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Juvenile Arthritis

  • 04-03-2016 5:20pm
    #1
    Senna
    Registered Users, Registered Users 2 Posts: 8,800 ✭✭✭


    My 2 year daughter is yet to be diagnosed with JA but we think it's extremely likely and just waiting for an appointment in Crumlin to actually confirm the diagnoses and hopefully set out a more long-term plan on how to help her.
    Her pain is currently under control with a double dose of Nurofen 3 times daily, so thankfully she's happy and healthy at the moment and to an outside observer, you wouldn't know there was anything wrong.
    JA seems to be an all encompassing diagnosis for many joint problems and pains, so I'm here just to see if anyone can give there own experiences. JA support groups information can be fairly distressing as I see a lot of cases are at the extreme end of the spectrum, I'm hoping my little girl won't be effect as badly as some poor kids.
    I'd love to hear from anyone with kids affected or of course adults that have had or are still living with JA.


Comments

  • #2
    misstearheus
    Registered Users, Registered Users 2 Posts: 2,131 ✭✭✭misstearheus


    Perhaps check out the Family --> Parenting Forum? You might come across posts there from parents with kids with J.A. that might mention it on that Forum that wouldn't be posting on here...


  • #3
    cassid
    Registered Users, Registered Users 2 Posts: 811 ✭✭✭cassid


    On facebook there is a group called arthritis under 50, a few mums who have children have JA and also Arthritis Ireland also have a juvenile section. I think its important to link in with other parents. I got it when 30 and have had replacements and auto immune/degenerative as well. Swimming is great for the joints, obviously at 2, she is limited but her legs could get a great little workout.

    If you have any problems finding the group, send me a pm and will send it to you. Hope you are doing ok yourself, have a children with numerous long term issues and can be hard on parents dealing with something totally alien . xx


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