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sarcoidosis

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Comments

  • Registered Users Posts: 433 ✭✭koppy


    was told pretty much the same..not as drastic but similar.

    have level 1 sarcoid on the lungs since last november. was told by specialist it takes 12-18 months to burn out..but has high chance of returning so will be on 6 monthly check ups for 4-5 years and yearly after that. was told that if its takes longer or if keeps comming back could scar the lung which would not be able to fix.

    another poster said the felt you sometimes feel as though you're not taken seriously at all by doctors..some docotors tell you to forget about it others make a deal about it..hard to know what to think..i suppose i lucky in that i only have level 1 and dont seem to need medication.


  • Registered Users Posts: 29,089 ✭✭✭✭LizT


    Hi guys, isarc.ie is back up and running. There is a forum there for discussion and questions and there is lots of information available on the site. If you get a chance you should check it out.


  • Closed Accounts Posts: 1 handj


    Judes wrote: »
    Hi All,

    I was diagnosed in '96 - I was living in London - and got really bad erythema nodosum (don't ask me to spell) i.e. rash, lumps that became huge and all my joints ached so much and swelled up. Ironically after weeks of being tested for various things in London i.e. allergy to other medication, at one stage laughter of it's not T.B from 2 doctors. Really consoling that was!!! But I remember flying home to Cork for the Easter Weekend, to see the family - and ended up in Cork for 2 months including a 2 week stay at CUH - because I was so ill when I woke up and I couldn't physically walk, so my mother brought me to her local doctor and it was he in Cork who diagnosed suspected Sarcoidosis (I'd never even heard of it). Mine was also in my lungs, discovered after they did a biopsy.

    I was put on prednisole also - and was warned by everyone to expect weight gain - the funny thing was - I didn't gain any weight (apart from the boobs going up a size tee hee).

    But as I said I was off work for 2 months on this medication and once we knew exactly what was wrong with me - I started improving fairly quickly - I had regular visits with a Specialist Doctor at Hammersmith Hospital - seeing him at least once a month - and was on the Steroids for one year.

    The other thing is they were very strict about my diet - I was told NO NO NO to vitamin A and vitamin D - keep out of the sunshine (as it converts vitamin D into calcium). And I changed from white to brown flour products and watched every morsel I was eating. And I actually forgot I had it. as I did feel good.

    A friend of mine was diagnosed over here with it, about 2 years ago - but was told nothing about the Calcium out of the diet. Apparently, the reason I got the erythema nodusum was that I had an allergy alright - to calcium, as my own body was manufacturing the vitamin A & D into calcium too quickly, so I was poisoning my own body. One of the things Sarcoidosis could do. At the time because of this calcium over-dose they were more worried about my kidneys being badly affected by the whole thing.

    So I'm not sure if my ever so long story helps in anyway - but as I said in the UK and before I left the CUH I was told to go on this strict diet - and when I returned to the UK 2 months later, I was back to work and back to normal - with just the regular specialist appointments to check the steroid levels etc. And that was all 14 years ago, please God it's been dormant since.

    Though in the meantime, last year, due to immense stress/shock in my life for 12-20 months I got Fibromyalgia - but I'm trying to stay calm/positive and doing a lot of pilates to try and help muscles when they hurt.

    Good Luck to you all - I was a basic test case when I was in CUH all those years ago, very few people had ever seen the erythema nodosum like I had. I blew up to look a bit like the michellin tyre man and I was confined to a wheel chair for a few days, couldn't move - so doctors and nurses were all coming in to have a look at me.

    And how did I get it? Nobody knows.................. Could have been a weakness within me from previous surgery, it's one of those great mysteries. Just try and stay positive. Take care, JUDES
    Hi All. I've just been diagnosed with sarcoidosis. I was sent to A&E by my GP with severe intentinal pain. A CT scan of my tummy showed some lumps in my lower chest. A follow upo scan and a broncoscop/biopsy and I've been diagnosed. At first I was fine as I really thought I had the big c. Now I'm starting to get very tired and breathless. I'm not getting any treatment and as I'm already overweight I really don't want to go on steroids. Any advise? Judes - your post has some excellent info.


  • Moderators, Society & Culture Moderators Posts: 32,278 Mod ✭✭✭✭The_Conductor


    handj wrote: »
    Hi All. I've just been diagnosed with sarcoidosis. I was sent to A&E by my GP with severe intentinal pain. A CT scan of my tummy showed some lumps in my lower chest. A follow upo scan and a broncoscop/biopsy and I've been diagnosed. At first I was fine as I really thought I had the big c. Now I'm starting to get very tired and breathless. I'm not getting any treatment and as I'm already overweight I really don't want to go on steroids. Any advise? Judes - your post has some excellent info.

    There are non-steroidal treatment regimes- such as immunosuppresants etc- you should organise a discussion with a consultant and discuss what options might be applicable to you.


  • Closed Accounts Posts: 33 aluna


    hi all :)

    i was diagnosed with lofgren's syndrome a few days ago. wrote another post in this section. its a benign, self-limiting form of sarcoidosis.

    i presented with erythema nodosum and after a ct scan was found to have inflamed nodules on my lung. doctor said it was only beginning and needs no treatment. if my symptoms worsen i must start steroids.

    as you all know there is no cure. i have been housebound for a few weeks due to massive swelling in my ankles and joint pains (accute polyarthritis).

    i have to go back for a check-up in six weeks. is there anything in the world i can do to maximise my chances of getting better? i will rest. i will look into my diet, especially after reading Judes post. doc took 24 urine sample for investigation, presumably for calcium levels, but never gave me the results.

    finally, do any posters live in cork and can they recommend a gp who knows of and has an interest in sarc?

    thanks guys :)


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  • Registered Users Posts: 29,089 ✭✭✭✭LizT


    aluna wrote: »
    hi all :)

    i was diagnosed with lofgren's syndrome a few days ago. wrote another post in this section. its a benign, self-limiting form of sarcoidosis.

    i presented with erythema nodosum and after a ct scan was found to have inflamed nodules on my lung. doctor said it was only beginning and needs no treatment. if my symptoms worsen i must start steroids.

    as you all know there is no cure. i have been housebound for a few weeks due to massive swelling in my ankles and joint pains (accute polyarthritis).

    i have to go back for a check-up in six weeks. is there anything in the world i can do to maximise my chances of getting better? i will rest. i will look into my diet, especially after reading Judes post. doc took 24 urine sample for investigation, presumably for calcium levels, but never gave me the results.

    finally, do any posters live in cork and can they recommend a gp who knows of and has an interest in sarc?

    thanks guys :)

    Hi. There is a list of consultants specialising in sarcoidosis here, including one in Cork.
    http://www.isarc.ie/useful-information/consultants-specialising-in-sarcoidosis


  • Closed Accounts Posts: 33 aluna


    thank you very much lizt!


  • Registered Users Posts: 29,089 ✭✭✭✭LizT


    aluna wrote: »
    thank you very much lizt!

    You're welcome, hope the website is of some use to you!


  • Registered Users Posts: 776 ✭✭✭Judes


    Hi Handji,

    Just saw your post - my own advice would be go on the steroids, as it helps fight it - I mean your body is at a low - so steroids will help heal.

    Re. worried about your weight - as I said I thought I'd blow up like a balloon and I didn't - but if you cut back on calcium laden foods i.e. dairy products etc. then that will help you lose weight.

    I can't believe how many people have been on this thread with sarcoidosis -when I was diagnosed in 1996 I was told it was "very unusual" and also that it was prevalent in coloured women, (and believe me you couldn't find a paler person than me).

    But I also sympathise with everyone who has/is suffering - it is true what some posters say - you look fine to everyone else, but suffering inside. Try and be positive, get your rest and when you're feeling better start some gentle exercise. You won't be on steroids for ever more just a year or so. And I do get my bloods done 2 - 3 times a year as I also have a thyroid disorder so my ACE levels are always monitored by my doctor.

    The Specialist I saw in London was a lovely, sympathetic man as is my doctor, well, a supportive and sympatheic woman - but it really helps to have a good doctor you can really speak to.

    Stay positive and try not to dwell on it. I always get a little worried whenever any form of rash breaks out thinking it is erythema nodosum and wondering is it a reoccurance of the sarcoidosis but generally I just forget I ever had it and get on with things.

    Good luck!


  • Closed Accounts Posts: 33 aluna


    nice, positive message judes :)

    i have been lurking on a few american websites and really, i wish i hadn't, because people seem to be suffering badly and an awful reputation surrounds the disease's name.

    it is such an encouraging thought to imagine you, happy and mostly healthy, years beyond your diagnosis.

    i hear what you're saying about being a special case back in '96; i can imagine from now on, more and more people will be correctly diagnosed with this illness. there was even a letter in today's examiner about it!

    good luck everyone. we can do this! :D


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  • Moderators, Society & Culture Moderators Posts: 7,458 Mod ✭✭✭✭CathyMoran


    I still know nothing about it even though both my husband and I have it...it was found on a ct (am an oesophageal cancer survivor), since I was diagnosed with it I have gone on to have a child. Stop reading scary sites!


  • Registered Users Posts: 1,495 ✭✭✭BadlyKneaded


    aluna wrote: »

    i have been housebound for a few weeks due to massive swelling in my ankles and joint pains (accute polyarthritis).

    I am a sarc "suspect". I'm a 29 yr old girl and I've suffered for 4 years on and off with symptoms relevant to sarcoid but I have never had a definitive diagnosis. However am being monitored by the respiratory dept in James's hospital.

    My one prevailing symptom has been painful erythema nodosum and massive swelling of my left ankle accompanied by acute joint pain. My dad bought me a circulation booster the other day, I've used it one and a half times (I'm using it right now under the desk in work) and I genuinely cannot believe the relief from joint pain I've gotten in just one 30 minute use! I haven't had full range of motion in my left ankle in about 3 months and today I woke up and it goes every way except forward (EN makes the skin so tight on my shin that I can't point my toes)

    If anyone's granny has one of these knocking around I'd certainly recommend having a bang on it!


  • Registered Users Posts: 2,215 ✭✭✭galah


    galah wrote: »
    hubby was diagnosed in February, still dragging on now. He has it in his lungs, it was only diagnosed "by accident" when we had to go to casualty cause he had a very very bad flare up - all joints were inflamed, he couldnt walk, etc. Not much fun. Since then, he's had a good few tests done, and they put him on methathraxate (cancer drug) - it's getting better slowly...

    Let me know if you have any specific questions ;-)


    quoting myself here to warn other people NOT to make the same mistake...if you have sarcoid, and they put you on methatraxate, please be aware that you SHOULD NOT conceive children for as long as you are on it, and up to 6 months after, since it may cause birth defects.

    That bloody doctor who put hubby on it neglected to tell us this (even though we were just maried, and hubby is in his early 30ies, and I only found out cause I googled the medication, and then asked MY GP about it), so we have to wait to have a family. This was causing a lot of anger and frustration, so be warned. :mad:


  • Closed Accounts Posts: 33 aluna


    Hi BadlyKneaded,

    I still haven't worked out how to quote other posts! :confused:

    Besides being absolutely exhausted beyond belief, the erythema nodosum has been my real problem with sarc. breathlessness is minimal, only few manageable pains in nodes etc, but my legs and ankles are a disaster!

    have you had the symptoms in your legs for four years? how do you manage? i've had mine just since August and have found it really difficult to manage getting around much. was learning to drive but that is stopped as i can't flex my foot.

    i will definitely have a google of those circulation boosters. i'm also in my twenties so didn't think i'd need one for many years yet :D but sure how bad.


  • Registered Users Posts: 1,495 ✭✭✭BadlyKneaded


    aluna wrote: »
    Hi BadlyKneaded,

    I still haven't worked out how to quote other posts! :confused:

    Besides being absolutely exhausted beyond belief, the erythema nodosum has been my real problem with sarc. breathlessness is minimal, only few manageable pains in nodes etc, but my legs and ankles are a disaster!

    have you had the symptoms in your legs for four years? how do you manage? i've had mine just since August and have found it really difficult to manage getting around much. was learning to drive but that is stopped as i can't flex my foot.

    i will definitely have a google of those circulation boosters. i'm also in my twenties so didn't think i'd need one for many years yet :D but sure how bad.

    Jaysus! Sorry I'm only seeing your reply now! Bad Boardsie!

    I have had my symptoms on and off for four years yeah.The swelling being the main hanger on. Its a complete pain in the hoop I must say but its odd, once you get over the initial panic of "Sweet baby Jeebus how is my foot this big!!!" you tend to just learn to live with it. Something many a doctor told me to do during my early days. F*ckers.

    Lately my EN has gone away and I'm now left with extreme itchiness where it used to be. I don't know if its just damaged skin from where the patches were or something unrelated but its so extreme that I've taken to my legs with hairbrushes and drawn blood trying to satisfy the itch.

    Since the snow, my pain, which was only ever in my ankle joint, seems to have now moved into the front of my foot just below where my toes start. Its puffed out over every shoe I own (except a pair of size 11 mens slippers) and its stopped me from driving too. I dunno if the cold has exacerbated it but it seems to act up in heat too.

    I like to treat it like a pregnant lady treats her bump. I keep it well moisturised so as to avoid stretch marks and I sing to it. Well, no I just moisturise it. I find Nurofen Plus a relief with both the pain and the swelling, but now that I literally have to hoist my massive foot (Frank I call him) onto pharmacy counters to prove i'm not a codeine junkie its almost more tolerable to sit in pain.

    How have you been coping this last while? Any sign of retreat in symptoms??


  • Registered Users Posts: 131 ✭✭coolerhash


    aluna wrote: »
    hi all :)

    i was diagnosed with lofgren's syndrome a few days ago. wrote another post in this section. its a benign, self-limiting form of sarcoidosis.

    i presented with erythema nodosum and after a ct scan was found to have inflamed nodules on my lung. doctor said it was only beginning and needs no treatment. if my symptoms worsen i must start steroids.

    as you all know there is no cure. i have been housebound for a few weeks due to massive swelling in my ankles and joint pains (accute polyarthritis).

    i have to go back for a check-up in six weeks. is there anything in the world i can do to maximise my chances of getting better? i will rest. i will look into my diet, especially after reading Judes post. doc took 24 urine sample for investigation, presumably for calcium levels, but never gave me the results.

    finally, do any posters live in cork and can they recommend a gp who knows of and has an interest in sarc?

    thanks guys :)

    Hi
    Just after seeing this thread today, I'm also from Cork and was diagnosed with sarcoidosis in the lungs at stage 4 since 2009 was put on steroids and now on a steroid and methotrexate combination at the moment.The pulmonary doctor i have is Dr Barry Plant in the CUH (find him to be very good and nice to talk to).
    I hope your getting on all right, i know i have my good days but mostly bad days, have been out of work since.
    Its a strange and weird disease that affects every part of your body


  • Closed Accounts Posts: 9,821 ✭✭✭RxQueen


    Sorry for bumping this again, but anyone ever put on malaria tablets fo this ???


  • Moderators, Society & Culture Moderators Posts: 32,278 Mod ✭✭✭✭The_Conductor


    emo!! wrote: »
    Sorry for bumping this again, but anyone ever put on malaria tablets fo this ???

    What do you mean by 'malaria tablets'? Chloroquinine? In my case- no medication given, as I've other autoimmune conditions, it was reckoned that my treatment of them would also treat the pulmonary sarcoidosis at the same time.


  • Closed Accounts Posts: 134 ✭✭1squidge


    Saw this thread and was delighted to see it. I've been diagnosed with Sarcoidosis on the lungs in January. I've also been diagnosed with HHT (Hereditary Haemorrhagic Telelangiectasia) last October. I had multiple PE in both lungs last June and a neck and back injury last February so I've been having a wonderful time lately. It was good to see peoples experience of this disease. I went for a bronchoscopy in January and that is when the Sarcoid was discovered. It was also discovered that I had Pneumonia but because I was feeling miserable all the time I didnt feel any different. My main symptoms at the moment are tiredness,aches and pains, Stomach cramps and slight breathlessness. I have a slight lung infection at the moment. I just seem too pick up any bug or infection that is doing the rounds. I was in a+e last week with severe exhaustion, stomach cramps and dizziness. It doesnt help when I'm constantly bleeding with the HHT and my blood count goes down. Anybody have both Sarcoid and HHT and what are your main symptoms. Also how are you treated/live with the illness. I should also add that I havent seen any report to say that Sarcoid is hereditary but my mother also has Sarcoidosis on the Kidneys with hypercalcaemia. Could be coincidence or the disease is more common than I think. Ger.


  • Registered Users Posts: 226 ✭✭alexjk


    I don't have HHT but I have bleeding along with sarcoidois. I try to keep to an anti-inflammatory diet which is often easier said than done and that usually keeps the bleeding under control but I have no idea if that would be helpful as a treatment for HHT.


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  • Closed Accounts Posts: 5 Blackee


    [QUOTE=Judes
    The other thing is they were very strict about my diet - I was told NO NO NO to vitamin A and vitamin D - keep out of the sunshine (as it converts vitamin D into calcium). And I changed from white to brown flour products and watched every morsel I was eating. And I actually forgot I had it. as I did feel good.

    A friend of mine was diagnosed over here with it, about 2 years ago - but was told nothing about the Calcium out of the diet. Apparently, the reason I got the erythema nodusum was that I had an allergy alright - to calcium, as my own body was manufacturing the vitamin A & D into calcium too quickly, so I was poisoning my own body. One of the things Sarcoidosis could do. At the time because of this calcium over-dose they were more worried about my kidneys being badly affected JUDES[/QUOTE]

    @Judes - Was the diet specific to your case or would it have been recommended for other sarcoidosis patients I wonder? Do you have any further details/list of foods to steer clear of? I have suspected sarcoidosis and while my diet would be fairly healthy I'm still quite fatigued so was curious to know if there were any other ways to increase my energy a bit,
    Thanks in advance
    Blackee


  • Closed Accounts Posts: 5 Blackee


    Judes wrote: »
    Hi Handji,

    Just saw your post - my own advice would be go on the steroids, as it helps fight it - I mean your body is at a low - so steroids will help heal.

    Re. worried about your weight - as I said I thought I'd blow up like a balloon and I didn't - but if you cut back on calcium laden foods i.e. dairy products etc. then that will help you lose weight.

    I can't believe how many people have been on this thread with sarcoidosis -when I was diagnosed in 1996 I was told it was "very unusual" and also that it was prevalent in coloured women, (and believe me you couldn't find a paler person than me).

    But I also sympathise with everyone who has/is suffering - it is true what some posters say - you look fine to everyone else, but suffering inside. Try and be positive, get your rest and when you're feeling better start some gentle exercise. You won't be on steroids for ever more just a year or so. And I do get my bloods done 2 - 3 times a year as I also have a thyroid disorder so my ACE levels are always monitored by my doctor.

    The Specialist I saw in London was a lovely, sympathetic man as is my doctor, well, a supportive and sympatheic woman - but it really helps to have a good doctor you can really speak to.

    Stay positive and try not to dwell on it. I always get a little worried whenever any form of rash breaks out thinking it is erythema nodosum and wondering is it a reoccurance of the sarcoidosis but generally I just forget I ever had it and get on with things.

    Good luck!
    @Judes -
    Hello....Was the diet specific to your case or would it have been recommended for other sarcoidosis patients I wonder? Do you have any further details/list of foods to steer clear of? I have suspected sarcoidosis and while my diet would be fairly healthy I'm still quite fatigued so was curious to know if there were any other ways to increase my energy a bit,
    Thanks in advance
    Blackee


  • Registered Users Posts: 776 ✭✭✭Judes


    Hi Blackee - sorry, haven't been on this thread in a long time - so only just noticed your messages there.

    I'm trying to remember - as it was all diagnosed in 1996 - originally here in Cork, but was treated by Specialist in London. I honestly can't remember if the no-calcium diet was just me or all cases. But then again it was the calcium problem that caused the erythema nodosum.

    I was diagnosed with Fibromyalgia at the end of 2009, I was in very bad pain with that and at first thought it was the Sarcoidosis flaring up again. But afer a year of the pain/injections and physiotherapy I sent off for a book by an American sufferer who advised all to go dairy free. So I've been dairy free since last September 2010 - so I'm now 9 months dairy free - and I am feeling so much better and pain free (touch wood). I'm sticking to this because when I was dairy free, when Sarcoidosis was first diagnosed, I felt better - so there is something to be said for it.

    It's really worth trying it out for a while - I am not a vegetarian - infact I think I've become more carniverous, I eat eggs - but avoid anything that is from any form of milk/whey/and careful with what type of lactose. I am definitely more energetic, have lost some weight - which is always a plus and life is good.

    A really important thing is have a positive attitude - negative things/people in your life are a drain. Make "YOU" time! It is so important for your well being. J


  • Registered Users Posts: 226 ✭✭alexjk


    I now follow a gluten free and dairy free diet and I couldn't endorse it more. I found it much harder to eliminate dairy than I did gluten, as it didn't seem as obviously bad for me and my reactions after eating dairy weren't as dramatic so it took a while to see the benefits. Now though, if I eat dairy, I can feel it.

    My joints hurt a lot less, and my skin has improved and I don't necessarily have that 'general feeling of being sick' as often as I used to. I'm going to get bloods, an ECG and an X-ray taken on Thursday. It's been a while since I've gotten them done so it'll be interesting to see what (if anything) has changed.


  • Registered Users Posts: 776 ✭✭✭Judes


    Hope all went well with your doc's visit today.

    I've cut the wheat/gluten down but not out. I'm still eating bagels and occasional sandwiches - but have replaced all my pasta/noodles etc. with rice and corn versions. I'm aiming to go wheat/gluten free but finding it tough. Whereas the dairy - the only thing I'm missing is real Cheese. Infact, I drool at the thought of cheese on toast - but alas it isn't worth the pain. Finally discovered a soya pouring cream a few weeks ago - fantastic - all those creamy dishes I missed cooking - I can cook again.

    We all have to stay positive - I also find that if I'm really busy I don't have time to think about "pain" so don't feel it. I was painting my house recently - and over stretching a lot - felt it the next day - but it was a good pain - like I knew - ooops over did it - like you would on the first day back in the gym.

    J


  • Registered Users Posts: 2,269 ✭✭✭cathy01


    Thought I put this question up, but cant see it. can anyone recommend a consultant for sarcoidosis, in Dublin,Thanks,Cathy


  • Closed Accounts Posts: 5 Blackee


    Hi

    Judes & Alexjk - its great to hear you have had success with making changes to your diet. Really motivating as i'm trying to ditch a few foods.
    I've seemingly got a mild form of the condition (ie no treatment) and i'm really trying to ensure that it does not get worse or become chronic, and looking at any natural treatments that might help. I am going to begin with food & diet, and try to keep out of the sun (easy here in ireland! ha!) It seems to be quite prevalent in scandanavia and i came across a Norweigan girl who has posted details of her anti-inflammatory diet http://www.inspire.com/Delirium/journal/diet-for-sarcoidosis/ so will start with going dairy/gluten free and see how things go for me.

    Had never heard of this before the diagnosis - its really such a mystery isnt it? Find it kindof fascinating in a way. Fascinating/Frustrating trying to explain to people what exactly it is when i barely know myself.:(:rolleyes:

    Judes, i completey agree with you about maintaining a postive attitude, making time for yourself, and trying to keep aware of (or should that be away from??!) people and situations that drain all your energy away.

    all the best.


  • Moderators, Society & Culture Moderators Posts: 32,278 Mod ✭✭✭✭The_Conductor


    It is a mystery for many people- for others though its often a co-disease along with other autoimmune diseases, such as Type 1 Diabetes or Crohns Disease- and studies have shown it (similar to other autoimmune diseases) to have a tendancy to run in families (though its not a direct correlation).

    Some people do find dietary changes helpful- providing they are in conjunction with a conventional medical approach, and follow up is provided.

    Sarcoidosis- does go through flareups at various stages (and stress and lifestyle are big contributors towards when these flareups might occur)- but also can have prolonged periods of remission- and commonly 'burns itself out' in later life (however given the nature of the disease often there may be irreparable damage at that stage).

    Its not pleasant, and is commonly misdiagnosed (I was diagnosed primarily as a result of a TB test that came back negative- prior to being put on immunosuppressants for Crohn's Disease (Imuran).


  • Registered Users Posts: 981 ✭✭✭fasty


    I'm going through a flareup at the moment after spending a good few years on a very low dose of steroids. I knew it was coming because running and cycling, which I do a lot of, were both that little bit harder.

    Interesting point about stress and lifestyle and flareups. I've been having a pretty crap time lately with work and other stuff and I wonder if it's a contributor?

    I'm glad I'm fitter now then when I was diagnosed in 2005. The whole thing depressed the hell out of me and I put on three stone. I'm sure the steroids didn't help there.

    So now I'm on a highish dose again until I see my consultant in July. Side effects are easier to deal with this time, and being more active, I'm not gaining weight but I'm a bit more moody, thirst as hell and sleeping even less than usual.


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  • Registered Users Posts: 86 ✭✭sethasaurus


    Everybody that has been diagnosed with chronic disease will do well to read this site:
    www.mpkb.org

    The Marshall Protocol is based on research and facts, despite what many doctors will tell you (They actually don't know what to tell you, in case you hadn't noticed).

    The failure of mainstream medicine is that is out of date and things like prednisone is prescribed, even though it has never been shown to be an effective treatment aginst sarc or any other chronic disease.

    The old wive's tale that something like '40% of patients get better without any treatment' is also a lie. There are no studies to prove this, apart from observation of the patient for up to a year afterwards. Improperly treated Sarcoid does come back, and it comes back with a vengeance years later.

    The new research and evidence that has come to light in the last few years has yet to filter down to your doctor or "specialist", but it is actually a huge eye-opener on all kinds of chronic disease. It is no coincidence that people with chronic diseases hardly ever have just one problem.

    Anybody can read this information and and make up their own mind and take control of their healing. Nobody involved with the Marshall Protocol is trying to sell anything either.

    There are doctors here in Ireland that will help you if you want to break free and make a proper recovery. It is not a quick process - chronic disease builds up over years, so it does take years to cure it, but hundreds of people are already walking evidence that the Marshall Protocol works.

    If you have ever put those steroid pills in your mouth, you know - they are not the solution.


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