-2019 7:39am

Grace Thoughtless Mortal wrote: »

Omg so if I have had the vaccination it could throw the result

No because in Ireland they are aware as a baby you would have had the vaccine. Question is has worn off. I friend of mine trained to be a nurse years ago and they all were retested and at least half of group needed test redone and were given the injection again in their arm/ shoulder area. They needed to be sure that they would not catch it from patients

khalessi · 29-09-2019 10:29pm

Starting light treatment soon cant wait my back is in bits

Gael23 · 30-09-2019 9:42am

khalessi wrote: »

Starting light treatment soon cant wait my back is in bits

It didn’t work for me but lots of people have great success with it

wonga77 · 30-09-2019 9:46am

2 quick questions,
Anyone with p on their nails, how did you get it diagnosed? I thought it was a simple fungal infection but its not going away, despite my best efforts. I was to a specialist a few months back but my nails were fine at the time and i didnt think to ask.
Also for anyone that has had bloods done, did you request any specific results or was it just the standard blood test at the doctors. Ive had that done in the past but find the nurses can be a bit dismissive with the results, everythings grand etc...

makeorbrake · 30-09-2019 10:32am

wonga77 wrote: »

2 quick questions,
Anyone with p on their nails, how did you get it diagnosed?

I don't seem to have it much in the last while but I have had wavy/curly nails in the past that is a manifestation of psoriasis. I guess for me to have it diagnosed at the time was easy as it was accompanied by breakouts of psoriasis on my skin.

Just as an aside...'

I'm back in Ireland on holiday for a few weeks. 2 weeks in and I can tell you my psoriasis is much worse. It's itchy as hell and red-er. Based on nothing but a hunch but I feel its the water that's making it worse.

khalessi · 30-09-2019 12:07pm

wonga77 wrote: »

2 quick questions,
Anyone with p on their nails, how did you get it diagnosed? .

I went to a dermatologist when I was 19 and was diagnosed on looking at them. the dermatologist then took a photo of them saying they were the worst case they had seen without any other symptoms. Nothing suggested for them. I still get it, as it comes and goes. It also occasionally lifts the nail off the nailbed which can be sore, so i keep my nails short and dont wear nail varnish or get false nails.

It wa sthe first sign of psoriasis which I finally developed at 26 all over my face and head

qo2cj1dsne8y4k · 04-10-2019 10:22pm

Second Tb test came back clear, can start the biologicals. Nurse wants me to wait for the nursing team, consultant thinks I’ll be well able to do it myself as he doesn’t want me waiting.
I’m not well at all at the moment but I know it’s because I’m off meds. Kind of thinking about winging it with the biologicals cause I know I wouldn’t be well enough to take it without taking it

Gael23 · 04-10-2019 10:41pm

Grace Thoughtless Mortal wrote: »

Second Tb test came back clear, can start the biologicals. Nurse wants me to wait for the nursing team, consultant thinks I’ll be well able to do it myself as he doesn’t want me waiting.
I’m not well at all at the moment but I know it’s because I’m off meds. Kind of thinking about winging it with the biologicals cause I know I wouldn’t be well enough to take it without taking it

I think you should wait. But if you must go ahead then get the nurse in your GP surgery to do it

Always Tired · 04-10-2019 11:25pm

wonga77 wrote: »

2 quick questions,
Anyone with p on their nails, how did you get it diagnosed? I thought it was a simple fungal infection but its not going away, despite my best efforts. I was to a specialist a few months back but my nails were fine at the time and i didnt think to ask.
Also for anyone that has had bloods done, did you request any specific results or was it just the standard blood test at the doctors. Ive had that done in the past but find the nurses can be a bit dismissive with the results, everythings grand etc...

The Healing Psoriasis book by John Pagano has a subchapter on nail psoriasis. Besides following the diet, he recommends:

taking Omega3 fish oil or flaxseed oil supplements. Keeping the nails trimmed.

Take a packet of Knox unflavoured gelatin (no idea where you get this) or agar agar per day in water or juice.

Soak the hands or feet in hot water in basin or portable whirlpool with 2 cups epsom salts dissolved (I have found epsom or dead sea salts very good for relief of p. And epsom salts draws out toxins which is good for nail infections).

Dry them thoroughly and vigorously apply any of the following throughout each nail: castor oil, olive oil, peanut oil mixture, emu oil, Bag Balm (don't ask me), Vaseline, Aquaphore or Aveeno lotion.

Place a pair of white gym socks over the hands or feet and retire for the night.

He says it takes much longer to heal than skin lesions. Can take 6 months for fingernails to regenerate and a year for nails.

I would try the epsom salt soaks anyway, they are generally quite good.

eeloe · 05-10-2019 12:37pm

Grace Thoughtless Mortal wrote: »

Second Tb test came back clear, can start the biologicals. Nurse wants me to wait for the nursing team, consultant thinks I’ll be well able to do it myself as he doesn’t want me waiting.
I’m not well at all at the moment but I know it’s because I’m off meds. Kind of thinking about winging it with the biologicals cause I know I wouldn’t be well enough to take it without taking it

If you're not feeling well i'd 100% wait until you are better before you start taking them.

Trust me, being sick while on biologics isn't fun, everything takes much longer to clear up, so wait until you are well before beginning.

holliehobbie · 05-10-2019 12:50pm

I've had Psoriasis on my scalp for a number of years. In June this year I suddenly developed it from head to toe after coming back from a holiday in Spain. I managed to clear every bit of it by going back to my usual vitamin D and magnesium malate supplements which I had been taking very little of in Spain. I take these supplements as I have two Endocrine disorders hypothyroidism and hyperparathyroidism. I'm also on Warfarin as the second condition caused two DVTs so I was very anxious not to have to take steroid tablets or cream as they interfere with the Warfarin. Has anyone here had their vitamin D and magnesium levels checked? Epsom salts is magnesium too.

BohsCeltic · 05-10-2019 1:29pm

So it's about 1 year and 4 months since this first started. My face is ok now and my upper body not too bad but it's spread much on my hands.

My legs and feet are the worst by far, I can barely walk as my heels and side of my feet are bad.
I just showered and tried to pull a scale off and it bled, first time this has happened.

Suffering from depression doesn't help either.

I do get jealous when i see people wearing shorts and that and thinking that was me just over a year ago with clear nice skin but not now.

I don't even go on dates no more because i wouldn't like to start a relationship looking like this.

Just feeling meh.

brevity · 05-10-2019 2:25pm

Get to a doctor and then a dermatologist. I’ve been there and it’s such a horrible feeling. I remember in work having to go into the bathroom, swallow a couple of antihistamines and wash and then wrap my legs in cling film. Dark days.

Try and pay attention to what makes it worse. Take some Epsom salt baths and lather yourself in silcox base. Antihistamines will keep the itching at bay.

eeloe · 05-10-2019 2:42pm

BohsCeltic wrote: »

So it's about 1 year and 4 months since this first started. My face is ok now and my upper body not too bad but it's spread much on my hands.

My legs and feet are the worst by far, I can barely walk as my heels and side of my feet are bad.
I just showered and tried to pull a scale off and it bled, first time this has happened.

Suffering from depression doesn't help either.

I do get jealous when i see people wearing shorts and that and thinking that was me just over a year ago with clear nice skin but not now.

I don't even go on dates no more because i wouldn't like to start a relationship looking like this.

Just feeling meh.

Still not update on your specialist appointment?

BohsCeltic · 05-10-2019 3:11pm

eeloe wrote: »

Still not update on your specialist appointment?

No still waiting. If my luck changes soon and i get what i hope will be a good few quid i am going private. But that is not an option at the moment for me.

Gael23 · 05-10-2019 5:02pm

brevity wrote: »

Get to a doctor and then a dermatologist. I’ve been there and it’s such a horrible feeling. I remember in work having to go into the bathroom, swallow a couple of antihistamines and wash and then wrap my legs in cling film. Dark days.

Try and pay attention to what makes it worse. Take some Epsom salt baths and lather yourself in silcox base. Antihistamines will keep the itching at bay.

Thats the best you can do. Your going to be waiting a minimum of 12 months to see a public Dermatologist

BohsCeltic · 05-10-2019 5:54pm

Gael23 wrote: »

Thats the best you can do. Your going to be waiting a minimum of 12 months to see a public Dermatologist

I've been to my Doc many times. But waiting for specialist. Sometimes because i have depression i can get lazy to put creams on, because i just want to sleep or bury my head in the sand. Easy for people to say just get up and put the creams on.
I know i need to but hard to explain to people that when my mood is so low i dont want to do anything.

Nightmare.

Gael23 · 05-10-2019 7:27pm

BohsCeltic wrote: »

I've been to my Doc many times. But waiting for specialist. Sometimes because i have depression i can get lazy to put creams on, because i just want to sleep or bury my head in the sand. Easy for people to say just get up and put the creams on.
I know i need to but hard to explain to people that when my mood is so low i dont want to do anything.

Nightmare.

I can’t say I have a great understanding of mental health so nit able to offer much advice. What I will say is if it’s a case that your Psoriasis is contributing to the depression, look at applying the creams as a type of therapy. If you make the effort to apply those daily then your symptoms will reduce, hopefully eventually putting your mood in a better place.

I know I’m another person saying put the creams on but I’m just trying to get you to look at it a bit differently. Yes it’s messy and boring but doing it might help,in more ways than you think

Psoriasis

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