Pmdd :(

Rumi85

I've been suffering for years with pmdd, it really is a horrible illness. I've been on every type of contraceptive pill, anti depressants etc and nothing works. I started taking yaz about 3/4 months ago and the first 2 months were great barely any symptoms but I'm suffering again. I get some physical pains but not the usual symyoms , I get back pain but my gums always hurt become very painful from the start of ovulation until my period ends does this happen to anyone else? I always suffer severe headaches and hypersomnia, a complete inability to carry out daily tasks. Also my mood is very low , I suffer with generalised anxiety and my meds have worked really well for this but when I begin ovulation its like I take no medication I just feel awful.
Anyway I'm just wondering if anybody has any good tips to help appease the severity of this illness.
Thanks

Keane2baMused

Hi there,I feel your pain,literally! It's a horrible condition and very misunderstood.

I tried all that you mentioned also. I got the mirena coil in 7 months ago and I have found a huge difference. It's not the horror story many talk about the coil being!

My symptoms have enormously decreased over the past few months. May be worth looking into if you haven't already. Your gp can give you advice on it.

Rumi85

Keane2baMused wrote: »

Hi there,I feel your pain,literally! It's a horrible condition and very misunderstood.

I tried all that you mentioned also. I got the mirena coil in 7 months ago and I have found a huge difference. It's not the horror story many talk about the coil being!

My symptoms have enormously decreased over the past few months. May be worth looking into if you haven't already. Your gp can give you advice on it.

It was suggested to me but I nearly passed out when the doctor told me I would have to be dialated , she told me by my reaction that it's probably best that I don't get it done.

I'm suffering very badly today its awful, I've literally just gotten out of bed only because I have to go somewhere , I feel so low. Its such an awful thing to deal with

Keane2baMused

Rumi85 wrote: »

It was suggested to me but I nearly passed out when the doctor told me I would have to be dialated , she told me by my reaction that it's probably best that I don't get it done.

I'm suffering very badly today its awful, I've literally just gotten out of bed only because I have to go somewhere , I feel so low. Its such an awful thing to deal with

I had to get mine done under general anesthetic as they couldn't insert it due to having had a previous c-section. I'm sure it would be possible to refer to a gynae hospital and have it in under sedation or anesthetic if having it done in your senses is too scary.

If this is having a major effect on your life (obviously it is its impossible for pmdd not to!) maybe go back to your gp and discuss that possibility.

It's such an awful condition I can really empathise

Rumi85

Keane2baMused wrote: »

I had to get mine done under general anesthetic as they couldn't insert it due to having had a previous c-section. I'm sure it would be possible to refer to a gynae hospital and have it in under sedation or anesthetic if having it done in your senses is too scary.

If this is having a major effect on your life (obviously it is its impossible for pmdd not to!) maybe go back to your gp and discuss that possibility.

It's such an awful condition I can really empathise

My doctor diagnosed me a few months back after 15 years of going to the her and asking for help. I've been on lots of anti depressants to help nothing works. I really have no idea why she won't refer me to a specialist. There are actually no more contraceptive pills that I can try I've tried all of them. I started taking yaz 4 months ago and the for the first 2 months I was fine but it didn't last

Relationships in my life are affected by my pmdd , I feel in such despair and like my world is falling down around me. I know that might sound dramatic but its exactly how I feel and then as soon as my period comes ( which isn't always most of the time I don't get it on the break from my pill) I feel like a different person.
I am at a point where I'm considering getting my ovaries removed although I don't have children and I feel doctors won't do it for me in case I change my mind and decide I want them.

I'll have to go back and ask my doctor to exhaust all options for me. I went to the well woman clinic but they weren't very helpful either

Keane2baMused

Rumi85 wrote: »

My doctor diagnosed me a few months back after 15 years of going to the her and asking for help. I've been on lots of anti depressants to help nothing works. I really have no idea why she won't refer me to a specialist. There are actually no more contraceptive pills that I can try I've tried all of them. I started taking yaz 4 months ago and the for the first 2 months I was fine but it didn't last

Relationships in my life are affected by my pmdd , I feel in such despair and like my world is falling down around me. I know that might sound dramatic but its exactly how I feel and then as soon as my period comes ( which isn't always most of the time I don't get it on the break from my pill) I feel like a different person.
I am at a point where I'm considering getting my ovaries removed although I don't have children and I feel doctors won't do it for me in case I change my mind and decide I want them.

I'll have to go back and ask my doctor to exhaust all options for me. I went to the well woman clinic but they weren't very helpful either

If you have to, read this post to your gp. You sound in desperation and I know how that feels. Honestly the mirena has helped me alot. Now I know it wouldn't be any guarantee for you but I can just advise you of my (lucky) experience of it so far in helping pmdd (and also added bonus that it's a reliable long-term contraceptive.

I went from having 2 full weeks a month of hell (very heavy period, extreme pain, nausea/vomiting, migraine and headache, anxiety, major depsession, anger etc) to now having no period essentially, and all of the rest of my symptoms are essentially gone (except for migraine and headaches that I have suffered with a long time.

I felt exactly the same with wanting to have my ovaries removed. After having children the pmdd got so much worse which is why after my 2nd child I got the mirena 10 weeks after the c-section.

Go to your gp and say you cannot leave his/her office until you get some concrete help with this. Nobody should have to go through it.

Keane2baMused

And honestly, if your GP is unhelpful next time you go to her then you absolutely should find a new doctor who is willing to.

It's truly awful to be fobbed off and you don't have to accept her opinion.

Rumi85

Keane2baMused wrote: »

If you have to, read this post to your gp. You sound in desperation and I know how that feels. Honestly the mirena has helped me alot. Now I know it wouldn't be any guarantee for you but I can just advise you of my (lucky) experience of it so far in helping pmdd (and also added bonus that it's a reliable long-term contraceptive.

I went from having 2 full weeks a month of hell (very heavy period, extreme pain, nausea/vomiting, migraine and headache, anxiety, major depsession, anger etc) to now having no period essentially, and all of the rest of my symptoms are essentially gone (except for migraine and headaches that I have suffered with a long time.

I felt exactly the same with wanting to have my ovaries removed. After having children the pmdd got so much worse which is why after my 2nd child I got the mirena 10 weeks after the c-section.

Go to your gp and say you cannot leave his/her office until you get some concrete help with this. Nobody should have to go through it.

Yeah I'm gonna go back to my gp this is awful!!
I have to start my pill again Saturday I've gotten no period on my break but I'm feeling all of the symptoms , I feel so neausous and exhausted , headaches, not sleeping and now I have to go to work and try to be okay its so horrible.

Thanks for your kind replies x

amdublin

What about if you don't take break on the pill? Therefore you won't ovulate? You could discuss with your GP this as a solution for the pain while you're ovulating.

Keane2baMused

amdublin wrote: »

What about if you don't take break on the pill? Therefore you won't ovulate? You could discuss with your GP this as a solution for the pain while you're ovulating.

Unfort PMDD is a much wider problem than ovulation pain. Severe pain comes along with depression, mood swings, nausea/vomiting etc which skipping the pill free period doesn't really solve :-(

amdublin

Keane2baMused wrote: »

Unfort PMDD is a much wider problem than ovulation pain. Severe pain comes along with depression, mood swings, nausea/vomiting etc which skipping the pill free period doesn't really solve :-(

Oh my gosh absolutely I know. But in the OP's case she seems to be suffering directly related to ovulation according to her posts. So if she doesn't ovulate it might help her.

Keane2baMused

amdublin wrote: »

Oh my gosh absolutely I know. But in the OP's case she seems to be suffering directly related to ovulation according to her posts. So if she doesn't ovulate it might help her.

Yeah I would be the same as would many with PMDD. Mid cycle is when it all starts and and can last between 7 and 14 days until your period arrives then you feel like a normal person again, which seems to classical of the the condition :-/ . Only since getting the mirena in I'm seeing a light at the end of the tunnel!

Keane2baMused

I think a huge part of the problem is that many GP's aren't equipped to deal with this condition. They may not really understand the distinct difference between normal PMS and what is an extremely debilitating disorder.

Sound Bite

Would you consider talking to the well woman clinic?

I found my doctor poor enough on female health issues, my gynaecologist was excellent in treating pain but neither were very helpful regarding pms/pmdd etc. The WWC were much more helpful in that regard.

Rumi85

amdublin wrote: »

Oh my gosh absolutely I know. But in the OP's case she seems to be suffering directly related to ovulation according to her posts. So if she doesn't ovulate it might help her.

I've been on 13 different contraceptive pills some of which i never took a break and the symptoms where just as bad...

Rumi85

Sound Bite wrote: »

Would you consider talking to the well woman clinic?

I found my doctor poor enough on female health issues, my gynaecologist was excellent in treating pain but neither were very helpful regarding pms/pmdd etc. The WWC were much more helpful in that regard.

I went to the wellwoman and they suggested the mirena also... they changed my pill yet again when i was there but unfortunately did nothing

Rumi85

Keane2baMused wrote: »

I think a huge part of the problem is that many GP's aren't equipped to deal with this condition. They may not really understand the distinct difference between normal PMS and what is an extremely debilitating disorder.

Okay I'm gonna try the mirena if i get ever get an appointment with my Dr. !!! I've about 10 days to go till i get my 'period' ( i get a bit of staining for a day and that's it) and I'm in bed in bits waisting a beautiful day .... i just hope they will give me a general anaesthetic

Keane2baMused

Oh poor you OP

If it's any help the mirena is still making a big difference with my pmdd.

Nothing will ever be 100% but it's much improved which is all we can hope for.

Rumi85

What does OP mean?
I really hope it does help anything has to be better than this the months just seem to come around so quickly 😕 thanks for writing back 😊

Keane2baMused wrote: »

Oh poor you OP

If it's any help the mirena is still making a big difference with my pmdd.

Nothing will ever be 100% but it's much improved which is all we can hope for.

neemish

Have you been to a specialist rather than GP?

I went through hell for years. The physical side of it was bad enough but for most of the month I was an emotional mess. Was eventually referred to a gynae in the Rotunda and it was the best thing that could have happened. GPs are great, but they are trained to deal with general, run of the mill issues. Anything out of the ordinary and you need to see someone who specialises in this.

Rumi85

neemish wrote: »

Have you been to a specialist rather than GP?

I went through hell for years. The physical side of it was bad enough but for most of the month I was an emotional mess. Was eventually referred to a gynae in the Rotunda and it was the best thing that could have happened. GPs are great, but they are trained to deal with general, run of the mill issues. Anything out of the ordinary and you need to see someone who specialises in this.

Hey thanks for your message.... no for some reason she hasn't referred me to a specialist Ive no idea why not I've spend years in and out telling her how bad i am. I was going to her every month for months at one point. She only referred me to the rotunda to get the mirena but i chickened out because i nearly passed out when they told me what they had to do to put it in.
I made an app with her for tuesday so I'm going to suggest seeing a specialist.

neemish

I'd push for it to be honest. And if she isn't willing to do it, find some one who is.

Sometimes we have to be pro-active about our health. How I got sorted was I kept ending in hospital with emotional crises. By the fourth time, I figured out that I always had my period when I went in. I mentioned it to nurses who said, oh ya, that's co-incidental.
Went to specialist who said, actually that's quite common.

Rumi85

neemish wrote: »

I'd push for it to be honest. And if she isn't willing to do it, find some one who is.

Sometimes we have to be pro-active about our health. How I got sorted was I kept ending in hospital with emotional crises. By the fourth time, I figured out that I always had my period when I went in. I mentioned it to nurses who said, oh ya, that's co-incidental.
Went to specialist who said, actually that's quite common.

I've spent most of my life on medication was even put on lithium at one point being seeing psychiatrists/ psychologists since i was about 15 but my mother has always maintained that it's been my hormones and she can see the pattern. Obviously i have other issues but now that my mind is not clouded by them so much I've started to see the pattern myself. It's get so bad i mean last month i felt suicidal during my pms it's just not healthy i feel like drs don't take me seriously, i mean it's terrifying to think what i could do when i feel so low. What did the specialist do for you?

neemish

The amount of diagnoses I've had is incredible. Twenty years of trying different meds, of being down almost all the time.

All gone! I'm taking Zoely. I tried a few different pills but I'm extremely sensitive to meds. I was checked out for everything. Scans, bloods etc. And she recommended Zoely as being good for low mood etc

Rumi85

neemish wrote: »

The amount of diagnoses I've had is incredible. Twenty years of trying different meds, of being down almost all the time.

All gone! I'm taking Zoely. I tried a few different pills but I'm extremely sensitive to meds. I was checked out for everything. Scans, bloods etc. And she recommended Zoely as being good for low mood etc

I've never heard of zoely is it an anti depressant?