Endometriosis? Advice needed please

JessicaV123

Hi everybody
I'm really at my wits end and I need some advice or information regarding endometriosis that is first hand and not just from a website.
I'm 21 years of age and I've had bad periods all my life. I never really realised they were bad periods until September when everything went downhill and I spoke to some friends about theres. In September it was like things took a drastic turn for the worst. I woke up one morning with a period that made me pass out with pain. I ended up spending 4 days in bed with pains down to me knees unable to move with trips to the toilet in between to either vomit or use the toilet because of violent diarrhoea. After my period left it all of a sudden began to hurt to urinate. Thinking I had a simple urinary tract infection I went to the doctor who said my urine was fine but gave me an antibiotic anyway 'to be on the safe side' after the course of the antibiotic was finished and I had no luck I went back and they said they didn't know. At this point I decided to try a different doctor and so they ended up giving me another antibiotic for a urinary tract and an antibiotic for thrush. I had neither and once again my urine was clean so once again the antibiotics didn't work. At this point I started to get severe menstrual feeling pain two weeks before my period was due and I was bed bound again. My period was a few days late but my cycle has never been the most precise and I thought my period would get rid of it and it was just a glitch in my system because the doctor couldn't find anything. I was wrong. The period was the same as the month before except I had very large clots as well. I've always had clots but nothing on the scale of these. I didn't go back to the doctor even though it continued to hurt to urinate and I was getting period type pains throughout the month without my period because I felt like it was in my head because the doctor couldn't find anything wrong. Then one night out of nowhere the pain got ridiculously bad and I kept feeling like I was going to faint. I panicked and got a taxi straight to the A and E in Galway because I had just recently moved away from home to do a masters and I live alone but my family is on the opposite side of the country. I landed in A and E unable to stand and in an incredible amount of pain at about 1am. I was triaged and hour later and given an ibuprofen which felt like taking a smartie. When it reached 9am after sitting in the waiting room all night I banged on the nurses door in tears and she told me it wouldn't be long now. When I went in the doctors did my bloods and a urine sample which they said were clean (as I suspected they would be) and I was left still in an extreme lot of pain on a seat in the corridor until 2pm. Then a doctor came up and announced in the middle of the corridor that I had an STI. With that I started crying again (sheer exhaustion) and tried to explain that it was not humanly possible for me to have an STI unless everything I learned about them had been wrong. Then he accused my boyfriend of cheating. I was discharged at 3pm in pain to go and get swabs done with my GP. Went to the GP the next day and she didn't listen either ... told me my urine was clean (again) and did the swabs. She prescribed me an antibiotic which would clear up chlamydia for two weeks and told me to continue to take it unless I got a phone call. I never got a phone call but after nothing had changed a week and half later I rang the surgery to ask should I be feeling better. They said they would ring me back and didn't. So I booked another appointment to see the doctor. She said the results had come back clear for STIs (there was no way they wouldn't) and prescribed me ponstin to help with the pain. The ponstin didn't do much and at this point I started to develop severe constipation followed by diarrhoea and then constipation again on a continuous cycle. After blood started appear in this cycle I decided to go home to my family doctor because I was getting very worried about what could be wrong. Family doctor did the urine test (clean) and bloods. I paid to go private and get an ultrasound done and I was diagnosed with polycystic ovaries. The person who did the scan mentioned the possibility of endometriosis and wrote that in the report. Fast forward to January where my diarrhoea constipation cycle turned to just constipation and I tried using senakot. After 8 and a half days I had to use an enema and I have needed to use senakot every few days since. My periods are still unbearable but completely all over the place now (last one lasted 9 days) and didn't come for 37. I ended up having to travel home from college last week after getting an actual urinary tract but as it turned out I'd had it for about 3 weeks without realising until i developed a fever and the shakes and I was vomitting. I didn't realise because it always feels that way to urinate now. Family doc is apprehensive about putting me on the pill. Second A and E visit happened on Tuesday after unbearable pain again. The doctor in A and E gave out to me saying it wasn't an emergency and told me my urine was clear and so were my bloods. She told me it's all because of constipation and even though I said that didn't arrive until November it didn't make a difference. She blamed it on the masters. I was prescribed another antibiotic for a urinary tract even though my urine was 'crystal clear' and I was given movicol for constipation and told to stick with it and it will get better (it hasn't worked yet). My GP referred me to a Gynaecologist for possible endometriosis but I have no health insurance and the waiting list is around 6 months long. Does this sound like endometriosis ? And what can I do to be taken seriously? It's taken over my whole life. I've missed so much college that it's become impossible to keep up especially in pain. I've hit a point where I'm contemplating dropping out. Im struggling to sleep because I'm petrified of what is going on inside of me that nobody seems to be too interested in helping me find out. And I'm petrified that it will ruin my chances of having children someday. I really hope it isn't endometriosis because I have read some stories after it was mentioned and I feel awful for the life that it's sufferers have to live. But is it possible that it is? At this point I just really need to know what is going on. Thanks for your help in advance and I'm sorry all of that was so long winded.

Spring29

Hi just saw your post re endometriosis. Maybe it is too late to reply or to offer recommendations/ help. Sounds like you’ve been through the mill with the medics. All I can say is that my friend who had a similar problem did very well using alternative medicine think it was homeopathy. I don’t have details of who she attended but could find out if you want. Best Regards Ann

The only way that problem will be solved for you
I'm really at my wits end and I need some advice or information regarding endometriosis that is first hand and not just from a website.
I'm 21 years of age and I've had bad periods all my life. I never really realised they were bad periods until September when everything went downhill and I spoke to some friends about theres. In September it was like things took a drastic turn for the worst. I woke up one morning with a period that made me pass out with pain. I ended up spending 4 days in bed with pains down to me knees unable to move with trips to the toilet in between to either vomit or use the toilet because of violent diarrhoea. After my period left it all of a sudden began to hurt to urinate. Thinking I had a simple urinary tract infection I went to the doctor who said my urine was fine but gave me an antibiotic anyway 'to be on the safe side' after the course of the antibiotic was finished and I had no luck I went back and they said they didn't know. At this point I decided to try a different doctor and so they ended up giving me another antibiotic for a urinary tract and an antibiotic for thrush. I had neither and once again my urine was clean so once again the antibiotics didn't work. At this point I started to get severe menstrual feeling pain two weeks before my period was due and I was bed bound again. My period was a few days late but my cycle has never been the most precise and I thought my period would get rid of it and it was just a glitch in my system because the doctor couldn't find anything. I was wrong. The period was the same as the month before except I had very large clots as well. I've always had clots but nothing on the scale of these. I didn't go back to the doctor even though it continued to hurt to urinate and I was getting period type pains throughout the month without my period because I felt like it was in my head because the doctor couldn't find anything wrong. Then one night out of nowhere the pain got ridiculously bad and I kept feeling like I was going to faint. I panicked and got a taxi straight to the A and E in Galway because I had just recently moved away from home to do a masters and I live alone but my family is on the opposite side of the country. I landed in A and E unable to stand and in an incredible amount of pain at about 1am. I was triaged and hour later and given an ibuprofen which felt like taking a smartie. When it reached 9am after sitting in the waiting room all night I banged on the nurses door in tears and she told me it wouldn't be long now. When I went in the doctors did my bloods and a urine sample which they said were clean (as I suspected they would be) and I was left still in an extreme lot of pain on a seat in the corridor until 2pm. Then a doctor came up and announced in the middle of the corridor that I had an STI. With that I started crying again (sheer exhaustion) and tried to explain that it was not humanly possible for me to have an STI unless everything I learned about them had been wrong. Then he accused my boyfriend of cheating. I was discharged at 3pm in pain to go and get swabs done with my GP. Went to the GP the next day and she didn't listen either ... told me my urine was clean (again) and did the swabs. She prescribed me an antibiotic which would clear up chlamydia for two weeks and told me to continue to take it unless I got a phone call. I never got a phone call but after nothing had changed a week and half later I rang the surgery to ask should I be feeling better. They said they would ring me back and didn't. So I booked another appointment to see the doctor. She said the results had come back clear for STIs (there was no way they wouldn't) and prescribed me ponstin to help with the pain. The ponstin didn't do much and at this point I started to develop severe constipation followed by diarrhoea and then constipation again on a continuous cycle. After blood started appear in this cycle I decided to go home to my family doctor because I was getting very worried about what could be wrong. Family doctor did the urine test (clean) and bloods. I paid to go private and get an ultrasound done and I was diagnosed with polycystic ovaries. The person who did the scan mentioned the possibility of endometriosis and wrote that in the report. Fast forward to January where my diarrhoea constipation cycle turned to just constipation and I tried using senakot. After 8 and a half days I had to use an enema and I have needed to use senakot every few days since. My periods are still unbearable but completely all over the place now (last one lasted 9 days) and didn't come for 37. I ended up having to travel home from college last week after getting an actual urinary tract but as it turned out I'd had it for about 3 weeks without realising until i developed a fever and the shakes and I was vomitting. I didn't realise because it always feels that way to urinate now. Family doc is apprehensive about putting me on the pill. Second A and E visit happened on Tuesday after unbearable pain again. The doctor in A and E gave out to me saying it wasn't an emergency and told me my urine was clear and so were my bloods. She told me it's all because of constipation and even though I said that didn't arrive until November it didn't make a difference. She blamed it on the masters. I was prescribed another antibiotic for a urinary tract even though my urine was 'crystal clear' and I was given movicol for constipation and told to stick with it and it will get better (it hasn't worked yet). My GP referred me to a Gynaecologist for possible endometriosis but I have no health insurance and the waiting list is around 6 months long. Does this sound like endometriosis ? And what can I do to be taken seriously? It's taken over my whole life. I've missed so much college that it's become impossible to keep up especially in pain. I've hit a point where I'm contemplating dropping out. Im struggling to sleep because I'm petrified of what is going on inside of me that nobody seems to be too interested in helping me find out. And I'm petrified that it will ruin my chances of having children someday. I really hope it isn't endometriosis because I have read some stories after it was mentioned and I feel awful for the life that it's sufferers have to live. But is it possible that it is? At this point I just really need to know what is going on. Thanks for your help in advance and I'm sorry all of that was so long winded.[/quote]

LegacyUser

Hi Jessica, I am writing to u as a man who has spent long days and nights with my wife in agony with the symptoms you are describing perfectly as endometriosis....we struggled for12 years to have a baby without success. We then we're referred to private consultant called Mr Alazzam in the Beacon Cl who performed a laparoscopy with robotic surgery that proved hugely successful for pain management...he is fantastic. We are in or 40s by the way. My wife had been on the pill for years to reduce inflammation but this also ruined our chances of conceiving.....the problem with Endo is that the knowledge is not there in irish GP circles...they usually stick you on the pill and send you on your way....there is only 2 options open to unfortunate ladies in this country..stay on the pill or get a laparoscopy that will check the level of inflammation and remove some tissue....preferably through robotic surgery as it is far superior than consultant naked eye...anyway this may not help but you sound like a younger version of my wife and please don't give up...we are proud parents of a little girl...take care...

GaGa21

Spring29 wrote:

Hi just saw your post re endometriosis. Maybe it is too late to reply or to offer recommendations/ help. Sounds like you’ve been through the mill with the medics. All I can say is that my friend who had a similar problem did very well using alternative medicine think it was homeopathy. I don’t have details of who she attended but could find out if you want. Best Regards Ann

Homeopathy will not help this level of pain. She will need complete excision of all of the endo first via laparoscopy and then homeopathy might help her in her recovery process.