Advertisement
If you have a new account but are having problems posting or verifying your account, please email us on hello@boards.ie for help. Thanks :)
Hello all! Please ensure that you are posting a new thread or question in the appropriate forum. The Feedback forum is overwhelmed with questions that are having to be moved elsewhere. If you need help to verify your account contact hello@boards.ie
Hi there,
There is an issue with role permissions that is being worked on at the moment.
If you are having trouble with access or permissions on regional forums please post here to get access: https://www.boards.ie/discussion/2058365403/you-do-not-have-permission-for-that#latest

info required on dystonia

  • 29-10-2013 10:14am
    #1
    astra93
    Registered Users, Registered Users 2 Posts: 10 ✭


    Hi i have just got a few queries have been diagnosed with trapysis dystonia on my left arm i have had one round of botox back in July and did not get much relief from it i went back last week for another round but so far still feel stiffness and pain on my neck area and down my left arm the doctor said there is nothing more that she can do as she was instructed to give me the injections and said to go back to my gp for further referrals just don't know what to do from here is there any other forms of treatment for this condition thanks in advance


Comments

  • #2
    hoopoe
    Site Banned Posts: 2 ✭hoopoe


    Hi Astra93
    I have had dystonia for some years and have tried many different drugs and treatments. If the botox did not work, the next line of attack would be EMG-guided botox treatment. EMG = Electromyography. I do not believe this is available in Ireland. I was referred to the National Hospital for Neurology and Neurosugery in London, UK. Unfortunatey this did not help either. Problem with dystonia is that it can spread to other parts of the body without warning. There are some good neurologists in Galway with experience of movement disorders - not all neurologists are the same - some have virtually no experience of dystonia and specialise in just, say, epilepsy. Drugs such as Baclofen (Lioresal), clonazepam, tetrabenazine (Nitoman), procyclidine (Kemadrin), biperiden (Akineton), and Sinemet can be helpful. Sinemet is only helpful if you have so-called DRD (dopa-responsive dystonia). The other problem is that some of these medications can eventually make the condition worse - the brain does a u-turn and changes it's response. Please note I'm not a doctor, I'm just stating my experience. There is a great facebook group called Neuronauts if you need information. Good luck and I hope you get help soon.


Advertisement