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dublin fertility clinics premature menopause/poi/pof

  • 16-05-2016 2:10pm
    #1
    Registered Users Posts: 27


    Hi,

    I've been diagnosed (by my GP) with primary ovarian insufficiency/premature ovarian failure (age 31), and want to get a consultation to go through our options. Any advice on Dublin clinics?

    Getting married in a few weeks so we haven't actually been trying to conceive, but very conscious that if we end up going down the donor egg route, my sister is first preference, but as she's older than me we want to know the options as soon as possible...


Comments

  • Registered Users Posts: 13,175 ✭✭✭✭fits


    Very sorry to hear that. It's terrible news to hear. Did you find out your stats? I.e do you know your amh, fsh etc? What age are you? (Me Amh 1.0, FSH 16.8, antral follicle count 4, age 36)

    I am with sims and find them good. Beacon fertility might be worth checking out also. I Also recommend the book 'it starts with the egg' by Rebecca fett.

    Lister clinic in London have very good information on their website about diminished ovarian reserve and specialise in treating it. They have some PDFs leaflets on there which are well worth reading Another clinic called create in uk specialise in low stim ivf for people with DOR.

    BTW I do find gps can often be badly informed about these conditions. Best bet is to get to the specialists and find out as much as you can as soon as you can. That includes your partner too.


  • Registered Users Posts: 13,175 ✭✭✭✭fits


    Also are you ovulating? Are you getting regular periods or have they stopped?


  • Registered Users Posts: 27 looking for planning


    Thanks - i'll look them up
    Age 31. Periods about every 3 months since I came off the pill a year and a half ago. I don't actually have day 3 bloods, but he diagnosed based on mid-cycle fsh taken a month apart of 84 and 60, combined with low oestrogen.


  • Registered Users Posts: 13,175 ✭✭✭✭fits


    Mid cycle FSH is very difficult to read. Day 3 bloods are much more informative. (Albeit difficult to get if you having periods every three months).

    Honestly I don't think you have enough information to go on yet to call this POF. But I definitely would be booking in with a clinic for tests Asap.

    Are you getting menopausal symptoms? Eg hot flashes or night sweats?


  • Registered Users Posts: 27 looking for planning


    Hot flashes -maybe, but i've kind of always had them, and put it down to being bad at dealing with heat.... None of the other symptoms really, but there is a family history of early menopause - which was really the only reason that the doctor seemed willing to even do blood tests...

    How long does it normally take to get an appointment? Looking at pricelists, they all seem more expensive than gp for things like blood tests. Will they want to retest, or could I get my gp to do the relevant tests?


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  • Registered Users Posts: 13,175 ✭✭✭✭fits


    I got my GP to do a lot of tests. But GP won't be able to test AMH. Appointment waiting time with sims can be six weeks. I'd honestly phone them up soon if you decide to go with them.

    You could ask gp to do full blood count already and bring that to appointment. They will want to see your testosterone levels. And maybe other things. If you do get a period in meantime get fsh, estradiol, progesterone and LH tested on any day between day 2 and 4.

    I found temping useful but I was getting regular short cycles. I was able to confirm I was ovulating this way. I then got tested for progesterone at 7 days after ovulation.

    I wouldn't go to a clinic that doesn't use DHEA as part of their treatment. That's if POF is confirmed.

    I was where you were two months ago. It's a new world. Great that you are looking into this now. I hope you caught it in time to do something about it.


  • Registered Users Posts: 13,175 ✭✭✭✭fits


    Pm'd you


  • Registered Users Posts: 10 Dufmarie


    Hi
    Just wondering how you got on?
    I've just been diagnosed with POF, devastated is not the word. There's so much information out there its daunting and I don't know where to start. I'm 33, and my AMH is 0.2 :(

    Any tips welcome
    Thanks


    Hi,

    I've been diagnosed (by my GP) with primary ovarian insufficiency/premature ovarian failure (age 31), and want to get a consultation to go through our options. Any advice on Dublin clinics?

    Getting married in a few weeks so we haven't actually been trying to conceive, but very conscious that if we end up going down the donor egg route, my sister is first preference, but as she's older than me we want to know the options as soon as possible...


  • Registered Users Posts: 13,175 ✭✭✭✭fits


    Really sorry to hear that dufmarie. My AMH was 1.0 as you saw above but I was still having periods. In our preparations for IVF I was also found to have polyps in my uterus. I had them removed and got pregnant naturally with twins on the next cycle. I’d get to a clinic or fertility specialist ASAP. Find out as much as you can and go from there.


  • Registered Users Posts: 27 looking for planning


    Dufmarie wrote: »
    Hi
    Just wondering how you got on?
    I've just been diagnosed with POF, devastated is not the word. There's so much information out there its daunting and I don't know where to start. I'm 33, and my AMH is 0.2 :(

    Any tips welcome
    Thanks

    Hi Dufmarie,
    Sorry - haven't been on here for a while. Currently pregnant (on first attempt) thanks to egg donation from my sister. AMH was 0.4 two years ago- clinic would probably have been willing to try own-egg ivf, but given that my sister is older than me I didn't really want to waste time with something that seemed quite unlikely to work. The clinic had done scans showing very little going on with my ovaries - so it's not just amh...


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  • Registered Users Posts: 731 ✭✭✭StarBright01


    Really sorry to hear that Looking for Planning I can imagine that was hard news to hear, there are lots of options available now these days and a good clinic will be able to advise you on all. I used http://repromed.ie/ and found them great, beacon is another good option too.


  • Registered Users Posts: 10 Dufmarie


    Thanks guys, im looking for an irish clinic that wont just say theres nothing they can do except go down the route of egg donation. Im wondering if anyone who went to beacon or repromed got treated other than egg donation and ivf?
    Thanks


  • Registered Users Posts: 13,175 ✭✭✭✭fits


    Would you consider the lister clinic? They are specialists in low ovarian reserve

    https://ivf.org.uk/treatments/low-ovarian-reserve/


  • Registered Users Posts: 191 ✭✭picachu


    We used a clinic in Budapest - They are excellent. We had two successful pregnancies with low egg counts


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