Lupus and Thyroid problem

HotHHead

Just wondering anyone suffer from either of the above or even better both together?
My mam has suffered with her thyroid for years, it has never been brought under control as in her GP still ups and changes her meds regularly. should she not have been referred to specialist at this stage? I have been trying to get her to change GP but failing, he is our family GP and he is a nice mam but he is not good with this sort of thing.

About three years ago she was diagnosed with Lupus, GP is still telling her he thinks it psoriasis. She has discoid lupus so the skin lupus but in the past year has started to suffer with joint pain and some of the other symptoms of systemic Lupus. There are a few groups but these seem to mainly revolve around systemic lupus and discoid is ignored. She doesn't be sent for regular blood test.

She was in Beaumont but I have to say I haven't found them good at all, she was treated more like show as she gets severe rashes, all over her whole body, she looks like she is burned its that bad. It biopsy after biopsy with no result, even the steroids at this stage don't clear the rash, she is constantly exhausted and in pain.
She has been on a few different med, placquenel (sp) and another I can't remember the name of. Both disagreed with her badly, so she was taken off them.
She then was asked to take this tab, that is used for transplant patients again, the name eludes me, but refused to take it, as she was afraid of permanently damaging one of her organs- a major side affect. she's just really afraid, I don't know what to do..
She has massive legions on her head so her hair will never grow back, its getting worse and worse. Now she does have some good days but they are getting rarer..
Any advice/or people in same circumstance's ?:(

Loopie67

Hi Hothhead,
I am sorry to hear of your mums suffering....I can empathise to a degree.

I have lupus SLE, Hypothyroid under active, RA, Solar Urtacaria, extreme skin allergies, anxiety &depression, Raynods, Dry Eye and all the effects of same. I spent 5 to 6 years going to doctors and consultants and after several visits and numerous wrong diagnosis, I finally found a consultant in Beaumont Private clinic who got my diagnosis sorted and put me on mess one by one and now two years on I am seeing the benefits.....it's not plain sailing but my flares are not as severe, hospital visits much less, skin so much better and generally managing fairly well.
The whole process is so stressful on top of being ill, however I would suggest to persevere with treatment until start seeing results and make sure the consultants really listen to all details even little things....so important, it's good to take photos of skin rashes etc for them to see. The meds are a bit scary but I believe results out weigh the risk....I'm on Plaquenil 400mg, Eltroxin 100mg, Cellcept 2000 mg, Lexapro 25mg, Xanax as needed, Corlon Pellets, Vitamin D, Calcichew, Telfast 180, Piriton and Nurofen Plus 500.
It took me 7 months to get used to Plaquenil had awful GI issues but did settle and fine ever since, my skin rashes improved quite a bit although it took guts of a year to get results. The cellecpt is an organ transplant immunosuppressant which I started 3 months ago, not doing too bad on it so far...so I believe some Meds are with the effort because when you do get results as in relief of symptoms and start feeling bit better it all seems worth it if you know what I mean.
That's just where I am coming from, I do hope she gets some good care and treatment soon.

Gentle hugs